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Medical Forum / Diseases and Disorders / Hepatitis / December 2005

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genotype 1

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dell - 03 Dec 2005 19:32 GMT
recently found out that i have  HVC type 1. Started meds..on Aug, 12.
The side affects are next to unbearable (to many to discribe). My viral
load went from (46,000)  down to (75) as of Nov, 11.  I'm optimistic
that i will rid myself of this horrible virus.

Good luck to everyone!
eileen - 03 Dec 2005 21:31 GMT
> recently found out that i have  HVC type 1. Started meds..on Aug, 12.
> The side affects are next to unbearable (to many to discribe). My viral
> load went from (46,000)  down to (75) as of Nov, 11.  I'm optimistic
> that i will rid myself of this horrible virus.
>
> Good luck to everyone!

Welcome Dell, Good luck to you..........eileen
elmoemerson@webtv.net - 04 Dec 2005 13:54 GMT
Welcome, Dell.  You'll make it.  
elmo

http://community.webtv.net/elmoemerson/DocElmosHepFile

http://community.webtv.net/elmoemerson/TheFamilyAlbum
Waterspider - 04 Dec 2005 00:51 GMT
> recently found out that i have  HVC type 1. Started meds..on Aug, 12.
> The side affects are next to unbearable (to many to discribe). My viral
> load went from (46,000)  down to (75) as of Nov, 11.  I'm optimistic
> that i will rid myself of this horrible virus.
> Good luck to everyone!

Hi Dell,

And good luck to you too. By the look of the drop in your viral load, you
are indeed ridding yourself of hep c. Sorry to hear that your side-effects
are so rotten, but this does happen to some of us (everybody's experience is
different).

What is the most unbearable of your side-effects? There are a lot of
knowledgeable folks here, and most have been through treatment. Maybe, quite
likely in fact, someone will have suggestions about lessening the sides and
making the remainder of your treatment more bearable.

Hang in there, and keep us posted!

Waterspider

p.s. And welcome to ash-c.
dell - 04 Dec 2005 01:55 GMT
Hello,

That's a toughing, I would have to say it's a combination of the leg
pains, headaches, upset stomach, insomnia, diarrhea and irritability to
mention a few!  Actually, I think the worst part is how this is
affecting my family. I have a 3 1/2 year old girl, and not being able
to attend to her needs as much as i would like to get a bit much.
Sorry....don't mean to ramble on. It's difficult to express this to my
wife..got to go for now..

thank you,

Dell
Gordo Mondragon - 04 Dec 2005 04:21 GMT
Dell -

I treated the diarrhea with "acidophilus pearls", they're a form of gut
bacteria that helped me keep me more solid.
Sleeping was a problem too.  I used ambien and xanax, switched back and
forth, tried not do to ambien more than two days in a row because it
gave me worse brain fog.
The only thing that worked for the irritability for me was marijuana
baked into brownies.  Once I got the dose right I could be apparently
normal to everyone around me and I wasn't wanting to chew their heads
off.

It is difficult to explain to people who haven't been through it, so
don't worry about rambling here since you've got a crowd that
understands.

Gordo

> Hello,
>
[quoted text clipped - 9 lines]
>
> Dell
john - 04 Dec 2005 23:44 GMT
treated the diarrhea with "acidophilus pearls", they're a form of gut
bacteria that helped me keep me more solid.
Sleeping was a problem too.  I used ambien and xanax, switched back and

forth, tried not do to ambien more than two days in a row because it
gave me worse brain fog.

Hi i used ativan for sleep.Really mellowed me out.Hope im not addicted
thoe......john
Waterspider - 04 Dec 2005 07:55 GMT
> Hello,
>
> That's a toughing, I would have to say it's a combination of the leg
> pains, headaches,

Tylenol (or its generic equivalent, which I can't spell) for the aches and
pains

upset stomach, insomnia,

Gravol works great to settle your stomach *and* make you drowsy. Also, as
Gordo said, cannabis is fine too.

diarrhea

Sorry that I can't suggest anything here, but that was one side that I
didn't have.

irritability to
> mention a few!  Actually, I think the worst part is how this is
> affecting my family. I have a 3 1/2 year old girl, and not being able
> to attend to her needs as much as i would like to get a bit much.
> Sorry....don't mean to ramble on. It's difficult to express this to my
> wife..got to go for now..

For me, the absolute worst part of treatment was the weird mental things
that it did to me. Depression was a biggie, and I took antidepressants
throughout treatment (depression hits almost everyone on treatment; if
you're not taking antidepressants, see your doc a.s.a.p. and "get with the
program" as they say).

It's too bad you can't talk to your wife about this. She needs to know what
the side-effects of these big-gun drugs are, and that you'll be back to
normal after you finish with them. She needs to know that irritability,
depression and riba-rage are merely side-effects and not to take it
personally if you bark at her. As for your daughter, she too needs to know
that daddy is sick and that she needs to help him get better by not being
too demanding of your limited energy (and patience too I'm sure. I've *seen*
three-year-olds, and they're downright horrible little creatures sometimes!)

Anyway, don't beat yourself up, don't feel guilty because you're not doing
as much as you think you should be doing. Hell, don't feel guilty if you're
not doing *anything* right now and until you're through your treatment. The
most important thing (really, the most important thing) is to kill the
hepatitis c virus that's trying to kill you. You focus on looking after
yourself and getting well, and letting the big-gun drugs kick some serious
a.s with your hep c.

Take care, Dell, and keep us posted.

Waterspider
elmoemerson@webtv.net - 04 Dec 2005 13:58 GMT

Re: genotype 1  

Group: alt.support.hepatitis-c Date: Sat, Dec 3, 2005, 5:55pm (CST-2)
From: 32860@sbcglobal.net (dell)
Hello,
That's a toughing, I would have to say it's a combination of the leg
pains, headaches, upset stomach, insomnia, diarrhea and irritability to
mention a few! Actually, I think the worst part is how this is affecting
my family. I have a 3 1/2 year old girl, and not being able to attend to
her needs as much as i would like to get a bit much. Sorry....don't mean
to ramble on. It's difficult to express this to my wife..got to go for
now..
thank you,
Dell
///////////
It might help convey your situation to the wife if you took her to a
local group support meeting where she could hear and speak to others in
your's and her's situation.  Perhaps a little MJ might make things a bit
easier, if you can hide it from the little one. :-)
elmo

http://community.webtv.net/elmoemerson/DocElmosHepFile

http://community.webtv.net/elmoemerson/TheFamilyAlbum
Waterspider - 04 Dec 2005 19:54 GMT
> Re: genotype 1
>
[quoted text clipped - 16 lines]
> easier, if you can hide it from the little one. :-)
> elmo

Maybe Dell's wife would be interested in reading ash-c. Maybe she's got some
questions too that could be answered here.

WS
Julie - 05 Dec 2005 22:34 GMT
Keep up the good work.
Julie
> recently found out that i have  HVC type 1. Started meds..on Aug, 12.
> The side affects are next to unbearable (to many to discribe). My viral
> load went from (46,000)  down to (75) as of Nov, 11.  I'm optimistic
> that i will rid myself of this horrible virus.
>
> Good luck to everyone!
rjk - 06 Dec 2005 05:04 GMT
I wish you all the luck in the world. I was in a similar situation a few
years ago and I even cleared after six months, but it came back with a
vengeance. I started out at 21 million, cleared at six months and three
months later it was at 39 million. I did have to be taken off tx at six
months because it was just too hard on me. I'm running at 12 million now.
This is a very strange disease and it seems everyone is different.
Hang in there if you can; you just might beat this thing.
     RJ
> recently found out that i have  HVC type 1. Started meds..on Aug, 12.
> The side affects are next to unbearable (to many to discribe). My viral
> load went from (46,000)  down to (75) as of Nov, 11.  I'm optimistic
> that i will rid myself of this horrible virus.
>
> Good luck to everyone!
 
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