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Medical Forum / Diseases and Disorders / Hepatitis / July 2005newly diagnosed
Greetings everyone! My name is Dorothy and I may ramble for a minute here, but I was just wondering the timeline for treatment. Here goes my story thus far...I found out June 27th that my bloodwork showed elevated liver enzymes. The dr. recommended more blood tests and the results came back with abnormalities for hepc. My doc referred to a gastroentologist who took more blood and an ultrasound. The office called me and told me that I did have an active form of the virus and scheduled me for more bloodwork in 2 months, they also said my ultrasound came back normal. That is all I know about my health status thus far. The only instruction I was given was not to take Tylenol or iron supplements and to avoid alcohol. Is this standard proceedure? Thanks in advance for any input. I am new the the newsgroup forum but hope to be of some use here! All the Best....Dorothy Dorothy! yep you got the standard treatment. boy there sure are lots of folks checking into our little care and info facitlity this morning. Its only a good thing for all of us that they get a reception that shows our hearts to ourselves.. have you been reading the rest of the welcome messages today? welcome with peace cactus jammies ///////////////////////////////////////////////// > Greetings everyone! > [quoted text clipped - 14 lines] > > All the Best....Dorothy Thank you for the welcome...and yes I've been reading...and trying to sort out how to reply....hope this works! From what I've read it appears that most of you are in various stages of treatment. At what point is that offered? I can't offer much but I can tell you that this diagnosis has forced me to make some long overdue lifestyle changes. I no longer drink to relieve stress I exercise instead. I eat healthier and I'm finding I don't let things get to me as much as they use to. So in spite of or because of the dragon. as it seems to be referred, breathing down my neck I am getting stronger, more compassionate and appreciative than I've ever been. I hope to be able to continue this outlook. Again thanks for the welcome. Dorothy Dorothy, You are truly welcome. I personally have no experience with the more damaged liver start off so I will leave that to others who have similar experiences with complications to make their comments. Your willingness to change your dietary and physical conditioning is exactly what you can do right for yourself, at this time. The other stuff will flow in proper perspective, but you taking physical control over your situation rather than stewiing about it and worrying, you are already on the path to recovery if you continue that way. No doubt. cheers cactus jammies ///////////////////////// > Thank you for the welcome...and yes I've been reading...and trying to sort > out how to reply....hope this works! [quoted text clipped - 13 lines] > > Dorothy > Thank you for the welcome...and yes I've been reading...and trying to sort > out how to reply....hope this works! > > From what I've read it appears that most of you are in various stages of > treatment. At what point is that offered? I finished six months of treatment a little over six months ago. I was on it because I was newly infected. Different doctors have different opinions about when to start treatment. Some people want to get the virus gone before it causes any significant damage. Other people wait until there is some evidence of liver trouble, hoping that there will be better, more effective treatments. > I can't offer much but I can tell you that this diagnosis has forced me to > make some long overdue lifestyle changes. I no longer drink to relieve [quoted text clipped - 3 lines] > stronger, more compassionate and appreciative than I've ever been. I hope to > be able to continue this outlook. You are also probably meeting people who have the same outlook and these people are going to be great supporters when you're on treatment. On the flip side, indentifying and avoiding the people in your life that cause you consistent angst or drama is a very good thing to do as well. If you go on treatment you may have to put a lot of your personal growth on hold until it's over. Depending on your reaction to it you might just have to concentrate on getting along day by day without screaming at grocery clerks or the person in front of you in traffic :) You'll be fine. Gordo Smiling Wickedly, Dorothy answered: > Greetings everyone! > [quoted text clipped - 13 lines] > > All the Best....Dorothy Dorothy, welcome to our little group. I'm sorry you have to be here. BUT since you must, you've found a good place to be. we're all in the same boat here, although some are done with treatment. Please stay a spell, AND POST POST POST.  Signature*..· ´¨¨)) ¸.·´ .·´¨¨)) ((¸¸.·´ .·´-:¦:-((¸¸.·´(º·.¸(¨*·.¸ ¸.·*¨)¸.·º) «.·°·. Michael .·°·-:¦:- Welcome! So far, so good with the doctor. You'll know more as time goes on and the doctor has more information to give you. Meanwhile, c'mon in and set a spell, and ask all the questions you want. > Greetings everyone! > [quoted text clipped - 14 lines] > > All the Best....Dorothy > Greetings everyone! > [quoted text clipped - 13 lines] > > All the Best....Dorothy Hi Dorothy, Glad you found us, however unfortunate the circumstances.Yep , I agree that you have gotten the standard procedure. The following link is a protocol I found while surfing one day. I believe it is quite complete and accurate. http://www.californiahcvtaskforce.org/pdf/HCV%20Clinical%20Pathway%20S.F.Version4.PDF Welcome, Mary Ann Mary Ann, Wow! That was an excellent link! Thank you so very much! I am so glad I decided to look into newsgroups! I've been going through web pages and link to web pages ...my head is still spinning! Your link was the most informative thing I've seen as far as a protocal for treatment. I fear that I am just scratching the surface of the total impact this diagnosis has on ones life. I am trying not to dig too deep at this leg of the trip. I am also trying to make as many positive changes I can in my life hoping that it will build a good foundation to fight this. OMG! I am babbling...sorry! Thanks again! Dorothy Welcome to the group, Dorothy!! Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Elmo... I checked out your family album....pretty funny stuff! I especially liked lil' Spunky. Dorothy Re: newly diagnosed Group: alt.support.hepatitis-c Date: Sun, Jul 17, 2005, 11:20pm (CDT+5) From: dwilde1@austin.rr.com (Dorothy) Elmo... I checked out your family album....pretty funny stuff! I especially liked lil' Spunky. Dorothy /////////// Thanks, Dorothy. I put those web pages together while I was doing my second round of treatment. My experience is that demented humor is better than no humor at all. Treatment brought out the best in me. ahahahahahhaha!!!!! Spunky is Doc Elmo's office pet and a mascot to the group. A good laugh is the best medicine and it's the only one I can legally write a prescription for. Glad you enjoyed!!! :-) Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Hi Dorothy, this is one of the places in which you can ask questions about HCV and get answers from people who have intimate experiences with the virus and treatments, as opposed to those whose experiences are theoretical and second or third person. Like group therapy, we all help each other.Good luck, keep reading and posting. John in Honolulu > Greetings everyone! > [quoted text clipped - 14 lines] > > All the Best....Dorothy > Greetings everyone! > [quoted text clipped - 8 lines] > thus far. The only instruction I was given was not to take Tylenol or iron > supplements and to avoid alcohol. Is this standard proceedure? Hi Dorothy, The next step after the ultrasound should be a liver biopsy to find out what stage of fibrosis (if any) your liver is in. I hope that "more bloodwork" includes genotyping the virus. This is valuable information if you're going to do tx. This group got me through 45 weeks of tx hell and provided the humour I needed when things got rough. Tx is no fun but definitely do-able for most people, in fact, some people feel fine on it. More and more folks are discovering they have HCV now that doctors bear the possibility in mind when a patient has elevated LFTs or complains of fatigue. Here in France there are lots of posters around in doctors' offices and in laboratories to elevate public awareness. Many of us had to go from doctor to doctor for many years before finding a doctor who was able to make the diagnosis. Mostly we were accused of "all-in-your-head" syndrome or told we were suffering from "stress," especially those of us who happened to have normal liver enzymes, but still had symptoms of HCV. Most people go into shock when they first hear the diagnosis. Some become really frightened, but information about the disease is the best way to combat fear. The internet and this newsgroup are great sources. Many people don't have an HCV support group in their area, so this is a good place to hang out. Welcome. Lana |
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