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Medical Forum / Diseases and Disorders / Hepatitis / January 2006completing recovery from tx
It's been about five months since I successfully completed treatment. In that space of time, I've noticed how my body and mind want to recover from the effects of the treatment drugs (Ribavirin and Interferon). I have long believed that the body and mind (and spirit) are linked in all ways, and the depth of healing or recovery may touch each of these intertwined facets of life. Recent recovery issues I suspect are related are: My emotional state is more like the days pre-treatment. The skin conditions (similar to Rosacea) are clearing up, finallly. My swollen or inflamed finger joints seem to be loosening. All this and more, (I suspect) seems to be rolling along at its own pace in recovery mode. I am puting off cortisone shots to my finger joints, I hear that really hurts. cactus jammies I am always interested to hear about how resilience happens. It's a systems thing, to be sure, and damn hard to apply the sacred Scientific Method to. IMO it is the central mystery of this thing called 'life' Cheerio See you over in the parallel universe kj > It's been about five months since I successfully completed treatment. In > that space of time, I've noticed how my body and mind want to recover from [quoted text clipped - 7 lines] > to be rolling along at its own pace in recovery mode. I am puting off > cortisone shots to my finger joints, I hear that really hurts. Hi CJ, It's only been five months? For me, I continued feeling better and better in all ways for a couple of years, even longer, almost like your ageing process is reversed. On a day-to-day basis, sometimes you'll feel better, other times you'll feel worse, but overall the line on the chart is going up and up and up. Little game I play that you might have fun with: Look back to six months ago and compare how you felt then to how you feel today (it's always better!). My joint pain is just an unpleasant memory, but that took a couple of years after tx. Yeah, I think I'd not be too eager for the cortisone shots either. Take care, buddy, it just keeps getting better! Spidey completing recovery from tx Group: alt.support.hepatitis-c Date: Thu, Jan 19, 2006, 5:04pm (CST+6) From: CactusJammies@tetrahedron.net (Cactus Jammies) It's been about five months since I successfully completed treatment. In that space of time, I've noticed how my body and mind want to recover from the effects of the treatment drugs (Ribavirin and Interferon). I have long believed that the body and mind (and spirit) are linked in all ways, and the depth of healing or recovery may touch each of these intertwined facets of life. Recent recovery issues I suspect are related are: My emotional state is more like the days pre-treatment. The skin conditions (similar to Rosacea) are clearing up, finallly. My swollen or inflamed finger joints seem to be loosening. All this and more, (I suspect) seems to be rolling along at its own pace in recovery mode. I am puting off cortisone shots to my finger joints, I hear that really hurts. cactus jammies //////////// I'll vouch for the cortisone shots in the fingers REALLY hurting. I had 'trigger finger' in one of my thumbs when I was in-between rounds of tx and got shots for it. The doc hit the tendon sheath dead on, which also contains the nerve to my thumb. It brought a tear to my eye while he was giving it, no whimpers tho. :-) The next day was pretty bad too, the pain was excruciating til it got loosened up and finally started feeling better a couple of days later. In your case, CJ, I"m betting time will heal your pin-sticking pain better than cortisone. I had (past tense) those pains too. elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Hi Elmo Kjoh and WS, Regarding the finger joints, I find just typing seems to help, so I flex the tight tendons with fairly low impact. Practicing on my guitar is also helpful, I couldn't form a D chord without screaming last week, now with a little finger exercise, it is tolerable. I have to start picking up where I left off about a year ago or so. It sounds like this joint neuropathy is a fairly common result of treatment. I wonder if there is more ancedotal evidence noted in some journal somewhere that would illustrate the frequency of this side effect. . No, cortisone shots are NOT on the menu. Thanks Elmo for getting me straight on that! cactus jammies ////////////////////////////// completing recovery from tx Group: alt.support.hepatitis-c Date: Thu, Jan 19, 2006, 5:04pm (CST+6) From: CactusJammies@tetrahedron.net (Cactus Jammies) It's been about five months since I successfully completed treatment. In that space of time, I've noticed how my body and mind want to recover from the effects of the treatment drugs (Ribavirin and Interferon). I have long believed that the body and mind (and spirit) are linked in all ways, and the depth of healing or recovery may touch each of these intertwined facets of life. Recent recovery issues I suspect are related are: My emotional state is more like the days pre-treatment. The skin conditions (similar to Rosacea) are clearing up, finallly. My swollen or inflamed finger joints seem to be loosening. All this and more, (I suspect) seems to be rolling along at its own pace in recovery mode. I am puting off cortisone shots to my finger joints, I hear that really hurts. cactus jammies //////////// I'll vouch for the cortisone shots in the fingers REALLY hurting. I had 'trigger finger' in one of my thumbs when I was in-between rounds of tx and got shots for it. The doc hit the tendon sheath dead on, which also contains the nerve to my thumb. It brought a tear to my eye while he was giving it, no whimpers tho. :-) The next day was pretty bad too, the pain was excruciating til it got loosened up and finally started feeling better a couple of days later. In your case, CJ, I"m betting time will heal your pin-sticking pain better than cortisone. I had (past tense) those pains too. elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Hi CJ, a quick search got me tangled up in hundreds of articles with no clear answer. I wonder if you've just got plain old rheumatoid arthritis? Cortisone shots are definitely a last resort. So glad to hear you're back on the strings! So Spidey and Elmo et al, the persistant joint pain you had after tx - do you think it was just the lasting effects of having The Flu (ha!) for a year? Was it localized to a few joints? I'll tell you what this Neupogen bone pane thang is a new adventure in where things can hurt. Whine. kj P.S. Spidey: does HCV cause menopause? :) Hi Elmo Kjoh and WS, Regarding the finger joints, I find just typing seems to help, so I flex the tight tendons with fairly low impact. Practicing on my guitar is also helpful, I couldn't form a D chord without screaming last week, now with a little finger exercise, it is tolerable. I have to start picking up where I left off about a year ago or so. It sounds like this joint neuropathy is a fairly common result of treatment. I wonder if there is more ancedotal evidence noted in some journal somewhere that would illustrate the frequency of this side effect. . No, cortisone shots are NOT on the menu. Thanks Elmo for getting me straight on that! cactus jammies ////////////////////////////// > Hi CJ, a quick search got me tangled up in hundreds of articles with no > clear answer. I wonder if you've just got plain old rheumatoid arthritis? [quoted text clipped - 4 lines] > you think it was just the lasting effects of having The Flu (ha!) for a > year? Was it localized to a few joints? I had the aching knees for a good ten years *before* tx, so the drugs really perked it up. My knees were the worst. Then it kicked into high gear and every f.cking bone in my body ached. It started to subside shortly after fininshing tx, and now I seldom have any aches. > P.S. Spidey: does HCV cause menopause? :) I don't know, but with me there were a few conspicuously coincidental signs during treatment: no period, hot flashes, emotional ups and downs, etc. but then, aren't those pretty much normal for treatment? After tx, the hot flashes etc. disappeared but I never had another period (awwww, darn!) A couple of years ago the doc confirmed that I was in menopause (I HATE that word!!!) but I have no idea what caused it. Couldn't be my age.... Spidey > > Hi CJ, a quick search got me tangled up in hundreds of articles with no > > clear answer. I wonder if you've just got plain old rheumatoid arthritis? [quoted text clipped - 20 lines] > > Spidey Jeezus WS! You just described what I am going through to a T! It's comforting to know that the hot flashes may stop. Menopause, I like to think of it as men on pause....don't ask me why. Perhaps a libido thing? Ironic, no period to get in the way and then no desire. Who was it that said "It just goes to show you...it's always something!" Anyway, it's the knee joint pain that really gets to me, nothing helps. Anything work for you? dort >> > Hi CJ, a quick search got me tangled up in hundreds of articles with no >> > clear answer. I wonder if you've just got plain old rheumatoid [quoted text clipped - 30 lines] > Jeezus WS! You just described what I am going through to a T! It's > comforting to know that the hot flashes may stop. Of course they will, Dortlet! Don't you worry... <evil grin> Just hope that you're not like my friend Karen, who had them for ten years. Yup, ten years. Menopause, I like to think > of it as men on pause....don't ask me why. Perhaps a libido thing? Ironic, > no period to get in the way and then no desire. Who was it that said "It > just goes to show you...it's always something!" It doesn't kill your libido, but maybe will makes you just a bit more discriminating about W5 (who, what, where, when and why) lol! > Anyway, it's the knee joint pain that really gets to me, nothing helps. > Anything work for you? No, but then I didn't try anything. I always thought it was normal. <smacks self in forehead> Okay, back to menopause. Eat/drink lots of soy products; they contain a natural estrogen that will relieve the symptoms and are perfectly safe for our tender little livers. Spidey I had significant joint pain all over my body for about a year after I finished tx this past time, but it magicly disappeared one day and never has come back. elmo ////////// Hi CJ, a quick search got me tangled up in hundreds of articles with no clear answer. I wonder if you've just got plain old rheumatoid arthritis? Cortisone shots are definitely a last resort. So glad to hear you're back on the strings! So Spidey and Elmo et al, the persistant joint pain you had after tx - do you think it was just the lasting effects of having The Flu (ha!) for a year? Was it localized to a few joints? I'll tell you what this Neupogen bone pane thang is a new adventure in where things can hurt. Whine. kj P.S. Spidey: does HCV cause menopause? :) Cactus Jammies wrote: Hi Elmo Kjoh and WS, Regarding the finger joints, I find just typing seems to help, so I flex the tight tendons with fairly low impact. Practicing on my guitar is also helpful, I couldn't form a D chord without screaming last week, now with a little finger exercise, it is tolerable. I have to start picking up where I left off about a year ago or so. It sounds like this joint neuropathy is a fairly common result of treatment. I wonder if there is more ancedotal evidence noted in some journal somewhere that would illustrate the frequency of this side effect. No, cortisone shots are NOT on the menu. Thanks Elmo for getting me straight on that! cactus jammies ////////////////////////////// http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Smiling Wickedly, elmoemerson@webtv.net answered: > I had significant joint pain all over my body for about a year after I > finished tx this past time, but it magicly disappeared one day and never > has come back. > elmo I thought I was the only one. I've been having some real pain in my hands (knuckles) where I have never had that problem before.  Signature*..· ´¨¨)) ¸.·´ .·´¨¨)) ((¸¸.·´ .·´-:¦:-((¸¸.·´(º·.¸(¨*·.¸ ¸.·*¨)¸.·º) «.·°·. Michael .·°·-:¦:- Hi Michael, I'm sorry to hear that there are more folks with this problem, but relieved to know that there may be a common denominator tx effect amongst those of us that have it. My doctor diagnosed it as "trigger finger" but I think that is just a generic name and not definitive of the cause or anything like that. I really have hopes that my fingers will become more pliant so I can play my instruments, etc. Otherwise, I hope you are doing well. cactus jammies > Smiling Wickedly, elmoemerson@webtv.net answered: >> I had significant joint pain all over my body for about a year after I [quoted text clipped - 4 lines] > I thought I was the only one. I've been having some real pain in my > hands (knuckles) where I have never had that problem before. My wife (Randi) was having similar problems. Her doctor put her on Neurontin. It worked wonders for her!!!! SignatureShawn (use the "reply feature on your browser to send a private reply via E-Mail.) > Hi Michael, > I'm sorry to hear that there are more folks with this problem, but [quoted text clipped - 15 lines] >> I thought I was the only one. I've been having some real pain in my >> hands (knuckles) where I have never had that problem before. Smiling Wickedly, Cactus Jammies answered: > Hi Michael, > I'm sorry to hear that there are more folks with this problem, but [quoted text clipped - 6 lines] > > cactus jammies Other than the stiff and sore fingers in the morning (it gets better as the day progresses) I'm doing pretty darned good. I guess I'll see in a few months if I'm Imagining things. Signature*..· ´¨¨)) ¸.·´ .·´¨¨)) ((¸¸.·´ .·´-:¦:-((¸¸.·´(º·.¸(¨*·.¸ ¸.·*¨)¸.·º) «.·°·. Michael .·°·-:¦:- > Smiling Wickedly, elmoemerson@webtv.net answered: > > I had significant joint pain all over my body for about a year after I [quoted text clipped - 4 lines] > I thought I was the only one. I've been having some real pain in my > hands (knuckles) where I have never had that problem before. Do you masturbate Michael? Because this happened to me right after I stopped masturbation. A lot of knuckle pain. What made it worse was I got married. The knuckle pain stopped but then the baby came. With the baby came all the headaches. And for this reason I can't endorse the use of Viagra when under TX or to prevent headaches. It's probably just better to toss off. den. Hahahahahaha!!!!! Sounds like quit a circle jerk!!!! SignatureShawn (use the "reply feature on your browser to send a private reply via E-Mail.) >> Smiling Wickedly, elmoemerson@webtv.net answered: >> > I had significant joint pain all over my body for about a year after I [quoted text clipped - 12 lines] > > den. Smiling Wickedly, Maitake answered: >>Smiling Wickedly, elmoemerson@webtv.net answered: >> [quoted text clipped - 14 lines] > > den. LOL! Signature*..· ´¨¨)) ¸.·´ .·´¨¨)) ((¸¸.·´ .·´-:¦:-((¸¸.·´(º·.¸(¨*·.¸ ¸.·*¨)¸.·º) «.·°·. Michael .·°·-:¦:- > Smiling Wickedly, Maitake answered: > > [quoted text clipped - 17 lines] > > den. > LOL! Hi Michael, I'm glad you saw the intended humor. It was of course, just joking. ('cept maybe the baby and headaches part) BTW, that is very handsome friend you have in Kelsey. I often find that just being with my dog reduces pain. They really are there for us. And, the "view images" as large worked great for me on 56k dialup. i used to love visiting my Forest Ranger Uncle and Aunt in Snoqualmie (as I mentioned to Shawn, I did boot camp in Ft.Lewis) It was so cool watching the Goats on Mt.Si. My cousin recently told me that all that has changed now. (Little by little we take it away.) You have a good eye for beauty Michael, and your cam phone takes good shots. I would like to look forward to more tours. Give Kelsey a big bag of milkbones for me please. den. > Smiling Wickedly, elmoemerson@webtv.net answered: > > I had significant joint pain all over my body for about a year after I [quoted text clipped - 12 lines] > > Psst...Micheal....I am saying this even though I may come off like that Iron Justice guy, but...that joint pain may be the effexor... dort |
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