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Medical Forum / Diseases and Disorders / Hepatitis / November 2004Week 12 VL still at 100,000
Since I started at 3.2 million my doc thinks it is progress but since my geno is 2a I was looking for complete eradication. Is there any point in continuing? My doc says he will consult with other heptologists but my feeling is it is not going to work and why waste my time and energy when something else may come along? My liver 2 yrs ago showed almost no ill effests I think I remember stage 0-1, but 2 years later who knows? I plan on getting a biopsy and taking it from there. I was sure the odds were in my favor but then who knows how accurate this 80% svr is anyway, afterall the drug comapnies have a history of embellishmenbt. thoughts anyone? bc Not a good sign BC since it is type 2a. You may be right about stopping and making a decision about trying again with the heavy artillery or holding off. I would wait and see what your doc says before stopping. Did you have any symptoms from having Hep C before your treatment??  SignatureRuss http://www.tannersacre.com > Since I started at 3.2 million my doc thinks it is progress but since my > geno is 2a I was looking for complete eradication. Is there any point in [quoted text clipped - 8 lines] > > bc No symptons except a little fatigue, bc > Not a good sign BC since it is type 2a. You may be right about stopping and > making a decision about trying again with the heavy artillery or holding [quoted text clipped - 21 lines] > > > > bc My opinion is it's time to rethink this round of tx, bc. But then again, I don't know what drugs or how much of them you're doiing. I wouldn't be very encouraged by those numbers either. Obviously, what you're doing isn't achieving the desired results. Have you discussed it with your doc? Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Doc seems to be at a loss, I tink I need to decide to end thisround and try again maybe when other options become available. bc > My opinion is it's time to rethink this round of tx, bc. But then > again, I don't know what drugs or how much of them you're doiing. I [quoted text clipped - 6 lines] > > http://community.webtv.net/elmoemerson/TheFamilyAlbum If you don't mind a suggestion, here's what I'd do since you've already got your viral load down. Try daily Infergen and Amantadine along with the maximum dose of riba (for your body weight) for a month, then check your viral load again and overlap tx regimens with Pegasys so you maintain interferon in your system while waiting for the results from your pcr. If you've gotten satisfactory results, use Pegasys, Amantadine and riba for another 10 months. I'm betting that would do the trick. At least you wouldn't have wasted 12 weeks of tx for nothing. You'll only be on tx another 6 weeks to see if it's going to get you where you need to be. Think about it and discuss it with your doc before you quit this round. Elmo (The Infergen Nazi) ///////////// Doc seems to be at a loss, I tink I need to decide to end thisround and try again maybe when other options become available. bc <elmoemerson@webtv.net> wrote in message news:7246-418C2FBB-106@storefull-3256.bay.webtv.net... My opinion is it's time to rethink this round of tx, bc. But then again, I don't know what drugs or how much of them you're doiing. I wouldn't be very encouraged by those numbers either. Obviously, what you're doing isn't achieving the desired results. Have you discussed it with your doc? Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Of course I do not mind a suggestion, I welcome it! So let me get this straifgt, infergen daily plus riba pls amatadine for 6 more weeks, recheck vl and if down completely at that point continue for 10 more months? If it is present at all in 6 weeks I shouls probably just give it up? I will talk to my Doc and see if he will do this. thanx bc > If you don't mind a suggestion, here's what I'd do since you've already > got your viral load down. Try daily Infergen and Amantadine along with [quoted text clipped - 22 lines] > http://community.webtv.net/elmoemerson/DocElmosHepFile > http://community.webtv.net/elmoemerson/TheFamilyAlbum You got it right! That's my suggestion. But if you're VERY close to being undetectable, another week or two of Infergen might be called for. Do your best to get your viral load to <10. If you can do that, another 10 months on Pegasys, Copegus and Amantadine will almost certainly do the trick. I'll send you a silver bullet to put the death blow to the f.cking dragon. Don't give up the ship!!! If you're willing and your doc isn't, tell him to go f.ck himself and make him give you the drugs. It's YOUR treatment, not HIS! Elmo //////////// Of course I do not mind a suggestion, I welcome it! So let me get this straifgt, infergen daily plus riba pls amatadine for 6 more weeks, recheck vl and if down completely at that point continue for 10 more months? If it is present at all in 6 weeks I shouls probably just give it up? I will talk to my Doc and see if he will do this. thanx bc <elmoemerson@webtv.net> wrote in message news:16129-418D0545-61@storefull-3255.bay.webtv.net... If you don't mind a suggestion, here's what I'd do since you've already got your viral load down. Try daily Infergen and Amantadine along with the maximum dose of riba (for your body weight) for a month, then check your viral load again and overlap tx regimens with Pegasys so you maintain interferon in your system while waiting for the results from your pcr. If you've gotten satisfactory results, use Pegasys, Amantadine and riba for another 10 months. I'm betting that would do the trick. At least you wouldn't have wasted 12 weeks of tx for nothing. You'll only be on tx another 6 weeks to see if it's going to get you where you need to be. Think about it and discuss it with your doc before you quit this round. Elmo (The Infergen Nazi) ///////////// Doc seems to be at a loss, I tink I need to decide to end thisround and try again maybe when other options become available. bc <elmoemerson@webtv.net> wrote in message news:7246-418C2FBB-106@storefull-3256.bay.webtv.net... My opinion is it's time to rethink this round of tx, bc. But then again, I don't know what drugs or how much of them you're doiing. I wouldn't be very encouraged by those numbers either. Obviously, what you're doing isn't achieving the desired results. Have you discussed it with your doc? Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Thanx, definately worth a try . bc You got it right! That's my suggestion. But if you're VERY close to being undetectable, another week or two of Infergen might be called for. Do your best to get your viral load to <10. If you can do that, another 10 months on Pegasys, Copegus and Amantadine will almost certainly do the trick. I'll send you a silver bullet to put the death blow to the f.cking dragon. Don't give up the ship!!! If you're willing and your doc isn't, tell him to go f.ck himself and make him give you the drugs. It's YOUR treatment, not HIS! Elmo //////////// Of course I do not mind a suggestion, I welcome it! So let me get this straifgt, infergen daily plus riba pls amatadine for 6 more weeks, recheck vl and if down completely at that point continue for 10 more months? If it is present at all in 6 weeks I shouls probably just give it up? I will talk to my Doc and see if he will do this. thanx bc <elmoemerson@webtv.net> wrote in message news:16129-418D0545-61@storefull-3255.bay.webtv.net... If you don't mind a suggestion, here's what I'd do since you've already got your viral load down. Try daily Infergen and Amantadine along with the maximum dose of riba (for your body weight) for a month, then check your viral load again and overlap tx regimens with Pegasys so you maintain interferon in your system while waiting for the results from your pcr. If you've gotten satisfactory results, use Pegasys, Amantadine and riba for another 10 months. I'm betting that would do the trick. At least you wouldn't have wasted 12 weeks of tx for nothing. You'll only be on tx another 6 weeks to see if it's going to get you where you need to be. Think about it and discuss it with your doc before you quit this round. Elmo (The Infergen Nazi) ///////////// Doc seems to be at a loss, I tink I need to decide to end thisround and try again maybe when other options become available. bc <elmoemerson@webtv.net> wrote in message news:7246-418C2FBB-106@storefull-3256.bay.webtv.net... My opinion is it's time to rethink this round of tx, bc. But then again, I don't know what drugs or how much of them you're doiing. I wouldn't be very encouraged by those numbers either. Obviously, what you're doing isn't achieving the desired results. Have you discussed it with your doc? Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum >Since I started at 3.2 million my doc thinks it is progress but since my >geno is 2a I was looking for complete eradication. Is there any point in [quoted text clipped - 8 lines] > >bc That's disappointing. Sorry to hear about it. Sometimes I think they should keep an ongoing anonymous database about patients undergoing tx, their bloodwork, sides, pcr results to get more info on this treatment. I'd probably want to hear what the heptolgists have to say and also consider how treatment has been going for you. Even with 80% odds 1out of 5 are not going to make it. That adds up. >Since I started at 3.2 million my doc thinks it is progress but since my >geno is 2a I was looking for complete eradication. Is there any point in >continuing? Not in my book. But only your doc has all the info about your treatment (what dose did you get, any interruptions or reductions...). In general, if you don't get that "2 log" drop (2 decimal places) by week 12, your chances are slim to none that you'll get an SVR. But your particular circumstances may be different. If you didn't have much damage 2 years ago, chances are good things haven't changed much since. Getting a biopsy and taking things from there sounds like the right plan. Thomas SignatureTo reach me, complete my last name in the address. > Not in my book. *We* know about your book. How to look like a cartoon character in a *pretty red shirt* *snigger* |
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