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Medical Forum / Diseases and Disorders / Hepatitis / May 2005

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Sorry I've been gone

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Wendela - 06 May 2005 01:35 GMT
Hi everyone,
I really apologize for suddenly abandoning this forum, especially when
I was trying to offer support to many of you.  Just to review, I'm
Larry's significant other. He has been on and off of treatment with
Pegasys/Copegasis for about 5 months now. He takes Neupogin and Procrit
more than 1x weekly. I suffer from chronic fatigue syndrome which
worsened significantly after starting a new job.  I have been horribly
depressed and ill, and I normally come home from work and flop into bed
after stuffing myself with the wrong foods. I have no excuse for not
keeping in touch, however, I guess I just feel too bad to ask for or
offer any support.

That being said, Larry's good news is that he's undetectable after 3
months, although he's had to stop at least three times when his blood
and body could not withstand the treatment. And his blood levels are
horrible despite all of the shots he takes. He continued losing weight
also, which is a real bummer. The usual things I bitch about regarding
his medical practice still exist as well, and he never sees the doctor.
We don't know how much longer he can continue to treat, either.  BUT,
the other good news is the financial worries over payment for meds have
diminished. It turns out his insurance has a ceiling after he paid
$2,500. Other positives are his drive to exercise.  He can't do nearly
what he could before the treatment, but he still exercises several days
per week. He is a phenomenon considering his blood levels are so
below/and above normal.

So there's a lot to be grateful for, but I feel like crap every minute.
Anyhow, I hope all of you are well. I haven't even read the b-board in
the longest time. It feels good to be back. I hesitated to write, as I
cannot be consistent anymore.  I wish I could be stronger for Larry's
sake, yet I'm lucky to survive from hour to hour on most days. Well, I
need to catch up with months of posts, as I've decided to crawl out
from underneath my hole.  Until later on, Wendy
Paul - 06 May 2005 06:28 GMT
On 5 May 2005 17:35:52 -0700, "Wendela" <shoegirl1@verizon.net>, in
message ID <1115339752.149784.223090@g14g2000cwa.googlegroups.com>, in
the newsgroup alt.support.hepatitis-c wrote:

>Hi everyone,
>I really apologize for suddenly abandoning this forum, especially when
[quoted text clipped - 29 lines]
>need to catch up with months of posts, as I've decided to crawl out
>from underneath my hole.  Until later on, Wendy

Thanks for your posting Wendy (all 5 of them :-)  ) .  Sorry to hear
about your fatigue but nice to hear that Larry's virus is not
detectable.  Good to see you've made it back  :-)
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Paul

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Wendela - 07 May 2005 01:36 GMT
Hi Paul,
Don't feel offended, but I can't remember your hep situation. Or you
could be someone like myself who is the support person for a hepper.  I
hope you are doing okay. I guess I was posting to myself with the 5
messages. I got fed up with the google beta version, and every time I
tried to get the newsgroups through Verizon, I just got triple the
emails....difficult to do, but I did it.  I'm happy I'm back because
that indicates to me that the fatigue has lessoned to the point where I
can write. I'd advocate antidepressants to everyone, but I get the side
effects more than the benefits of ADs, and every medicine I take with
the exception of Tylenol.
Good luck to everyone to get through the next day.  That's how it goes
ususally and sometimes you take it an hour at a time.  Bye for now.
Wendy

> On 5 May 2005 17:35:52 -0700, "Wendela" <shoegirl1@verizon.net>, in
> message ID <1115339752.149784.223090@g14g2000cwa.googlegroups.com>, in
[quoted text clipped - 42 lines]
> Use the reply by email facility in your
> newsreader to send email
Paul - 07 May 2005 07:11 GMT
On 6 May 2005 17:36:03 -0700, "Wendela" <shoegirl1@verizon.net>, in
message ID <1115426163.041390.77640@o13g2000cwo.googlegroups.com>, in
the newsgroup alt.support.hepatitis-c wrote:

>Hi Paul,
>Don't feel offended, but I can't remember your hep situation. Or you
[quoted text clipped - 9 lines]
>Good luck to everyone to get through the next day.  That's how it goes
>ususally and sometimes you take it an hour at a time.  Bye for now.

No offence taken Wendy.  My hep situation is that I had hep-c but
cleared with tx.
The multiple posting stuff is easily done.  I've managed it too,
occasionally.
I did tx without anti-depressants myself.  I'm not so sure about
anti-d's but there were times on tx I could have used some kind of
tranquillisation.
Yep. One hour, one day at a time is the way.  If you can't put the
best foot forward, then put the worst one forward instead :-)  .
Signature

Paul

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Wendela - 11 May 2005 01:05 GMT
Paul,
That is so great that you cleared the virus. Do you have many L-T side
effects from the meds?  I do put my worst foot forward all the time,
unfortunately, especially these days at work. I majored in business and
did not specialize, so life is very dog eat dog with so many petty
people and political sh.t fights. No wonder I have chronic fatigue.  I
devoted my energies to the wrong place until I completely drained them.
The right place would have been to give to others who would appreciate
me, or at least, try to become involved in a business that was a cause
I supported. The mental aspect (yes Thomas you are really right) is so
important.  I try to give Larry a lot of slack when he starts flipping
out.  He doesn't need the A-D's but he doesn't realize how non-tranquil
he has become. I mean, it was never road rage Larry before now.  The
remarks have escalated to acting out, ready to do damage all over the
place.  He was prone to blowing up, but it took a lot, and only during
strange situation. Lucky for him, he's under control at his job, where
it counts. I'm under control at home, and I have been flipped out on my
job. Well, it's easy to be under control when you give into the
noctunal callings and just stay asleep all the time. All kidding aside,
I really feel that living in my city is like living in the midwest,
only the people are much more narrow minded.  I don't know what city I
belong in, but it's not Pittsburgh!!!!  There are scores of people
living here who never left, and everyone is related to the next person.
I've yet to see more people on the take or more nepotism or
clannishness anywhere. Overtly people are friendly here, in some folksy
superficial way. But if you're not Catholic, you can forget it....or
Italian or Irish. I guess I feel like someone who is taking Riba a lot.
Did I get off of the subject?  Well, thanks for letting me get this
off of my chest.  Deep breaths....Alias, we need to take deeeeeppppp
breaths.  I wish I lived anywhere but in this hell hole they call
civilization.  But the, I couldn't survive anywhere once I was off of
the farm. (city farm)...they say California is the place you want to
be, so she loaded up the truck for the hills of Beverly...movie
stars...Dreaming on, as in California Dreamin.....-Wendy
 
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