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Medical Forum / Diseases and Disorders / Hepatitis / October 2004PING: OT: How's everyone feeling? Check in everyone..
I don't give a sh.t if it's whining or Not! I'd like to hear how everyone in here is feeling.. Those current ON TX (Like me) or those off, or RECENTLY off. How is everyone doing? feeling? Myself? I just had shot 3 last Friday. So far, I've had relatively milder sides than most I've been reading about in here. However, for some reason yesterday I woke to feel just knocked down already. Every joint in my neck/back was aching, and I felt a million years old. left work early, and stayed home today, although I feel better today. Probably could have made work if I really wanted to. SO, as I say, let me hear how you are all doing. Michael- I'm doing pretty good. I have the aches & pains that are associated with tx. My hips seem to be the worst. I get wore out very quickly. My ears ring constantly. I have a dull headache almost always and my eyes are sensitive to light. I'll be doing # 16 this Fri. and the good news is I went from 9.5 Mil to <5 on my week 12 PCR. I have not worked for several weeks...I'm an electrician and the physical part of the job wears me down to the point that safety becomes an issue. Take care Mark Mark Emerson answered: > Michael- > I'm doing pretty good. I have the aches & pains that are associated with tx. [quoted text clipped - 8 lines] > Take care > Mark Thanks Mark. For what it's worth thats exactly what I mean. I see nothing wrong with this type of thread. Hang in there. You're ahead of me, so I wish you the best. and may you get a SVR. KILL THE DRAGON.. You sound a bit defensive, Mikey. How come? ahahahahahahahah Nobody said it was wrong to whine once in awhile. We all have. It's another thing to LIVE there and relish in misery. People get sick of hearing about it, those that are doing their best to live life, not die in it. I feel like I"m beating a dead horse............ Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Smiling Wickedly, elmoemerson@webtv.net answered: > You sound a bit defensive, Mikey. How come? NAH!!!!!!!! I just like a good whine as much as anyone else. Annie Greensprings anyone? PING: OT: How's everyone feeling? Check in everyone.. Group: alt.support.hepatitis-c Date: Tue, Oct 26, 2004, 9:53am (CDT-2) From: mlarends@NODAMNSPAMearthlink.net (Michael L. Arends) I don't give a sh.t if it's whining or Not! I'd like to hear how everyone in here is feeling.. Those current ON TX (Like me) or those off, or RECENTLY off. How is everyone doing? feeling? Myself? I just had shot 3 last Friday. So far, I've had relatively milder sides than most I've been reading about in here. However, for some reason yesterday I woke to feel just knocked down already. Every joint in my neck/back was aching, and I felt a million years old. left work early, and stayed home today, although I feel better today. Probably could have made work if I really wanted to. SO, as I say, let me hear how you are all doing. ///////// The sky is crying, but in spite of my sore shoulders, I feel GOOD! Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Nice sunny Fall day drive to the cliinic today for the post first month check-in. Went to the Dermatologist too, to set a baseline at where my psoriasis is at before the toxicological effects of this HCV treatment drives my immunology over the moonology. One thing about the way I write is if I feel a minor rage bubbling up under my surface psyche, I let it out into the open air with my verbage, and I smite it as I do it, using a very direct and unrelenting style. It is not meant to be a personal thing and maliciously slanderous of others, although I see it as important because there is drama in all this, a drama where you and I can direct the everpresent TX tension so that the Dark Side just has to suffer from it. The common enemy is not some phantom in a cave with a beard, it is a dragon and we have to be dragon slayers (so get slaying.) I expect that there are many strong echos of this approach and attitude in this group, n'est-ce pas? Anyways victimless rapier wit feels good to unleash as long as you remmber you don't run with the damn thing between gigs. So to interrupt my monologue, by the way, I have fairly low level side effects, although they are all present, the aches and pains, the cough, the intertia, the lack of concentration, the queasiness in the pit of the stomach, the gas burps and the other end a bit runny, the weepiness to a certain extent, shortness of breath, etc. (all this I mentioned in a post I made about crying a couple days back) The treatment is engaging the beast, beautiful Clinical nurse Juli tells me. Oh yay! Only 10 more months. Thing is I had a bunch of stuff planned to do while I was denned up, but I don't think I have the concentration level to stay engaged in any project more complex than framing a picture or stacking some boards. And oh ya, the Psoriasis is not an issue right now at least. I smoke ganja which gives me an edge for getting my appetite up and running. I would advocate others using it too (unless some minor god told you it was damnable). It works for me, anyway. So my hemoglobin level is still very strong around 170 or whatever that means, my AST continues to show a weekly drop, and I seem to have varying levels of lethargy. So no adjustment in my 1200 mg/day dose of Riba. Yay, chapped lips for ever! Everybody just remain cool, K? Cactus Jammies PING: OT: How's everyone feeling? Check in everyone.. Group: alt.support.hepatitis-c Date: Tue, Oct 26, 2004, 9:53am (CDT-2) From: mlarends@NODAMNSPAMearthlink.net (Michael L. Arends) I don't give a sh.t if it's whining or Not! I'd like to hear how everyone in here is feeling.. Those current ON TX (Like me) or those off, or RECENTLY off. How is everyone doing? feeling? Myself? I just had shot 3 last Friday. So far, I've had relatively milder sides than most I've been reading about in here. However, for some reason yesterday I woke to feel just knocked down already. Every joint in my neck/back was aching, and I felt a million years old. left work early, and stayed home today, although I feel better today. Probably could have made work if I really wanted to. SO, as I say, let me hear how you are all doing. ///////// The sky is crying, but in spite of my sore shoulders, I feel GOOD! Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Cactus Jammies answered: > Nice sunny Fall day drive to the cliinic today for the post first month > check-in. Went to the Dermatologist too, to set a baseline at where my [quoted text clipped - 6 lines] > there is drama in all this, a drama where you and I can direct the > everpresent TX tension so that the Dark Side just has to suffer from it. Doing the Effexor (Anti-D) thing myself.. > The common enemy is not some phantom in a cave with a beard, it is a dragon > and we have to be dragon slayers (so get slaying.) I expect that there are > many strong echos of this approach and attitude in this group, n'est-ce pas? > Anyways victimless rapier wit feels good to unleash as long as you remmber > you don't run with the damn thing between gigs. I agree.. > So to interrupt my monologue, by the way, I have fairly low level side > effects, although they are all present, the aches and pains, the cough, the [quoted text clipped - 3 lines] > made about crying a couple days back) The treatment is engaging the beast, > beautiful Clinical nurse Juli tells me. Oh yay! Only 10 more months. KILL that Dragon Brutha!! > Thing is I had a bunch of stuff planned to do while I was denned up, but I > don't think I have the concentration level to stay engaged in any project > more complex than framing a picture or stacking some boards. I'm with ya.. Computers have always been a hobby, But in the last few days, there have been times when I don't even feel like looking at it. > And oh ya, the Psoriasis is not an issue right now at least. I smoke ganja > which gives me an edge for getting my appetite up and running. I would [quoted text clipped - 6 lines] > > Everybody just remain cool, K? Great to hear from ya Cactus. PLEASE keep us updated. > Cactus Jammies answered: > [quoted text clipped - 11 lines] > > Doing the Effexor (Anti-D) thing myself.. For me, the weed has a direct effect on the rage as well as the nausea. Nothing else worked for me for the rage. It comes on around noon and is made worse by any interaction with other people. It's not as bad as it was, but I probably have enough THC in my system at this point to cause most normal adults to pass out. I am a huge fan of baking it into brownies and using it that way. Lower doses, longer lasting. The anti-d took care of the crying and a fair amount of the fatigue, but as I said before I know my limits much better than I did before. Staying this side of the limits means I can go all day; crossing the limit line knocks me out. The periodic tensed-up feeling responds to Xanax, but for some reason I'm scared of getting too dependent on it so that's only about once a week. The weekly Friday shots cause a lot of dehydration (drink, pee, drink, pee, drink, pee, but it really does make me feel a lot better) but that relents by Wednesday, usually. The shot also acts like speed starting 6-12 hours later, and I've learned that taking it Friday night means I get some sleep. If I take it Friday morning then the worst of it hits when I'm trying to go to sleep. Ambien sometimes doesn't put me to sleep and there is no stranger experience than being awake on Ambien. Not fun, and kind of scary. Once the speediness hits, I know that my intestinal tract is going to rev up as well. I avoid spicy foods on Fridays. After the worst of it, Imodium does a good job of calming things down. That's only during the first 24 hours, usually. The rest of the time I'm fine. When I'm feeling really incapable of doing anything, I'll try to watch something funny on TV or video. I can't follow anything too serious and I don't want anything that's going to make me cry or angry. CJ - fun writing style, look forward to more of it! Gordo Gordo Mondragon answered: > For me, the weed has a direct effect on the rage as well as the nausea. > Nothing else worked for me for the rage. It comes on around noon and is > made worse by any interaction with other people. It's not as bad as it > was, but I probably have enough THC in my system at this point to cause > most normal adults to pass out. I am a huge fan of baking it into > brownies and using it that way. Lower doses, longer lasting. Ummmmm Brownies... > The anti-d took care of the crying and a fair amount of the fatigue, but > as I said before I know my limits much better than I did before. [quoted text clipped - 8 lines] > pee, drink, pee, but it really does make me feel a lot better) but that > relents by Wednesday, usually. Been doing a lot of that myself... > The shot also acts like speed starting 6-12 hours later, and I've > learned that taking it Friday night means I get some sleep. If I take [quoted text clipped - 15 lines] > > Gordo Thanks! elmoemerson@webtv.net answered: > > PING: OT: How's everyone feeling? Check in everyone.. [quoted text clipped - 16 lines] > The sky is crying, but in spite of my sore shoulders, I feel GOOD! > Elmo GREAT Elmo. I'm actually not overall doing that bad. But I'm thinking maybe that I've been feeling /off/ for so long, that I don't know better. I'm looking forward to REALLY feeling GREAT when this is all over. And I'll feel doubly Lucky for meeting all my new friends here.. Michael > PING: OT: How's everyone feeling? Check in everyone.. > [quoted text clipped - 16 lines] > Elmo > http://community.webtv.net/elmoemerson/DocElmosHepFile > http://community.webtv.net/elmoemerson/TheFamilyAlbum Going in for my biopsy tommorow morning, I'm guessing tx will start soon afterwards? njwheels Smiling Wickedly, njwheels answered: >>PING: OT: How's everyone feeling? Check in everyone.. >> [quoted text clipped - 22 lines] > afterwards? > njwheels Good luck njwheels. You'll breeze through your Biopsy. Don't let anyone scare you. > Smiling Wickedly, njwheels answered: > [quoted text clipped - 27 lines] > Good luck njwheels. You'll breeze through your Biopsy. Don't let > anyone scare you. Thanks Michael, Not TOO worried about the biopsy. I'm just getting a little antsy during this time that I have to think about tx. I just wanna get started, if you know what I'm saying. I've been following your posts closely, hoping I'm as fortunate.(relatively speaking) I'm a bit concerned about missing work, as most of what I do is pretty physical stuff; lifting, turning wrenches etc. I do a lot of work in high places as well.(on those ferris wheels, Elmo) Thankfully, I have a great boss thats backing me completely, his biggest concern is that I beat the dragon, and can be here for the company long term. It's a load off not having to worry about that end of it anyway. njwheels njwheels answered: >>Smiling Wickedly, njwheels answered: >> [quoted text clipped - 32 lines] > this time that I have to think about tx. I just wanna get started, if you > know what I'm saying. I know exactly what you're saying. I was antsy to get started too. Now I am, and so far I've not been TOO bad off. The day and 1/2 I took off, was basically because those days I really didn't feel good. Could I have stayed had I had too? Yes. But , Fortunately for me too, I have a very good manager, who is also very compassionate. She saw I was not feeling too well, and actually told me to feel free to go home If I needed to. Coming up on shot #4, and so far doing........ok.. > I've been following your posts closely, hoping I'm as > fortunate.(relatively speaking) I'm a bit concerned about missing work, as [quoted text clipped - 4 lines] > term. It's a load off not having to worry about that end of it anyway. > njwheels Ya gotta take care of you... because No one is going to do it for you. Take care, Michael Going in for my biopsy tommorow morning, I'm guessing tx will start soon afterwards? njwheels //////////// Good luck with your biopsy, it's not all that bad. It's more a pain in the a.s than a pain in the liver. You'll do just fine. Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum I'm doing great! I have almost reached the 6 month post tx mark. Thanks for asking! hc > I don't give a sh.t if it's whining or Not! I'd like to hear how > everyone in here is feeling.. [quoted text clipped - 14 lines] > > SO, as I say, let me hear how you are all doing. heppiechik answered: > I'm doing great! I have almost reached the 6 month post tx mark. Thanks for > asking! > hc I'll say my prayers, cross my fingers, rub my lucky Rabbits foot, and keep a good eye on my lucky astrology mood watch, for that SVR That I KNOW is coming for you. Take care HC!!! ;-) > I don't give a sh.t if it's whining or Not! I'd like to hear how > everyone in here is feeling.. [quoted text clipped - 14 lines] > > SO, as I say, let me hear how you are all doing. Michael, Sorry about the joint aches. Maybe they will ease off, as they have for many people on this forum. Did Tylenol or Advil help? I was told that the 8 through 16 weeks were the worst, on average, but the nurse who told me that doesn't really have that much experience with HCV. My first few shots were the worst, then things lightened up. Maybe others will chime in. As for me, despite the recent mood swing that I posted about, I am doing really well. I feel like I have a bad hangover every day and though it is getting gradually worse, it is bearable. My friends call and ask if it's a two or a seven margarita day :) I only have only six shots left, out of 24, and my 12 week VL was undetectable. So, for me, there is a light at the end of the tunnel. The fatigue is the thing that pisses me off the most. Everyone has different sides, which I didn't really believe until I began reading this forum, but I think fatigue runs across the board. The important thing to remember is that tx CAN BE DONE!!! Also, I find that if I keep up with my water intake, I feel better. Peeing every 20 minutes also pisses me off. Do I sound pissed off? :) I whine and complain to all who will listen. Needless to say, the phone has been rather quiet lately.... Suzanne Smiling Wickedly, Suzanne answered: >>I don't give a sh.t if it's whining or Not! I'd like to hear how >>everyone in here is feeling.. [quoted text clipped - 38 lines] > > Suzanne Suzanne, PLEASE keep posting. Hope you do OK.. I'm doing the 24 week thing too. Coming up on #4 this Friday. Take care Michael Michael, darn nice of you to ask. I think fatigue is the biggest issue for me to date, although the aches and pains are fun as well. I just got back from attending a monthly HCV support group,(this one was brought to my attention by Booger)It was very interesting and educational. Some of the side effects some of those folks suffer from scared the sh.t out of me. I do wish though there was more support groups like the one tonight, and more often as well. Once a month doesn't quite cut it. I got to meet the new Hawaii State HepC coordinator.She spoke tonight about the lack of money for both detection and treatment, on the Federal and the State level. Interesting enough though, everyone who enters the Hawaii prison system is tested and if they have more than 1 year of sentence they qualify for free treatment. It appears there are a lot of people in this state and others who are sick from HCV, but without private insurance, there is no chance for TX for them. That's kind of a sad state of affairs. I did my 13th shot today, and still waiting for the results of my 12 week eval to come back from California. I hope you are doing well yourself Michael, you are definitely one of the "good guys". John > I don't give a sh.t if it's whining or Not! I'd like to hear how > everyone in here is feeling.. [quoted text clipped - 14 lines] > > SO, as I say, let me hear how you are all doing. Smiling Wickedly, Red Dwarf answered: > Michael, darn nice of you to ask. I think fatigue is the biggest issue for > me to date, although the aches and pains are fun as well. I just got back > from attending a monthly HCV support group,(this one was brought to my > attention by Booger)It was very interesting and educational. I'll bet. I wass going to do that (attend a HCV support group) but just haven't gotten around to it. Guess my support group (friends) here, have Been sufficient. > Some of the > side effects some of those folks suffer from scared the sh.t out of me. I do [quoted text clipped - 7 lines] > are sick from HCV, but without private insurance, there is no chance for TX > for them. That's kind of a sad state of affairs. That's messed up. mind you I don't begrudge this virus on ANYONE. even prisoners. But it Galls me, that people in prison can get treatment, but people OUTside the penal system have to go untreated for lack of money. Thats just not right. > I did my 13th shot today, and still waiting for the results of my 12 week > eval to come back from California. I hope you are doing well yourself > Michael, you are definitely one of the "good guys". > John Hope you're undetectable John, or at minimum the proverbial 2 log drop, that shows this sh.t is working for you. I was just thinking today, that if I were to retest and have a viral load, that I'd rob a bank and make sure I got caught since I don't have health insurance at the moment. Seriously tho, I applied for treatment thru the VA and am waiting for the letter to tell me to 'come on over'. I want tx for all the permanent effects of having done tx, not to mention the damage already done to my liver. I can pretty much narrow down how I got the disease to having worked in military emergency rooms. Aint got no tatoos, had no transfusions, was never an IV drug user and never had bloody sex (hehe). Elmo /////////////\ Smiling Wickedly, Red Dwarf answered: Michael, darn nice of you to ask. I think fatigue is the biggest issue for me to date, although the aches and pains are fun as well. I just got back from attending a monthly HCV support group,(this one was brought to my attention by Booger)It was very interesting and educational. I'll bet. I wass going to do that (attend a HCV support group) but just haven't gotten around to it. Guess my support group (friends) here, have Been sufficient. Some of the side effects some of those folks suffer from scared the sh.t out of me. I do wish though there was more support groups like the one tonight, and more often as well. Once a month doesn't quite cut it. I got to meet the new Hawaii State HepC coordinator.She spoke tonight about the lack of money for both detection and treatment, on the Federal and the State level. Interesting enough though, everyone who enters the Hawaii prison system is tested and if they have more than 1 year of sentence they qualify for free treatment. It appears there are a lot of people in this state and others who are sick from HCV, but without private insurance, there is no chance for TX for them. That's kind of a sad state of affairs. That's messed up. mind you I don't begrudge this virus on ANYONE. even prisoners. But it Galls me, that people in prison can get treatment, but people OUTside the penal system have to go untreated for lack of money. Thats just not right. I did my 13th shot today, and still waiting for the results of my 12 week eval to come back from California. I hope you are doing well yourself Michael, you are definitely one of the "good guys". John Hope you're undetectable John, or at minimum the proverbial 2 log drop, that shows this sh.t is working for you. http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Michael, thanks for reminding me, I completely forgot my N/P upped my dose of Synchronic,(thyroid hormone) because of hypothyroidism, from 225 to 250 micrograms daily. I really hope this makes a difference for the better. John > I don't give a sh.t if it's whining or Not! I'd like to hear how > everyone in here is feeling.. [quoted text clipped - 14 lines] > > SO, as I say, let me hear how you are all doing. Correction make that Synthyroid. My fingers aren't doing what I tell them to do:) John > Michael, thanks for reminding me, I completely forgot my N/P upped my dose > of Synchronic,(thyroid hormone) because of hypothyroidism, from 225 to 250 [quoted text clipped - 18 lines] > > > > SO, as I say, let me hear how you are all doing. Hi Michael, I'm fine. I've been since monday actually. For me, 1st shot sides have been hard only during the first night, because of the fever. Just today I'm having a weird feeling... like if I had some poison running through my veins ;-) cheers, jeeb I caught my partner's cold. If I have felt worse in my life, I can't remember it. Before that I've been doing pretty good. I think a big part of dealing with this is knowing what your limits are. Week 18 now, I know what they are and don't push them. Gordo > Hi Michael, > [quoted text clipped - 7 lines] > cheers, > jeeb You know, since we are taking anti-viral medications, one would think we would be immune from colds and flu, after all colds and flu are caused by virus. Somebody told me last night to be careful not to contract staph infection, as we have no immunity to it all. Sorry to hear you're feeling poorly Gordo, feel better soon. John > I caught my partner's cold. > [quoted text clipped - 4 lines] > I think a big part of dealing with this is knowing what your limits are. > Week 18 now, I know what they are and don't push them. ghibeluno answered: > Hi Michael, > [quoted text clipped - 7 lines] > cheers, > jeeb Take care, and Thanks.. Michael Shot 15 this Friday. I'm a Systems Engineeer for a compnay in Seattle. So I don't have to do a lot if physical work. However, the brain doesn't seem to work as well as it used to. I get tired very quicky and I seem to be a lot weaker. Hard of hearing. Senstive to light. Dizzy. Depressed. Afraid. Worried. Fearfull. Paranoid. (eveyone's out to get me anyway, so might as well be paranoid) Constant headache. I can go on and on. On the bright side: My wife still loves me. She's taking good care of me. I find out the 3rd of November what my 12 week count is. Wish me luck. -Matt > I don't give a sh.t if it's whining or Not! I'd like to hear how > everyone in here is feeling.. [quoted text clipped - 14 lines] > > SO, as I say, let me hear how you are all doing. Sounds like you're experiencing the normal sides, LOL. You're a lucky guy you have someone to look after you. Elmo ///////// Shot 15 this Friday. I'm a Systems Engineeer for a compnay in Seattle. So I don't have to do a lot if physical work. However, the brain doesn't seem to work as well as it used to. I get tired very quicky and I seem to be a lot weaker. Hard of hearing. Senstive to light. Dizzy. Depressed. Afraid. Worried. Fearfull. Paranoid. (eveyone's out to get me anyway, so might as well be paranoid) Constant headache. I can go on and on. On the bright side: My wife still loves me. She's taking good care of me. I find out the 3rd of November what my 12 week count is. Wish me luck. -Matt "Michael L. Arends" <mlarends@NODAMNSPAMearthlink.net> wrote in message news:xrWdnf7zsbtnHePcRVn-uQ@giganews.com... I don't give a sh.t if it's whining or Not! I'd like to hear how everyone in here is feeling.. Those current ON TX (Like me) or those off, or RECENTLY off. How is everyone doing? feeling? Myself? I just had shot 3 last Friday. So far, I've had relatively milder sides than most I've been reading about in here. However, for some reason yesterday I woke to feel just knocked down already. Every joint in my neck/back was aching, and I felt a million years old. left work early, and stayed home today, although I feel better today. Probably could have made work if I really wanted to. SO, as I say, let me hear how you are all doing. http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Matt answered: > Shot 15 this Friday. > [quoted text clipped - 17 lines] > > -Matt Good Luck Matt. Shot 4 for me this Friday. Matt, as you said "On the bright side" you are indeed very lucky to have somebody who loves you, and takes good care of you. Treasure her. Not all of us have this luxury. I am still waiting for my 12 week viral load eval to come back from the lab. Sitting on the edge of my seat. John > Shot 15 this Friday. > [quoted text clipped - 20 lines] > > I don't give a sh.t if it's whining or Not! I'd like to hear how > > everyone in here is feeling.. |
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