Medical Forum / Diseases and Disorders / Hepatitis / October 2004
An explanation of sorts; long, be patient
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Red Dwarf - 25 Oct 2004 11:35 GMT It's taken a couple of days to try to get my wits together and make some sense of the events and polarization of the last few days. I was thrilled to find there was indeed a support group for folks like me dealing with HCV, and related issues.However as is probably true for some others, this is not the sole health/social issue I'm dealing with. I do understand that I have spent and apparently still do dwell on what has been described as self-pity.At 53 y.o., this is the first time in my entire life this has been true. Try to understand some of the issues. In the recent past I have detailed my health issues ad nauseum, so I won't do that now. However, in the last 2 1/2 years I have made a number of important decisions that have affected me and those who were close to me adversely, and those decisions were the absolutely the wrong thing to have done. I made the mistake of putting my faith and complete trust in someone who had convinced me that my and my daughter's best interest were at heart. To make a long story shorter, I was betrayed,, we had a falling out,(you don't want to know the details), and abandoned, after having put all of my strength and assets into relocating here in Hawaii. I have been paralyzed emotionally, and other ways, and am having great difficulty trusting my judgment and decisions. In this venue and others I have asked for input, or suggestions, and the range of responses is incredible. My decisions have ruined the life of a teenage girl, and she now has issues trusting adults and others. I cannot go back in time. I'll bet most of us wish we could. I had literally and figuratively followed a powerful personality cult like figure. What a mistake.This individual thrived on personal power, and used the powers of persuasion and the gift of gab to gain his own ends, which I know now were extremely selfish. After this falling out I have been assaulted and threatened,(no I cannot go the authorities, no proof).This individual, believe it or not, thrives on my suffering, like an psychic vampire. Yes, they exist. You may have met them yourself.They increase their personal power base by influencing others lives,insinuating themselves into your life, and manipulating you and yours to no end. This individual caused me to cut ties to what family and friends I did have. This assures him control over ones life completely. It's all about power believe it or not.He never,never took no for an answer. I was gradually worn down, and trusted him. Know this people, there is truly evil out there in this world, however, they rarely see themselves as such.This has been my personal experience. May God help and forgive me. I am only human, and as such imperfect.
To all of this, add in the mix of failing health, HCV and TX, and maybe now you may begin to understand why some of the issues I have brought up have little to do with HCV.The decisions I made were virtually irrevocable. Unfortunately or perhaps wisely I have consulted with a number of counselors, shrinks, social workers, etc.And although well meaning, not a damn one of them has been able to help put me on the path to healing, trusting, and making wise and good decisions.Everyone I consult has their own approach and ideas, depending upon their training and experience. Most of these professional helpers just show up and justify their own existence and job security. I haven't found a darn one who can help me, I'm running out of strength. In all aspects.
O.K, now I have really bared my soul, so to speak.If it does seem as if I'm wallowing in a pool of self pity, I apologize. That is probably true. If there are some of you out there who do not wish to hear from me, then please put me in your kill file. It's easy enough to do.For just a little while longer I shall continue to ask questions, and perhaps, who knows, the right answer may present itself. In the meanwhile, for the most part I have and am enjoying meeting and communicating with some nice folks.The majority of you all out there.We all, at one time or another require support in one form or another, and for the most part I have been pleased with the responses I have received here at a.s.hc. On those occasions I have been able to help others it makes me feel good and gives one a sense of worthiness.Thank you for your responses and inputs and your patience. If you wish to say something a little more personally and not publicly, just e-mail me. I will listen, and enjoy the contact. However if there are you who only wish to hurt further, save it.We're full up. Maybe some of you may recognize some of yourself here. I hope this help explain the nature of some of my posts here. Thanks, John
ghibeluno - 25 Oct 2004 15:14 GMT John,
I think everyone of us has their own life, and each life, each story, is different.
As you say, what we're living is a direct consequence of the decisions we make, at every single moment. Perhaps I do recognize something mine in what you've written... yes I do, and I've thinking about it.
I've been comparing my actual life to what I would like it to be or to others' lives. I've made a lot of errors. I've made a lot of wrong decisions. I've been thinking that I ruined my beloved lives.
I admit that I use to have these thougths now and probably that I will, in the future.
Sometimes I can't prevent my brain from the free flowing of my bad thoughts. They bring me to a horrible mood, as I wonder how my life would have been if I did make the right decisions, if I had the courage to do the right thing.
No doubt it's no longer useful. It has never been, actually. What is all this sorrow for? Who can take benefit from it? Not me, not you, nobody can.
One thing is to know ourselves, another one is to keep on hurting ourselves.
Actually, we've two chances: one is to keep on *thinking* about our own life, about the past, and feel sick about. The other one is to look forward. Towards the rest of it. And doing something different. Noone can state it would be nice, or bad, who knows actually? but it is your own life, my own life. We DO have the power to manage it, we only need the courage to reach out.
Some days ago somebody posted a nice piece of text here. Title was "Watch yourself". It was a kind of look-at-it from-the-other-side thing. Start doing something different today, now! Take your bad mood and throw it behind your shoulders. It won't help you carrying it ahead. You know it and that's enough, you don't actually need it anymore.
Believe me, John, I'm telling all this to you and to me as well: it's time to go on, towards whatever it will be, the story, your story, has come to the next chapter.
One more thing: the way you're dealing with treatment is a great help to me. I've been thinking about how hard it can be to face it if you're alone.
Ciao, jeeb.
Red Dwarf - 25 Oct 2004 23:26 GMT Jeeb, It sounds as though you understand pretty well.If you look at the date/time you can tell that I do not sleep much at all. When I try to sleep, I get what you called the"free flowing of bad thoughts", and cannot sleep.These damn nights are long,,and with the lack of sleep, and different medications, I'm afraid to lie there in bed trying to sleep.Sometimes someone says something I find valuable, and another says something else, I try to put these thoughts/ideas together and make some sense.Often times though, when trying to string these thoughts/ideas they make no sense whatsoever. I do agree with you that it's time to move on. Eventually I may figure out how to do this. I hope there is a next chapter .Tnx Jeeb "ghibeluno"
<ghibelno___NOSPAMMEPLEASE___@yahoo.it> wrote in message news:2u4g34F254cr2U1@uni-berlin.de...
>> We DO have the power to manage it, we only need the courage to reach out. > [quoted text clipped - 5 lines] > It won't help you carrying it ahead. > You know it and that's enough, you don't actually need it anymore. stuff deleted for brevity.......
> Believe me, John, I'm telling all this to you and to me as well: it's time > to go on, towards whatever it will be, the story, your story, has come to [quoted text clipped - 5 lines] > Ciao, > jeeb. SteveS - 25 Oct 2004 20:13 GMT I'll also start out with a warning. This will be corny. To every thing there is a season. A time. A time to reach out for help A time to be candid A time to whine, grieve, regret, A time for anger. A time to support, a time to be firm, A time to let go of the past.
Do your time as you need to. This is a support group. Take what you need and leave the rest. Sometimes what you need is to support someone else.
Thanks for sharing your story. A time for advice: You say...
>>gives (me) a sense of worthiness. Don't bother looking for something you already have, it can make you dotty.
Steve
> It's taken a couple of days to try to get my wits together and make some > sense of the events and polarization of the last few days. I was thrilled [quoted text clipped - 87 lines] > explain the nature of some of my posts here. > Thanks, John Red Dwarf - 25 Oct 2004 23:58 GMT Steve, Wise words.Thanks for letting me share my story. Wish I knew how it all turns out.As a younger, stronger, healthier man, I struck out on my own, made some positive accomplishments. However, while being obsessed with these health issues, it's more difficult to know the right path to take.Just staying alive is a full time job that drains energy and leaves me with no strength, much less the ability to make important decisions with intelligence and wisdom. These last couple of days I've noticed that the edema is back, along with the intense itching in the left leg.The kind of itching that demands scratching, and ends up with bloody open wounds that take a long time to heal.The greater the upset, the more intense the itch.It's a kind of a cycle/loop without end. Yet the doctor says these things are extrahepatic manifestations of HCV. I need to get the hell out of the house today, even if for only an hour or so. John
> I'll also start out with a warning. This will be corny. > To every thing there is a season. A time. [quoted text clipped - 22 lines] > > and related issues.However as is probably true for some others, this is > > not lotsa stuff deleted....
> > Maybe some of you may recognize some of yourself here. I hope this help > > explain the nature of some of my posts here. > > Thanks, John SteveS - 26 Oct 2004 00:57 GMT Do what you need to do. The stuff you procrastinate about is NOT what you need to do. You need to take a walk or something today. Do that.
I found hydrocortisone cream helped with the itching. Take some meditation instruction for the worries. Learn how to still your mind. It's well worth it.
Steve
> Steve, Wise words.Thanks for letting me share my story. Wish I knew how it > all turns out.As a younger, stronger, healthier man, I struck out on my [quoted text clipped - 48 lines] >> > explain the nature of some of my posts here. >> > Thanks, John Susie Quill - 25 Oct 2004 22:54 GMT > It's taken a couple of days to try to get my wits together and make some > sense of the events and polarization of the last few days. I was thrilled [quoted text clipped - 87 lines] > explain the nature of some of my posts here. > Thanks, John John, I think that as we get older, and have made the choices that have put us where we are, many of us have regrets. I'm angry every day over some of the dumb choices I've made. I can't seem to shake the anger altogether, but I'm still working on it because it doesn't do me any good now.
Perhaps the true test is how we handle the aftermath of the bad choices that we have made. You were strong enough to pull away from this influence. Many people are still living in cults and can't get it together enough to leave for one reason or another. There are people in bad relationships that can't get it together enough to leave for one reason or another. I was in one. It caused a lot of damage to me and my family, but at least I got out.
Helping others is probably one of the best things we can do to repair our own lives. Your doing the best you can and trying to do better. That is all any of us can do. Hugs, Susie (flying out tonight....that should help my attitude a lot : ) )
Lookout - 25 Oct 2004 22:57 GMT >> It's taken a couple of days to try to get my wits together and make some >> sense of the events and polarization of the last few days. I was thrilled [quoted text clipped - 108 lines] >Susie >(flying out tonight....that should help my attitude a lot : ) ) Hey Susie..this interested me." I'm angry every day over some of the dumb choices I've made." I try to look at this from another angle. I can't change the mistakes I've made so I don't dwell on them. At all. In fact I like to think that no matter what happened as long as I learned something from the experience then it is a positive experience.
John
Red Dwarf - 26 Oct 2004 00:08 GMT Susie, you always seem to know the right thing to say. I hope your sleep study turns out o.k. When I did it, they connected me to a number of different leads, and monitored using cctv and stuff like that. It felt weird, but was noninvasive and harmless. Sleep well and enjoy your trip. John
Lotsa stuff deleted for brevity......
> John, > I think that as we get older, and have made the choices that have put us [quoted text clipped - 20 lines] > http://www.newsfeeds.com The #1 Newsgroup Service in the World! >100,000 Newsgroups > ---= East/West-Coast Server Farms - Total Privacy via Encryption =--- buster - 27 Oct 2004 02:22 GMT John, I would tell ya my long list of things gone South but my bleach towel wouldn't caught all your tears, let alone all the tears of the rest of the group. Dig deep, hold tight and let time be your friend. Buster
Red Dwarf - 27 Oct 2004 09:42 GMT Now that I look at it from this side, it does on the surface sound like the ravings of a madman. Time heals all wounds I've heard, I can only hope.At least you called me by my proper name instead of pineapple.I truly hated that, only I was too polite to make anything of it. One thing though, I'm not sure what you mean by bleach towel, as opposed to any towel. John
> John, I would tell ya my long list of things gone South but my bleach towel > wouldn't caught all your tears, let alone all the tears of the rest of the > group. Dig deep, hold tight and let time be your friend. Buster buster - 27 Oct 2004 23:28 GMT What that means is my list is so long and sad that a normal towel wouldnt caught all your tears or others of this group.
> Now that I look at it from this side, it does on the surface sound like > the [quoted text clipped - 9 lines] > the >> group. Dig deep, hold tight and let time be your friend. Buster
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