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Medical Forum / Diseases and Disorders / Hepatitis / March 2006Sides
Why is that one week the sides are manageable and the next week they knock you on your a.s. I find the fevers very difficult to handle. Some weeks I have blinding headaches and this week incredible bone and muscle pain. Mags 20 weeks left Hi Mags, I wish I had an answer. Because we're both going through the same thing. My muscles and joints ache and hurt so bad that I can barely walk. I look like an old man hunched over taking baby steps. Getting up stairs is awful. My knees, hips, neck, shoulders, wrists, and knuckles are killing me. No amount of pain killers seem to help. <<sigh>> Off my soapbox mags. I think our bodies are doing some type of pendulm swing. On each arch are really, really bad sides and in the middle it's ok. Maybe our age? I'm 46 and feeling about 82. I think my thyroid has something to do with it also. Do you get your TSH checked on a routine basis? Sorry, but my hands hurt. later.... > Why is that one week the sides are manageable and the next week they > knock you on your a.s. I find the fevers very difficult to handle. [quoted text clipped - 3 lines] > Mags > 20 weeks left I will be 53 this year and feel a lot older. I had my thyroid tested and apparently its fine. I think KJ is on to something here. For the last month I havent been eatting too healthy as I just don't have an appetite. I also have noticed that the Eprex makes me just as sick. Whine Whine Whine Mags note the h ok ok just catching up= what is this about thyroid you all talk about?? Please fill me in. As soon as one side is discussed like magic I get it the next day. Elmo and his memory problems? Just started- day after I read his post. Please tell me about thyroid...I know little about it. The drug information on our treatments can be vague sometimes. Wow Puckertoe - and Mags yes why is that that there are good and bad days? Yes also I feel like an 89 year old shuffling along and stopping to rest.' Mags: The leg pain, muscle AND the bone pain on top of it Painkillers? The only OTC pain relief that worked the best for me is ibuprofen. Tylenol was recommended for me, but it didn't kill the splitting headaches. I got the rigors, what about you? You must have if you have those sides. My fingers and toes.sometimes I have to pry them open again. Two days later you feel good enough to get stuff done but not as much as I' m used to be doing before tx. I clean out the cat box and change the bird's papers and I'm beat. Some days I can do a lot more. K King of the Hill's on so I've got to stop now... Hey siders: I found V-8 vegetable juice to be good. But not too much, because it is so acid, and my skin reacts to concentrated tomato products. Also, Slimfast powder mixed with milk or soy milk is good for concentrated nutrients. And of course, bananas for potassium. Kathy For potassium, I use apple juice(not cider). Different brands have different amounts. Some don't list it at all. We buy "Tree Top" it has tons of potassium!! In fact, more than the supplement my doc wrote a script for!  SignatureShawn (use the "reply feature on your browser to send a private reply via E-Mail.) > Hey siders: I found V-8 vegetable juice to be good. But not too much, > because it is so acid, and my skin reacts to concentrated tomato products. > Also, Slimfast powder mixed with milk or soy milk is good for concentrated > nutrients. And of course, bananas for potassium. > > Kathy Mags: The leg pain, muscle AND the bone pain on top of it Painkillers? The only OTC pain relief that worked the best for me is ibuprofen. Tylenol was recommended for me, but it didn't kill the splitting headaches. flifla,surely you aren't relying on OTC meds for mod. to severe pain.I'm suffering from the same sides but I'm taking Norco and it helps a lot.In fact if my BCLD ever takes them away while I'm on TX I'll have to stop TX all together.Although that's unlikely since my BCLD wants me to take them and has lectured me about it. BrianD What's norco??Ive never heard of it . Yes the ibuprofen doesn't relieve all the pain, it's just the one that I've found that works best so far. I still hurt but I just say "ugh.." and sigh a lot. Norco is the brand name for hydrocodone bitartrate (synthetic opioid) combined with acetaminophen (tylenol). It is a low-grade narcotic analgesic. Also known as Vicodin. FWIW, codeine products, eg Tylenol 3, are generally considered weaker, less 'dangerous' and Oxycodone is regarded as a closer step toward the big leagues, re pain relief and ‘addiction' issues. I take something similar to Norco, for back pain It is called Vicoprofen. It is hydrocodone + ibuprofen, rather than acetaminophen. i take it because I need the anti-inflammatory action of ibuprofen, and acetaminophen remains a controversial issue for folks with liver disease. http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a601006.html Kathy kj Koko (not Sara, Lol) done with tx, getting better "Flif wrote: "What's norco??Ive never heard of it . Yes the ibuprofen doesn't relieve all the pain, it's just the one that I've found that works best so far. I still hurt but I just say "ugh.." and sigh a lot." > What's norco??Ive never heard of it . Yes the ibuprofen doesn't relieve > all the pain, it's just the one that I've found that works best so far. > I still hurt but I just say "ugh.." and sigh a lot. It's Hydrocodone with 325mg acetaminophen instead of 500mg.Much easier on the old liver.They knock my joint pain and migraines out. Well, like I said all the pain doesn't go away, just enough to be bearable! The migraines- I get a pain on both sides of my head. I have never suffered from headaches in my life til this. The bone pain, the cramps in my legs, everything. The last time I took Vicodin I became dependent in a short time and am a little fearful of taking it again :( you said it's easier on the liver. Is that referring to acetominaphen? I don't like it. It doesn't work for me at all. I wish I had a sign with flashing lights on it that said "I'm in pain! I'm in pain!" hi flifla What you call "rigors" is probably the best description of what happened to a couple of my finger joints and tendons, but it started after tx was completed in September. Well, anyway thank the good, it has just recently given up on me, with the help of some expert advice from a friend (simply flex repeatedly and rub with other fingers or thumb) I would not have even concieved of causing myself so much pain, until quite unexpectedly, the condition started to subside on its own. It got easier for me to get them flexed and set for the day, early in the morning. On the oooo-eeee side I think that the arrival of Spring helped too. We know by this support group and through experience that not everyone shares all the same side effects. Or to the same degrees. Your side effects will change through a spectrum of discomfort as your treatment continues. You knew full well that it would before you started, I suppose. Hopefully your fingers will straighten without to more complication or pain. I had no bone pain, by the way. I had leg cramping a couple of times where I almost passed out. I took Potassium, Chromium and Selenium to try and reduce the cramps And yes the minerals seemed to minimize the cramping. Those particular minerals are used by many low-carb dieters as supplements during the radical induction phases. For me to blame Hep C treatment totally is a bit brash, but by Sherlock Holmes method, there was no other cause that I could deduce. The finger lockup and creaky feeling in the finger tendons between joints (with considerable pain) seems to be a less noticed or prominent side effect perhaps. The Liver folks did not want to venture a guess without an examination or something, and didn't set a percentage of post-tx people that share the problem with me. But my doctor would not go too far to make a guess, he ventured to say that may have been my body's response to the treatment, somehow. He speculated that it was the IFN, but he was that familiar with the specific files on recovery from tx. He said it was powerful stuff. His suggestion was that I just wait it out and try exercising it as they became more flexible. Which is what I did. hopefully you lose those particular sides, soon and kick that dragon's a.s cactus jammies ////////////////////////////////////////////////////////////////////////////////////// > Wow Puckertoe - and Mags yes why is that that there are good and bad > days? Yes also I feel like an 89 year old shuffling along and stopping [quoted text clipped - 12 lines] > the bird's papers and I'm beat. Some days I can do a lot more. > K King of the Hill's on so I've got to stop now... Puckertoe which treatment are you on? I am on Interferon 2b, the one that claims to have more side effect. Mags Hi Mags, the only thing I can suggest, from my experience, is that your blood sugar and electrolytes (eg. sodium, potassium) are out of whack because you aren't eating right (?) Hope this helps, kj "Why is that one week the sides are manageable and the next week they knock you on your a.s. I find the fevers very difficult to handle. Some weeks I have blinding headaches and this week incredible bone and muscle pain." Mags 20 weeks left Sorry to hear about all your problems, Mags, but imagine how good it will feel when you finish and get your SVR! :) David > Hi Mags, the only thing I can suggest, from my experience, is that your > blood sugar and electrolytes (eg. sodium, potassium) are out of whack [quoted text clipped - 9 lines] > Mags > 20 weeks left Probably as good as you are this week! You did it David. Mags loving the sunshine today > Probably as good as you are this week! You did it David. Not quite. I've got 2 injections of Eprex, 1 of Neupogen, 1 of INF and 11,400 mg of Riba to go...but who's counting? ;) David 47/48 Sides Group: alt.support.hepatitis-c Date: Sun, Mar 26, 2006, 1:22pm (CST-2) From: Chillnil@rogers.com (mags) Why is that one week the sides are manageable and the next week they knock you on your a.s. I find the fevers very difficult to handle. Some weeks I have blinding headaches and this week incredible bone and muscle pain. Mags 20 weeks left //////// It's a mixed bag, Mags. That's just the way it works. My opinion is that in addition to your body becoming saturated with riba over the past 4 weeks, that your body chemistry is getting out of wack somewhere. I think it will probably show in your labs. Feel better. woood ya? elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Thanks Elmo. I have had riba saturation over the past 6 months. Just moaning and groaning. Mags pretending she is now Geno 2 Re: Sides Group: alt.support.hepatitis-c Date: Mon, Mar 27, 2006, 10:51am (CST-2) From: Chillnil@rogers.com (mags) Thanks Elmo. I have had riba saturation over the past 6 months. Just moaning and groaning. Mags pretending she is now Geno 2 //////// Umm,.....<elmo slaps himself upside the head> of course I knew that! ahahahahahaha elmo wow, man! I almost broke my neck! http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Smiling Wickedly, elmoemerson@webtv.net answered: > > wow, man! I almost broke my neck! Use the OTHER hand. That way it'll feel like somebody else. LOL! Signature*..· ´¨¨)) ¸.·´ .·´¨¨)) ((¸¸.·´ .·´-:¦:-((¸¸.·´(º·.¸(¨*·.¸ ¸.·*¨)¸.·º) «.·°·. Michael .·°·-:¦:- Re: Sides Group: alt.support.hepatitis-c Date: Wed, Mar 29, 2006, 2:35am (CST+6) From: mlarends@NODAMNSPAMearthlink.net (Michael Arends) Smiling Wickedly, elmoemerson@webtv.net answered: wow, man! I almost broke my neck! Use the OTHER hand. That way it'll feel like somebody else. LOL! -- *..· ´¨¨)) ¸.·´ .·´¨¨)) ((¸¸.·´ .·´-:¦:-((¸¸.·´(º·.¸(¨*·.¸ ¸.·*¨) «.·°·. Michael .·°·-:¦:- //////////// bwoob bwoob bwoob bwood bwood. niech niech niech. OUCH!! Cut it out, Moe! elmo stooge http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum OK, back to me again LOL! Have gotten a cough/wheeze since while on treatment. It's very annoying and doesn't feel right and hasn't gone away. I see my specialist today (Oncology, the center where I get my Neulasta) and will bring it up to him and/or to my gastro. I have had any and all side effects possible so many things I have not brought up to my doctor, I told her I am suffering all of the sides listed by the manufacturer so I assume she knows what I am going through. My question is: Do we mention every thing to our physician? I don't want to waste their time so I condense it into one statement: Dr so and so, I am suffering all of the side effects possible" and I leave it at that...or should I specify my symptoms etc.? They can tell almost everything from blood work. I feel that talking about all of my symptoms is redundant. Do you agree? Plus she asks me lots of questions to find out how I am. Also have come to the realization that it's impossible for me to work. Got forms for Short term disability. Hope I remember to bring them with me to the Dr.! > OK, back to me again LOL! > [quoted text clipped - 23 lines] > Got forms for Short term disability. Hope I remember to bring them with > me to the Dr.! Hey flif.....I would tell the docs the same thing, condensed, and to the point. They didn't ask many questions. I think the labs tell the story though. Maybe ask your provider what they prefer you report. Good luck with the short term! Also hope you get to feeling better and no new sides pop up! dort >> OK, back to me again LOL! >> [quoted text clipped - 32 lines] > > dort My BCLD has a form that his patients have to fill out before each visit.It lists the common sides and asks which sides that the patient is having,if they are mild,mod,or severe.Whether they are constant or come & go and which ones if any are making your day to day living difficult.It ends with a big section for you to add anything not listed or for general comments and questions.This makes things go much faster when the Doc or PA does their exam. BrianD Gee that's a good idea! >OK, back to me again LOL! > > Have gotten a cough/wheeze since while on treatment. It's very >annoying and doesn't feel right and hasn't gone away. I see my >specialist today (Oncology, the center where I get my Neulasta) and >will bring it up to him and/or to my gastro. The cough thing is quite common under combo tx. It takes a while to really get going, I attribute it to the Riba taking hold. It'll go away a month or so after EoTX. >I have had any and all side effects possible so many things I have not >brought up to my doctor, I told her I am suffering all of the sides [quoted text clipped - 16 lines] >Got forms for Short term disability. Hope I remember to bring them with >me to the Dr.! I would make it a practice to write down everything, then when you get to the doc's office you can relate what you still find significant, lest you forget (which would be also pretty common while under tx ;-) Cheers /greyhackles Hi Flif!! Write down your sides and present to your doc every time you go in. It's important to document everything you can!!! I can't state this strongly enough! It's going to be very important to your insurance claims and any disability especially including SSDI if it get's to that. Once again, I can't state this strongly enough!!! SignatureShawn (use the "reply feature on your browser to send a private reply via E-Mail.) > OK, back to me again LOL! > [quoted text clipped - 23 lines] > Got forms for Short term disability. Hope I remember to bring them with > me to the Dr.! Flif: What Shawn wrote is absolutely correct. You don't know what is down the road. And if you ever have to go SSDI or SSI, you will need every scrap of paper you can produce. I started printing my sides and symptoms, very briefly in outline, plus whatever else seemed relevant to the appointment, and leaving them with the docs. Sometimes they kept it in their files, sometimes not. Always keep copies in your computer and on paper. Routinely send forms to your medical people asking for copies of their files. you are entitled. I am part way through the long term SSDI battle. It sucks. If in doubt, buy this book: Nolo's Guide to Social Security Disability: Getting & Keeping Your Benefits http://www.amazon.com/gp/product/0873379144/ref=sr_11_1/104-5841378-9516716?%5Fenco ding=UTF8 Kathy "Hi Flif!! Write down your sides and present to your doc every time you go in. It's important to document everything you can!!! I can't state this strongly enough! It's going to be very important to your insurance claims and any disability especially including SSDI if it get's to that. Once again, I can't state this strongly enough!!!" SignatureShawn thanks, thanks! Just an example I personally have 10 bankers boxes of files and growing. My gastro has 15 vertical four drawer filing cabinets dedicated to my case only!! That doesn't count the University of Washington. SignatureShawn (use the "reply feature on your browser to send a private reply via E-Mail.) > thanks, thanks! |
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