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Medical Forum / Diseases and Disorders / Hepatitis / November 2004hellooo
Im not shure how this all works and I hope spelling dosn't count. I have untreatable hep c. My livers two iffy and there are tomany other things hapining. I T P, Sarcoiditus, diabieti, hypertension and alergic asthma. lovely aint it. Dose any one know about the hurbal treetments peopld talk about. IF I cant strich things out my husband wont take the treetment and I want him to stick around as long as he can. Besides dieing is not my best thing. zoe >Im not shure how this all works and I hope spelling dosn't count. I have >untreatable hep c. My livers two iffy and there are tomany other things [quoted text clipped - 3 lines] >want him to stick around as long as he can. Besides dieing is not my best >thing. There is no alternative to conventional treatment, most herbs won't help and can possibly hurt. You can try milk thistle, that's the only herb generally thought to help, but there's no guarantee that it will stretch out anything at all. Are you sure that your HepC is untreatable? The too many other things might be caused by the Hep, so treatment could possibly help with them as well. Have you talked to a liver specialist, or just your GP? Thomas  SignatureTo reach me, complete my last name in the address. Thomas It was my specialist who said I could not be treated. It is kind of hard to take. I have always intended to be a ornery old lady when I go. Now everyone treats me like I am going to die tomorrow. I no longer work and I get very depressed. It is hard to know you are going to die even if they give you 4 or 5 years. thanks. Zoe > >Im not shure how this all works and I hope spelling dosn't count. I have > >untreatable hep c. My livers two iffy and there are tomany other things [quoted text clipped - 13 lines] > > Thomas >Thomas It was my specialist who said I could not be treated. It is kind of >hard to take. I have always intended to be a ornery old lady when I go. >Now everyone treats me like I am going to die tomorrow. I no longer work >and I get very depressed. It is hard to know you are going to die even if >they give you 4 or 5 years. thanks. Too bad, do you know the reason? There are only a few conditions that make treatment hard or impossible, decompensated cirrhosis is one of them. Sounds like you're at that point. However, even for those patients, treatment can work (though with much decreased odds of just 20%): http://www.natap.org/2002/AASLD/day23.htm. It might be a good idea to get a second opinion from a different specialist. In the end, though, there may not be much to help stretching things other than getting on a transplant list (if that's something you'd be willing to go through). Don't fall for the snake oil salesmen. Thomas SignatureTo reach me, complete my last name in the address. hallow Thomas, Nice to have some one to talk to. I may not have all the terms correct, there are to numbers used to measure the extent of liver damage. 1 being good and 4 very bad. my #'s are both 4s. also the itp, my system was killing my platelets, is one of the side effects of the drug therapy that will halt treatment immediately. I had it with out the drugs. My liver is so enlarged I can feel it. They thought I had a growth on it but it was just the liver. They also say I am a very poor candidate for transplant. The sarchoidosis is in my lungs and I already had chronic inflammatory lung disease due to life long asthma. This is my second dr the first wouldn't touch me and gave me a rubber stamp prescription for a dose that would have been two heavy for my husband who is 6'4" and 260 lbs, I'm 5'1" and 140 lbs. I always said it was a merical any of us got out of the 60's alive. It's just taking a little longer to get some of us. Zoe > >Thomas It was my specialist who said I could not be treated. It is kind of > >hard to take. I have always intended to be a ornery old lady when I go. [quoted text clipped - 14 lines] > > Thomas >hallow Thomas, Nice to have some one to talk to. I may not have all the >terms correct, there are to numbers used to measure the extent of liver >damage. 1 being good and 4 very bad. my #'s are both 4s. also the itp, my >system was killing my platelets, is one of the side effects of the drug >therapy that will halt treatment immediately. Ah yes, that is indeed one reason not to do treatment. Bummer. And no transplant, either? Really sorry to hear that. Guess the only thing left is to try to have some fun in the remaining time and to go with dignity. I wish I had something more uplifting to say, but I don't. My thoughts are with you. Thomas SignatureTo reach me, complete my last name in the address. >>hallow Thomas, Nice to have some one to talk to. I may not have all the >>terms correct, there are to numbers used to measure the extent of liver [quoted text clipped - 9 lines] > >Thomas That is indeed a bad situation. But the reality is we're all terminal from the day we were born and all we can hope for is to have some fun in the remaining time and to go with dignity. Good luck to you Zoe. Hope you have many good years left. And I hope your husband chooses to fight if he is able and it is prudent. Don Hi Don and Thomas Thanks for all the good thoughts but I don't know about the dignity stuff. I intend to go fighting, clawing, screaming and spitting all the way. My husband and I have bought a brand new Harley and although my distance riding is limited we will be putting in some good miles. I can no longer drive truck but my husband can take me with him. As soon as we get some things taken care of hear at home I will be going with him. We have been married for 35 years and I fear that not wanting to go on with out me is a factor to him. he also fails to see the need to live more than 10 years his 70's don't interest him. oh well. I think he would be a very cuite old man. of course I'm pregidus. Oh one more thing my name Zoe is Greek for life. I sellibrate it that tends to get me in trouble on ocassion. Zoe > >>hallow Thomas, Nice to have some one to talk to. I may not have all the > >>terms correct, there are to numbers used to measure the extent of liver [quoted text clipped - 17 lines] > > Don >Hi Don and Thomas Thanks for all the good thoughts but I don't know about >the dignity stuff. I intend to go fighting, clawing, screaming and spitting [quoted text clipped - 10 lines] > Zoe >"Don" <ikiru@nowhere.org> wrote in message Ha ha, no one said dignity was giving up without a fight! Sounds to me like you got a good thing going with your husband. I like your name and the meaning in it. Actually, the nickname in my fake email address "Ikiru" is Japanese and means "to live". I borrowed it from the title of an excellent movie by the acclaimed Japanese director Akira Kurosawa about a man who discovers he has cancer. Keep celebrating, Don |
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