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Medical Forum / Diseases and Disorders / Hepatitis / August 2004

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Caution......but it hurts.......

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Paul2 - 27 Aug 2004 21:12 GMT
I love to kiss. My wife that is. Recently I realized that we have done much
"smooching" lately....

I commented to my wife about it and she confessed that she can no longer
kiss(passionately)due to her fear of Hep-C
I'm a Hemophiliac as well and do have occasional gum bleeds. But usually
only after a vigorous brushing.
Never before or too long after.

Yet my wife is afraid. After the initial shock I totally understand her
caution.

Years ago when I was first diagnosed my wife was baby-sitting everyday for a
friend. She found out about my Hep-C and said she could no longer allow her
little girl to come to our house. She was very upset and kind about it, but
non-the-less she had to do what she felt was in her daughters best interest.
At the time I felt stigmatized, but again I can totally understand her
actions now.

Of course education is the best weapon against a stigma, but there will
always be those who well error on the side of caution rather than take a
chance.

For all those who feel like a "leper"....Don't!
If there are people in your life who seem to skirt around you like you have
the bubonic Plague try educating them...and if they still do it  don't take
it personally.(hard not to) Understand their caution and fear and realize
they probably feel very bad for doing it.

God Bless:

Paul2
Mark Emerson - 27 Aug 2004 23:10 GMT
I can understand exactly what your saying. I have to be careful who I tell.
They all want to know how I got it and if I tell them the truth....that I
used to shoot dope they get a little judgemental. Thank God I have a good
recovery community that don't judge me.

I can feel your pain and I totally understand. My wife is also cautious as
she should be. I would feel terrible if I gave her this horrid dragon!!

Take care,
Mark
Russ - 28 Aug 2004 01:45 GMT
I tell everyone, and if they don't like it, f.ck em.....

Signature

Russ
Remove "NOSPAM" for replies.

> I can understand exactly what your saying. I have to be careful who I tell.
> They all want to know how I got it and if I tell them the truth....that I
[quoted text clipped - 6 lines]
> Take care,
> Mark
Paul2 - 28 Aug 2004 01:59 GMT
I don't tell everyone. Only people I think NEED to know.
I had a habit years ago when I was first diagnosed of telling EVERYONE. I
realized what I was doing was trying to get some kind of validation or
acceptance from them. Almost like saying, "here's what I have, wont you
please try to understand".
I don't need others acceptance of me or my illnesses any longer.
I'm not Hemophiliac with Hep. C.
I'm Paul.
I'm not my sickness. For a time I became what I had. It controlled me.

Paul2
> I tell everyone, and if they don't like it, f.ck em.....
>
[quoted text clipped - 12 lines]
> > Take care,
> > Mark
Hepautornagic - 28 Aug 2004 03:20 GMT
>Paul2" cantdojustcant@home.maybesometime
>Date: 27/08/2004 8:59 PM Eastern Standard Time
>Message-id:

>I'm Paul.
>I'm not my sickness

I like the way you worded that, it would make a very kewl tagline!

It's also true that everyone needs to know. Like you, I tell those who need to.

Take Care Paul,

Kim
SteveS - 29 Aug 2004 01:35 GMT
Ok.  I'll be the trouble maker.
I refuse to buy in to the stigma other people place on this disease.
I see no moral or ethical obligation to inform civilians about my illness,
thus I avoid their stigma entirely.

The last time I checked, hcv was only *proven* to be transmitted by blood to
blood contact.
Not blood to saliva, not through the air, not in the dentists office having
your teeth cleaned.
Blood to Blood.  That means intravenously, or having your blood contact
someone else's sucking wound.
A bullet to the lungs would produce such a sucking wound.  Imho, a razor
nick would not.

I'd make an exception for a bout of Greco-Roman Sex, if I could find a
willing contender.

I've been married for 33 years.  I've had hep a, b, and c.  My wife is
perfectly clear, so is my daughter.
I don't have hemophilia, and I'm sure that presents a different perspective
to a lot of issues, but your blood still needs to enter someone else's
circulatory system to infect them with hcv.

Of course there are other opinions.  Please keep them civil.

Steve

> >Paul2" cantdojustcant@home.maybesometime
> >Date: 27/08/2004 8:59 PM Eastern Standard Time
[quoted text clipped - 10 lines]
>
> Kim
Paul2 - 29 Aug 2004 02:42 GMT
When fear grips someone its hard to be rational. That being said, if my wife
happened to have a cut or sore in her mouth and my blood came in contact
with it...................

Of course the risk is slim, of course I know everything you've said. But
fear isn't rational.
And yes having Hemophilia is a whole other jar of wax.

Paul2
> Ok.  I'll be the trouble maker.
> I refuse to buy in to the stigma other people place on this disease.
[quoted text clipped - 38 lines]
> >
> > Kim
SteveS - 29 Aug 2004 18:50 GMT
Paul, I wasn't singling you out in my rant.  The thread just made me want to
state an opinion.
I can easily see this disease has cost you dearly, and I respect your
tenacity.
Kill the dragon !

Steve

> When fear grips someone its hard to be rational. That being said, if my wife
> happened to have a cut or sore in her mouth and my blood came in contact
[quoted text clipped - 50 lines]
> > >
> > > Kim
Paul2 - 29 Aug 2004 20:22 GMT
Thanks Steve.

Paul2
> Paul, I wasn't singling you out in my rant.  The thread just made me want to
> state an opinion.
[quoted text clipped - 61 lines]
> > > >
> > > > Kim
Julie - 29 Aug 2004 03:59 GMT
Here is a study that was done:
Sexual Transmission of HCV Is Rare in Monogamous Heterosexual Couples

May 13, 2004 - Sexual transmission of hepatitis C virus (HCV) is rare in
monogamous heterosexual couples, according to the results of a 10-year
prospective study published in the May issue of the American Journal of
Gastroenterology.

[...] In a long-term study, 895 monogamous heterosexual partners of
individuals chronically infected with HCV were followed for a total of
8,060 person-years. [...] All of these couples denied practicing anal
intercourse, vaginal intercourse during menstruation, or condom use.
Average frequency of sexual intercourse was 1.8 times per week.

During follow-up, there were three HCV infections, corresponding to an
incidence rate of 0.37 per 1,000 person-years. HCV genotyping, sequence
analysis, and phylogenetic analysis suggested that the corresponding
partners carried different viral isolates, which would rule out spousal
transmission of HCV.

However, the authors note that in 33 (3.4%) of 967 couples initially
investigated, both partners were anti-HCV positive, suggesting the
possibility that HCV could have been transmitted earlier in their
relationship.

"Our data indicate that the risk of sexual transmission of HCV is
extremely low or even null," the authors write. "No general
recommendations for condom use seem required for individuals in
monogamous relationships with HCV-infected partners."

Based on other studies, however, the authors strongly advised these
couples to avoid sharing personal hygiene items such as toothbrushes,
razors and nail clippers.
[...]

Full text at
http://www.medscape.com/viewarticle/477553

> I love to kiss. My wife that is. Recently I realized that we have done much
> "smooching" lately....
[quoted text clipped - 28 lines]
>
> Paul2
 
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