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Medical Forum / Diseases and Disorders / Hepatitis / September 2005Getting Scared
Just left the Dr's office. They're starting to push the idea of getting a transplant. We have to wait to see what the labs say and then talking to the transplant specialist if needed. I've already told them I want to do a round of Infergen first if I have the time. They agreed on the Infergen, but said it might be time to get on the list. Still a lot of if's, but I'm not sure just how much time I have to wait for the next tx to come around. Oh well, back to waiting again to find out what comes next. Dwight What stage are you in? Are you having any symptoms yet, if so what are they. Of course, go for treatment if you can, but if you are looking at the possibility of transplant, start looking around for friends, family who would be willing to be living donors. Allen, ltx 7/9/04 (hepc), UCSF, living donor > What stage are you in? Are you having any symptoms yet, if so what are > they. Of course, go for treatment if you can, but if you are looking at > the possibility of transplant, start looking around for friends, family > who would be willing to be living donors. > > Allen, ltx 7/9/04 (hepc), UCSF, living donor I've known about having cirrhosis since my first biopsy in '92 and have tried tx twice. The problems I'm experiencing now are fatigue and a lot of swelling in my feet and legs( lasix hasn't helped this time as it has in the past). I've also got portal hypertension and esophageal (sp) verices thrown in just to make it more interesting. I'm still scared, but hoping that a transplant is still somewhere in the far distant future if ever. I'll know more when lab results come back. I'm not looking forward to tx again, but it seems the better of the two choices. Dwight That's what was going on with me. Lasix wasn't helping the ascites, had the portal hypertension, had to get banded a few times for varices, big-time fatigue, had to go on Lactulose syrup for ammonia build-up. The transplant is not bad at all, it reverses all the problems. You will feel better than you have in 30 years. You have to take anti-rejection drugs, but they aren't bad a all. I hope you can still get tx, but a transplant isn't bad at all. It gave me back my life. > > What stage are you in? Are you having any symptoms yet, if so what are > > they. Of course, go for treatment if you can, but if you are looking at [quoted text clipped - 13 lines] > > Dwight Hang in there Dwight. As always, we seem to hurry up and wait. Take care. Life is good Mark > Just left the Dr's office. They're starting to push the idea of getting a > transplant. We have to wait to see what the labs say and then talking to [quoted text clipped - 5 lines] > > Dwight > Hang in there Dwight. As always, we seem to hurry up and wait. Take care. > [quoted text clipped - 10 lines] >> >>Dwight Thanks Mark. Tired of waiting, but not sure I want the answer just yet either. Dwight Hope the test come out better than expected and were pulling for you. buster > Just left the Dr's office. They're starting to push the idea of getting a > transplant. We have to wait to see what the labs say and then talking to [quoted text clipped - 5 lines] > > Dwight Hi Dwight! I don't blame you for being a bit scared. I would think you'd be better off shedding the hcv before a transplant rather than dealing with it afterwards, if in fact you need one. Hope you get good lab results and don't have to go that route. Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum > Hi Dwight! I don't blame you for being a bit scared. I would think > you'd be better off shedding the hcv before a transplant rather than [quoted text clipped - 5 lines] > > http://community.webtv.net/elmoemerson/TheFamilyAlbum Thanks Elmo, hope I'm just over reacting. Dwight Your condition sounds just like mine. Best of luck. Brian > Your condition sounds just like mine. Best of luck. Brian Hi Dwight. I wish you the best which ever route you end up taking. Mom >>Your condition sounds just like mine. Best of luck. Brian > [quoted text clipped - 3 lines] > > Mom Thanks Mom. Haven't heard too much from you lately, hope everything is going well for you and Katie (your sons as well). Dwight Dwight answered shakily: > Just left the Dr's office. They're starting to push the idea of getting > a transplant. We have to wait to see what the labs say and then talking [quoted text clipped - 5 lines] > > Dwight All my best to you Dwight. I'll pray for the best outcome for you. You've always been here as support for me and others. I really really hope it turns out however you wish. Godspeed to you...  Signature*..· ´¨¨)) ¸.·´ .·´¨¨)) ((¸¸.·´ .·´-:¦:-((¸¸.·´(º·.¸(¨*·.¸ ¸.·*¨)¸.·º) «.·°·. Michael .·°·-:¦:- > Dwight answered shakily: > [quoted text clipped - 11 lines] > You've always been here as support for me and others. I really really > hope it turns out however you wish. Godspeed to you... Thanks Michael, I'll take all the prayers I can get. Dwight >Just left the Dr's office. They're starting to push the idea of getting >a transplant. We have to wait to see what the labs say and then talking [quoted text clipped - 5 lines] > >Dwight Sorry to hear that Dwight and I hope that Infergen idea works out for you. Hope those labs turn out better than expected. Don >>Just left the Dr's office. They're starting to push the idea of getting >>a transplant. We have to wait to see what the labs say and then talking [quoted text clipped - 10 lines] > > Don Thanks Don, getting ready to call and see if they have any results back yet. Dwight <quote> Just left the Dr's office. They're starting to... </quote> Dwight I'd like to say good luck to you. Hope things will go the right way from now on. Cheer, jeeb. hang in there. Sounds like you have good docs. If they give you the chance at the drug then go for it! Keep us informed as you travel thru this. And I cant say "dont be afraid", but I can say you have some company here. Randy > hang in there. Sounds like you have good docs. If they give you the > chance at the drug then go for it! Keep us informed as you travel thru > this. And I cant say "dont be afraid", but I can say you have some > company here. Randy Thanks Randy. I do have good docs, they have been working my case since 1992. Dwight Dwight, I wish there were some soothing words to allay your fears, but I've got some of my own. Fear of going broke, going crazy, and the common all round fear of failure, as well as the unknown, but all the fear and worrying never helped at all, and is physically and emotionally draining. When the time comes, whatever happens will happen, whether you feared it or not will not make a hoot of difference in the long run. You're one of the good guys around here, I hope you decide to stick around for awhile. I'd offer to donate to you a part of my sickened, Swiss cheese holed, diseased ridden liver, but I'm using it myself,(that is, what's left of it).You'll be fine, I'm sure. John (In sunny Honolulu, with no massive storms in sight, whew.) > Just left the Dr's office. They're starting to push the idea of getting a > transplant. We have to wait to see what the labs say and then talking to [quoted text clipped - 5 lines] > > Dwight > Dwight, I wish there were some soothing words to allay your fears, but I've > got some of my own. Fear of going broke, going crazy, and the common all [quoted text clipped - 17 lines] >> >>Dwight Thanks John, I'm not in shock anymore and am feeling a lot more secure. I agree with you, worrying doesn't help anything so there isn't much purpose for it (still easier said than done). I'm here in Texas and lucky enough to be just far enough to the West that no big storms are hitting here as well, just supposed to have a little rain later. Dwight Dwight, As you may know I had to go the transplant route. One thing to think on is this. You can get on the list for a transplant and decline if the calls comes and still stay on the list. If you wait, the call might come and there won't be anyone home to answer it (catch my drift?). SignatureShawn (use the "reply feature on your browser to send a private reply via E-Mail.) > Dwight, I wish there were some soothing words to allay your fears, but > I've got some of my own. Fear of going broke, going crazy, and the common [quoted text clipped - 18 lines] >> >> Dwight > Dwight, As you may know I had to go the transplant route. One thing to think > on is this. You can get on the list for a transplant and decline if the > calls comes and still stay on the list. If you wait, the call might come and > there won't be anyone home to answer it (catch my drift?). Shawn, I've been thinking about you while I try to make up my mind. Most of the blood work has come back in good shape with a few more tests to come in. So far everything is looking better than what they first stated. So I'm just sitting here waiting again. Dwight Yeah, it's the waiting that can drive you outta your mind!!! SignatureShawn (use the "reply feature on your browser to send a private reply via E-Mail.) >> Dwight, As you may know I had to go the transplant route. One thing to >> think on is this. You can get on the list for a transplant and decline if [quoted text clipped - 7 lines] > > Dwight |
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