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Medical Forum / Diseases and Disorders / Hepatitis / October 2004Link between responders and sides?
Someone (quoting the famous "studies have shown",) suggested that a report of more side effects correlated with increased viral response. Anybody heard of such? Just wondering. W. All I can do is relate my experience, and that is my medical provider told me that from her experience that when I complained about the side effects, she said that was a good indication that the treatment is working for me. God knows that I hate this TX. In fact at this moment I'm looking at the box of interferon,(pegintron), trying to muster up the courage to inject myself. Like I said in an earlier post, I have already seen some benefit from the TX, and this is what I need to remember.The edema I suffered from for the last couple of years is reduced considerably. It helps me to go on. I seem to remember from somewhere that a man is most aware of his own existence when he is standing at a public urinal with others around him. I would like to modify that a bit. because for me I'm never more of my own existence is when I'm mixing up the sterile water, and Pegintron, and am about to inject myself. I've never felt aware and alone as in that moment. I wonder if others feel this way as well. I do so hope that I am one of those responders, I hate like the dickens to think all this is for nothing. John in Honolulu > Someone (quoting the famous "studies have shown",) suggested that a > report of more side effects correlated with increased viral response. [quoted text clipped - 4 lines] > > W. > All I can do is relate my experience, and that is my medical provider told > me that from her experience that when I complained about the side effects, > she said that was a good indication that the treatment is working for me. > God knows that I hate this TX. In fact at this moment I'm looking at the box > of interferon,(pegintron), trying to muster up the courage to inject myself. Man do I know this feeling. For a while I almost dreaded Friday's. Even taking the pills some days was hard. I sit there with them in my hand on days I didn't feel good..knowing they were the reason I felt like crap, trying to convince myself to take them anyways. My doctor told me that you adjust, that it gets easier. Well around week 12 it was actually harder, not easier. Course now I am past week 18 and it's much easier. The shot is just something I do. I'm still kind of sick of taking so many pills but it's not so bad. So he was right, it does get easier,...just not as quickly as I would have hoped. AG >[...] > Man do I know this feeling. For a while I almost dreaded Friday's. Fridays are like cheerleader days for me: "One more shot means one less shot to do!" > Even taking the pills some days was hard. I sit there with them > in my hand on days I didn't feel good..knowing they were the reason > I felt like crap, trying to convince myself to take them anyways. > My doctor told me that you adjust, that it gets easier. Well around > week 12 it was actually harder, not easier. Course now I am past > week 18 and it's much easier. I never heard "you will accomodate yourself to the side effects and many of them will diminish AFTER THREE MONTHS". Right after shot 12 I started an anti-d and that made a difference, and now after 15 I know I'm able to do more things, even though I may have a sick episode in a day I almost never spend the whole day sick. I can do things that I can plod along at without much thinking. I moved a small tree and planted another one. I scraped dead paint from around three wood windows and primed them. I smoked chiles in the BBQ. I am much less reliant on ambien, xanax, and marinol/cannibus, and there are moments every day when I realize I feel some variation of "normal" (as much as I can remember what that is.) My friends have commented that they see the old me coming out more. From people here, I'm expecting that from here on it will be about the same with more/longer sick periods and more of a drained-out feeling. > The shot is just something I do. > I'm still kind of sick of taking so many pills but it's not so bad. > So he was right, it does get easier,...just not as quickly as I would > have hoped. Exactly. I keep saying this, but I wonder how much doctors know that they decide not to tell us. If they can't make the sides any better at least they can help you pretend they're going to get better faster. Gordo On Tue, 5 Oct 2004 22:15:18 -0700, "Agua Girl" <uknown@spamblock.net>, >Man do I know this feeling. For a while I almost dreaded Friday's. >Even taking the pills some days was hard. I sit there with them [quoted text clipped - 6 lines] >So he was right, it does get easier,...just not as quickly as I would >have hoped. This just highlights to me how individual tx is. My first two weeks were a bit on the rough side. Then I had about 4 or 5 weeks wondering what all the fuss was about (between sips of water) :-) . Around week 6 or 7, I found out. Even so things were fairly OK up till week 12 but after that it just ground me down - week in week out. The worst bit was weeks 21 - 24. Every time I opened the fridge door there were screams coming from the little white box in the salad tray (metaphorically speaking). I was glad I had a favourable genotype (24 weeks tx). The physical sides were difficult at times but the mind games on tx were pretty awkward too.  SignaturePaul Use the reply by email facility in your newsreader to send email I have of that from my clinical trial nurse. I guess the more sensitive you could be to inf the better it could work and make you sick. Less resistance to inf would make you sicker maybe. Hard to say from what I have seen its makes everybody sick just different degrees different angles. My friend worked all through construction of malls and has been clear over 10 years. and not real sick at all and doing the 3x a week old stuff. Interferon just has much to be learned about. It cant be trusted LOL Juanita > Someone (quoting the famous "studies have shown",) suggested that a > report of more side effects correlated with increased viral response. > > Anybody heard of such? Not in the time I've been here. Couldn't find a link but didn't look too long after reading articles about studies on predicted outcome that didn't mention side effects having any association with outcomes, other than for the people who quit treatment because of them. I once posted a link to an article that made mention of an association with initial immune system response (basically, turning yellow) and spontaneous clearing, but that's not what you're looking for. Gordo >> Someone (quoting the famous "studies have shown",) suggested that a >> report of more side effects correlated with increased viral response. [quoted text clipped - 11 lines] > >Gordo Oh, well, I'm having a fairly easy ride so far (#21 tomorrow.) I'm basically leading a *somewhat* normal life as many people do... just pointing that out for the new DSers reading to get a clue. Yes, I clearly have sides; however; thus far I've been able to tolerate them. I'm seeing accellerating hair loss and some body cramping. So... they're not *all* horror stories. W. I believe that to be true... My viral response was out the roof and I had some serious sides My wife's was much lower (barely detectable) and her sides were much lower By the way, I go in for my 6 mos post today We'll see if the freakin dragon is gone for good Peace, Mike > Someone (quoting the famous "studies have shown",) suggested that a > report of more side effects correlated with increased viral response. [quoted text clipped - 4 lines] > > W. > I believe that to be true... > My viral response was out the roof and I had some serious sides [quoted text clipped - 5 lines] > > Peace, Mike Good luck Mike and good to hear from you again. Dwight Dragon Slayers' Club: http://geocities.com/dwightmspage/ |
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