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Medical Forum / Diseases and Disorders / Hepatitis / October 2005White blood cells
Just got a call from my doctor's office. My white blood cells count is 400 but should be at 750. They are going to add another injection to take along with my Peg. Also they want me to reduce the Peg from 0.5 to 0.3. Does this sound familiar to anyone? I'm not feeling bad after my second shot, but I could really use some good news. mike m This is my opinion based off my experience and it is, "it is way to early to cut back on the Peg". Your chances of SVR are not good taking the full dose (assuming your type 1). By cutting back your Peg dose so soon , your odds get that much worse! Right now I am taking neopogin twice a week and for a long time 3 times a week to maintain my WBC count at 1.5 to 2.0 (150-200). If you take the neupo and your counts maintain, there is no need to cut back. Every article you will ever read will say your counts are going to drop because of treatment. The hard part is telling your doctor he needs more experience. They don' like us talking treatment behind their backs! Just my opinion. Buster > Just got a call from my doctor's office. My white blood cells count is > 400 [quoted text clipped - 5 lines] > > mike m Yes I am type 1. I didn't think reducing the Peg was a good idea either, just my feeling. I do understand what you are saying. However, this doesn't look like a situation that could go on too long. I may start looking for someone else soon, or do you think that would be jumping the gun a bit too soon also? Thanks > This is my opinion based off my experience and it is, "it is way to early > to cut back on the Peg". Your chances of SVR are not good taking the full [quoted text clipped - 20 lines] > > > > mike m I'd say you need to have a frank discussion with your current doctor, to make sure he understands what your goals are, and allow him to explain what is driving his decision making process in your case. I think you have to allow him that much before cutting him loose. To be better prepared in advance, you might read the Product Information sheet that comes with your Peg-IFN shots, which will point to Absolute Neutrophil Counts ("ANC") as the primary controlling factor, not overall WBC counts. Good luck /greyhackles >Yes I am type 1. I didn't think reducing the Peg was a good idea either, >just my feeling. I do understand what you are saying. However, this doesn't [quoted text clipped - 30 lines] >> > >> > mike m I guess the thing to do is tell ask him if he would hold off on the peg reduction and monitor the Neupogen. If he says no, you can start interviewing another doctor and see how they feel. You can start the treatment over like you never started if you find someone else. buster > Yes I am type 1. I didn't think reducing the Peg was a good idea either, > just my feeling. I do understand what you are saying. However, this [quoted text clipped - 32 lines] >> > >> > mike m AAHHHHHHH!!!!!! Dose reduction? Your doc is setting you up to fail tx. He should give you a chance to respond to the Neupogen before he considers dose reduction. After all, you feel relatively good, don't you? Your absolute neutraphil count is more significant than WBC's. How are they? elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Yes I do feel good. The symptoms after the second Peg shot are nothing compared to the first. I may take busters advice. Yes it is Neupogen, once a week. I don't know what my neutriaphil count is. Thanks > AAHHHHHHH!!!!!! Dose reduction? Your doc is setting you up to fail tx. > He should give you a chance to respond to the Neupogen before he [quoted text clipped - 6 lines] > > http://community.webtv.net/elmoemerson/TheFamilyAlbum Roaid, my routine is to get the lab work on Mondays and watch the counts closely. At one point the wbc went down as low as .5 (50) .8 and .9 but we did no reduction. Sometimes I wonder if we should have though. What the doc was doing was tuning the Neupogen dose in. Twice a week now and I have done 48 weeks then failed and am now on 2nd round of treatment week 55 of 72. With no dose reductions. Here again all the twicking was done on the Neupogen dose and not on the peg dose. Same thing happened on the red cells also. buster > Just got a call from my doctor's office. My white blood cells count is > 400 [quoted text clipped - 5 lines] > > mike m > Just got a call from my doctor's office. My white blood cells count is 400 > but should be at 750. They are going to add another injection to take along [quoted text clipped - 3 lines] > > mike m I haven't read all of the posts yet so you have probably already heard what I'm going to say. My first time through tx my blood work was so bad they had to reduce my dosage so I could continue. By my second round of tx Neupogen and Procrit were available and they helped keep my counts up so I could continue tx at full dosage. If possible try to maintain a full dosage of tx and check on Neupogen, it may do the trick for you as well. In my case tx didn't work, but it wasn't attributable to the reduction of dosage. The more factors you can keep in your favor the better the chance you will have at succeeding. Dwight Thanks you all for the replies. With your help, I believe I have a good idea what I should do now, or at least what I want to do. Printing some emails will also help:} Let you know how it goes. Thanks, mike m > > Just got a call from my doctor's office. My white blood cells count is 400 > > but should be at 750. They are going to add another injection to take along [quoted text clipped - 15 lines] > > Dwight |
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