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Medical Forum / Diseases and Disorders / Hepatitis / February 2005

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Your viral load

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Karen - 18 Jan 2005 23:31 GMT
What is everyone's viral load???

Thanks
Karen
rick nelson - 19 Jan 2005 00:05 GMT
> What is everyone's viral load???
>
> Thanks
> Karen

 As of 10/20/04:
1,510,000 iu/ml
6.18 log iu/ml
Combo therapy 7/00 to 6/01. No SVR. 1a. Not currently on treatment, but
considering it.

    rick
TPasco8136 - 19 Jan 2005 03:50 GMT
My VL is  4.3 million.

Justs thought I'd mention that I did Peg combo Tx in 2002-2003 and was
undetectable, only to relapse.  My viral load skyrocketed after the relapse to
2.8 million.  It had been in the 50,000 to 300,000 range prior to tx.  I was
told by my doctor and knowledgeable people in various chatrooms and newsgroups
that Viral loads often skyrocket when a patient relapses, but that usually
within a year or so the VL comes back down to pre-tx levels.  I just received
the results today of my first PCR in a year and a half.  My VL is  now 4.3
million.
For those out there who are contemplating tx,  you might want to keep in mind
that aside from the nasty side effects that you
have to deal with during therapy, you also
run the risk of a skyrocketing VL if you should relapse.

Just my 2 cents.      

DrBenway - 19 Jan 2005 05:33 GMT
>My VL is  4.3 million.
>
[quoted text clipped - 12 lines]
>
>Just my 2 cents.      

Wow that's pretty a pretty sobering thought
I like to keep positive but that's also a bit of reality
not often so clearly spelled out
Thanks (I think.... <Grin> )

No really it's best to realize that situation exists before you
experience it head on.

But aside from the pure VL numbers and the hellified head trip
how are you feeling doing physically and how's your liver holding up
over the events described?

I'm only 9 of 48 weeks and have been doing pretty damn good with sides
and progress. I'm just getting adjusted and comfortable with the first
wave of TX and Tx related info,  (but I started at 1.7M  and I'm 54)

SVR, Relapsing. secondary TX, and transplants have not been
such immediate concerns yet, but its never too soon to contemplate.
 
Sorry but It sounds like you are really being tested I mean I don't
think sympathy from a stranger may do a whole lot of good but you
got delft some really rough cards and it's great that you are posting

I hope you are willing to share a little of what those numbers equate
to in terms of physical symptoms. It would be good for us to  know and
I hope it might be good for you  to talk about it.  I'm  relatively
new to the group, but I've not seen you post before, hope you haven't
posted this so many times  you are don't want to bother.

In any case Thanks for the perspective and for what it's worth
I wish you much/many changes all for the better

Hang tough dude!

DB
 

 
 

Thanks
DrBenway
(not a Dr nor did I play one on TV,  
but used to play DR as a kid a lot if that counts)
Karen - 19 Jan 2005 20:41 GMT
Dr, I've done the same. Been on treatment 7 times in 12 years. Respond, but
always relapse. SUCKS

>>My VL is  4.3 million.
>>
[quoted text clipped - 58 lines]
> (not a Dr nor did I play one on TV,
> but used to play DR as a kid a lot if that counts)
Paul - 20 Jan 2005 00:10 GMT
On Wed, 19 Jan 2005 20:41:25 GMT, "Karen" <krkeen@sbcglobal.net>, in
message ID <VBzHd.17154$wi2.15685@newssvr11.news.prodigy.com>, in the
newsgroup alt.support.hepatitis-c wrote:

>Dr, I've done the same. Been on treatment 7 times in 12 years. Respond, but
>always relapse. SUCKS

Good god.  Are you going for an entry in the Guiness Book of Records?
Signature

Paul

Use the reply by email facility in your
newsreader to send email

Karen - 20 Jan 2005 17:13 GMT
LOL

> On Wed, 19 Jan 2005 20:41:25 GMT, "Karen" <krkeen@sbcglobal.net>, in
> message ID <VBzHd.17154$wi2.15685@newssvr11.news.prodigy.com>, in the
[quoted text clipped - 5 lines]
>
> Good god.  Are you going for an entry in the Guiness Book of Records?
TPasco8136 - 20 Jan 2005 01:30 GMT
As far as the liver enzyme counts, they
were in the normal range for about two years.  Just recently the tests revealed
the ALT and AST to be elevated above the  normal range.

As far as symptoms, the only one I experience  is a  feeling of tiredness every
day shortly after lunch.  When I am at work I drink a cup of coffee or two to
get me through the day, when I am at home, I take a nap for 45 to 90 minutes.  

The intent of my post was not to discourage anyone from doing tx, but to point
out that the concept that one  cannot be any worse off after having done tx  is
not a 100 percent given truth.

Best of luck with your tx.
Thomas Wagner - 20 Jan 2005 02:00 GMT
>The intent of my post was not to discourage anyone from doing tx, but to point
>out that the concept that one  cannot be any worse off after having done tx  is
>not a 100 percent given truth.

You surely can be worse off after tx if one of your sides is permanent,
but a high viral load is not a sign of "being worse off". It's just a
sign that the virus is having a party now that the big bad wolf is gone.
But that doesn't mean your liver is any worse off than before. Again, a
high viral load signifies nothing while off tx. And in general, your
liver will be better off after tx, no matter what your viral load.

Thomas
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To reach me, complete my last name in the address.

PVTS esq. - 20 Jan 2005 07:25 GMT
From :  Thomas Wagner <tomw@capecod.com>
Message-ID : <gs3uu0lkc5bkhrk7etbkup5jn5h4500g5h@4ax.com>



>a high viral load signifies nothing while off tx. And in general, your
>liver will be better off after tx, no matter what your viral load

Playing doctor again Thomas ?

You do not have the clinical experience or qualifications to give such a
wild and speculative medical judgement

Internet cut-n-paste searches, and a lay-man's opinion *do not* or ever will
substitute for hands-on certified clinical experience

Professeur Von TwoSteps esq.


DrBenway - 20 Jan 2005 18:36 GMT
>From :  Thomas Wagner <tomw@capecod.com>
>Message-ID : <gs3uu0lkc5bkhrk7etbkup5jn5h4500g5h@4ax.com>
[quoted text clipped - 11 lines]
>
>Professeur Von TwoSteps esq.

Aside from smelling like a trolls personal vendetta

Exactly what value info or opinion did you add to this thread?
And your credentials are exactly what?

I find TW always adds something of value
and even on the very rare occasion he leans more to a personal
opinion, since his facts are generally pretty damn good, I find his
opinions are worth hearing regardless of if I  agree with them

In this case I understand TW's point and believe it is technically
correct, As much as I would like to hang on to VL as an easy
indicator, The term words Sustained Viral Response itself
implies that it is the Sustained and continued response,  that is the
actual goal not just the temporary detect ability of a VL,

My feeling is (especially in life threatening situations!) we are
looking for easy and absolute definition. But since these definitions
have a transient nature (their importance and effect vary over time)
What's true at one stage may not be the major truth at another stage

I've seen to many people report high VL,  (how long?)
with no liver damage or other detectable symptoms. and people
with low VL that were ready for a liver transplant. And nothing
that says there is a direct correlation between VL and liver damage.

We also see many people with VL  undetectable and then relapse later

The VL only directly speaks of the level in the blood not the
entire body (apparently that's why we relapse)

But when your waiting for the results of a PCR during TX
What you want is 2 log drop or zip  
So you need to know the baseline VL to determine
your 2 log drop so then the VL is the most important thing
(but who would care about the baseline VL it was now undetectable)

So PVT please either add something of value, without the dramatics
or please go back to increasing your certifiable "clinic time" .

DB


Thanks
DrBenway
(not a Dr nor did I play one on TV,  
but used to play DR as a kid a lot if that counts)
Professeur Von TwoSteps esq. - 21 Jan 2005 23:50 GMT
From :  DrBenway <user@usenet.net>
Message-ID : <onrvu097ibm5bs10es3t61372o0c3hfatt@4ax.com>



>Aside from smelling like a trolls personal vendetta

Well goombah, if it is a vendetta, you have just jumped the queue for
the next *bacio della morte* with your bad-mannered and pushy posturing

The word *troll* is the national salute of the .com rule-da-world mentality

*I* am not an arab, so do not presume you can teach me how to think, *I* march
to the tune of my own drum-beat. You would like the sound of my drum, it's
got a kinda hollow sound, just like your head

>Exactly what value info or opinion did you add to this thread?

Oh *I* did give an *opinion*, you must have been distracted being an alpha-male
and overlooked it. The *value* of a *quack* alert in a health forum is self evident

>I find TW always.. blah blah blah

Thomas is like *you*, a doom-n-gloom provocateur

>We also see many people with.. blah blah blah

Care to share in which specialist hepatic health care facility
*you* and the *we* made these medical observations ?

>add something of value

OK boss, ash-s is a global hepititis-c *support* safe zone where people
can drop in for tea-n-biscuits, it is not a dumpster for aesculapian aspirants
to unload their medical point-n-click junk and play Dr. Knowitall

All medical advice and counseling *must* be left to a *qualified* professional

Ding-ding-ding, that was strike three yaknow, now do your thing
DrBenway - 22 Jan 2005 00:18 GMT
>Ding-ding-ding, that was strike three yaknow, now do your thing

BWA HAHAHAHAHAHAHAHAH
Ploink your toast...... Smegma

Nice try    But  Bye  

Thanks
DrBenway
(not a Dr nor did I play one on TV,  
but used to play DR as a kid a lot if that counts)
Thomas Wagner - 20 Jan 2005 02:01 GMT
>The intent of my post was not to discourage anyone from doing tx, but to point
>out that the concept that one  cannot be any worse off after having done tx  is
>not a 100 percent given truth.

You surely can be worse off after tx if one of your sides is permanent,
but a high viral load is not a sign of "being worse off". It's just a
sign that the virus is having a party now that the big bad wolf is gone.
But that doesn't mean your liver is any worse off than before. Again, a
high viral load signifies nothing while off tx. And in general, your
liver will be better off after tx, no matter what your viral load.

Thomas
Signature

To reach me, complete my last name in the address.

Thomas Wagner - 19 Jan 2005 06:53 GMT
>For those out there who are contemplating tx,  you might want to keep in mind
>that aside from the nasty side effects that you
>have to deal with during therapy, you also
>run the risk of a skyrocketing VL if you should relapse.

Which is completely irrelevant, since the viral load has no relation to
liver damage or anything else. It's just a number. The only time it
becomes important is when you start treatment, then a very high viral
load makes it harder to clear. Otherwise there's nothing bad about a
high VL, and nothing good about a low one, except when it's zero.

Thomas
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To reach me, complete my last name in the address.

Karen - 19 Jan 2005 20:45 GMT
Thomas, thats not completely true, the viral load gives some idea of how
active the hep is. Last viral load was 9,800,000. During treatment was down
to 54,000. I'm in stage 4 but doing well. Dr says right now they are not
exactly sure how much help the viral load is, but it has helped us keep on
top. Sure tells when my hep is.

>>For those out there who are contemplating tx,  you might want to keep in
>>mind
[quoted text clipped - 9 lines]
>
> Thomas
Thomas Wagner - 20 Jan 2005 00:19 GMT
>Thomas, thats not completely true, the viral load gives some idea of how
>active the hep is. Last viral load was 9,800,000. During treatment was down
>to 54,000. I'm in stage 4 but doing well. Dr says right now they are not
>exactly sure how much help the viral load is, but it has helped us keep on
>top. Sure tells when my hep is.

There's no doubt that measuring viral load drop during treatment is
important, I wasn't talking about that. TPasco posted about high viral
loads AFTER unsuccessful treatment. And that viral load really is
irrelevant. Viral load might give a rough idea about viral replication
rates, but it doesn't tell you anything useful. What does "how active
the hep is" really mean? Nothing. The virus might be sitting in the
liver, never show up in the blood, and still kill all your liver cells.

A low viral load during treatment is extremely important - if it doesn't
drop fast enough, treatment is failing - but that's a different
situation. You're measuring a difference, not an absolute number.

Thomas
Signature

To reach me, complete my last name in the address.

Kozure Ookami - 20 Jan 2005 00:43 GMT
>Thomas, thats not completely true, the viral load gives some idea of how
>active the hep is. Last viral load was 9,800,000. During treatment was down
>to 54,000. I'm in stage 4 but doing well. Dr says right now they are not
>exactly sure how much help the viral load is, but it has helped us keep on
>top. Sure tells when my hep is.

How long have you stayed on tx in the past?  At
www.hepatitisdoctor.com Dr. Cecil recommends longer term therapy for
people with stage 3 and later fibrosis.  But one thing I wonder about
is you said earlier that you are a "relapser" but here you say your
viral load only got down to 54,000.  You have to become undetectable
to relapse.  I think you've taken about as many "shots" at tx as
anyone I've heard of.  I suspect a number of those treatments have
been interrupted?
Karen - 20 Jan 2005 17:17 GMT
The reason that I've been on tx so much is because the interferon/infergen
etc. does lower my AST, ALT & viral load. My Dr is trying to hold off the
disease until there are more meds to try. During the tx process the hep is
not killing my liver. And you are right, there were 2 times the tx had to be
dicontinued. Once I was in a study for ribaviran/interferon and after 2
months had to be taken off because of allergic reaction to ribaviran. Second
time, was the last round. My Dr put me on a maintenance level of Peg and
after 3 months I had a severe drop in platelets. No one has all the answers
to HepC so we are just trying to buy time.

Karen

>>Thomas, thats not completely true, the viral load gives some idea of how
>>active the hep is. Last viral load was 9,800,000. During treatment was
[quoted text clipped - 11 lines]
> anyone I've heard of.  I suspect a number of those treatments have
> been interrupted?
Thip - 19 Jan 2005 00:18 GMT
> What is everyone's viral load???
>
> Thanks
> Karen

Last check (around July) it was about 1,000,000.  I'm not on tx; tried twice
and failed and couldn't do the Infergen.
hoofprints - 19 Jan 2005 00:32 GMT
Just checked in Oct.2004, VL is around 450,000 per ml
This reflects no change from my last PCR Quantified lab test in Jan of
99.
hoof

> What is everyone's viral load???
>
> Thanks
> Karen

Signature

{ Disclaimer: Non Existent words contained within this poast
were created in response to the Paperwork Reduction Act.}
{If you have a problem with that,
take it to the Environmentalists Complaint Dept.}

A Free Thinker.

DrBenway - 19 Jan 2005 01:53 GMT
>Just checked in Oct.2004, VL is around 450,000 per ml
>This reflects no change from my last PCR Quantified lab test in Jan of
[quoted text clipped - 5 lines]
>> Thanks
>> Karen

1.78M IU/ml  Gen 1A as of 09/03/04
Pegasys Combo started    11/19/04  (9th of 48)
Next PCR after week 12    02/08/05  VL =???

DB

Thanks
DrBenway
(not a Dr nor did I play one on TV,  
but used to play DR as a kid a lot if that counts)
pajaritaflora - 19 Jan 2005 04:33 GMT
Hey,
My viral load is pretty low considering I've had this for 22years. I
believe it is 3600.
I have decided to do the treatment now while I have a good job with
health insurance.  Tonite I've done shot  #5 just 43 to go.

Mary Ann :)
Agua Girl - 22 Jan 2005 15:42 GMT
> Hey,
> My viral load is pretty low considering I've had this for 22years. I
> believe it is 3600.
> I have decided to do the treatment now while I have a good job with
> health insurance.  Tonite I've done shot  #5 just 43 to go.

Same reason as mine.  Biopsy looked good, viral load was still
low after 26 years.  I just figured I have insurance, could
manage to live off of disability if it came to that during tx and
was reasonably healthy...who knows what tomorrow will bring.

AG.
Paul - 19 Jan 2005 07:45 GMT
On Tue, 18 Jan 2005 23:31:07 GMT, "Karen" <krkeen@sbcglobal.net>, in
message ID <%_gHd.16843$wi2.1430@newssvr11.news.prodigy.com>, in the
newsgroup alt.support.hepatitis-c wrote:

>What is everyone's viral load???

The last time they looked it was <10  (probably 0) .
Before tx it was a mere 91,000 .
Signature

Paul

Use the reply by email facility in your
newsreader to send email

Kozure Ookami - 19 Jan 2005 08:23 GMT
>What is everyone's viral load???
>
>Thanks
>Karen

Well, before starting tx it was 2.9 milion iu/ml but is currently
undetectable.  Some people are going to answer in virus eq/ml and
others in IU/ml so it may be hard to make sense of peoples viral
loads.  There is some evidence that these viral loads can fluctuate
quite a bit naturally.
Rasputin - 19 Jan 2005 08:27 GMT
> What is everyone's viral load???
>
> Thanks
> Karen

Started treatment 4 weeks ago with a low viral load of 9,500. I am due for a
PCR test next week and will report back.

Jonathan
news.verizon.net - 19 Jan 2005 13:29 GMT
>> What is everyone's viral load???
>>
[quoted text clipped - 13 lines]
>working and less stress helps. @ one hour naps a day and no more than 15
>minutes on my feet...I can tolerate a 1 hour car ride every now and then.
Bobby
szozu - 19 Jan 2005 13:58 GMT
> What is everyone's viral load???
>
> Thanks
> Karen

Undetectable since week 10 of tx back in autumn of 2002.

Lana
Mark Emerson - 19 Jan 2005 15:08 GMT
Mine was 9.6 million before tx...at 12 weeks I was undetectable. I would not
get too excited about the actual "number".....it really is just a number and
is no indication of liver damage. What we're all looking for is
undetectable...now that's a "good" number :-)
Life is good
Mark
Rasputin - 19 Jan 2005 17:12 GMT
> Mine was 9.6 million before tx...at 12 weeks I was undetectable. I would not
> get too excited about the actual "number".....it really is just a number and
> is no indication of liver damage. What we're all looking for is
> undetectable...now that's a "good" number :-)
> Life is good
> Mark

This is true in 5 years I went from mild inflamation only to portal bridging
fibrosis, this is with a viral load of 9,500.
Kozure Ookami - 19 Jan 2005 20:16 GMT
>> Mine was 9.6 million before tx...at 12 weeks I was undetectable. I would
>not
[quoted text clipped - 7 lines]
>This is true in 5 years I went from mild inflamation only to portal bridging
>fibrosis, this is with a viral load of 9,500.

Wow, that's quite a jump in 5 years although that is not the first
time I've heard that.  How long do you believe you've had the virus?
Rasputin - 20 Jan 2005 07:55 GMT
> >> Mine was 9.6 million before tx...at 12 weeks I was undetectable. I would
> >not
[quoted text clipped - 10 lines]
> Wow, that's quite a jump in 5 years although that is not the first
> time I've heard that.  How long do you believe you've had the virus?

Ah thats an easy one to answer 22 years and 10 months approximately.  I have
very mild haemophilia, and have only had 4 treatments for bleeding, one of
which was in the at risk period for UK blood, I was 11 years old and in
hospital over Easter hence quite easy to remember. I can't prove that it was
that treatment though on the balance of probabilty it is the most likely
option.
PVTS esq. - 20 Jan 2005 07:27 GMT
From :  "Karen" <krkeen@sbcglobal.net>
Message-ID : <%_gHd.16843$wi2.1430@newssvr11.news.prodigy.com>



>What is everyone's viral load???
>
>Thanks
>Karen

Why on earth would you want to know personal medical information like that for ?

Professeur Von TwoSteps esq.
Karen - 20 Jan 2005 17:24 GMT
I'm not asking what is your sexual preference, now that is personal. This is
a group that helps each other with knowledge that they have. I feel safe
here to ask questions about Hep C, that's why I'm here. I can learn so much
from you all here. There is much that no one knows, except we, who
experience it. Like I've said before, in 1992 the first Dr I saw said I
would be dead within 5 years. If I would have stayed with him, I probably
would've died. But instead, I researched and found out that he was full of
sh.t, and it was at sites & groups like this that I learned that. I'm sorry
if I insulted you.

Karen

> From :  "Karen" <krkeen@sbcglobal.net>
> Message-ID : <%_gHd.16843$wi2.1430@newssvr11.news.prodigy.com>
[quoted text clipped - 8 lines]
>
> Professeur Von TwoSteps esq.
DrBenway - 20 Jan 2005 19:31 GMT
Karen
don't waste your apology on a troll!
those who felt like answering have and or will.

Make up your own mind but
I've only seen two posts in this group  from the "prof"
Both are the standard adolescent nastigram bait trolls

Yours is a great story of personal strength!
Stay with it women

With all the horse crap out there
there must be a pony in there some place <BG>

Be well
DB

>I'm not asking what is your sexual preference, now that is personal. This is
>a group that helps each other with knowledge that they have. I feel safe
[quoted text clipped - 20 lines]
>>
>> Professeur Von TwoSteps esq.

Thanks
DrBenway
(not a Dr nor did I play one on TV,  
but used to play DR as a kid a lot if that counts)
Karen - 21 Jan 2005 03:14 GMT
Thank you so very much!

Karen<<<<<<dragonfighter

> Karen
> don't waste your apology on a troll!
[quoted text clipped - 46 lines]
> (not a Dr nor did I play one on TV,
> but used to play DR as a kid a lot if that counts)
DrBenway - 21 Jan 2005 03:59 GMT
>Thank you so very much!
>
[quoted text clipped - 3 lines]
>> don't waste your apology on a troll!
>> those who felt like answering have and or will.

My pleasure

BE Well
DB

Thanks
DrBenway
(not a Dr nor did I play one on TV,  
but used to play DR as a kid a lot if that counts)
Professeur Von TwoSteps esq. - 21 Jan 2005 23:50 GMT
From :  "Karen" <krkeen@sbcglobal.net>
Message-ID : <FPRHd.4002$2e7.50@newssvr12.news.prodigy.com>



>I'm not asking what is your sexual preference

Perhaps you should, that kinda information has been known to make
some women rush out and buy erotic silk lingerie and make an
appointment with their hairdresser

>I can learn so much from you all here

With respect, there is noone here that has the necessary qualifications
to advise you on medical matters. A virus-hc infection is *totally* individual
to each person, the sensible management of it can only be advised by those that
are clinically monitoring the progression. To suggest otherwise is a nonsense

>Like I've said before, in 1992 the first Dr I saw said I would be dead within 5 years.
>If I would have stayed with him, I probably would've died

I am unable to comment about that as *I* was not your consulting gastroenterologist

However in saying that, *I* will comment that a good majority of people that presents
with a virus-hc infection will die *with* virus-hc, rather than *of* virus-hc

The important thing to remember for most is not to live and breath virus-hc 24-7
as some of the medical dropkicks in this NG would have you do

It's ok to laugh and think the same as you did in the 'ol days yaknow

>I'm sorry if I insulted you

You didn't insult me

This is the internet, a query about personal information should flash a
red light in anyone. Health NG's are notoriously perilous, personal information
handed out, may or may-not return one day and bite you on the arse

Personal information should stay personal, you would be wise to remember that
Karen - 22 Jan 2005 03:39 GMT
Shut the f up

> From :  "Karen" <krkeen@sbcglobal.net>
> Message-ID : <FPRHd.4002$2e7.50@newssvr12.news.prodigy.com>
[quoted text clipped - 44 lines]
> Personal information should stay personal, you would be wise to remember
> that
rick nelson - 22 Jan 2005 18:36 GMT
> Shut the f up

?. I thought that, for once, he had something of value to say. Especially:

>>However in saying that, *I* will comment that a good majority of people
>>that (sic) presents
[quoted text clipped - 6 lines]
>>
>>It's ok to laugh and think the same as you did in the 'ol days. Ya know?

I can't disagree with that.

    rick
hoofprints - 24 Jan 2005 15:50 GMT
> > Shut the f up
>
> ?. I thought that, for once, he had something of value to say.

He did and he does but the gossip just keeps going on and on and the
newbies believe everything they hear including that nasty word Troll.

hoof
Especially:

> >>However in saying that, *I* will comment that a good majority of people
> >>that (sic) presents
[quoted text clipped - 10 lines]
>
>         rick

Signature

{ Disclaimer: Non Existent words contained within this poast
were created in response to the Paperwork Reduction Act.}
{If you have a problem with that,
take it to the Environmentalists Complaint Dept.}

A Free Thinker.

Professeur Von TwoSteps esq. - 22 Jan 2005 21:29 GMT
From :  "Karen" <krkeen@sbcglobal.net>
Message-ID : <AVjId.22025$iC4.6588@newssvr30.news.prodigy.com>



>Shut the f up

I am shocked that you would use language like that in a health support NG
Is this *your* idea of helping each other with *knowledge*

You still *didn't* say why *you* are compiling a *database* of private
health information about the people in ash-c.

Something *smells* about you, and it's not just *your* rude attitude
Susie Quill - 26 Feb 2005 01:55 GMT
I have found that blocking identified trolls, such as this one, has done
wonders for my outlook on life.  Your question was appropriate and made for
interesting responses.
Susie

> I'm not asking what is your sexual preference, now that is personal. This
> is a group that helps each other with knowledge that they have. I feel
[quoted text clipped - 20 lines]
>>
>> Professeur Von TwoSteps esq.
GWB - 26 Feb 2005 05:52 GMT
ghibeluno - 20 Jan 2005 11:05 GMT
> What is everyone's viral load???

Hi,
    started treatment in October 2004.

Genotype 4.
VL was 12,500 IU/ml in April 2004, then went down to 3,250 IU/ml in
September 2004. This was considered the baseline value.

I was undetectable (by PCR) at week 4 of treatment and I'm now waiting
for the week 12 blood test results.
Under pressure, of course, but trying to use my rationality.

By the way: does anyone know whether (or how much) being undetectable at
an early stage during treatment (week 4 in this case) can improve
possibility to get a 12 week good result?

Links to documents on the net would be appreciated, too.

Thanks,
jeeb.
Gordo Mondragon - 20 Jan 2005 12:20 GMT
> > What is everyone's viral load???
>
[quoted text clipped - 12 lines]
> an early stage during treatment (week 4 in this case) can improve
> possibility to get a 12 week good result?

Jeeb - what I remember from the reading that I did when I first started
tx is that getting the VL down to undetectable sooner than week 12 was a
very good sign, and that it was more usual to sustain that
undetectability through treatment than not.

I was treating an acute case, genotype 1b, I was also undetectable at
week 4 which my doctor said was a very good sign, and I remained
undetectable through my 6 months of treatment.

I'm back at work now and don't have time to find links, but I thought I
would share my experience.

Gordo
ghibeluno - 20 Jan 2005 12:55 GMT
[...]

> I'm back at work now and don't have time to find links, but I thought I
> would share my experience.
>
> Gordo

Thanks Gordo,
    how is being back to work after a while?

cheers,
jeeb.
Gordo Mondragon - 21 Jan 2005 12:25 GMT
> [...]
> >
[quoted text clipped - 5 lines]
> Thanks Gordo,
>     how is being back to work after a while?

Getting up in the morning sucks.  I'm used to going to bed whenever,
going to sleep whenever, and getting up whenever.  

Either due to the tx, or the huge amounts of MJ that I ingested, or just
being out of practice, my short-term memory isn't what it was.  It's
only been three days, though.

My perspective has changed a lot.  I got through treatment, there's not
much that I'm going to face at work that is going to be any worse.  
Taking the attitude that everything is easier than that reduces a lot a
stress and worry.

They were really really supportive to me when I was out - basically I
got paid for a while while "working from home" when I couldn't work more
than a couple of hours a week.  I didn't have to worry about that at all
and that made a huge difference, and now I have to be their work slave
for the next six months to work off that debt :)

G
Captain Backo - 20 Jan 2005 19:52 GMT
Hi Karen,
I started in May 2004 with 5 million(geno:1b),
after week 12 vl went down to  25000
and after week 24 - undetectable.
Just 10 min. ago I shot #37 > 11 to go.
We all should hope for SVR and forget  that the
virus might be still there in a latent form.
We might be lucky - as miracles happen every day.
Good luck to you and to everyone in this NG.

CB
(not a real captain - just love sailing and therefore some friends call me
captain)

> What is everyone's viral load???
>
> Thanks
> Karen
Firestar - 21 Jan 2005 04:55 GMT
> What is everyone's viral load???
>
> Thanks
> Karen

Prior to tx VL was 3,500,000.
Six months after completing 49 shots of Pegasys (I had an extra one) and 48
weeks of Copegus:  Viral Load = 21,700,000.
Type 1b tx failure.
I have an appointment Monday with a bigwig medical school Gastro to evaluate
my options.
Thom
Agua Girl - 22 Jan 2005 15:37 GMT
> What is everyone's viral load???

0  wohoo!!!    Was 285k

AG
Fred Grouell - 22 Jan 2005 17:08 GMT
Don't know will ask though
> What is everyone's viral load???
>
> Thanks
> Karen
 
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