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Medical Forum / Diseases and Disorders / Hepatitis / October 2005

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Bad news:  Genotype I

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anonymousone - 20 Oct 2005 00:06 GMT
I was hoping I wasnt but was prepared for the worst. They told me I am
Genotype I today.

Treatment to start next week unless I change my mind about doing it.
violinguy - 20 Oct 2005 01:49 GMT
I was genotype 1 had the virus for about 30years, weighed over 200 and was
over 60 years, old with pretreatment viral load about 1,000,000.  Two months
after 48 weeks of death on the installment plan, I seem to have been
'cured'.  Keeping my fingers crossed till the 6 month post treatment assay.
I even missed doses here and there, and quit for 4 days at about month 3,
but my Doctor talked me into going on, and not to worry about the 4 days.

My provider told me they were willing to treat me in the face of all these
negative indicators because I seemed well aware of the difficulties involved
and was determined to stick to it.  Apparently this sort of assessment is
part of their decision making protocols.

I think on the plus side, I had been completely clean and sober for 24 of
the 30 years.

So, keep up your spirits, there's hope, it seems.....

>I was hoping I wasnt but was prepared for the worst. They told me I am
> Genotype I today.
>
> Treatment to start next week unless I change my mind about doing it.
anonymousone - 20 Oct 2005 04:56 GMT
And I may have had this virus 30-35 years.
violinguy - 20 Oct 2005 06:54 GMT
Have you had a biopsy?

Of course everyone reacts differently.  I had good blood numbers going in,
so we knew I had a bit of a reserve there against anemia.

I lasted about 2/3 of the way thru the 48 week regimen without an
antidepressant, but a small daily dose of Prozak got me thru the last 1/3.
I don't know why I chose to be miserable for so long, I guess I've been on
the natch so long now I just didn't want to take anything. And, I didn't
actually feel sad or down, so I thought I was doing OK, but my thinking,
that was the problem, sometimes awake all night going over and over every
lousy thing I did or ever happened to me, just couldn't seem to lighten up
on myself, but I didn't see it as depression, because there was no weeping,
etc.  But now, post treatment about two months, I'm back to my wisecracking
old self.

> And I may have had this virus 30-35 years.
anonymousone - 20 Oct 2005 15:57 GMT
No biopsy. They did blood tests.

Mine was certainly a pre-existing condition so maybe thats why no
biopsy. My doctor certainly knew it was pre-existing, He has taken the
position it could be a "new infection" in order to get me treated.
although he certainly knows it isnt.

In other words, maybe he has to do things a certain way to keep my
insurance from being cancelled. Its kind of a minor miracle that Im
being offered treatment at all.
violinguy - 20 Oct 2005 17:24 GMT
Hmmmm, I see your point....that sure is a consideration.  Either you didn't
disclose or you just found out.....Certainly not a crucial consideration if
they will treat you without it.  I had a biopsy seven or eight years ago,
and at that time I was grade 1 stage 1.  I never had another biopsy.  Last
year I decided that at my age I wanted the treatment because I felt if it
worked, I'd have a few good years left, but if I kept doing biopsy thing
waiting for dire numbers, I might not ever decide to do the treatment. I
think I was right there, because I had talked to a lot of people with C and
we all complained of a curious lack of energy and in my case extreme
reactions to stress, sweating, for example, right, because now that I'm
clear, I feel much more alert, with a to-do list that won't quit.
Physically, I'm still pretty out of shape. On the other hand I know two guys
here in San Francisco, both with over 15 years, who're walking around with
borrowed livers, and they seem fine.  Another with about 25 years  who died
last year of some sort of liver disease after not being able to procure a
transplant.

> No biopsy. They did blood tests.
>
[quoted text clipped - 6 lines]
> insurance from being cancelled. Its kind of a minor miracle that Im
> being offered treatment at all.
anonymousone - 20 Oct 2005 04:56 GMT
Very Similar to me. Clean and sober for 29 years, and 55 years old. The
only difference is  I have had a heart attack in my past.

Anyway, thanks for encouragement.
 
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