 |
 | Home | Contact Us | FAQ | Search & Site Map | Link to Us |
 | Sign In | Join | Other 45 Sites in Network |
Medical Forum / Diseases and Disorders / Hepatitis / October 2005First shot
Well I took my first shot Thursday night. I was prepared for the worst and was happy it wasn't too bad overall. I did go through bad chills like I was outside in the winter freezing followed by periods of sweating. I had a nasty headache on and off that night and the next day. Friday I was able to make it through a day of work and every few hours or so I would feel ill and then it would go away for the most part. I'm going to do my shots on Friday nights from now on and only did it this Thursday because the Doc wanted me to do the first one in the office and he wasn't going to be available Friday. All in all it wasn't as bad as I though it may be and was nervous about starting the treatment. I know it may get worse. One thing my Doctor said that seems to go against what some here say is that if I have bad side effects he will cut the dose down if needed. He claims he has only had one patient go on meds for blood disorders and I will discuss it with him at my next visit. My guess is because he cuts the meds when things start to go bad. If I can afford meds for blood cell problems wouldn't it make sense to continue full strength on pegasys and ribavarin? 47 to go. You are correct....avoid reducing the dosages, particularly for the first 6 months. It has a decidedly negative effect on your chances for SVR. This dragon requires a BIG ball bat. Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Again, pardon a seeming dumb question from a "noob": What is "SVR" Graham >You are correct....avoid reducing the dosages, particularly for the >first 6 months. It has a decidedly negative effect on your chances for [quoted text clipped - 4 lines] > >http://community.webtv.net/elmoemerson/TheFamilyAlbum >Again, pardon a seeming dumb question from a "noob": > >What is "SVR" SVR is "Sustained Viral Response". This is a post-therapy outcome where HCV virus is not detectable via blood testing. It is the gold ring. EVR is "Early Viral Response". This is an on-therapy indicator showing profound reduction in viral load, eventually all the way down to zero. If you don't get EVR, SVR is highly unlikely. Cheers /greyhackles > Again, pardon a seeming dumb question from a "noob": > [quoted text clipped - 10 lines] >> >>http://community.webtv.net/elmoemerson/TheFamilyAlbum SVR is the Holy Grail for heppers. I've only heard of it, never been close to it though. Maybe one day. I have read the other post so I know you have meaning of acronym already, but just in case it stands for Sustained Viral Response and it means that tx has probably worked for you. Dwight > All in all it wasn't as bad as I though it may be Cool. Stop thinking and that'll be your last thought about it! [If only it were so easy, eh?] > and was nervous See? That's what thinking will get you! > about starting the treatment. I know it may get worse. "Knowing" that something "may" doesn't say much. I'm tellin' ya, it's about how you choose to use your brain time. I hope you can keep working; it sounds like you will. > One thing my Doctor said that seems to go against what some here say All other things being equal, I'd advise a tendency toward what's said here, keeping a close eye on who says it and who agrees. That's my opinion anyway, because I usually rate experience higher than expertise. > is that if I have bad side effects he will cut the dose down if needed. Yeah well, that all depends on His definition of bad and need. This one I can easily advise---go with YOUR judgment. You're feelin' it and you're slayin' it, and it's your life you're saving. That's not to say go by feelings alone. There are numbers and there are judgments to be made, based on those numbers. You're getting the consequences so you should be the one making the final judgments. And really you're that, even if you don't want to be. Choosing not to judge, or leaving it to someone else, is itself a judgment of course. > He claims he has only had one > patient go on meds for blood disorders and I will discuss it with him at > my next visit. My guess is because he cuts the meds when things start to > go bad. If I can afford meds for blood cell problems wouldn't it make > sense to continue full strength on pegasys and ribavarin? 47 to go. You the man. You'll get knocked for a loop but I'm sure you've been knocked for a loop before. Just another rough step in life, that's all. You know, a lot of heppers are going to get a reward for the nightmare of it all. It's a very rare blessing to have better health at 60 than you do at 50. Zillions of heppers are going to be healthier at 70 than they were at 50. My best advice (generally, since I don't know your age) is to hold on to that, and know that you're doing this for a purpose. Here's hoping you can stay busy and distracted, as much as possible. Knock the f.cker out and know that lots of thoughts are with you. jk Well I guess we are shooting buddies - you will have to be my Rock! Mags > Well I took my first shot Thursday night. I was prepared for the worst > and was happy it wasn't too bad overall. I did go through bad chills like [quoted text clipped - 21 lines] > to > continue full strength on pegasys and ribavarin? 47 to go. > Well I took my first shot Thursday night. I was prepared for the worst > and was happy it wasn't too bad overall. I did go through bad chills like I [quoted text clipped - 14 lines] > bad. If I can afford meds for blood cell problems wouldn't it make sense to > continue full strength on pegasys and ribavarin? 47 to go. You are on your way Rock. Yes I wouldn't reduce my meds unless I was going to croak. My weight went below the initial dosage range. But I am also using the big ball bat (ELMO). I've been know n to put lots of coins in my pockets before stepping on the scale at the docs. Then go home and once again work on getting my appetite up. Please know that I am not offering suggestion, but just letting you know how important I feel it is to give it all you can. Mary Ann Re: First shot Group: alt.support.hepatitis-c Date: Sat, Oct 1, 2005, 7:33am (CDT-2) From: birdspeak@gmail.com (pajaritaflora) Rock wrote: Well I took my first shot Thursday night. I was prepared for the worst and was happy it wasn't too bad overall. I did go through bad chills like I was outside in the winter freezing followed by periods of sweating. I had a nasty headache on and off that night and the next day. Friday I was able to make it through a day of work and every few hours or so I would feel ill and then it would go away for the most part. I'm going to do my shots on Friday nights from now on and only did it this Thursday because the Doc wanted me to do the first one in the office and he wasn't going to be available Friday. All in all it wasn't as bad as I though it may be and was nervous about starting the treatment. I know it may get worse. One thing my Doctor said that seems to go against what some here say is that if I have bad side effects he will cut the dose down if needed. He claims he has only had one patient go on meds for blood disorders and I will discuss it with him at my next visit. My guess is because he cuts the meds when things start to go bad. If I can afford meds for blood cell problems wouldn't it make sense to continue full strength on pegasys and ribavarin? 47 to go. You are on your way Rock. Yes I wouldn't reduce my meds unless I was going to croak. My weight went below the initial dosage range. But I am also using the big ball bat (ELMO). I've been know n to put lots of coins in my pockets before stepping on the scale at the docs. Then go home and once again work on getting my appetite up. Please know that I am not offering suggestion, but just letting you know how important I feel it is to give it all you can. Mary Ann /////////// You sly little fox, you! The doc DID mention you looked a little 'hippy' on your last visit. Is that a Louisville Slugger I see you swinging, MA? :-) Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum > Well I took my first shot Thursday night. I was prepared for the worst >and was happy it wasn't too bad overall. I did go through bad chills like I [quoted text clipped - 14 lines] >bad. If I can afford meds for blood cell problems wouldn't it make sense to >continue full strength on pegasys and ribavarin? 47 to go. Your best shot at SVR is with full meds for the full term. Cutting your meds in the face of sides is going against what should be your goal - SVR. Don't let it happen except as a *last* resort, particularly if you and/or insurance will cover countermeasures against tanking blood work. Imnsho, any doc that immediately opts for cutting back on meds instead of treating the sides is probably the wrong doctor to be chaperoning foks through therapy. I'd watch this guy like a hawk. Keep an eye on your own interests, do your due diligence, insist on copies of all test results, chart your progress, and be prepared to take control. You can do this. You're on your way. Cheers /greyhackles > > Well I took my first shot Thursday night. I was prepared for the worst > >and was happy it wasn't too bad overall. I did go through bad chills like I [quoted text clipped - 32 lines] > > /greyhackles I plan to do as you wrote above. And will definitely do some serious questioning and going to another Doc if needed to get the best end results I can. I get armed with more information every time I come and read here from the experienced. Thanks, Jim My email offering you my wife's unused ribavarin was returned undeliverable. Send me your address. She has a month's supply left over. > Well I took my first shot Thursday night. I was prepared for the worst > and was happy it wasn't too bad overall. I did go through bad chills like [quoted text clipped - 21 lines] > to > continue full strength on pegasys and ribavarin? 47 to go. Thanks for posting. Im going in for an eye exam next week. First shot will probably not be too far away. Keep posting. I attempted to email you and offer for free the Ribavarin my wife who just 2 weeks ago finished her 48 weeks had left. My email returned undeliverable. Email your address and I'll ship it to you. > Well I took my first shot Thursday night. I was prepared for the worst > and was happy it wasn't too bad overall. I did go through bad chills like [quoted text clipped - 21 lines] > to > continue full strength on pegasys and ribavarin? 47 to go. On Sun, 02 Oct 2005 03:43:59 GMT, "coastalguy" <mauriceh@earthlink.net>, in message ID <3II%e.7804$q1.5742@newsread3.news.atl.earthlink.net>, in the newsgroup alt.support.hepatitis-c wrote: >I attempted to email you and offer for free the Ribavarin my wife who just 2 >weeks ago finished her 48 weeks had left. My email returned undeliverable. >Email your address and I'll ship it to you. I've got a few leftovers too. Only 21 riba but every little helps. They are over a year old now so hopefully they are still OK.  SignaturePaul Use the reply by email facility in your newsreader to send email Coastalguy and Paul, I sent emails. Coastalguy, yours came back to me saying your mailbox was full and to try again later, I will. I'm am glad I found this board. The support and generosity and help is something I didn't realize I would get on a internet newsgroup. Thanks to every one. I still felt decent the rest of the weekend other than bad headaches in the morning. Pretty much like a bad hangover I used to get once in a while when I was younger. I have a good attitude about the treatments though and actually feel better mentally knowing I'm doing something about it. I think the key for me is to stay busy and keep occupied. Thanks to all, Jim jgingas(takethisout)@wideopenwest.com > On Sun, 02 Oct 2005 03:43:59 GMT, "coastalguy" > <mauriceh@earthlink.net>, in message ID [quoted text clipped - 7 lines] > I've got a few leftovers too. Only 21 riba but every little helps. > They are over a year old now so hopefully they are still OK. On Sun, 2 Oct 2005 18:39:01 -0400, "Rock" <rock@nospam.com>, in message ID <Go-dnbjImOwd_N3eRVn-pA@wideopenwest.com>, in the newsgroup alt.support.hepatitis-c wrote: OK Rocky. I've replied to the email you sent. I'm in the UK so don't expect them for at least a few days. > Coastalguy and Paul, I sent emails. Coastalguy, yours came back to me >saying your mailbox was full and to try again later, I will. I'm am glad I [quoted text clipped - 21 lines] >> I've got a few leftovers too. Only 21 riba but every little helps. >> They are over a year old now so hopefully they are still OK. SignaturePaul Use the reply by email facility in your newsreader to send email That's great, Jim! Once I got past the uncertaintly of that very first shot and realized it was 'doable', my mental outlook improved. Hopefully, it'll keep going that way for you. Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum > Well I took my first shot Thursday night. I was prepared for the worst > and was happy it wasn't too bad overall. I did go through bad chills like I [quoted text clipped - 14 lines] > bad. If I can afford meds for blood cell problems wouldn't it make sense to > continue full strength on pegasys and ribavarin? 47 to go. I am going to side with the general consensus that reducing your dosage should be a last resort. Those other drugs have sides of their own and I can see why a doctor wouldn't want to have to monitor all that but lots of people have done it so if that time ever comes for you make sure your doc is going to be a help and not a hinderance. BTW...it isn't necessarily going to get worse. Everyone differs. It did get a little worse for me. I thought it was going to be easy since the first shot wasn't bad at all. Still, it was never the full on bone chilling hide under the covers with shakes kind of thing. The Riba will eventually build up in your system and add it's own .02 worth of sides but again..everyone differs. Prepare for the worst but expect the best. Attitude isn't everything but its surely something. AG Rock ha scritto: > Well I took my first shot Thursday night. I was prepared for the worst > and was happy it wasn't too bad overall. I did go through bad chills like I [quoted text clipped - 14 lines] > bad. If I can afford meds for blood cell problems wouldn't it make sense to > continue full strength on pegasys and ribavarin? 47 to go. Hi Rock, nice thing you didnt' suffer a lot on the first injection. Seems anyway you had a standard "in-range" first shot reaction. About dosage reduction: it is _not_ sure that you will show heavy side effects so better if you get worried once you will have the problem. In the meantime, keep yourself informed as thery're allowed to provide meds to control HepC standard combo terapy induced side-effects in the United States and in other countries. Drink a lot, eat right and one more thing: I remember once somebody posting a message about a study showing that Vitamin C supplements help limiting the incidence of anemia during the first 12 weeks. Try and look for it through Google, anyway talk about it with your doctor as vitamin supplements are not always a good thing for people with liver diseases. Well, good luck from here. Cheers, jeeb. |
Reply to this Message |
 Sign In
 Join
 My Latest Posts My Monitored Threads My Blog My Photo Gallery My Profile My Homepage Start New Thread Enable EMail Alerts Rate this Thread
|
©2008 Advenet LLC Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.