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Medical Forum / Diseases and Disorders / Hepatitis / July 2005interferon maintenance
Here is a 1997 article that I dredged up searching rheumatology + hepatitis. The poor patients have a host of miserable extrahepatic manifestations of HCV. They took 3,000,000 IU of interferon alpha 3 times a week for six months and the symptoms cleared up. I post this because I may need to be prepared to argue for interferon maintenance if it could make a difference in my life after standard tx. If any of you know the numbers, how does 3,000,000 IU 3 times a week quoted in the article compare to the current typical tx dose of 180mcg/1mg once weekly? Any links or info on interferon maintenance would be appreciated. My rheumatologist is an interested learner. Thanks kindly. Anja I've enjoyed your reasoned posts. Elmo I always enjoy your posts, reasoned or not. Mary Ann Little Bird Flower where are you? You must feel like sh.t. Is your friend back from the month long vacation yet? Kathy Overeducated Bag Lady oops forgot the link: http://www.archrheumatol.net/1997/0002.html My responses are 'well reasoned' and often reflect having done tx 3 times to get my SVR whenever I'm discussing anything related to having hepc. I've been up and around the block a few times in addition to having done my homework, so occasionally I have an informed opinion, all farts aside... Anja and I have a different view of tx, that's ok by me. Who's to say what's good for the gander is good for the goose. I'm happy with the decisions I've made, it got me an SVR and I'm willing to settle for whatever collateral damage was done. I feel pretty damn good today, and I don't have a monkey hanging on my back. In the couple of years before I knew I had hepc, I'd get sudden unexplained moments where I felt so fatigued that I had to rest. My ex thought I was just being lazy, ahahahahahah!!!!! I haven't had a single episode like that since I finished my last tx nor have I had to put up with any of her bullshit. I haven't felt this good in years!! Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum The article you cite is no longer relevant, it's 8 years old. Maintenance doses of peglyated interferon are a valuable alternative to those who have failed treatment where their liver is cirrhotic or pre-cirrhotic, as opposed to doing nothing. Effective maintenance doses are usually one half or one third the standard dose and are normally very well tolerated by patients. Ribavirin is not used for maintenance, which precludes most of the really nasty side effects of tx. Is that 'reasonable' enough, Kathy? Elmo (sorry no links to provide, it's all off the top of my head) http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum It was what I was told by my spec's clinical nurse, too. Almost word for word. In Canada in the province where I live, iIt is now in the doctor's studies domain, where you have to apply for it but because of the high failure rate of combo tx geno ones, I expect it will soon become a function sustainer while the DNA and molecular medicine catch up to us. Shouldn't be too long. (and it will be forever for some, unfortunately) 8-( Cactus Jammies > The article you cite is no longer relevant, it's 8 years old. > Maintenance doses of peglyated interferon are a valuable alternative to [quoted text clipped - 6 lines] > Elmo > (sorry no links to provide, it's all off the top of my head) Yikes Elmo, did not mean to offend. That was an attempt at humor that did not translate. I sincerely appreciate your reply. Kathy Re: interferon maintenance Group: alt.support.hepatitis-c Date: Sat, Jul 23, 2005, 7:52pm (CDT+1) From: kjnotspam@notspammontana.com (kjoh) Yikes Elmo, did not mean to offend. That was an attempt at humor that did not translate. I sincerely appreciate your reply. Kathy //////////// I'm not offended in the least, Kathy. Just trying to be 'reasonable', LOL. elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum > Here is a 1997 article that I dredged up searching rheumatology + > hepatitis. The poor patients have a host of miserable extrahepatic [quoted text clipped - 12 lines] > Kathy > Overeducated Bag Lady Sorry, I have no links or info on that. It has been mentioned in this group before. I do remember somone saying they have tried it. I must have missed a previous post of yours.....or maybe it is my riba forgetfullnes , I don't remember you saying you may need maintenance dosage. Have you had a drop in your viral load from current treatment? Sorry for not remembering. My friend has not come back from vacation yet but I have worked out my little weed like issue for the time being. Thanks for asking. I have been really good in spirit lately. Sides are the same...little less hair falling out. I've been a maniac though. I have been painting fabrics for quilters and for use in quilts I am working on............................... My words feel jumbled right now . I guess I should say that my creativity is in overdrive. I've been taking it for the ride and doing work I am quite happy with. here is a link to some of my fabrics http://photobucket.com/albums/y103/Pajaritaflora/Fabric%20Painting/ How are your current sides? Peace, Mary Ann Camping in the den "pajaritaflora" <birdspeak@gmail.com> <1122189926.323449.146940@g49g2000cwa.googlegroups.com> : >> Here is a 1997 article that I dredged up searching rheumatology + >> hepatitis. The poor patients have a host of miserable extrahepatic [quoted text clipped - 29 lines] >some of my fabrics >http://photobucket.com/albums/y103/Pajaritaflora/Fabric%20Painting/ nice fabrics, you are talented. wishing you all the best, anja >How are your current sides? > >Peace, >Mary Ann >Camping in the den -- mhm 35x6 smeeter 37(?) wsd40 we are all in the gutter but some of us are looking at the stars wilde > "pajaritaflora" <birdspeak@gmail.com> <1122189926.323449.146940@g49g2000cwa.googlegroups.com> : > [quoted text clipped - 49 lines] > we are all in the gutter but some of us are looking at the stars > wilde Thanks :) MYE hi Mary Ann, thanks for your reply. Im glad to see that good creative things are happening for you, and that your botanical situation is in order. I have to say that your fabric paintings are quite beautiful and an inspiration to me. they tweaked me to get out some watercolors and paper. I signed up for a photobucket account, Though it will take me time to work out the mechanics. I dont have a digital camera or a photo scanner. I tried pushing my 3X5 snapshots into the vent slots in my monitor but nothing happens... :) Interferon maintenance doesnt look like a very viable option for me, based on the little info Ive gathered, but will ask the doc. My main sides today are fog, fatigue, global joint pain. Vice grips attached to upper intestine. Especially bad hair. Thanks again, and also to Cactus Jammies photobucket, for the inspiration. Kathy *I know why the caged bird sings* Maya Angelou > hi Mary Ann, thanks for your reply. Im glad to see that good creative > things are happening for you, and that your botanical situation is in [quoted text clipped - 16 lines] > Kathy > *I know why the caged bird sings* Maya Angelou Kathy, I did the maintenance dosage of Pegasys for an additional 24 weeks after stopping tx. I was taking a half dose during that time. I might have continued, but a biopsy showed that my liver had shown little to no change since 1992 or 1993. At the time I thought I was going to be part of a test group doing Infergen, but having hemochromatosis kept me from participating. I've been lucky that my liver hasn't been getting worse, I found out my liver had progressed to cirrhosis with my first biopsy in 1992. Good luck. Dwight > hi Mary Ann, thanks for your reply. Im glad to see that good creative > things are happening for you, and that your botanical situation is in [quoted text clipped - 4 lines] > scanner. I tried pushing my 3X5 snapshots into the vent slots in my > monitor but nothing happens... :) Haa Haaa hahaha. You're funny ....Glad you got out the paints.:) > Interferon maintenance doesnt look like a very viable option for me, based > on the little info Ive gathered, but will ask the doc. > > My main sides today are fog, fatigue, global joint pain. Vice grips > attached to upper intestine. Especially bad hair. Vice Grips, that sounds nasty. I've recently started using tea tree oil shampoo and much less hair is falling out. It even looks slightly shiny anyway. Painting helps with the fog 'cause I can take myself away and go with it.....Calgon........ Peace, Mary Ann > Thanks again, and also to Cactus Jammies photobucket, for the > inspiration. > > Kathy > *I know why the caged bird sings* Maya Angelou Re: interferon maintenance Group: alt.support.hepatitis-c Date: Sun, Jul 24, 2005, 12:25am (CDT-2) From: birdspeak@gmail.com (pajaritaflora) kjoh wrote: Here is a 1997 article that I dredged up searching rheumatology + hepatitis. The poor patients have a host of miserable extrahepatic manifestations of HCV. They took 3,000,000 IU of interferon alpha 3 times a week for six months and the symptoms cleared up. I post this because I may need to be prepared to argue for interferon maintenance if it could make a difference in my life after standard tx. If any of you know the numbers, how does 3,000,000 IU 3 times a week quoted in the article compare to the current typical tx dose of 180mcg/1mg once weekly? Any links or info on interferon maintenance would be appreciated. My rheumatologist is an interested learner. Thanks kindly. Anja I've enjoyed your reasoned posts. Elmo I always enjoy your posts, reasoned or not. Mary Ann Little Bird Flower where are you? You must feel like sh.t. Is your friend back from the month long vacation yet? Kathy Overeducated Bag Lady Sorry, I have no links or info on that. It has been mentioned in this group before. I do remember somone saying they have tried it. I must have missed a previous post of yours.....or maybe it is my riba forgetfullnes , I don't remember you saying you may need maintenance dosage. Have you had a drop in your viral load from current treatment? Sorry for not remembering. My friend has not come back from vacation yet but I have worked out my little weed like issue for the time being. Thanks for asking. I have been really good in spirit lately. Sides are the same...little less hair falling out. I've been a maniac though. I have been painting fabrics for quilters and for use in quilts I am working on............................... My words feel jumbled right now . I guess I should say that my creativity is in overdrive. I've been taking it for the ride and doing work I am quite happy with. here is a link to some of my fabrics http://photobucket.com/albums/y103/Pajaritaflora/Fabric%20Painting/ How are your current sides? Peace, Mary Ann Camping in the den ////////// Funny you should mention your creativity being in overdrive, Mary Ann. I felt that way too on tx. My opinion is that the drugs take your mind to places it wouldn't normally travel and that the bizarre comes right to the top. The difficult part for me was channeling that creativity into something meaningful. ahahahahahha Making smoke signals in the den, eh? :-) Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum > ////////// > Funny you should mention your creativity being in overdrive, Mary Ann. [quoted text clipped - 8 lines] > > http://community.webtv.net/elmoemerson/TheFamilyAlbum Yep, smoke signals to Begbie http://photobucket.com/albums/y132/tum-tum-guitars/watercolour%20studio%20setup/ ?action=view¤t=Begbiefromupperdeckjuly0501.jpg I actually slept well here last night. I didn't even take the ambien. Yeah , I hope the creative bent lasts for a good long time after tx. It has been pretty exciting. Definately a nice way through this fiasco. Hope you are groovy, Mary Ann |
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