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Medical Forum / Diseases and Disorders / Hepatitis / November 2004COME ON... check-in everyone..
Once again.. time for everyone here reading this to let us all know how you're doing. ON Tx.. POST TX.. Or PRE TX.. It doesn't matter. You're all individuals that count very much. And as we all share the distinction of having, or of having HAD, this shitty stuff, well.. I care about you.. SO ... yell out here.. let us all hear.. DON'T BE SHY.. I'm going to keep asking, and expect REGULAR UPDATES.. ME? coming up on shot #5 now, doing ok.. the bodyaches, and fuzzyheadness, and periodic nausea, are getting slightly worse at times. It's manageable though. I mean, I WILL do this, and KILL that Dragon. Take care Everyone.. Michael I had a worse week last week - not as bad as when I first started but still not as good as the weeks before. This week seems to be shaping up OK, a little more energy, a little less awful feeling. I'm really finding that I'm less worried about the drugs I am using for the sides because the only way for me to deal with when I feel real awful is to get some sort of chemical distance from it. Sometimes the green stuff (in brownies) but that requires an understanding that I'm not going to get anything done for a few hours... OK, the rest of the day. Sometimes a Xanax - took one for sitting through YET ANOTHER town board of adjustment meeting to prevent the building of a 4-story monstrosity 8 feet from my back fence. I figured out that this board doesn't like to be lied to and doesn't like to have things hidden from them, so I have to question the engineer & architect & planner (who are really lazy, it seems, and aren't getting paid enough to care much) until I get them to lie in a way that contradicts something they've already said, and then to admit something they had left out. It's real active thinking and listening and being devious. But the Xanax gave me the distance from the side effect beast that I could ignore it for a few hours. Paying for it now, though, an hour later. I take my 20th shot tomorrow. Time flies when you aren't engaged in anything much more than keeping from veering out of control. I've been taking Symbyax (a combo of prozac and an antipsychotic) which is marketed for treating the depressive phase of bipolar people. I started it Sept 15 and at first it sort of revved me up. Then shifted a little where it wasn't as engaging as it was before and I had a few teary moments, and now I feel pretty stable and when I take it before bedtime it really knocks me out. Must have built up in me because it didn't do that before. So it's working for what I needed - no more crying, and I sleep through the night 4 out 5 nights. I trimmed my beard for the first time in a while. Eeek. This stuff really does make your hair thin out. Hope everyone else is doing OK.... Gordo > Once again.. time for everyone here reading this to let us all know how > you're doing. ON Tx.. POST TX.. Or PRE TX.. [quoted text clipped - 15 lines] > > Michael Hi Mike, This is my first post, although I admit I have done a bit of lurking here. I am doing the pegasys, 1000 mgs Copegus combo. I, like you, am going to do my 5th injection on Friday. Sorry to hear about your sides. I have had some, but nothing that bothers me that much. The last few Saturdays, I've slept till around noon, felt a little pukey,sleepy. Afternoon Saturday, I take it easy the rest of the day. Sundays, pretty much normal, trying to repair from the hurricanes, still. This Saturday afternoon, I intend on pulling out around 30 damaged shingles, and putting some new ones in place. My lab work is steadily going down, wbc now 2.5;platelets 109; INR 1.1; neutrophils, 44; ALT 254, AST 128 . Load two months before tx: 19 million, 1 week b/4 <700, 000. I was doing some Chinese herbs, (which I didnt think was helping). Jan 6th I guess we'll both do the 12 week PCR. Too bad there isn't a way to make time go faster to get through this. However, there must be some guardian angels watching over me, because so far, not so bad. > Once again.. time for everyone here reading this to let us all know how > you're doing. ON Tx.. POST TX.. Or PRE TX.. [quoted text clipped - 15 lines] > > Michael Hi Michael, I just had my 14th shot yesterday,(Tuesday), and am moving pretty slowly today and spent a lot of the day in bed and took it easy. My doc had to increase the synthroid from 225ug to 250ug. Whenever they mess with my medications, there is always an adjustment period, where the body gets used to the new dosage. Whether it's wafarin,diltiazem,synthroid or digoxin.To top that off, there are the pain meds I take for chronic pain, methadone, and percocette for breakthrough pain. So what happens is as the methadone wears off I get hot flushes and the sweats, and that makes it hard to know why, at any time I do not feel well,is it because of the interferon injection, the ribavirin, or am I experiencing withdrawal symptoms from the pain meds? On the plus side, I lost another few pounds lately, and that is a good thing. Two times this week I was out and about and wanted something to eat from a fast food restaurant, at first I was thinking fillet of fish, or a burger.Right next door to McDonalds there is a Taco Bell, and that is where I went to eat. It can be hard, breaking old habits.But sometimes necessary. The tacos were good and probably healthier for me.I'm still waiting for the week 12 results now. It's been 15 days since they sent the sample off to Palo Alto. Getting a little antsy now, I'd hate like hell to think all of this was for naught. For those of you who are able to continue working while in tx, how in the name of goodness do you do it. I sure couldn't. The brain fog is not just some abstract thing, it exists, and does make it hard to think. Thanks for asking Michael. John > > Once again.. time for everyone here reading this to let us all know how > > you're doing. ON Tx.. POST TX.. Or PRE TX.. [quoted text clipped - 15 lines] > > > > Michael Hello, John. I see you've been 'thinking outside the bun', LOL. Subway is an even better alternative. Their all vege sandwich is pretty darn good. How does one continue to work while on treatment? I only lasted 6 weeks still working my first go-round while doing 3X a week injections and riba before a combination of rage and fatigue got me and I couldn't work anymore. My doc didn't give me anything to fight the sides with.....no anti-d's and no procrit. After I relapsed and wanted to do tx again, I fired the doc and got into a clinical trial with a new doc and practitioner. Weekly shots of PEG and riba were a little easier, not so much of a roller coaster. But with the addition of synthroid for my dead thyroid, anti-d's and procrit made it even easier. The thing that kept me going the most though, was the knowledge that if I didn't work, I'd lose my shirt AGAIN because I wouldn't make enough money from disability to pay my expenses. I still went in the hole paying all the co-pays and wasn't able to work up to my potential. But at least I saved my job and kept my health insurance. I ended up relapsing when I finished my second round of tx. The third time around was the most difficult, starting with daily shots of Infergen, riba and amantadine... then doing both Pegasys and the daily shots of Infergen for a couple of weeks, then after I went undetectable doing Pegasys, Copegus and amantadine. The daily Infergen and 1400 mg of riba wiped my a.s and I started doing Procrit after only 2 weeks on tx. It was VERY hard getting out of bed every day to go to work and I used all my sick days, personal days and vacation on those days when I just couldn't do it. It was the hardest thing I've ever done, I did my best to push myself and separate my mind from my body just to keep going. Some days I'd take naps in my car while I was on the road........I was a beverage salesman. I remember one day standing out in front of a deli talking to the owner who was whining about his cold, hehe, and how bad he felt. I got a sudden rush of nausea and walked over to the curb and vomited in the gutter. Working while doing tx takes alot of guts and a whole lot of cooperation from your doc to combat the sides. I got thru it one day at a time, one step at a time. Elmo ///////// I just had my 14th shot yesterday,(Tuesday), and am moving pretty slowly today and spent a lot of the day in bed and took it easy. My doc had to increase the synthroid from 225ug to 250ug. Whenever they mess with my medications, there is always an adjustment period, where the body gets used to the new dosage. Whether it's wafarin,diltiazem,synthroid or digoxin.To top that off, there are the pain meds I take for chronic pain, methadone, and percocette for breakthrough pain. So what happens is as the methadone wears off I get hot flushes and the sweats, and that makes it hard to know why, at any time I do not feel well,is it because of the interferon injection, the ribavirin, or am I experiencing withdrawal symptoms from the pain meds? On the plus side, I lost another few pounds lately, and that is a good thing. Two times this week I was out and about and wanted something to eat from a fast food restaurant, at first I was thinking fillet of fish, or a burger.Right next door to McDonalds there is a Taco Bell, and that is where I went to eat. It can be hard, breaking old habits.But sometimes necessary. The tacos were good and probably healthier for me.I'm still waiting for the week 12 results now. It's been 15 days since they sent the sample off to Palo Alto. Getting a little antsy now, I'd hate like hell to think all of this was for naught. For those of you who are able to continue working while in tx, how in the name of goodness do you do it. I sure couldn't. The brain fog is not just some abstract thing, it exists, and does make it hard to think. Thanks for asking Michael. John "Michael L. Arends" <mlarends@NODAMNSPAMearthlink.net> wrote in message news:Qv-dncWiwN2CORTcRVn-hw@giganews.com... Once again.. time for everyone here reading this to let us all know how you're doing. ON Tx.. POST TX.. Or PRE TX.. It doesn't matter. You're all individuals that count very much. And as we all share the distinction of having, or of having HAD, this shitty stuff, well.. I care about you.. SO ... yell out here.. let us all hear.. DON'T BE SHY.. I'm going to keep asking, and expect REGULAR UPDATES.. ME? coming up on shot #5 now, doing ok.. the bodyaches, and fuzzyheadness, and periodic nausea, are getting slightly worse at times. It's manageable though. I mean, I WILL do this, and KILL that Dragon. Take care Everyone.. Michael http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Elmo, apparently you have a strong survival instinct that is you must really want to live to have put up with all of that.You were taking 1400mg of ribavirin That seems like a lot, I take 1200, and I thought it was weight based.Do you still take synthrroid?You're right about not being able to pay your expenses while on disability. Not a week goes by that I do not get demand notices in the mail. That gets tiresome. One thing I don't understand is I've heard your history before, and I know you're no child, so why is it that in any pictures of you I have seen, you don't seem to have one grey hair on your head? I went silver in my 40's, but I suppose grey is slightly better than bald. That is my hair has thinned out on tx, but at least I still have some :) All those meds must have cost a mint, I know there are many folks out there who want and deserve tx, but cannot afford it, but they have to practically jam it down my throat.You know up until about a year ago, I had a very strong will to live, but when things started to go wrong in all areas of life, socially,financially, sexually, you name it, it became a lot more difficult to find reasons to live. But you know, death is so damn permanent, as in forever.That's a long time, at least 2 or 3 weeks anyway:) One step at a time, one day at a time, sometimes for me its one hour at a time.Golly this sounds like A.A., but whatever works, works I guess.I will try one of Subway's veggie subs, it sounds healthy, at least according to Jarred. John > Hello, John. I see you've been 'thinking outside the bun', LOL. Subway > is an even better alternative. Their all vege sandwich is pretty darn [quoted text clipped - 33 lines] > Elmo > ///////// Smiling Wickedly, Red Dwarf answered: > Hi Michael, > I just had my 14th shot yesterday,(Tuesday), and am moving pretty slowly [quoted text clipped - 20 lines] > make it hard to think. Thanks for asking Michael. > John Thanks for letting us know John. I'm only at shot 5 (tomorrow), but so far I've only missed a day and a half of work. It hasn't been easy, and some days, I felt like going home. BUT, I stuck it out. It helps having a VERY understanding manager. Michael, no offense, but I hope I don't have ride on any airplanes you may have built while on tx :)Just as they say you shouldn't buy a car that was made on either a Friday or a Monday.LOL John > Smiling Wickedly, Red Dwarf answered: > > Hi Michael, [quoted text clipped - 27 lines] > It hasn't been easy, and some days, I felt like going home. BUT, I > stuck it out. It helps having a VERY understanding manager. Red Dwarf answered: > Michael, no offense, but I hope I don't have ride on any airplanes you may > have built while on tx :)Just as they say you shouldn't buy a car that was > made on either a Friday or a Monday.LOL > John No worries John, I'm a office/computer/safety geek. Although I do spend around 1/2 my day on the shop floor. I'm one of the ones that makes sure everyone ELSE is (hopefully) safe on the job. Michael > I'm a office/computer/safety geek. Although I do spend around 1/2 my > day on the shop floor. I'm one of the ones that makes sure everyone > ELSE is (hopefully) safe on the job. > > Michael A *busybody* is the word most of us use to describe that. Welcome to the group, Johan. Good luck Saturday working on your roof. Be careful up there, balance can be a problem. Elmo //////////// (Johan Bachman) Hi Mike, This is my first post, although I admit I have done a bit of lurking here. I am doing the pegasys, 1000 mgs Copegus combo. I, like you, am going to do my 5th injection on Friday. Sorry to hear about your sides. I have had some, but nothing that bothers me that much. The last few Saturdays, I've slept till around noon, felt a little pukey,sleepy. Afternoon Saturday, I take it easy the rest of the day. Sundays, pretty much normal, trying to repair from the hurricanes, still. This Saturday afternoon, I intend on pulling out around 30 damaged shingles, and putting some new ones in place. My lab work is steadily going down, wbc now 2.5;platelets 109; INR 1.1; neutrophils, 44; ALT 254, AST 128 . Load two months before tx: 19 million, 1 week b/4 <700, 000. I was doing some Chinese herbs, (which I didnt think was helping). Jan 6th I guess we'll both do the 12 week PCR. Too bad there isn't a way to make time go faster to get through this. However, there must be some guardian angels watching over me, because so far, not so bad. "Michael L. Arends" <mlarends@NODAMNSPAMearthlink.net> wrote in message news:Qv-dncWiwN2CORTcRVn-hw@giganews.com... Once again.. time for everyone here reading this to let us all know how you're doing. ON Tx.. POST TX.. Or PRE TX.. It doesn't matter. You're all individuals that count very much. And as we all share the distinction of having, or of having HAD, this shitty stuff, well.. I care about you.. SO ... yell out here.. let us all hear.. DON'T BE SHY.. I'm going to keep asking, and expect REGULAR UPDATES.. ME? coming up on shot #5 now, doing ok.. the bodyaches, and fuzzyheadness, and periodic nausea, are getting slightly worse at times. It's manageable though. I mean, I WILL do this, and KILL that Dragon. Take care Everyone.. Michael http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Thanks Elmo, sorry to hear about your shoulder. I had several operations on mine to fix an impinged shoulder, although it still hurts to sleep on it for long. The good news is: I can sleep on the right side again, because the TX is reducing the swelling in the ole LIVER! I have been sleeping on my back for about a year now since I got the baseball under the rib syndrome. Bad news is my WBC's have gone to 2.2, doc may stop my TX. I hear Procrit would help, but I don't know where to get any of that! (I hear it costs $17K for a 40,000Iu , week's supply). Oh well, we'll give it a shot anyway Welcome to the group, Johan. Good luck Saturday working on your roof. Be careful up there, balance can be a problem. Elmo //////////// (Johan Bachman) I assume you're posting from Germany and am wondering if docs in your country prescribe Procrit or something equivalent. Have you asked? It would most likely help keep you on treatment. I'm wondering is shoulder surgery might be in the offing for me, as well. I'd rather do that than stay on medication for the rest of my life with minimal relief. Elmo ///////// Thanks Elmo, sorry to hear about your shoulder. I had several operations on mine to fix an impinged shoulder, although it still hurts to sleep on it for long. The good news is: I can sleep on the right side again, because the TX is reducing the swelling in the ole LIVER! I have been sleeping on my back for about a year now since I got the baseball under the rib syndrome. Bad news is my WBC's have gone to 2.2, doc may stop my TX. I hear Procrit would help, but I don't know where to get any of that! (I hear it costs $17K for a 40,000Iu , week's supply). Oh well, we'll give it a shot anyway <elmoemerson@webtv.net> wrote in message news:1502-418A3035-218@storefull-3254.bay.webtv.net... Welcome to the group, Johan. Good luck Saturday working on your roof. Be careful up there, balance can be a problem. Elmo //////////// (Johan Bachman) http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum > I'm wondering is shoulder > surgery might be in the offing for me, as well. I'd rather do that than > stay on medication for the rest of my life with minimal relief. > Elmo Hey, you could mosey on over to smdh and get one of the gators to chomp it off yaknow. I have stopped by there and lurked and read every post there lately, and I can say for sure that sci.med.disease.hepatitis has nothing to do with science or medicine or disease of hepatitis. It is just a very strange group of screwballs with nothing constructive to say, and each time I go there I hope to learn something, what I have learned is to stay the hell away from that n/g. I was fooled into thinking there was something useful there.Just a lot of silly talk about swamps and gators, and I'll bet not one of them is a real Cajun.Lets hope and pray they don't come here, we DO NOT need that, they make no sense at all. John > NOTE: This message was sent thru a mail2news gateway. > No effort was made to verify the identity of the sender. [quoted text clipped - 7 lines] > Hey, you could mosey on over to smdh and get one of the gators to chomp it off > yaknow. If you only knew, John! Things don't always appear as they seem. You ever heard of magic? Some things are meant to be taken seriously and some are not. Count your blessings, friend! Elmo //////////// I have stopped by there and lurked and read every post there lately, and I can say for sure that sci.med.disease.hepatitis has nothing to do with science or medicine or disease of hepatitis. It is just a very strange group of screwballs with nothing constructive to say, and each time I go there I hope to learn something, what I have learned is to stay the hell away from that n/g. I was fooled into thinking there was something useful there.Just a lot of silly talk about swamps and gators, and I'll bet not one of them is a real Cajun.Lets hope and pray they don't come here, we DO NOT need that, they make no sense at all. John "An Metet" <anmetet@freedom.gmsociety.org> wrote in message news:3bf4a0fa9c24963df9dfedd41629712e@anonymous.poster... NOTE: This message was sent thru a mail2news gateway. No effort was made to verify the identity of the sender. ---------------------------------------------- In article <698-418CDB3F-28@storefull-3254.bay.webtv.net> elmoemerson@webtv.net wrote: I'm wondering is shoulder surgery might be in the offing for me, as well. I'd rather do that than stay on medication for the rest of my life with minimal relief. Elmo Hey, you could mosey on over to smdh and get one of the gators to chomp it off yaknow. http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum There are a lot of things I'm not prepared to understand. This just seems to be one of them. I filtered n/g that had anything that remotely smacked of hepatitis, and that one popped up. Apparently on top of being troubled and ill, I can add naive to the list as well. Hope your shoulder is better. Did you dislocate it at one time or another?Whatever you do don't take Vioxx. John > If you only knew, John! Things don't always appear as they seem. You > ever heard of magic? Some things are meant to be taken seriously and [quoted text clipped - 25 lines] > > http://community.webtv.net/elmoemerson/TheFamilyAlbum Naw, it was never dislocated. My shoulder wasn't like this before I began treatment 4 or so years ago. Elmo ////// There are a lot of things I'm not prepared to understand. This just seems to be one of them. I filtered n/g that had anything that remotely smacked of hepatitis, and that one popped up. Apparently on top of being troubled and ill, I can add naive to the list as well. Hope your shoulder is better. Did you dislocate it at one time or another?Whatever you do don't take Vioxx. John <elmoemerson@webtv.net> wrote in message news:24004-418D7C07-111@storefull-3258.bay.webtv.net... If you only knew, John! Things don't always appear as they seem. You ever heard of magic? Some things are meant to be taken seriously and some are not. Count your blessings, friend! Elmo //////////// I have stopped by there and lurked and read every post there lately, and I can say for sure that sci.med.disease.hepatitis has nothing to do with science or medicine or disease of hepatitis. It is just a very strange group of screwballs with nothing constructive to say, and each time I go there I hope to learn something, what I have learned is to stay the hell away from that n/g. I was fooled into thinking there was something useful there.Just a lot of silly talk about swamps and gators, and I'll bet not one of them is a real Cajun.Lets hope and pray they don't come here, we DO NOT need that, they make no sense at all. John "An Metet" <anmetet@freedom.gmsociety.org> wrote in message news:3bf4a0fa9c24963df9dfedd41629712e@anonymous.poster... NOTE: This message was sent thru a mail2news gateway. No effort was made to verify the identity of the sender. ---------------------------------------------- In article <698-418CDB3F-28@storefull-3254.bay.webtv.net> elmoemerson@webtv.net wrote: I'm wondering is shoulder surgery might be in the offing for me, as well. I'd rather do that than stay on medication for the rest of my life with minimal relief. Elmo Hey, you could mosey on over to smdh and get one of the gators to chomp it off yaknow. http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum >Naw, it was never dislocated. My shoulder wasn't like this before I >began treatment 4 or so years ago. >Elmo Elmo, I have a heating pad on my shoulder and arm at least once a day. It does seem to help me some. eileen Re: COME ON... check-in everyone.. Group: alt.support.hepatitis-c Date: Sun, Nov 7, 2004, 6:37pm (CST+6) From: ishchayjay@aol.com (Ishchayjay) Naw, it was never dislocated. My shoulder wasn't like this before I began treatment 4 or so years ago. Elmo Elmo, I have a heating pad on my shoulder and arm at least once a day. It does seem to help me some. eileen ////////// Thanks for the advice, Eileen. I'll have to get one and try sleeping with it at night. Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum >Elmo, >I have a heating pad on my shoulder and arm at least once a day. It does [quoted text clipped - 4 lines] >with it at night. >Elmo No Elmo, you should never sleep on a heating pad. A hot water bottle maybe, but you could get burned from the continuous heat. eileen Re: COME ON... check-in everyone.. Group: alt.support.hepatitis-c Date: Mon, Nov 8, 2004, 6:19pm (CST+6) From: ishchayjay@aol.com (Ishchayjay) Elmo, I have a heating pad on my shoulder and arm at least once a day. It does seem to help me some. eileen ////////// Thanks for the advice, Eileen. I'll have to get one and try sleeping with it at night. Elmo No Elmo, you should never sleep on a heating pad. A hot water bottle maybe, but you could get burned from the continuous heat. eileen /////////// Too late, Eileen. I burned my arm off last night while I slept. All that was left this morning was a burnt stump. hehe But thanks for the advice anyway. Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum >Too late, Eileen. I burned my arm off last night while I slept. All >that was left this morning was a burnt stump. hehe But thanks for the >advice anyway. >Elmo Does it smell? ;) eileen Re: COME ON... check-in everyone.. Group: alt.support.hepatitis-c Date: Tue, Nov 9, 2004, 4:42pm (CST+6) From: ishchayjay@aol.com (Ishchayjay) Too late, Eileen. I burned my arm off last night while I slept. All that was left this morning was a burnt stump. hehe But thanks for the advice anyway. Elmo Does it smell? ;) eileen ///////// Yeah! There's nothing like the smell of burnt flesh in the morning. It was still smoking. When I got up and went out to the living room, Heidi was knawing on my forearm. Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum > I have stopped by there and lurked and read every post there lately, and I > can say for sure that sci.med.disease.hepatitis has nothing to do with [quoted text clipped - 6 lines] > they make no sense at all. > John You are new around here aren't you? They keep the number of posts up and stop the newsgroup dying, and you could try posting something useful there yourself. Please explain. Are you telling me that there is actually some redeeming social value?If so I don't "get it". Look I'm not trying to stir up anything here, I guess all I'm saying is that for a group that calls itself sci.med.disease.hepatitis, none of those things apply, and I feel just a little misled. I'm no rocket scientist, but that cannot be too difficult for anyone to grasp. Of course, this could apply to a great deal of internet content as well I suppose. I'm too old and ill to go charging any windmills. Gator meat indeed! Be sure to wear your latex gloves, as I am contaminated you know. Poor gator don't deserve this. John > NOTE: This message was sent thru a mail2news gateway. > No effort was made to verify the identity of the sender. [quoted text clipped - 13 lines] > You are new around here aren't you? They keep the number of posts up and stop > the newsgroup dying, and you could try posting something useful there yourself. John - A lot of the sci.med groups seem to be filled with complete wackos. I think it's because it's a place where they can pretend they're being listened to because in real life, no one will. A lot of spaces in Usenet have calcified into weird twisted social groups with lots of history and highly-enforced rules. I think they're creepy. > Please explain. Are you telling me that there is actually some redeeming > social value?If so I don't "get it". Look I'm not trying to stir up anything [quoted text clipped - 32 lines] > > the newsgroup dying, and you could try posting something useful there > yourself. Re: COME ON... check-in everyone.. Group: alt.support.hepatitis-c Date: Sat, Nov 6, 2004, 11:31pm (CST+6) From: sbordonej001@hawaii.rr.com (Red Dwarf) I have stopped by there and lurked and read every post there lately, and I can say for sure that sci.med.disease.hepatitis has nothing to do with science or medicine or disease of hepatitis. It is just a very strange group of screwballs with nothing constructive to say, and each time I go there I hope to learn something, what I have learned is to stay the hell away from that n/g. I was fooled into thinking there was something useful there.Just a lot of silly talk about swamps and gators, and I'll bet not one of them is a real Cajun.Lets hope and pray they don't come here, we DO NOT need that, they make no sense at all. John //////////// Yes, it's an exceptionally wierd group. I hope they don't come over here too, John. Some things absolutley defy explanation. heheheh Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Why is it I feel as though I'm definitely missing something. I stopped by there today, and someone was threatening to turn me into gator meat. As if i don't have enough friggin problems I need to add this. I will not stop and pick up this gauntlet. Don't need it. I will pick and choose my own fights and this aint worth it. John Re: COME ON... check-in everyone.. Group: alt.support.hepatitis-c Date: Sat, Nov 6, 2004, 11:31pm (CST+6) From: sbordonej001@hawaii.rr.com (Red Dwarf) I have stopped by there and lurked and read every post there lately, and I can say for sure that sci.med.disease.hepatitis has nothing to do with science or medicine or disease of hepatitis. It is just a very strange group of screwballs with nothing constructive to say, and each time I go there I hope to learn something, what I have learned is to stay the hell away from that n/g. I was fooled into thinking there was something useful there.Just a lot of silly talk about swamps and gators, and I'll bet not one of them is a real Cajun.Lets hope and pray they don't come here, we DO NOT need that, they make no sense at all. John //////////// Yes, it's an exceptionally wierd group. I hope they don't come over here too, John. Some things absolutley defy explanation. heheheh Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum I wouldn't worry about them, John. I just think they don't like people over here taking pot-shots at em. Like you said, they're a different sort of bunch. ehehe Elmo ///////// Why is it I feel as though I'm definitely missing something. I stopped by there today, and someone was threatening to turn me into gator meat. As if i don't have enough friggin problems I need to add this. I will not stop and pick up this gauntlet. Don't need it. I will pick and choose my own fights and this aint worth it. John <elmoemerson@webtv.net> wrote in message news:16129-418E7AB9-261@storefull-3255.bay.webtv.net... Re: COME ON... check-in everyone.. Group: alt.support.hepatitis-c Date: Sat, Nov 6, 2004, 11:31pm (CST+6) From: sbordonej001@hawaii.rr.com (Red Dwarf) I have stopped by there and lurked and read every post there lately, and I can say for sure that sci.med.disease.hepatitis has nothing to do with science or medicine or disease of hepatitis. It is just a very strange group of screwballs with nothing constructive to say, and each time I go there I hope to learn something, what I have learned is to stay the hell away from that n/g. I was fooled into thinking there was something useful there.Just a lot of silly talk about swamps and gators, and I'll bet not one of them is a real Cajun.Lets hope and pray they don't come here, we DO NOT need that, they make no sense at all. John //////////// Yes, it's an exceptionally wierd group. I hope they don't come over here too, John. Some things absolutley defy explanation. heheheh Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum > I wouldn't worry about them, John. I just think they don't like people > over here taking pot-shots at em. Like you said, they're a different > sort of bunch. ehehe > Elmo Good job your name isn't Pinochio, isn't it? It would be stretching all the way back to NJ. Re: COME ON... check-in everyone.. Group: alt.support.hepatitis-c Date: Mon, Nov 8, 2004, 10:18pm (CST+7) From: nobody@cypherpunks.to (Anonymous via the Cypherpunks Tonga Remailer) NOTE: This message was sent thru a mail2news gateway. No effort was made to verify the identity of the sender. ---------------------------------------------- In article <24009-418F84EE-1@storefull-3258.bay.webtv.net> elmoemerson@webtv.net wrote: I wouldn't worry about them, John. I just think they don't like people over here taking pot-shots at em. Like you said, they're a different sort of bunch. ehehe Elmo Good job your name isn't Pinochio, isn't it? It would be stretching all the way back to NJ. //////////// Damn good thing, Alan. http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum hmmm...There is definitely more than meets the eye. John Re: COME ON... check-in everyone.. Group: alt.support.hepatitis-c Date: Sat, Nov 6, 2004, 11:31pm (CST+6) From: sbordonej001@hawaii.rr.com (Red Dwarf) I have stopped by there and lurked and read every post there lately, and I can say for sure that sci.med.disease.hepatitis has nothing to do with science or medicine or disease of hepatitis. It is just a very strange group of screwballs with nothing constructive to say, and each time I go there I hope to learn something, what I have learned is to stay the hell away from that n/g. I was fooled into thinking there was something useful there.Just a lot of silly talk about swamps and gators, and I'll bet not one of them is a real Cajun.Lets hope and pray they don't come here, we DO NOT need that, they make no sense at all. John //////////// Yes, it's an exceptionally wierd group. I hope they don't come over here too, John. Some things absolutley defy explanation. heheheh Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Re: COME ON... check-in everyone.. Group: alt.support.hepatitis-c Date: Sat, Nov 6, 2004, 10:44am (CST+1) From: anmetet@freedom.gmsociety.org (An Metet) NOTE: This message was sent thru a mail2news gateway. No effort was made to verify the identity of the sender. ---------------------------------------------- In article <698-418CDB3F-28@storefull-3254.bay.webtv.net> elmoemerson@webtv.net wrote: I'm wondering is shoulder surgery might be in the offing for me, as well. I'd rather do that than stay on medication for the rest of my life with minimal relief. Elmo Hey, you could mosey on over to smdh and get one of the gators to chomp it off yaknow. ////////// I stay far, far away from that group over there. They're not very supportive, eheheh. Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum > Re: COME ON... check-in everyone.. > [quoted text clipped - 11 lines] > supportive, eheheh. > Elmo Yea right....... :-) Re: COME ON... check-in everyone.. Group: alt.support.hepatitis-c Date: Mon, Nov 8, 2004, 3:41pm (CST-2) From: juicy@melontraffickers.com (A.Melon) NOTE: This message was sent thru a mail2news gateway. No effort was made to verify the identity of the sender. ---------------------------------------------- In article <4172-418F9259-181@storefull-3253.bay.webtv.net> elmoemerson@webtv.net wrote: Re: COME ON... check-in everyone.. Group: alt.support.hepatitis-c Date: Sat, Nov 6, 2004, 10:44am (CST+1) From: anmetet@freedom.gmsociety.org (An Metet) In article <698-418CDB3F-28@storefull-3254.bay.webtv.net> elmoemerson@webtv.net wrote: I'm wondering is shoulder surgery might be in the offing for me, as well. I'd rather do that than stay on medication for the rest of my life with minimal relief. Elmo Hey, you could mosey on over to smdh and get one of the gators to chomp it off yaknow. ////////// I stay far, far away from that group over there. They're not very supportive, eheheh. Elmo Yea right....... :-) //////// Right! :-) http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum No, Elmo, I live in Cape Canaveral, Florida. I have BCBS Insurance, it has a cap of $5000. That would cover about one day of Procrit. I have called Procrit, and they don't even provide assistance to HCV patients, you must have a co-infection, or be on Chemotherapy. I have almost no sides, and would really hate to think of giving up my best shot at SVR because my WBC is down too much. I don't know what else to do though. The Peg, and Copeg is free for me because the drug rep (Roche) took me under her wing. (Couldnt get coverage from Insurance Co.). If any one else has any suggestions, or knows what supplements or food would prop up WBC production, I would be very interested! Thanks for the reply, Johan > I assume you're posting from Germany and am wondering if docs in your > country prescribe Procrit or something equivalent. Have you asked? It > would most likely help keep you on treatment. I'm wondering is shoulder > surgery might be in the offing for me, as well. I'd rather do that than > stay on medication for the rest of my life with minimal relief. > Elmo I started with 1200mg Riba/day and my red and white cell counts dropped fast. I'm been on 800/day since then and all my numbers still look good. My red count stabilized around 14, and my overall Tcell count is down to 260 (from multiple years of being over 600) but my ratios between the different types of Tcells are normal. Everyone responds differently to having a low white count; before the HIV cocktails became available my count went between 100 and 200 and I never had any untoward infections from it. Maybe you can you have your doctor talk you through his thinking about when a low WBC becomes dangerous, and how low you will be willing to let yours get and what specific risks there might be. Gordo > No, Elmo, I live in Cape Canaveral, Florida. I have BCBS Insurance, it has a > cap of $5000. That would cover about one day of Procrit. I have called [quoted text clipped - 13 lines] > > stay on medication for the rest of my life with minimal relief. > > Elmo Sorry, I thought you said your RBC's were low. If it's your WBC's that are low,Procrit won't help you. It's Neupogen that you need. Since you can't afford the stuff, about the best you can do is avoid situations that might land you an infection of some sort. Avoid crowds, send your wife to the grocery store for you, etc. Elmo ////////// No, Elmo, I live in Cape Canaveral, Florida. I have BCBS Insurance, it has a cap of $5000. That would cover about one day of Procrit. I have called Procrit, and they don't even provide assistance to HCV patients, you must have a co-infection, or be on Chemotherapy. I have almost no sides, and would really hate to think of giving up my best shot at SVR because my WBC is down too much. I don't know what else to do though. The Peg, and Copeg is free for me because the drug rep (Roche) took me under her wing. (Couldnt get coverage from Insurance Co.). If any one else has any suggestions, or knows what supplements or food would prop up WBC production, I would be very interested! Thanks for the reply, Johan <elmoemerson@webtv.net> wrote in message news:698-418CDB3F-28@storefull-3254.bay.webtv.net... I assume you're posting from Germany and am wondering if docs in your country prescribe Procrit or something equivalent. Have you asked? It would most likely help keep you on treatment. I'm wondering is shoulder surgery might be in the offing for me, as well. I'd rather do that than stay on medication for the rest of my life with minimal relief. Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum On Wed, 03 Nov 2004 19:38:06 -0800, "Michael L. Arends" <mlarends@NODAMNSPAMearthlink.net>, in message ID <Qv-dncWiwN2CORTcRVn-hw@giganews.com>, in the newsgroup alt.support.hepatitis-c wrote: >Once again.. time for everyone here reading this to let us all know how >you're doing. ON Tx.. POST TX.. Or PRE TX.. > >It doesn't matter. You're all individuals that count very much. And as >we all share the distinction of having, or of having HAD, this shitty >stuff, well.. I care about you.. OK, so I am nearly 10 weeks post tx. The PCR taken a month after tx showed no signs of the virus. I feel a whole lot better but sometimes, just sometimes, I have a vague tx like feeling in my sinuses - or my energy levels don't seem like they are quite where I feel they should be. It's hard to be more descriptive than that. The post tx euphoria has gone and I'm tidying up the financial mess that it caused (it was pre-existing but tx made it far worse). It looks like 3 years of working hard and spending frugally in order to get on top of it all. I'm not complaining. My liver will regenerate and I'm alive. If I feel *anything*, it means I'm alive. Emotionally, I am now starting to grieve my friend who died of renal failure last year. There has been a long delay in this as I was diagnosed shortly after he died. When I got that diagnosis, I just clammed up and went into self protect mode. Now I can relax a bit concerning the virus, I feel the grief more. However, my life feels happy in spite of all the above. I take time out to walk around beautiful parks. I take more time to keep in touch with friends. Stuff that used to cause my mind problems, doesn't feel so important any more. It feels like my whole value system has gone through a major shift - for the better.  SignaturePaul Use the reply by email facility in your newsreader to send email Hi I did the 48 week riba/interferon about 3 years ago and failed to respond. I can't really face 12 months of the new combo tx I'm (1a) and I think I'll live with the consequences as the odds of Killing the Dragon for me are low.. at 53 I've had a great time on this earth and I think I've got at least another 10 years. So I'm going to get on and enjoy my life, have a few drinks and wait for the Reaper.. I'm also not keen on a transplant (Quality of life + 3- 8 years if I'm lucky) This may appear a negative post But I have taken control and I want to be the one that makes the choices... Peter > On Wed, 03 Nov 2004 19:38:06 -0800, "Michael L. Arends" > <mlarends@NODAMNSPAMearthlink.net>, in message ID [quoted text clipped - 28 lines] > so important any more. It feels like my whole value system has gone > through a major shift - for the better. I respect your decision, Peter. But fact is, the new stuff gives you a better chance of making it to the other side. Think about doing maintenance doses of PEG (half doses) without the riba if you don't feel up to doing the full blown treatment regimen. The sides would be minimal and allow you the quality of life you seek while at the same time keep your liver from further damage until a more effective and easier treatment regimen comes along. Just a suggestion... Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum >I did the 48 week riba/interferon about 3 years ago and failed to respond. >I can't really face 12 months of the new combo tx [quoted text clipped - 5 lines] >This may appear a negative post But I have taken control and I want to be >the one that makes the choices... Even as someone who strongly supports the right to assisted (and unassisted) suicide, I have a hard time accepting your position. It seems like such a waste. I was 49 when I cleared the virus during my third treatment with the Peg-combo, not much younger than you. Yet you simply give up, even talking about "a few drinks" to hasten your demise? Your chance to clear with a new round is not low at all. Depending on the circumstances, it's around 50/50. And you usually get a pretty good indication about your chances after just 12 weeks, so you don't have to continue past that if things won't work out anyway. And not everyone on treatment gets all the nasty side effects you read about here (I worked full time through my treatment), and even if your last treatment was bad, it doesn't necessarily mean your next one will be equally so (side effect management generally is a bit better now). You're talking about "taking control", but in reality you're letting the virus make your choices for you. It might chose to let you alone so you can die in peace with 90, or it may decide to eat your liver in 5 years so you end up with cirrhosis (talk about low quality of life). I chose to take control in my own hands. But then I have something worth living for. Don't you? Thomas SignatureTo reach me, complete my last name in the address. Thank you Thomas and Elmo for your responses I have some thinking to do. I'm maybe deciding if I'm a Pigeon or a Statue.. Peter > >I did the 48 week riba/interferon about 3 years ago and failed to respond. > >I can't really face 12 months of the new combo tx [quoted text clipped - 29 lines] > > Thomas Thomas said it better than I did, Peter. Don't just give up and give in to the virus. FIGHT, man! Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum >Hi >I did the 48 week riba/interferon about 3 years ago and failed to respond. [quoted text clipped - 8 lines] > >Peter Peter, you didn't mention the stage of damage to your liver but since you mentioned transplant perhaps it's not that good. If you say you can't face another round of tx I respect that. One thing I would say though is don't bother waiting for the Reaper. The Reaper always catches up. I can't pretend to say that I know what is right for everybody and sometimes even myself. I hope things work out well for you though. Don, you mentioned that the grim reaper always catches up, without going into details, I understand that liver failure from cirrhosis is a particularly unpleasant way to pass away.I grew up with a first cousin Alain, who was exactly two weeks younger than I, and he is gone now(5 years ago), and his demise was lingering and sucked.He refused TX, and kept on drinking heavily, and I miss him something awful. John > >Hi > >I did the 48 week riba/interferon about 3 years ago and failed to respond. [quoted text clipped - 16 lines] > everybody and sometimes even myself. I hope things work out well for > you though. Peter Horsman answered: > Hi > I did the 48 week riba/interferon about 3 years ago and failed to respond. Sorry to hear that. > I can't really face 12 months of the new combo tx > I'm (1a) and I think I'll live with the consequences as the odds of Killing [quoted text clipped - 6 lines] > > Peter Thanks Peter. It's YOUR life, and you've made the choices for yourself. All I can say is good luck, and Godspeed. > Hi > I did the 48 week riba/interferon about 3 years ago and failed to respond. [quoted text clipped - 8 lines] > > Peter So why are you telling us this? Having such a great life like Waterspider and Lana that you felt you had to just pop in? *snigger* >> Hi >> I did the 48 week riba/interferon about 3 years ago and failed to [quoted text clipped - 19 lines] > > *snigger* Oh Alan... Alan... Alan... <sigh> You seem to have so much potential as a human being, and yet you persist in behaving like a turkey. But please, do tell us why you continue to grace us with your lame wit and unsubtle attempts at disruption. Having such a great life that you feel you have to just pop in? Waterspider > Oh Alan... Alan... Alan... <sigh> You seem to have so much potential as a > human being, and yet you persist in behaving like a turkey. But please, do [quoted text clipped - 3 lines] > > Waterspider Well it's like this. I have hepatitis-c, so you would expect to find *Moi* in a hepatitis newsgroup. On the other hand *you* don't. And what do I find? *You* getting on your high horse about Hoof having a drink while this picture at: http://community.webtv.net/elmoemerson/TheFamilyAlbum quite plainly shows *you* clutching a whole bag of booze. Quite the hypocrite aren't you Myrtle? And there's you been doing your utmost to get rid of Lynne, who *does* have hep- c, just so that you, Bug-eyes, Monkey Boy in the *pretty red shirt* and various others that *don't* have hep-c can play doctors and nurses. Have you been dyeing your hair blonde or something? It used to be so *grey* >> Oh Alan... Alan... Alan... <sigh> You seem to have so much potential as a >> human being, and yet you persist in behaving like a turkey. But please, [quoted text clipped - 21 lines] > Have you been dyeing your hair blonde or something? > It used to be so *grey* Aha, *now* I understand, <grin> you're a bit besotted with our Lynne! Congratulations; nothing wrong with caring for someone else, and if it brings you happiness, even better. You never know, your influence might be a good thing for hoofie too. I trust that you're intelligent enough not to get stepped on, and I sincerely wish you all the best, Waterspider > Aha, *now* I understand, <grin> you're a bit besotted with our Lynne! *Our Lynne ???* What's all this *Our Lynne* stuff Myrtle? There's you been humping her a.s for weeks and now it's *our Lynne* ??? I thought you'd got over the brainfog, what with being "cured" and all that. > Congratulations; nothing wrong with caring for someone else, and if it > brings you happiness, even better. You never know, your influence might be a > good thing for hoofie too. I trust that you're intelligent enough not to get > stepped on, and I sincerely wish you all the best, > > Waterspider Aw Myrtle, did you get up early and rush on-line just to tell me that? And I thought you was gonna tell me *Mom* was gonna let me take her out to dinner. Oh be still my beating heart. > I have a vague tx like feeling in my > sinuses - or my energy levels don't seem like they are quite where I > feel they should be. It's hard to be more descriptive than that. That's because of that vague watery feeling between your *ear-lobes* *Monkey Boy* Try sticking a needle up your left nostril. Let's face it you've put them everywhere else. >> I have a vague tx like feeling in my >> sinuses - or my energy levels don't seem like they are quite where I [quoted text clipped - 5 lines] > Try sticking a needle up your left nostril. Let's face it you've put them > everywhere else. Now I'm getting a little concerned about you, Alan. This post, even for you, is a rather loud scream for attention. Are you having a bad week? I hope not. All the best, Waterspider On Fri, 05 Nov 2004 00:52:56 GMT, "Waterspider" <waterspider@moonshine.net>, in message ID <I9Aid.56457$E93.38246@clgrps12>, in the newsgroup alt.support.hepatitis-c wrote: >Now I'm getting a little concerned about you, Alan. This post, even for you, >is a rather loud scream for attention. Are you having a bad week? I hope >not. All the best, HI WS. The only reason I ever see this idiot's posts is cos people quote him. He is obviously a complete and utter arsehole who had to scream for his mommy's tits just to get fed. Of course he may just have been hatched instead of born but I think it's more likely that he was farted out. SignaturePaul Use the reply by email facility in your newsreader to send email > On Fri, 05 Nov 2004 00:52:56 GMT, "Waterspider" > <waterspider@moonshine.net>, in message ID [quoted text clipped - 13 lines] > -- > Paul Hey, go have another toke and chill-out *Monkey Boy* cos you obviously *need* one. *snigger* Paul answered: > On Fri, 05 Nov 2004 00:52:56 GMT, "Waterspider" > <waterspider@moonshine.net>, in message ID [quoted text clipped - 11 lines] > Of course he may just have been hatched instead of born but I think > it's more likely that he was farted out. Hey Paul, Don't hold back. Tell us how you really feel. ;-) LOL! On Fri, 05 Nov 2004 16:23:58 -0800, "Michael L. Arends" <mlarends@NODAMNSPAMearthlink.net>, in message ID <4aqdnRAhlo09hBHcRVn-gQ@giganews.com>, in the newsgroup alt.support.hepatitis-c wrote: >Hey Paul, Don't hold back. Tell us how you really feel. ;-) > >LOL! Yeah. That made a refreshing change for me :-) I needed that. LOL. SignaturePaul Use the reply by email facility in your newsreader to send email > On Fri, 05 Nov 2004 16:23:58 -0800, "Michael L. Arends" > <mlarends@NODAMNSPAMearthlink.net>, in message ID [quoted text clipped - 9 lines] > -- > Paul Yes, but I bet you needed something to calm your nerves afterwards. *snigger* > > The only reason I ever see this idiot's posts is cos people quote him. > > He is obviously a complete and utter arsehole who had to scream for [quoted text clipped - 5 lines] > > LOL! Yes LOL. Paul is the *nancy boi* who took three months to pluck up the nerve to do the interferon, and it was only with Elmo's help that he finally did it, and here he is talking about needing "mommy's tits" like he was some kind of superhero. "Oh I don't think I can go through with this cos my friend just died" he *whined* but we all had somebody die and we all did TX anyway. In article <20041106095015.5F2AC117D6@mail.cypherpunks.to>, Anonymous via the Cypherpunks Tonga Remailer <nobody@cypherpunks.to> wrote: [...] > Yes LOL. Paul is the *nancy boi* who took three months to pluck up the nerve > to [quoted text clipped - 3 lines] > superhero. "Oh I don't think I can go through with this cos my friend just > died" he *whined* but we all had somebody die and we all did TX anyway. Another good sign you're a worthless waste of oxygen - I'm a nancy boy who started treatment a week after I was diagnosed. You really are starting to embarrass yourself. > In article <20041106095015.5F2AC117D6@mail.cypherpunks.to>, > Anonymous via the Cypherpunks Tonga Remailer <nobody@cypherpunks.to> [quoted text clipped - 12 lines] > > You really are starting to embarrass yourself. Oh I'm so embarrassed. (That was sarcasm by the way.) So you're another worthless waste of oxygen who likes sticking his dick where it wasn't designed to go? Hell, you're so lucky the *esteemed* *Professor Von Two Steps* isn't around right now aren't you? If you have HCV the *only choice* is the standard TX, so you do it. All the crap about needing support is BS. It's like when you've got to take a dump you go to the bathroom. All *Pretty Paul's* hero talk and he was the one who spent three months plucking up the courage to do what had to be done. *snigger* In article <20041106123025.8553C117BE@mail.cypherpunks.to>, Anonymous via the Cypherpunks Tonga Remailer <nobody@cypherpunks.to> wrote: > > In article <20041106095015.5F2AC117D6@mail.cypherpunks.to>, > > Anonymous via the Cypherpunks Tonga Remailer <nobody@cypherpunks.to> [quoted text clipped - 17 lines] > > Oh I'm so embarrassed. (That was sarcasm by the way.) I'm so sorry, my mistake, for you to be embarrassed you'd need both a sense of shame and the ability to evaluate yourself objectively. > So you're another worthless waste of oxygen who likes sticking his dick where > it wasn't designed to go? Weak. "designed"? Someone who misses the irony of using a computer to post to Usenet that we shouldn't do things that we weren't "designed" for is truly missing some major clues. Even before the gay-baiting, though, you were fitting the Usenet stereotype of the socially maladjusted 15-year-old boy who posts bollocks from behind an anonymous remailer. I had hoped you'd be challenging enough to be amusing, but I should have guessed you wouldn't be based on the "look at me, I'm a loser" .sig that you use. > Hell, you're so lucky the *esteemed* *Professor Von > Two Steps* isn't around right now aren't you? I have no idea who from your personal soap opera you're talking about. > If you have HCV the *only choice* is the standard TX, so you do it. Some people have the option of delaying treatment. It's not always a foregone conclusion. > All the > crap about needing support is BS. It's like when you've got to take a dump > you > go to the bathroom. All *Pretty Paul's* hero talk and he was the one who > spent > three months plucking up the courage to do what had to be done. What an impoverished soul you appear to be. > *snigger* That one. Loser. <Total snip> Listen here Yank, *Pretty Paul* is a Pom and I'm a Pom and if he'd stop acting like a stupid Yank and doing the "Killfile the trolls* routine, and act like a real Pom (and he looks slightly promising today) we'd get on a little better, but he's so busy slurping Yanks that he don't know his arse from his elbow. Now get off my case, cos as you point out you are a newbie here and what's going on is none of your damn business. In article <20041106190600.164B0117D2@mail.cypherpunks.to>, Anonymous via the Cypherpunks Tonga Remailer <nobody@cypherpunks.to> wrote: > <Total snip> > [quoted text clipped - 8 lines] > on > is none of your damn business. There's just so much in this to find entertaining, cheers. > Now I'm getting a little concerned about you, Alan. Why? Who died and made you my mother? > This post, even for you, > is a rather loud scream for attention. Are you having a bad week? I hope > not. All the best, Well a little bird told me that *Mom* has been screaming out my name and accusing *Moi* of hating her. Now where did she get that idea? In fact it looks like Mom is the best babe in the newsgroup, so I thought I'd get me a uniform and then invite her out to dinner, but I find this newsgroup littered up with perfectly healthy trolls and no Mom. It's very worrying yaknow. Paul answered: > OK, so I am nearly 10 weeks post tx. The PCR taken a month after tx > showed no signs of the virus. I feel a whole lot better but [quoted text clipped - 16 lines] > so important any more. It feels like my whole value system has gone > through a major shift - for the better. Thanks Paul. Keep on Kicking. Yo Mike- Five months post tx, I feel pretty f.cking good. I'll do my blood work in a couple of weeks for the 6 month PCR. Some differences from before treatment. Before I had constant chronic pain("tennis elbow") in both elbows. It had been like that for 4-5 years. That disappeared 6 weeks into tx and hasn't returned. I'm still taking 100ug of levothyroxin (synthroid). Not a real high dose, I do believe I have some thyroid function but it may take some time to "wean" off of those, but then maybe not. Time will tell. Otherwise life is good. I had a great though short work season, but made a nice pile of cash. Next month I am off on an 8 week vacation. I think I deserve it after the sh.t I went through last year. I'm going to..... Seattle one week, Palm Springs 2 weeks, Lima Peru and south through Chile for 4 weeks, then return home Feb 3. Should be a blast!!! Picture me on a llama riding the hills wearing a funny wool hat chewing on coca leaves.... Mike, I'm going to slip up to Granite Falls and visit Shawn and Randi, I would like to stop by and say hi to you too, maybe smoke a J or something, hahaha... I'll be in contact. Take it easy man. SignatureRuss http://www.tannersacre.com > Once again.. time for everyone here reading this to let us all know how > you're doing. ON Tx.. POST TX.. Or PRE TX.. [quoted text clipped - 15 lines] > > Michael Smiling Wickedly, Russ answered: > Yo Mike- > [quoted text clipped - 23 lines] > > Take it easy man. That would be great Russ.... I'm feeling OK. Some days are diamonds and some days are pearls. HCV is in my brain, kidney and CNS. I lost a kidney from a renal infarct and have had several TIAs. (the list is long) Treatment is not an option for me anymore. I take the good days and the bad just like you all do. I'll be forty-eight next week and I'd swear I was still eighteen except when I pass the mirror or go through some bad weeks. By the way, I have a good 28 year marriage that keeps me happy. eileen > By the way, I have a good 28 year marriage that keeps me happy. I notice your *husband* never says a lot about it. *snigger* Ishchayjay answered: > I'm feeling OK. Some days are diamonds and some days are pearls. > HCV is in my brain, kidney and CNS. I lost a kidney from a renal infarct and [quoted text clipped - 6 lines] > > eileen Thanks Eileen. Hang in there, you're still kid, just like me (45) and while I might feel a million years old some days, I really know I'm still 18 and go drag racing on the Loop in downtown Renton (Wa). Congrats on the 28 year marriage. Thats QUITE an accomplishment. Michael >Congrats on the 28 year marriage. Thats QUITE an accomplishment. > >Michael Thank You Post tx, 2 failed tries, gone into Stage 4 and I feel lousy. In spite of all that, life is good and I'm making the best of it. > Once again.. time for everyone here reading this to let us all know how > you're doing. ON Tx.. POST TX.. Or PRE TX.. [quoted text clipped - 15 lines] > > Michael Thip answered: > Post tx, 2 failed tries, gone into Stage 4 and I feel lousy. In spite of > all that, life is good and I'm making the best of it. You take care Thip. There's No chance you could try it again? > Thip answered: > > > Post tx, 2 failed tries, gone into Stage 4 and I feel lousy. In spite of > > all that, life is good and I'm making the best of it. > > You take care Thip. There's No chance you could try it again? Nope, non-responder twice (the second time a resounding, shout-it-from-the-rooftop non-response). I tried Infergen but it made me so sick and so woozy there's no way I could have worked and continued it. A co-worker gently suggested that maybe it was time to weigh quality of life vs quantity, and the truth is, in spite of it all I'm really a fairly happy and contented person. The only thing that really worries me is my daughter, since my husband died about a year and a half ago and she's soooooo fragile emotionally. She needs her Mom. Well, let's see. First the hep-c then the transplant then the psycho ward due to prednisone overload then thyroid problems leading to near renal failure... But, I still walkin' and chewing gum at the same time!!!!! > Once again.. time for everyone here reading this to let us all know how > you're doing. ON Tx.. POST TX.. Or PRE TX.. [quoted text clipped - 15 lines] > > Michael yer a tuff ol sourdo shawn!! SignatureRuss http://www.tannersacre.com > Well, let's see. First the hep-c then the transplant then the psycho ward > due to prednisone overload then thyroid problems leading to near renal [quoted text clipped - 18 lines] > > > > Michael You like Bazooka, bro? Elmo ///////////// Well, let's see. First the hep-c then the transplant then the psycho ward due to prednisone overload then thyroid problems leading to near renal failure... But, I still walkin' and chewing gum at the same time!!!!! "Michael L. Arends" <mlarends@NODAMNSPAMearthlink.net> wrote in message news:Qv-dncWiwN2CORTcRVn-hw@giganews.com... Once again.. time for everyone here reading this to let us all know how you're doing. ON Tx.. POST TX.. Or PRE TX.. It doesn't matter. You're all individuals that count very much. And as we all share the distinction of having, or of having HAD, this shitty stuff, well.. I care about you.. SO ... yell out here.. let us all hear.. DON'T BE SHY.. I'm going to keep asking, and expect REGULAR UPDATES.. ME? coming up on shot #5 now, doing ok.. the bodyaches, and fuzzyheadness, and periodic nausea, are getting slightly worse at times. It's manageable though. I mean, I WILL do this, and KILL that Dragon. Take care Everyone.. Michael http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Shawn answered: > Well, let's see. First the hep-c then the transplant then the psycho ward > due to prednisone overload then thyroid problems leading to near renal > failure... But, I still walkin' and chewing gum at the same time!!!!! SHAWN!! Excellent to see you here .. And Excellent News It IS, that you're still walkin' and and chewing gum at the same time!!!!! Congrats Shawn. One more week until the 6 month SVR. hc > Once again.. time for everyone here reading this to let us all know how > you're doing. ON Tx.. POST TX.. Or PRE TX.. [quoted text clipped - 15 lines] > > Michael Me too, hc! Elmo One more week until the 6 month SVR. hc "Michael L. Arends" <mlarends@NODAMNSPAMearthlink.net> wrote in message news:Qv-dncWiwN2CORTcRVn-hw@giganews.com... Once again.. time for everyone here reading this to let us all know how you're doing. ON Tx.. POST TX.. Or PRE TX.. It doesn't matter. You're all individuals that count very much. And as we all share the distinction of having, or of having HAD, this shitty stuff, well.. I care about you.. SO ... yell out here.. let us all hear.. DON'T BE SHY.. I'm going to keep asking, and expect REGULAR UPDATES.. ME? coming up on shot #5 now, doing ok.. the bodyaches, and fuzzyheadness, and periodic nausea, are getting slightly worse at times. It's manageable though. I mean, I WILL do this, and KILL that Dragon. Take care Everyone.. Michael http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum elmoemerson@webtv.net answered: > Me too, hc! > Elmo > One more week until the 6 month SVR. > hc And I' |
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