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Medical Forum / Diseases and Disorders / Hepatitis / March 2006Phun at the Pharmacy
Well I`ve been lurking here since shortly after starting treatment 10 weeks ago but I figure its time to share. It was almost a year ago when my doc noticed my enzyme levels during a routine physical so a few more tests and he confirms I have hep c so he refers me to the specialist. This gastrointesologist or whatever the quacks moniker is sends me for blood tests for about 6 months while my enzyme levels bounce around and finally says, "Yep you should go for treatment, but I don`t do it so I will have to refer you to another specialist." What a waste of time and blood samples. So by the time my new specialist gets all his tests done and Pharmacare approval for funding (12 weeks initially to see if I respond before they fund the full 48 weeks) it was Jan 18 before I picked up my Redipen kit and took it to the Docs for my first injection. Did not sleep at all that first night from the fever and sweats and headache but by the 4 or 5th shot I have almost no sides from the shots. Just about the time the daily fatigue from the Ribaviran starts kicking in. At week 2 the docs nurse shows me how to give myself the shot so the next week I go to pick up my prescription (which they have to order in) and the box looks different so I ask the pharmacist "are these Reddipens" After they check the box and then the original RX she comes back with a sheepish look and says they will have it the next day. 2 weeks later I pick up my next RX and its not until I go for my second shot out of that box that I open up the package and low and behold there is no needle in the package. Phone the pharmacy and they say they will get one in the next day. This week I went to pick up my RX and they want me to pay the whole price. I say Pharmacare has approved me for 12 weeks treatment and they check their computer and say it was only 8 weeks and expired. Anyhow the Doc got it straightendd out the next day so I went back to the Pharmacy to pick up my RX, got home and gave myself my shot and figured what the heck, lets make sure the other reddipen box is complete so I open it and sure enough- no needle. At least this time I have a week to get a needle. Anybody else have this much fun trying to get their meds? A couple more weeks and I`ll be going for my 12 week viral load test and find out if this has been worth it so far and if I get to carry on for the rest of the 48 weeks. Good luck to all in treatment Mac > Well I`ve been lurking here since shortly after starting treatment 10 weeks > ago but I figure its time to share. [quoted text clipped - 42 lines] > Good luck to all in treatment > Mac Damn Mac....talk about if it weren't for bad luck! You need to get on your doctors case and have them sort this out. Who need's the stress of having the pharmacy not send the meds you need? I haven't had any problems. I get my meds shipped from Pharmacare out of San Antonio. Glad you came out of lurk mode! Nice to meet you. Hopefully someone here can help you with this issue. How you holding up? You sound as though your are tolerating tx well. Tell us more about you! dort Pharmacare is GREAT. I don't have to do anything. They send everything and follow up with phone calls to make sure everything is ok. The "survey" calls are annoying as hell though. I don't have time for that crap. Good luck on your 12 week test, Mac. Sounds like you've been to hell and back just to get your meds. elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Hey Mac nice to meet you. I can honestly say the drugs are the only thing that I have not had a problem with lol. Good thing your aware enough to recognize that you had the wrong drugs! Good luck on your 12 week test. Did you have a biopsy and what was our viral load? Mags geno 1 stage 1 1 Sagittarius coolwhips number 1 Oh my God. Wrong box??? I bet she was sheepish. What a blunder. Then no needle? So sorry. You don't need all that trouble. Plus you are tired anyways and then you have to keep going back etc. I think I'd report them to the appropriate board or state licensing bureau!!  SignatureShawn (use the "reply feature on your browser to send a private reply via E-Mail.) > Well I`ve been lurking here since shortly after starting treatment 10 > weeks ago but I figure its time to share. [quoted text clipped - 44 lines] > Good luck to all in treatment > Mac On Sat, 25 Mar 2006 15:51:27 GMT, "Max" <sequel5454@COLDmail.com>, in message ID <3GdVf.179713$H%4.104011@pd7tw2no>, in the newsgroup alt.support.hepatitis-c wrote: >Well I`ve been lurking here since shortly after starting treatment 10 weeks >ago but I figure its time to share. [quoted text clipped - 42 lines] >Good luck to all in treatment >Mac The more horror stories I read like this, the more I realise how lucky I was. A friend of mine was on redipens and ended up with a faulty batch. Later in the tx, she discovered that they had given her the same faulty ones back. Even worse, when she peeled off the label with her name on it, she saw someone elses name on the label underneath - breach of confidentiality or what ?!! It appeared that the faulty batch may have even been returned by a previous "owner" as well. I had pegasys myself. Less to go wrong as it's a straightforward injection of premixed liquid. I started tx later than they wanted me to, meaning that I always had 2 or 3 injections in hand in case something went wrong. They also posted me a load of blood forms before tx so when the four weekly monitoring was due, I just walked half a mile down the road to the hospital for it. I even arranged for the meds to be delivered to the local pharmacy so that I didn't have to wait in for the home delivery. Tx was difficult enough at times without having to sort out other peoples administrative cock-ups. I've never seen the specialist since the day I started tx (I was offered but chose not to unless things started going wrong). I finished tx 18 months ago. Best of luck with your tx. Keep posting and say how things are for you, won't you? thanks to all who said hello and wished encouragement. To answer a couple of the questions I have genotype 1 and my pre treatment viral load was about 1.5million. My biopsy showed a fatty liver with almost no fibrosis so I started out in a good position for treatment. I`m 51 and quit drinking almost 16 years ago. If I hadn`t quit drinking I probably would be in a lot worse shape if even still alive. Other than the Ribaviran fatigue and irritability I'm not haveing too bad of side effects. I did have psoriasis which seems to be flaring up a bit. One thing that I have noticed in this newsgroup is the several people talking about relapsing. Are they talking about completeing treatment, getting a SVR and then relapsing at a later date? Scary thoughts. Anybody know any statistics on this? My doc says he`s never seen a case of someong getting a SVR and then testing positive again, Hope he`s not bullshitting me. With my relatively good condition before starting and my intention to not miss a shot or pill I think I have a pretty good shot at success. good luck to all Mac > Well I`ve been lurking here since shortly after starting treatment 10 > weeks ago but I figure its time to share. [quoted text clipped - 44 lines] > Good luck to all in treatment > Mac >thanks to all who said hello and wished encouragement. >To answer a couple of the questions I have genotype 1 and my pre treatment [quoted text clipped - 16 lines] >good luck to all >Mac Most likely, what you are hearing are people that did the full course of therapy, were "undetectable" at the end, and then became "detectable" at their 6 month post-tx VL check. It happens, more frequently than we all wish... Best of luck on your journey... /greyhackles Hi Grey. These people you are talking about where they undetectable at 12 weeks? Mags getting scared Re: Phun at the Pharmacy Group: alt.support.hepatitis-c Date: Tue, Mar 28, 2006, 4:20am (CST-2) From: Chillnil@rogers.com (mags) Hi Grey. These people you are talking about where they undetectable at 12 weeks? Mags getting scared ///////// Mags, I believe the number of people who relapse after having been 'undetectable' at 12 weeks is somewhere around 15%. elmo RELAX!!!! http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Its a deal Elmo. Mags rethinking the wine Re: Phun at the Pharmacy Group: alt.support.hepatitis-c Date: Tue, Mar 28, 2006, 5:53am (CST-2) From: Chillnil@rogers.com (mags) Its a deal Elmo. Mags rethinking the wine /////////// Good!! You didn't blow it like the rest of those monkeys. ahahahahahahah!! elmo ree ree ree, the wine http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Good luck Max. I'm going for my 12 week test soon also........john > Well I`ve been lurking here since shortly after starting treatment 10 weeks > ago but I figure its time to share. [quoted text clipped - 42 lines] > Good luck to all in treatment > Mac |
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