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Medical Forum / Diseases and Disorders / Hepatitis / August 2004Good Luck Susie!!!!
Only 4 more to go. My good thoughts are with you. I didn't even realize you were on treatment, you've been so easy going. I have good feelings that you will clear, and hope you have no lasting sides!! All the best, Kim Yes Saipan Susie, we are all pulling for you! buster > Only 4 more to go. My good thoughts are with you. > I didn't even realize you were on treatment, you've been so easy [quoted text clipped - 4 lines] > > Kim LOL Thanks, it is 8 p.m. in the evening here, and I don't even know for sure what day it is. LOL Just woke up. So, the support is apporeciated. Susie > Yes Saipan Susie, we are all pulling for you! > buster [quoted text clipped - 6 lines] > > > > Kim This calls for a bowl of ice cream!! Yipppeeeee!!!!!!! Elmo ///////// LOL Thanks, it is 8 p.m. in the evening here, and I don't even know for sure what day it is. LOL Just woke up. So, the support is apporeciated. Susie "buster" <askme@cox.net> wrote in message news:ZigTc.9536$wo.939@okepread06... Yes Saipan Susie, we are all pulling for you! buster "Kim" <hepautomagic@hotmail.com> wrote in message news:ec181702.0408131900.20e5de2e@posting.google.com... Only 4 more to go. My good thoughts are with you. I didn't even realize you were on treatment, you've been so easy going. I have good feelings that you will clear, and hope you have no lasting sides!! All the best, Kim http://community.webtv.net/elmoemerson/DocElmosHepFile > Only 4 more to go. My good thoughts are with you. > I didn't even realize you were on treatment, you've been so easy [quoted text clipped - 4 lines] > > Kim Thanks Kim. I just try not to say much usually if I'm in a bad mood. I know I can have a bad temper. I really hate having to go back and apologize later. You weren't posting when I first started. Guess you were taking some time out from the list. I just woke up and wasn't sure if it was a.m. or p.m. or what day it was. Head hurts. Stomach up-set. I had left over Indian food that I ate earlier. I don't think that was very smart. I'm looking forward to finishing. I think I'm going to feel some guilt though. I just admire these people that have to go 48 weeks, or that have gone thru this two or three times. Julie will only be half way thru when I finish. I'm not sure how I could have gone in to this if I'd had that much to go. I've got just enough sick time left to get me thru this I think, although I might have to borrow a little. I'm usually out of work now every Monday and Tuesday. At first, I only had to take Mondays off. On Wednesday, I go in the front office with no windows and hypernate for a while if I need to. At 4 weeks I was negative. Just took another test a few weeks ago and still waiting for the results.. I am hopeful.....still there is always that lurking thought, "What if it doesn't work". I just want a good nights sleep again. Thanks, susie I haven't been following the group lately and was wondering how it's going for you; are you quitting early? Is it working? ares > > Only 4 more to go. My good thoughts are with you. > > I didn't even realize you were on treatment, you've been so easy [quoted text clipped - 31 lines] > http://www.newsfeeds.com - The #1 Newsgroup Service in the World! > -----== Over 100,000 Newsgroups - 19 Different Servers! =----- Susie Wrote: >Thanks Kim. I just try not to say much usually if I'm in a bad mood. I >know I can have a bad temper. I tend to say more when in a temper :). I don't mean to, don't want to, it's just in my genes I guess????? I dunno. So, cudos for you for control. I really hate having to go back and apologize >later. You weren't posting when I first started. Guess you were taking >some time out from the list. Last summer I was away much, travelling. Then here and there during the regular months, I am busy, busy here and there, so I don't have tons idle time on my hands. I could have just been working or away. >I just woke up and wasn't sure if it was a.m. or p.m. or what day it was. >Head hurts. Stomach up-set. I had left over Indian food that I ate >earlier. I don't think that was very smart. >I'm looking forward to finishing. I think I'm going to feel some guilt >though. I just admire these people that have to go 48 weeks, or that have >gone thru this two or three times. I can't even imagine doing it once! From what you guys say, it sounds like a very rough go. Still though, I have high hopes for all those who endure it, so they will never have to endure it again. For those who don't clear, I sure hope that theraputic vaccine comes through fast! >Julie will only be half way thru when I finish. I should send her some encouragement too. ~~Waves Hi Julie, GOOD LUCK!!! I'm not sure how I could >have gone in to this if I'd had that much to go. >I've got just enough sick time left to get me thru this I think, although I >might have to borrow a little. I'm usually out of work now every Monday and >Tuesday. At first, I only had to take Mondays off. On Wednesday, I go in >the front office with no windows and hypernate for a while if I need to. >At 4 weeks I was negative. Very positive, they say if you are clear at 12 and 24 weeks that you'll likely remain clear. Are you a geno 2-3 or something? Is that why your doing only 24 wks? Just took another test a few weeks ago and still >waiting for the results.. I am hopeful.....still there is always that >lurking thought, "What if it doesn't work". >I just want a good nights sleep again. It sounds like you've already responded and I sure hope you get your sleep and get out of that fibro pain fast. Rememeber to ask a specialist about Meridia, people I know in Jersey who have fibro and were prescribed this by a neurologist, have raved about the results!! In Health, Kim Thanks, susie >-----= Posted via Newsfeeds.Com, Uncensored Usenet News =----- >http://www.newsfeeds.com - The #1 Newsgroup Service in the World! >-----== Over 100,000 Newsgroups - 19 Different Servers! =----- I snapped at a shop lady about the time I started all this. Afterwards, I realized I was dead wrong. Bought her a little gift and took it in and apologized. I hate humble pie. It was one of the worst things I've ever had to do. She was so gracious. She grabbed me and gave me the biggest hug. I obviously had really hurt her feelings. I'm not always in control.....maybe being sick makes me too sick to fight so much now. I'm type 2b. I thought you had already gone thru treatment. Have you rejected the idea of going thru with treatment. I assume that you do have HCV. Susie > Susie Wrote: > [quoted text clipped - 61 lines] > >http://www.newsfeeds.com - The #1 Newsgroup Service in the World! > >-----== Over 100,000 Newsgroups - 19 Different Servers! =----- >From: "Susie Quill" susieq@vzpacifica.net >Date: 14/08/2004 11:23 PM Eastern Standard Time >Message-id: <411ed729_6@corp.newsgroups.com> Hi Susie, Yes you assume correctly, I am HCV postitive. Got it from a blood transfusion in 86. Confirmed HCV + in 91. Verified it was the blood in 98. (I live in Canada) There was compensation pay out to victims who got it from blood transfusions, so they had to trace every transfusion case in the HCV scandal. In 96 had a viral load. (I was pregnant though) Haven't had a detectable viral load for a long time. There was a screw up typo on one report that indicated a positive viral load a couple of years ago, but when the doctor got the report, it was evident that the arrow was incorrectly typed and that I didn't. Nobody knows why. At one point my doc had me tested bi weekly for six months to be sure I wasn't in a trough phase. He can't explain it. My liver is not damaged in anyway shape or form, so I don't need treatment. If I did, I probably would reject the gold standard, either wait for something better, or try something else. Thats just me, it scares me more then HCV. So far... anyway. I guess I am lucky! But anyone who is brave enough to go through with it, has my absolute admiration and obvious best wishes in recovery! Kim >I snapped at a shop lady about the time I started all this. >Afterwards, I realized I was dead wrong. Bought her a little gift and took [quoted text clipped - 6 lines] >I'm type 2b. I thought you had already gone thru treatment. >Have you rejected the idea of going thru with treatment. I assume that you do have HCV. >Susie > [quoted text clipped - 81 lines] >http://www.newsfeeds.com - The #1 Newsgroup Service in the World! >-----== Over 100,000 Newsgroups - 19 Different Servers! =----- Maybe your going negative was in the genes too. How blessed you are. Susie > >From: "Susie Quill" susieq@vzpacifica.net > >Date: 14/08/2004 11:23 PM Eastern Standard Time [quoted text clipped - 117 lines] > >http://www.newsfeeds.com - The #1 Newsgroup Service in the World! > >-----== Over 100,000 Newsgroups - 19 Different Servers! =----- >Yes you assume correctly, I am HCV postitive. Got it from a blood transfusion >in 86. Confirmed HCV + in 91. Verified it was the blood in 98. (I live in [quoted text clipped - 6 lines] >knows why. At one point my doc had me tested bi weekly for six months to be >sure I wasn't in a trough phase. He can't explain it. Well, there is a simple explanation: you cleared on your own. Very rare, but not unheard of, especially in conjunction with pregnancy. I find it rather strange that you still consider yourself "HCV positive". You aren't, not after being virus free for "a couple of years". If you're undetectable for two years then you're generally considered "cured". You may still have antibodies for HCV, but those don't go away even when you're cured, just as having antibodies for HBV after vaccination doesn't mean you're "HBV positive". Consider yourself lucky, VERY lucky indeed, but not "HCV positive". Thomas  SignatureTo reach me, complete my last name in the address. >From: Thomas Wagner tomw@capecod.com >Date: 15/08/2004 1:06 PM Eastern Standard Time [quoted text clipped - 18 lines] > >Well, there is a simple explanation: you cleared on your own. Hi Thomas, Both Dr. Jenny Heathcotes whose studies can be found all over pub med (my hepatologist) and my Gastro Dr. Anand are keeping an eye on my personal medical progress in terms of HCV. Both agree that it is either lucky, unusual and/or rare. Both want me tested every 2-5 years anyhow, and I'll go with what they say. I do consider myself very lucky after all these years to have such concerned and cautious doctors. Of course lucky that I'm in a non detectable state right now. As are you... which is a great feeling isn't it! I wish everyone ends up in that state asap! Take care, Kim I do test postitive for HCV antibodies, and below detection limit for viral load. Very rare, >but not unheard of, especially in conjunction with pregnancy. I find it >rather strange that you still consider yourself "HCV positive". You [quoted text clipped - 6 lines] > >Thomas >Both Dr. Jenny Heathcotes whose studies can be found all over pub med (my >hepatologist) and my Gastro Dr. Anand are keeping an eye on my personal >medical progress in terms of HCV. Both agree that it is either lucky, unusual >and/or rare. Both want me tested every 2-5 years anyhow, and I'll go with what >they say. Yes, until there's a test that can determine with absolute certainty that nothing remains, it's a good idea to re-test from time to time. But that's really a CYA-precaution, the chance of the virus hiding somewhere for all that time is about zero. > I do consider myself very lucky after all these years to have such >concerned and cautious doctors. Of course lucky that I'm in a non detectable >state right now. As are you... which is a great feeling isn't it! I wish >everyone ends up in that state asap! Yes, a very good feeling. I haven't had my two years yet, so I'm still a bit cautious (there's a tiny chance of relapse within the first two years), but if '96 was the last time they found a viral load in you, I think you have a good reason to celebrate your cure. Thomas SignatureTo reach me, complete my last name in the address. I don't know if this is of any use or concern to you, I think it may be one of the reasons they tested me so often. Normal No HCV RNA is found in the blood sample. This usually means there is no active HCV infection. However, false-negative results are possible, and HCV infection should not be ruled out when a single qualitative HCV RNA test is negative. You may need to repeat the test or have a supplemental antibody test if your health professional thinks it is likely that you have hepatitis C. A negative qualitative HCV RNA test does not necessarily mean you have never been infected with HCV; it means only that you do not currently have an active infection. http://my.webmd.com/hw/hepatitus_c/hw144321.asp Since at one point, pregnant or not, viral particles were present, that is probably the reason both doctors wish to continue testing. Erring on the side of caution maybe, studying me, I don't know? In anycase, that is what I am under thier medical advice/obligation to do, and I do it. In Health, good health to all, Kim Kim Yippee Susie!! You can do it!!!! hc > Only 4 more to go. My good thoughts are with you. > I didn't even realize you were on treatment, you've been so easy [quoted text clipped - 4 lines] > > Kim Hi Susie! Really rooting for you!!! Sorry you're still having those darn headaches, though. Did you ever get a chance to try Topomax??? Always keeping you in my prayers, Jim > Hi Susie! > > Really rooting for you!!! Sorry you're still having those darn headaches, > though. Did you ever get a chance to try Topomax??? What's Topomax? I'd do almost anything to have a couple of days a week headache free. >Subject: Re: Good Luck Susie!!!! >From: "Agua Girl" uknown@spamblock.net [quoted text clipped - 8 lines] >What's Topomax? I'd do almost anything to have a couple of days >a week headache free. AG, Like many meds, they may be made for one thing but are found to help another. In my case, I had/have chronic headaches that started mid-way through my tx. I took endocet for my joint/muscle pain but it did not touch the headaches. My doc prescribed Topomax (25 mg 1 in am and 1 in pm) and it stopped the headaches. The med was initially designed as an anticonvulsant used with other meds to control certain types of seizures. I don't get seizures, never have, but the drug did stop the pounding, sharp headaches. It was a great relief that the endocet would not touch. Jim > Hi Susie! > [quoted text clipped - 4 lines] > > Jim Hi Jim, No, I've been using endocet, which knocks me out for several hours of inadequate sleep. Thanks for the suggestion again. Susie |
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