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Medical Forum / Diseases and Disorders / Hepatitis / October 2004One year and two months later...
Last shot was July 31, 2003 and no trace of the little buggers. Yup, I'm still undetectable. ALT is 17, was 10 in May when last tested. AST is 15, was 19 GGT is 11, was 27 ferritin is 47 and hemoglobin is good at 41.6. In fact, all my labs are boringly normal. Neurological pain is no longer a problem, but then I've been taking neurontin for a few months, along with tramadol for the arthritis and the calcified tendons in the cervical area. Going to a pain specialist has made all the difference and I have my psychologist to thank for setting up the initial appointment. Neither of the two medications give me any side effects, though the neurontin did make me sleepy when I first started taking it. Hope all the rest of you are doing well. Lana (formerly 1a, 45 weeks of torture--oops, I mean treatment) > Last shot was July 31, 2003 and no trace of the little buggers. Yup, I'm > still undetectable. [quoted text clipped - 17 lines] > Lana > (formerly 1a, 45 weeks of torture--oops, I mean treatment) Lana, good to hear from you again and glad everything is going well for you. Don't be a stranger. Dwight Dragon Slayers' Club: http://geocities.com/dwightmspage/ > Lana, good to hear from you again and glad everything is going well for > you. Don't be a stranger. Hi Dwight, yes things are looking up. The best thing was that I've just completed a French course that was paid for by the government. It was 28 hours a week from mid-June till the end of September and had no problems with either my concentration or having to spend so many hours sitting in a classroom. Lana > Last shot was July 31, 2003 and no trace of the little buggers. Yup, > I'm still undetectable. [quoted text clipped - 17 lines] > Lana > (formerly 1a, 45 weeks of torture--oops, I mean treatment) Congrats Lana, Beating genotype 1 is a major accomplishment. Best of luck to you in the future! Dan > Congrats Lana, > > Beating genotype 1 is a major accomplishment. > > Best of luck to you in the future! Hi Dan, You don't know my history, but I was on a miniscule dose of IFN, so it really was a major accomplishment. I was already negative when tested 10 weeks after starting tx. Lana Great news, and great to hear from you! > Last shot was July 31, 2003 and no trace of the little buggers. Yup, I'm > still undetectable. [quoted text clipped - 17 lines] > Lana > (formerly 1a, 45 weeks of torture--oops, I mean treatment) > Great news, and great to hear from you! Hi Thip, Yes, there was a big sigh of relief when I opened the envelope with the results. I think I can relax now. Sorry to hear that things didn't work out for you in the IFN sweepstakes. Lana On Tue, 28 Sep 2004 23:16:28 +0200, "szozu" <hoppbunny at hotmail com>, in message ID <4159d5a6$0$13518$626a14ce@news.free.fr>, in the newsgroup alt.support.hepatitis-c wrote: >Last shot was July 31, 2003 and no trace of the little buggers. Yup, I'm >still undetectable. [quoted text clipped - 4 lines] >ferritin is 47 and hemoglobin is good at 41.6. In fact, all my labs are >boringly normal. Great to hear from you again Lana and I'm very happy that you have remained free of the virus - especially considering that you did some of your tx on low doses. I remember some of the horrible crap you went through to achieve this SVR. Congratulations.  SignaturePaul Use the reply by email facility in your newsreader to send email > Great to hear from you again Lana and I'm very happy that you have > remained free of the virus - especially considering that you did some > of your tx on low doses. > I remember some of the horrible crap you went through to achieve this > SVR. > Congratulations. Paul, I did ALL of my tx on a tiny dose and a large part of it on an even more miniscule dose, so it's quite amazing that I still had to go through all the horrible crap, or that I became undetectable. Lana On Thu, 30 Sep 2004 11:13:02 +0200, "szozu" <hoppbunny at hotmail com>, in message ID <415bcf5a$1$10402$636a15ce@news.free.fr>, in the newsgroup alt.support.hepatitis-c wrote: >I did ALL of my tx on a tiny dose and a large part of it on an even more >miniscule dose, so it's quite amazing that I still had to go through all the >horrible crap, or that I became undetectable. I never realised until today that you did it ALL on low doses. A friend of mine did most of HIS tx on low (usually half or quarter) doses too and he cleared as well. Mind you, he didn't have genotype 1 like you did. When my friend got very low on tx when he was on small doses, I told him about you (not by name) and that you cleared geno 1 on low doses. It helped to keep him going and he cleared (he was very ill at times and his platelets went down to 32 at one point). So, unwittingly, your experience has helped someone way beyond this newsgroup (my friend does not have a computer). I just thought you might like to know that Lana. I hope to be able to write something like you have at some point. I had my end of tx PCR a few days ago (a month after ending tx). The results usually take about two weeks so here's hoping. SignaturePaul Use the reply by email facility in your newsreader to send email > On Thu, 30 Sep 2004 11:13:02 +0200, "szozu" <hoppbunny at hotmail > com>, in message ID <415bcf5a$1$10402$636a15ce@news.free.fr>, in the [quoted text clipped - 18 lines] > had my end of tx PCR a few days ago (a month after ending tx). The > results usually take about two weeks so here's hoping. Yes Paul, I started low (nowhere near what's recommended on Schering's weight-based dosing chart) and then after my first labs came back a few weeks later, my doctor put me on an even lower dose. I haven't really worked it out, but I probably did the greater part of my tx on this tiny dose, which would normally be considered a maintenance dose for those who had failed tx but continue taking IFN to arrest further fibrosis. I'm glad your friend cleared. Someone else told me that he had heard of people clearing on very small doses. What's interesting is that these small doses seem to generate enormous side effects, so I'm wondering whether some of us are just naturally more sensitive to IFN. Congratulations on finishing tx and here's hoping that you will be dancing around doing the "undie" dance in a couple of weeks for "undie-tectable!" Lana I'll be dogggon! It's sooo goood to hear from you. Can't say how much I've missed you here and how happy I am that your're doing so well. Many hugs and kisses for you. You're not only a wonderful inspiration and friend, you smell good too! LOL Let me know how we can stay in touch, please! Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile > I'll be dogggon! It's sooo goood to hear from you. Can't say how much > I've missed you here and how happy I am that your're doing so well. > Many hugs and kisses for you. You're not only a wonderful inspiration > and friend, you smell good too! LOL Let me know how we can stay in > touch, please! Hi Doc, Hugs and kisses to you to or "bisous" as we say here in France. I see there's a whole new crop of people here now getting acquainted with the joys of tx. To stay in touch, just make the necessary changes to my e-mail address--et voila! Lana Lana, How great to hear from you and your wonderful lab values! I'll do my 6 month post treatment shot in Nov. Keep us posted on yourself! hc > Last shot was July 31, 2003 and no trace of the little buggers. Yup, I'm > still undetectable. [quoted text clipped - 17 lines] > Lana > (formerly 1a, 45 weeks of torture--oops, I mean treatment) > Lana, > How great to hear from you and your wonderful lab values! > I'll do my 6 month post treatment shot in Nov. Keep us posted on yourself! > hc Good luck Heppie, and I hope those 6 months results will allow you to finally change your name! Lana > > Lana, > > How great to hear from you and your wonderful lab values! [quoted text clipped - 5 lines] > > Lana Ain't that the truth!! hc Heh Lana, Good to hear you're doing so well. I'm still clear as well, and just enjoying my health. Keep comin' around. fonzz > Last shot was July 31, 2003 and no trace of the little buggers. Yup, I'm > still undetectable. [quoted text clipped - 17 lines] > Lana > (formerly 1a, 45 weeks of torture--oops, I mean treatment) > Heh Lana, > > Good to hear you're doing so well. I'm still clear as well, and just > enjoying > my health. > Keep comin' around. Great new Fonzz! It's nice to know that so many of us going through tx at the same time got good results. Lana How are you doing?? Hope all is well with you!!! hc > Heh Lana, > [quoted text clipped - 27 lines] > > Lana > > (formerly 1a, 45 weeks of torture--oops, I mean treatment) Fantastic news Lana! I'm so happy for you!! How's the sarcoidosis nuisance? I do my six months post-tx viral load in a few weeks. Hoping to follow in your footsteps. Thom marallo@nzia.net If you want to email me, replace the "z" with a "c" > Last shot was July 31, 2003 and no trace of the little buggers. Yup, I'm > still undetectable. [quoted text clipped - 17 lines] > Lana > (formerly 1a, 45 weeks of torture--oops, I mean treatment) > Fantastic news Lana! I'm so happy for you!! How's the sarcoidosis > nuisance? > I do my six months post-tx viral load in a few weeks. Hoping to follow in > your footsteps. Hi Thom, The sarcoidosis is gone. I'm left with one scar in the crook of my left arm and two on my right--much better than the ugly lumps I had from the sarcoidosis. Everything is under control except for the damage I suffered to the optic nerve. I have an annual appointment to see the ophthalmologist coming up in October. Hopefully, there will be no progression. I'm betting you will still be negative at the six-month marker. Lana And how the heck are you Thom?? Long time no chat!!!! hc > Fantastic news Lana! I'm so happy for you!! How's the sarcoidosis > nuisance? [quoted text clipped - 27 lines] > > Lana > > (formerly 1a, 45 weeks of torture--oops, I mean treatment) > And how the heck are you Thom?? > Long time no chat!!!! > hc Hi hc, I've been lurking periodically. Not much to say, I guess. I felt great for a few months post-tx. The last couple of months not so good. All of the joint aches and fatigue of pre-tx seem to be back. Liver enzymes are slightly increased, but blood counts are back to normal. I've got a few more weeks to go before the six month viral load check, so I won't worry about it until I do that test. It doesn't help that I'm back to my usual 10-14 hour days and take-home paperwork. Our workload is up 27% and I've had four techs leave in the past 6 months. Our hospital is applying for Critical Access status with Medicare and, of course, that means a ton more paperwork to prove our lab can do all the stuff we've been doing for the past 30 years. The good news is my son got married last month to a wonderful gal whom we all love. She comes with a 13 year old son; a great kid who has also been totally absorbed into the family. So now I'm an instant Grandpa! What's the news from your son? I hope he and his unit are safe and sound. Keep in touch. Thom > > And how the heck are you Thom?? > > Long time no chat!!!! [quoted text clipped - 19 lines] > Keep in touch. > Thom Congrats on the marriage and the "Grandpa" thing!!! My son is in Baghdad and will be there until May 2005. His unit is not allowed to leave the base so that is good news for the both of us. I went to 8 hour days, 5 days a week after I went back to work and that works real good for me. I don't have to do weekend call anymore and that's even better. I do just one day a week now. Good luck with all that paperwork stuff. We're getting ready for JACHO in Dec. Take care! hc Yea Lana!!! Two more months from now and I'll know "thumbs up or down" on my treatment. At least my thyroid is starting to work again.. Great to hear from you! SignatureRuss Remove "NOSPAM" for replies. > Last shot was July 31, 2003 and no trace of the little buggers. Yup, I'm > still undetectable. [quoted text clipped - 17 lines] > Lana > (formerly 1a, 45 weeks of torture--oops, I mean treatment) > Yea Lana!!! Two more months from now and I'll know "thumbs up or down" on my > treatment. > > At least my thyroid is starting to work again.. > > Great to hear from you! Hi Russ, Great news about your thyroid. Here's hoping that congratulations will be in order when you get your labs back. Lana Top posted: Hi Lana, It's *so* great to hear your news! Congratulations, hugs and high-fives, you deserve it; it was one helluva fight and you stuck it out (no pun intended). All the best, Waterspider > Last shot was July 31, 2003 and no trace of the little buggers. Yup, I'm > still undetectable. [quoted text clipped - 17 lines] > Lana > (formerly 1a, 45 weeks of torture--oops, I mean treatment) > Top posted: > > Hi Lana, > > It's *so* great to hear your news! Congratulations, hugs and high-fives, you > deserve it; it was one helluva fight and you stuck it out (no pun intended). Hi Spidey, High-fives to you too. It was always amusing to read your posts while going through tx. I'm only sad that Dez is no longer with us. Such a great guy... Lana That's great news! I have just started on the 48 week plan...well 25% into it. I'll be getting my 12 week blood draw on Monday. Thanks for the encouragement. Mark |
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