Home | Contact Us | FAQ | Search & Site Map | Link to Us
Sign In | Join | Other 45 Sites in Network
Home
Discussion Groups
General
GeneralCardiologyVisionDentistryPharmacyLaboratoryNutritionAlternative
Diseases and Disorders
AIDSAlzheimer'sArthritisAsthmaCancerBreast CancerDiabetesEpilepsyGlaucomaHepatitisHerpesLupusProstate BPHProstate CancerProstatitisSinusitisTinnitus

Medical Forum / Diseases and Disorders / Hepatitis / July 2005

Tip: Looking for answers? Try searching our database.

Good news---sort of

Thread view: 
Enable EMail Alerts  Start New Thread
Thread rating: 
szozu - 10 Jul 2005 02:08 GMT
When I started tx I immediately got covered 100% by the health system here
from 09/2002 - 09/2005. Since I still have neurological problems as a result
of my tx, I asked my doctor if the coverage could be extended. I got a
letter in my mailbox today informing me that I will still be covered 100%
(medication, doctor visits, lab work and other tests) until 09/2012. I don't
know what my doctor wrote in his letter to them, but that's great news and
takes a load off my mind.

The recent MRI of my brain to check for MS was negative for the plaque
associated with it but the doctor at the MRI department wants me to come
back to do a vertebral scan. Good thing that I actually enjoy MRIs. With all
the stress in my life, it actually gives me an opportunity to just zen-out
and be very still--kind of relaxing.

Just to add to my stress, there was a major plumbing disaster in one of my
rental apartments causing water damage to the apartment below. There's no
problem with the damage to the downstairs neighbour's being covered but I'm
not sure just how much my insurance company is going to pay to restore a
bathroom that is now a total disaster with no means of taking a bath or
shower for my tenants. I think I'm going to have to tap into my pension plan
to sort this one out.

While watching the plumbers breaking through the wall in the bedroom and
smashing tiles and masonry in the bathroom, I got to talking with the
downstairs neighbour and discovered that he has both hepatitis B and C and
can't do tx because he had a kidney transplant.

Lana
Kozure Ookami - 10 Jul 2005 06:53 GMT
>When I started tx I immediately got covered 100% by the health system here
>from 09/2002 - 09/2005. Since I still have neurological problems as a result
[quoted text clipped - 24 lines]
>
>Lana

Lana, good luck with the next MRI scan and I sure hope your
neurological problems are not some degenerative illness like MS.  It
sounds like the health care in France is pretty good though which is
fortunate and I hope the property insurance is good as well and you
can get this problem behind you soon.  Sometimes if it is not one
thing, it is another.  Keep positive and best wishes.

Don
szozu - 10 Jul 2005 10:50 GMT
> Lana, good luck with the next MRI scan and I sure hope your
> neurological problems are not some degenerative illness like MS.  It
> sounds like the health care in France is pretty good though which is
> fortunate and I hope the property insurance is good as well and you
> can get this problem behind you soon.  Sometimes if it is not one
> thing, it is another.  Keep positive and best wishes.

Hi Don,

The health care system here is one of the best in the world.

Recently I've had the feeling of being in a leaking boat with only a tin cup
to bail with. Yesterday I felt that someone had handed me a bucket to help
me stay afloat.

I have a friend who is having such nightmarish problems that mine seem minor
in comparison. Hers are like watching a bad made-for-TV movie with a twisted
plot where you think, 'Things like that don't happen in real life." Trying
to help her get through it is taking my mind off my own woes.

Lana
elmoemerson@webtv.net - 10 Jul 2005 14:24 GMT
That is good news, Lana.....sort of.  At least it wasn't YOUR plumbing
that went bad.  I've heard that bladders can explode every bit as much
as livers.  Count your blessings, gal.  LOL
Elmo

http://community.webtv.net/elmoemerson/DocElmosHepFile

http://community.webtv.net/elmoemerson/TheFamilyAlbum
Russ - 10 Jul 2005 19:21 GMT
I hope your tests come out ok. Tomorrow I get a CT scan of my sinuses. Two
weeks ago I had a HYPERthyroid attack, didn't sleep for 5 days. Just awful.
As I had an appointment with my primary Doc with that going on we got busy
with blood work. Funny, I know more about the thyroid then he does. I
insisted for the antibodies test, he goes, "mm, I guess we could do that".
sh.t, what a lame brain. He thinks the TSH is all you need. I demanded free
and total T3 and T4, test's on other hormones bla,bla, bla. While in there I
told him I was getting a CT scan tomorrow, he added a scan of my pituitary
gland to rule out any problems there. \

And he took me off of the levothyroxin. Man I feel great, I'm sleeping ten
times better now, not gaining weight. I always had a hunch that I didn't
need them. I had a TSH with free T4 when I got back from 33 straight days of
12 hours a day working. That kicked my TSH up to 4.6 from 2.4, and my free
T4 was 2.3, above normal as in to much. f.cking TSH don't mean sh.t if you
don't do the other test's.

Sometimes you need to do your own research and be your own advocate.
Signature

Russ

Visit Alaska @ http://www.tannersacre.com

> When I started tx I immediately got covered 100% by the health system here
> from 09/2002 - 09/2005. Since I still have neurological problems as a result
[quoted text clipped - 24 lines]
>
> Lana
JV - 10 Jul 2005 23:45 GMT
Thats right Russ got to do the homework yourself to get better. Now that
I am coming back to life, I have found out the labs on my thyroid the
idiots were looking at are greatly influenced by estrogen. The only
reliable tests for me are Free T4 and Free T3 and guess what my numbers
have never come back up since I crashed on tx. and have lots of before
tx labs to prove it now. I am sure wondering about your antibody test. I
want one to as they told me on tx, antibodies created by inf were
attacking my thyroid. Sounds like your feeling lots better off the meds.
The synthetics are really strong compared to armour.
Juanita
Kozure Ookami - 12 Jul 2005 01:08 GMT
>I hope your tests come out ok. Tomorrow I get a CT scan of my sinuses. Two
>weeks ago I had a HYPERthyroid attack, didn't sleep for 5 days. Just awful.
[quoted text clipped - 14 lines]
>
>Sometimes you need to do your own research and be your own advocate.

Russ, glad to hear you are feeling better.  One thing I wonder though
is whether this is the right doctor to treat your problems.  At what
point does an endocrinologist step in?   Doctor's egos (and lust for
$$$) sometimes can interfere with them from handing over the ball when
needed.  I don't know, way over my head.  One thing I wonder about is
at http://www.endocrineweb.com/tests.html it says most thyroid pills
need to be stopped from 4 to 5 weeks before accurate testing is
possible.  Whatever, I hope you get this fixed soon because I
understand you can't feel too good when your endocrine system is off
track.  Best of luck.

Don
Russ - 12 Jul 2005 05:31 GMT
My doc was real upfront about sending me to an endocrinologist, but as I was
right in the middle of a HYPER mode both of us thought it was a good idea to
get some blood work and I insisted on the antibodies test. I was on a real
small dose of levothyroxin, 25 ug/day anyway. I don't have any symptoms of
being HYPO. I think it's a good idea to stop and wait a few weeks and see
just what my thyroid is doing. I got a MRI today of my pituitary gland along
with the CT scan of my sinuses today. I know what the HYPO stage feels like
and I'd rather go a little HYPO then deal with those HYPER attacks. God I
thought my heart was going to explode after this last episode. He said to
make sure to keep some Atenolol around. My BP was as high as 153/92 pulse 92
one day. My thyroid glands were HUGE a couple of weeks ago. I've had these
attacks before but not for a while.  I'm off the beta-blocker, only needed
them for 3 days, a week later I checked my BP this morning, 120/70 pulse 52.
Much better.

I have the films of the CT scan. A blind man could see the blockage on my
left side of my sinuses. I'm sure I'll be getting those scraped out but will
know for sure on Wednesday. I can't wait, the headaches from these sinus
blockages are getting real old.

Signature

Russ

Visit Alaska @ http://www.tannersacre.com

> >I hope your tests come out ok. Tomorrow I get a CT scan of my sinuses. Two
> >weeks ago I had a HYPERthyroid attack, didn't sleep for 5 days. Just awful.
[quoted text clipped - 27 lines]
>
> Don
szozu - 12 Jul 2005 09:34 GMT
> My doc was real upfront about sending me to an endocrinologist, but as I was
> right in the middle of a HYPER mode both of us thought it was a good idea to
[quoted text clipped - 15 lines]
> know for sure on Wednesday. I can't wait, the headaches from these sinus
> blockages are getting real old.

Hi Russ,

Sorry to hear you are still having problems. Tx really has a way of taking
our weakest and most vulnerable point and shooting it all to hell. Lots of
people have asked me if I would have still done tx if I knew everything that
was going to happen as a result and my answer is "yes." Worrying about my
liver was worse than dealing with what is happening now.

Lana
Russ - 12 Jul 2005 15:46 GMT
Hi Lana, nice to hear from you. Yes, lots of turmoil from doing the
treatment even after a year later. As for the thyroid, since I quit taking
levothyroxin, my BP and pulse have been very nice and low, last two mornings
readings around 120/70 pulse in the low 50's!!! For the last year while
taking the thyroxin my pulse was always up in the 70's. I just don't think I
need it right now. Maybe in the future. Both my brothers are on thyroid
replacement hormones, though one brother was taking lithium for bi-polar and
that can cause hypothyroidism. My other brother did the treatment and it
wiped out his thyroid and he had to quit 7 months into it. Clearly a
possible genetic disposition there, but for now I feel better off the
levothyroxin. Give it a break for a couple of months, then see just what is
going on.

Take care
Signature

Russ

Visit Alaska @ http://www.tannersacre.com

> > My doc was real upfront about sending me to an endocrinologist, but as I
> was
[quoted text clipped - 32 lines]
>
> Lana
JV - 11 Jul 2005 00:34 GMT
That is really really good news on the health system for you, thats so
good. The other stuff well it will work it's self out. But the news on
the plan is great I find all those scans quite relaxing also and fun .
Congrats
                                               Juanita

Jul 10, 2005, 3:08am (PDT+9) From: hoppbunny at hotmail com (szozu)
When I started tx I immediately got covered 100% by the health system
here from 09/2002 - 09/2005. Since I still have neurological problems as
a result of my tx, I asked my doctor if the coverage could be extended.
I got a letter in my mailbox today informing me that I will still be
covered 100% (medication, doctor visits, lab work and other tests) until
09/2012. I don't know what my doctor wrote in his letter to them, but
that's great news and takes a load off my mind.
The recent MRI of my brain to check for MS was negative for the plaque
associated with it but the doctor at the MRI department wants me to come
back to do a vertebral scan. Good thing that I actually enjoy MRIs. With
all the stress in my life, it actually gives me an opportunity to just
zen-out and be very still--kind of relaxing.
Just to add to my stress, there was a major plumbing disaster in one of
my rental apartments causing water damage to the apartment below.
There's no problem with the damage to the downstairs neighbour's being
covered but I'm not sure just how much my insurance company is going to
pay to restore a bathroom that is now a total disaster with no means of
taking a bath or shower for my tenants. I think I'm going to have to tap
into my pension plan to sort this one out.
While watching the plumbers breaking through the wall in the bedroom and
smashing tiles and masonry in the bathroom, I got to talking with the
downstairs neighbour and discovered that he has both hepatitis B and C
and can't do tx because he had a kidney transplant.
Lana
elmoemerson@webtv.net - 11 Jul 2005 01:40 GMT
Personally, I enjoyed the EMG more than an MRI.  Froggy, woops....oh
boy!!
Elmo
<twitch, twitch>
////////////
That is really really good news on the health system for you, thats so
good. The other stuff well it will work it's self out. But the news on
the plan is great I find all those scans quite relaxing also and fun .
Congrats
                                                                                                Juanita
Jul 10, 2005, 3:08am (PDT+9) From: hoppbunny at hotmail com (szozu) When
I started tx I immediately got covered 100% by the health system here
from 09/2002 - 09/2005. Since I still have neurological problems as a
result of my tx, I asked my doctor if the coverage could be extended. I
got a letter in my mailbox today informing me that I will still be
covered 100% (medication, doctor visits, lab work and other tests) until
09/2012. I don't know what my doctor wrote in his letter to them, but
that's great news and takes a load off my mind. The recent MRI of my
brain to check for MS was negative for the plaque associated with it but
the doctor at the MRI department wants me to come back to do a vertebral
scan. Good thing that I actually enjoy MRIs. With all the stress in my
life, it actually gives me an opportunity to just zen-out and be very
still--kind of relaxing. Just to add to my stress, there was a major
plumbing disaster in one of my rental apartments causing water damage to
the apartment below. There's no problem with the damage to the
downstairs neighbour's being covered but I'm not sure just how much my
insurance company is going to pay to restore a bathroom that is now a
total disaster with no means of taking a bath or shower for my tenants.
I think I'm going to have to tap into my pension plan to sort this one
out. While watching the plumbers breaking through the wall in the
bedroom and smashing tiles and masonry in the bathroom, I got to talking
with the downstairs neighbour and discovered that he has both hepatitis
B and C and can't do tx because he had a kidney transplant. Lana

http://community.webtv.net/elmoemerson/DocElmosHepFile

http://community.webtv.net/elmoemerson/TheFamilyAlbum
Waterspider - 11 Jul 2005 20:22 GMT
Good luck on it all, Lana, and good to hear from you. Hope it all works out
okay for you, and that you're getting some time to play in your garden. All
the best,

Waterspider
Firestar - 13 Jul 2005 05:46 GMT
Congrats on your good news Lana.  It's nice to hear things are looking up
(sort of) for you.  Hang in there, you will triumph.
Hugs,
Thom
(officially old enough for senior discounts as of July 13 - never thought
I'd live this long) ; o)
szozu - 14 Jul 2005 09:29 GMT
> Congrats on your good news Lana.  It's nice to hear things are looking up
> (sort of) for you.  Hang in there, you will triumph.
> Hugs,
> Thom
> (officially old enough for senior discounts as of July 13 - never thought
> I'd live this long) ; o)

I remember the day when that first AARP letter arrived in the mailbox! I
felt like burning it!

I think I am going to tap into my pension fund to make some repairs and
improvements around here. Real estate seems a much better investment at the
moment than mutual funds and IRAs. I discovered that I can probably do this
without any penalty as it seem I fall under the category of "early
retirement," though inside I feel like I'm still 25--though maybe a lot
smarter!

How are you doing Thom? Did you ever contact Bob?

Bisou
Lana
Firestar - 18 Jul 2005 04:22 GMT
--
marallo@nzia.net
If you want to email me, replace the "z" with a "c"

> > Congrats on your good news Lana.  It's nice to hear things are looking up
> > (sort of) for you.  Hang in there, you will triumph.
[quoted text clipped - 17 lines]
> Bisou
> Lana

Ditto on the AARP.  I finally caved in to them when I found out my $15
membership gets me a $30/night discount at my preferred hotels.
I sent an email to Bob, but never got a response.  If you have a new email
address, please send it to me.  Last week I called about a Sho-saiko-to
study I saw posted in ashc.  So far I'm playing phone tag with those folks.
I'll try again tomorrow.
Mostly feeling fair to partly cloudy.  Weekends seem to be the cloudy times.
I push myself through work and often collapse on the weekends.  Arthritic
aches and pains secondary to the Hep C are back in spades, plus no energy
reserves.  Kind of sucks when you want to do things and just don't have the
pep to get them done.  Spent a good part of this weekend in my bedroom -
it's the only room with A/C.  It's been abnormally hot all week.
Going to see my son and his family after work tomorrow.  They provide a lot
of support for me - especially my grandson.  Although he doesn't really
comprehend the Hep C situation.  Hugs are great, though.
Be well,
Thom
Geb Bixer - 13 Jul 2005 16:49 GMT
Life goes on eh. . .Lana.  Cody's dad (me) and an entourage of sisters
(2 ea) will be visiting Paris in February.  We are going to check up on
who's living in our old house.   If you could stand a visit please let
me know.

Gumboot
szozu - 14 Jul 2005 10:05 GMT
> Life goes on eh. . .Lana.  Cody's dad (me) and an entourage of sisters
> (2 ea) will be visiting Paris in February.  We are going to check up on
> who's living in our old house.   If you could stand a visit please let
> me know.

Hey there!

I could stand a visit, but I live in the South of France--not exactly
commuting distance from Paris. February is pretty grey in Paris. We've got
much better weather and in February the lemon and mandarin trees are
producing. In fact, there's a lemon festival in Menton every year in
February with more lemons than you've ever seen all in one place and with a
different theme every year. http://www.menton.com/citrons/ The Nice Carnival
also takes place in February, causing havoc with the city's traffic.

If you book way in advance you can often get cheap tickets called Prem's on
the high speed train, costing 25 EUR each way, but that's still a 5 hour
journey. And the tickets are non-exchangeable and non-returnable. What's
nice is that they can be printed on-line and you just need to show ID at the
gate that matches the name on the ticket. I did this trip with my dog and he
and I both started getting antsy during the last hour of the journey.

Same deal on Easyjet, with some early booking tickets Paris-Nice costing
only 18 EUR each way (plus tax). The tax usually ends up costing more than
the actual fare!

The practicality of a side trip all depends on how much time you are
planning on spending in France, but if you are not familiar with this
region, it is quite a contrast to Paris.

Lana
Geb Bixer - 17 Jul 2005 14:57 GMT
Hi Lana,

I ran this pat my sisters (2 ea) and they like the idea of a south
bound jog.  I sort of remember your email.  Do you mind if I contact
elmo and get it from him?

Geb
 
Sign In
Join
My Latest Posts
My Monitored Threads
My Blog
My Photo Gallery
My Profile
My Homepage

Start New Thread
Enable EMail Alerts
Rate this Thread



©2008 Advenet LLC   Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.