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Medical Forum / Diseases and Disorders / Hepatitis / October 2005Tip I already have learned on day 4 of tx. Just in case someone might learn something.
I learned today that it's best to take the riba after a meal. I experimented this morning and ate the 600mg before eating. It messed up my intestinal fauna. That's a very bad no-no with myself. With portal systemic encephalopaphy, my ammonia is building already. I was actually feeling better with tx until then. I was a little weaker at times. And few times I felt muscle soarness. But still better than when the ammonia builds up. Heck. I couldn't get out of bed for over a year thinking I was going to die at any moment. I just thought my liver was shot and that was that. Didn't see a doctor at all. None of them would see me without moneys. And of course I couldn't work. Hell, I went two full months unable to even take a shower. Anyways, I'm hoping I can get metamucil to do it's job one more time for me. Two things - One - ALWAYS take your riba with some kind of fatty food. My MD said that a glass of whole milk would be sufficient. If you don't you're not going to absorb most of it and you might as well not take it at all (it's something like 70% increase in absorption.) I just looked up portal systemic encephalopaphy - have you talked to the people prescribing the treatment to you what you can eat that has fat that fits in your diet? These also worked magic on me: http://www.biogro.us/acidophiluspearls.html Shop around for the best price. They were recommended by a friend and indeed, compared to yogurt or other forms of acidophilus they were amazing. Everything was nice and firm and easy to clean up, no OHMYGOD IHAVETOGONOW experiences. Something to try.... > I learned today that it's best to take the riba after a meal. > [quoted text clipped - 13 lines] > Anyways, I'm hoping I can get metamucil to do it's job one more time > for me. >Two things - > >One - ALWAYS take your riba with some kind of fatty food. My MD said >that a glass of whole milk would be sufficient. If you don't you're not >going to absorb most of it and you might as well not take it at all >(it's something like 70% increase in absorption.) [snipped] Almost exactly the numbers I saw in the Product Info sheet for Roche's version of Ribavirin (65%). So, although I've never been much more than a coffee-for-breakfast guy, I always downed some peanut butter on toast before popping the morning Riba. It probably deepens the Riba sides, but that's the price for raising the effectivity.... Cheers /greyhackles man I couldn't get ten feet from a bathroom without sh.tting my pants. One day I tried to walk around the block and did sh.t my pants. haha, I can look back on it now and laugh, but I was so pissed at the time. I just wanted to stay home all the time.... I got used to having a bathroom in my bedroom. Right after stopping the treatment I went camping a couple of weeks after the last of the riba. I slept in the back of my pickup truck. In the morning, eyes SNAP open, OH sh.t, I'm trying to climb out of the back and "brrrrrraaaaaaappppp".... just grab a roll of paper towels for that one...... LOL......  SignatureRuss Visit Alaska @ http://www.tannersacre.com > Two things - > [quoted text clipped - 35 lines] > > Anyways, I'm hoping I can get metamucil to do it's job one more time > > for me. Smiling Wickedly, Russ answered: > man I couldn't get ten feet from a bathroom without sh.tting my pants. One > day I tried to walk around the block and did sh.t my pants. haha, I can look [quoted text clipped - 5 lines] > "brrrrrraaaaaaappppp".... just grab a roll of paper towels for that > one...... LOL...... I'm sorry Russ.. BUWAHAHAHAHAHAHAHA!!.......er......um....... not funny. Signature*..· ´¨¨)) ¸.·´ .·´¨¨)) ((¸¸.·´ .·´-:¦:-((¸¸.·´(º·.¸(¨*·.¸ ¸.·*¨)¸.·º) «.·°·. Michael .·°·-:¦:- Re: Tip I already have learned on day 4 of tx. Just in case someone might learn something. Group: alt.support.hepatitis-c Date: Sat, Oct 8, 2005, 12:23am (CDT+5) From: mlarends@NODAMNSPAMearthlink.net (Michael Arends) Smiling Wickedly, Russ answered: man I couldn't get ten feet from a bathroom without sh.tting my pants. One day I tried to walk around the block and did sh.t my pants. haha, I can look back on it now and laugh, but I was so pissed at the time. I just wanted to stay home all the time.... I got used to having a bathroom in my bedroom. Right after stopping the treatment I went camping a couple of weeks after the last of the riba. I slept in the back of my pickup truck. In the morning, eyes SNAP open, OH sh.t, I'm trying to climb out of the back and "brrrrrraaaaaaappppp".... just grab a roll of paper towels for that one...... LOL...... I'm sorry Russ.. BUWAHAHAHAHAHAHAHA!!.......er......um....... not funny. -- *..· ´¨¨)) ¸.·´ .·´¨¨)) ((¸¸.·´ .·´-:¦:-((¸¸.·´(º·.¸(¨*·.¸ ¸.·*¨) «.·°·. Michael .·°·-:¦:- ///////// When I was on tx, I took the ex out for a nice Saturday afternoon drive in the countryside of NJ, along the Delaware River. We were going to stop and have Mexican food at one of my favorite restaurants. About half an hour into our drive, I sh.t my pants with diarrhea. I just thought it was a fart. ahahahahah Needless to say, that was the end of our adventure. (talking about embarrassing) Elmo (eat rice) http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Holy sh.t Russ! Mags > man I couldn't get ten feet from a bathroom without sh.tting my pants. One > day I tried to walk around the block and did sh.t my pants. haha, I can [quoted text clipped - 47 lines] >> > Anyways, I'm hoping I can get metamucil to do it's job one more time >> > for me. > Two things - > > One - ALWAYS take your riba with some kind of fatty food. My MD said > that a glass of whole milk would be sufficient. If you don't you're not > going to absorb most of it and you might as well not take it at all > (it's something like 70% increase in absorption.) Thanks for the tip. > I just looked up portal systemic encephalopaphy - have you talked to the > people prescribing the treatment to you what you can eat that has fat > that fits in your diet? I don't have total PSE of course. The scarring of my portal areas are just like the rest of my liver. Not total but extreme in amount. My second breakfast (or second part of breakfast) is when I take my riba. It always consists of real eggs, potatoes (steamed-in-oil), and tomatoes. And sometimes a tsp of lecithin. So I'm sure I have enough fat. But I'm going to have to look into the exact way absorption of riba is accomplished. I studied all these things 25 years ago when I read "The Pharmacist's Guide To Therapeutics". An expensive college text book. If I remember correctly there are 6 ways of absorption. Active transport, osmosis, gradient, and 3 others. Wow. I can't believe I remember THAT much from back then. And now there are some days I can't remember things that happened yesterday. Ammonia poisoning is strange trip sometimes. > These also worked magic on me: > [quoted text clipped - 6 lines] > > Something to try.... I'll keep it in mind if I ever need it. But metamucil worked like magic again. If need be, I have a Lactulose prescription in the cupboard also. I'll just nuke the hell out of the little bugs with it. Or even raw garlic from the fridge will "slash-and-burn" the pests. Then plant the seeds of the good fauna with a metamucil type product. But luckily I didn't have to go to the nuclear option this time. I just reinforced the good fauna (that weren't killed immediately from the concentrated riba) with help from just one metamucil capsule. The bad fauna were killed and tossed out the back air lock within a day. > > I learned today that it's best to take the riba after a meal. > > [quoted text clipped - 13 lines] > > Anyways, I'm hoping I can get metamucil to do it's job one more time > > for me. > > Two things - > > [quoted text clipped - 4 lines] > > Thanks for the tip. It's disturbing that your doctor didn't tell you, since it makes such a huge difference. > > I just looked up portal systemic encephalopaphy - have you talked to the > > people prescribing the treatment to you what you can eat that has fat [quoted text clipped - 7 lines] > tomatoes. And sometimes a tsp of lecithin. So I'm sure I have enough > fat. LOL I think so! > But I'm going to have to look into the exact way absorption of > riba is accomplished. I'd be interested in seeing what you find. G oh the riba, stock up on the TP man, it's goo poo for a long time.... narcotics for the headaches were good for "binding" me up, hahaha... SignatureRuss Visit Alaska @ http://www.tannersacre.com > I learned today that it's best to take the riba after a meal. > [quoted text clipped - 13 lines] > Anyways, I'm hoping I can get metamucil to do it's job one more time > for me. On Thu, 06 Oct 2005 19:34:52 -0500, knewbee <nowhere@here.org>, in message ID <j1gbk1lh34hr4musu85hunup7lh4nbfp8h@4ax.com>, in the newsgroup alt.support.hepatitis-c wrote: >I learned today that it's best to take the riba after a meal. > [quoted text clipped - 13 lines] >Anyways, I'm hoping I can get metamucil to do it's job one more time >for me. I'll give you another tip. Don't try eating steamed fruit puddings :-) I tried that in week one of tx. I spat it out and dumped the rest in the bin. SignaturePaul Use the reply by email facility in your newsreader to send email > I'll give you another tip. Don't try eating steamed fruit puddings > :-) > I tried that in week one of tx. I spat it out and dumped the rest in > the bin. "Steamed fruit puddings"?? I don't even know what that is. :-) Cooking fruit is a no-no in my world. Unless absolutely required for some reason. It's bad enough that I have to put up with freezing because simple logistics. |
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