Medical Forum / Diseases and Disorders / Hepatitis / August 2004
2nd shot nearly killed me
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Red Dwarf - 12 Aug 2004 06:40 GMT Maybe an overstatement. But good gracious, its not too far off. I barely have the strength to type this. Why am I posting today? Last night around 10:00p.m. I gave myself the 2nd shot of Peg-Intron, had a snack, then went to bed. Just in case anything were to happen I kept my trash can near the bed. I slept well until about 3:30, when I woke up with full blown nausea, and vomiting. It was a good thing I had the trash can near me, because I needed it right away, and in my condition would never have found it. I felt awful, and had no strength at all. Even though I had some compazine pills in the house, I did not have the presence of mind to find and take them. I managed to go back to sleep. Slept until about 3:00, woke up, watched an episode of Stargate SG-1, (I love Sci-Fi) and went to sleep again. It's now 7:30 p.m., and I'm wondering where the day went. I haven't the energy or strength to prepare any food, or go buy some, so I just had some fruit I kept on hand. Oh man, I hope I feel better tomorrow. I can't muster up the energy to shower, and can smell myself. Sorry. This is a very high price to pay for anything I may have done in the Past. All I can do now is lay around like some inert lump of matter. This sucks big time. I cannot sit here any longer, as I keep nodding off. I hope none of you folks out there feels this bad. John
Agua Girl - 12 Aug 2004 07:52 GMT 2nd one was way worse for me too. I had bought this little cart to put next to my bed. Put a trash can on the bottom shelf, some treats on the second shelf (boy was that a waste of time) and pepto bismo, Tylenol, my meds and a couple of bottles of water on the top. Fully prepared to not move :-) and I didn't that second weekend. You have to really prepare when you live alone. Thing is...I have learned that if I fight off the nausea, take my shower and at least move out to the living room I feel 100% better. Even if I don't move any further than the couch. Actually if I can go out in the back it's even better but lately it's been too hot too early. Something about the fresh air I guess. It does get better. Doesn't stay better unfortunately but not every day after will be like the one your having now. Heck..sometimes you even get two or three good days in a row!!!!
When I think how I used to complain about a bad head cold.... ;-)
Hang tough.... in the not so distant future you will be able to look back on this and marvel at where you found the strength.
AG
> Maybe an overstatement. But good gracious, its not too far off. I barely > have the strength to type this. [quoted text clipped - 17 lines] > out there feels this bad. > John Hepautornagic - 12 Aug 2004 13:02 GMT John Wrote:
>Last night around 10:00p.m. I gave myself the 2nd >shot of Peg-Intron, had a snack, then went to bed. Just in case anything [quoted text clipped - 15 lines] >out there feels this bad. > John Sheesh, I hope it gets better after the second one John. Though it may not be fun, the flip side is, you may be ridding yourself of the virus. Be good to yourself!
Kim
elmoemerson@webtv.net - 12 Aug 2004 15:11 GMT Sounds about par for the course to me, John. You're supposed to feel like crap on this medication, it was never billed as a walk in the park. With a little luck, you won't feel quite so bad as time goes by. However, you're going to get new side effects....fatigue among them. Get used to feeling like a lump of coal. Take your puke bucket, a jug of water and a lawn chair outside and enjoy the wonderful Hawaiian landscape and weather. Seriously, you don't know how good you've got it. There are alot of other people in worse shape than yourself. I'm not trying to be a smartass, I think there's a bit of wisdom in what I'm about to say.....Get outside yourself, give a little empathy for those who are sick and suffering, it'll make you feel better. Got music? Elmo
http://community.webtv.net/elmoemerson/DocElmosHepFile
Agua Girl - 12 Aug 2004 15:32 GMT > Sounds about par for the course to me, John. You're supposed to feel > like crap on this medication, it was never billed as a walk in the park. [quoted text clipped - 8 lines] > who are sick and suffering, it'll make you feel better. > Got music? You know...in my head I know there are people worse off. One of them is my step mother. She fairly young, not even 60 but has had diabetes since she was a child. Now she is in kidney failure and on dialysis, she has had so many strokes she can no longer walk or even feed herself. Her body has taken on a life of it's own but you can see her still there, behind her eyes. I can't imagine what it's like. Every time I call my Dad I get embarrassed about my self pity....but I still have it. It's different when you are dealing with it. Knowing someone is worse off is a mental exercise but what we all are going through is emotional as well as physical...so I am not surprised it often wins out. Every time someone tells me it could be worse when I am in that mode I want to snap back "yeah well it could be a hell of a lot better too!" :-) Course I don't cuss I know they mean well.. but one day.... <g>
AG
Paul - 12 Aug 2004 17:37 GMT On Thu, 12 Aug 2004 09:11:18 -0500, elmoemerson@webtv.net, in message ID <15793-411B7A86-174@storefull-3255.bay.webtv.net>, in the newsgroup alt.support.hepatitis-c wrote:
> I'm >not trying to be a smartass, I think there's a bit of wisdom in what I'm >about to say.....Get outside yourself, give a little empathy for those >who are sick and suffering, it'll make you feel better. >Got music? Just to add a little to what Elmo says. I've found that getting outside of my head has been a very useful tool on tx. For me, sometimes it has been as simple as spending a couple of hours in the cinema. It doesn't even have to be a good film. Mind you, I live close to a cinema - maybe you don't. Helping others helps to take my mind off my own crap. I went down the homeless hostel the other day and just spent an hour chatting with a couple of guys who have no home. Totally forgot I was on tx for an hour. It's very easy to become self-obsessed on this stuff IMO and I've fallen for that one quite a bit.
How does it go now? I was angry that I had no shoes, till I met a man who had no feet.
OK, so it's not a philosophy that will cure all ills but I find it's a brilliant patch up job.
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Red Dwarf - 13 Aug 2004 01:28 GMT No Elmo, I don't think you are being a smart a.s at all. It certainly is not a walk in the park. I have heard a lot of good advice here lately, from all of you and I want you folks to know that I appreciate it greatly. I've kinda lost my taste for music there Elmo, but I will keep it in mind. I guess I have taken for granted the fact that I am in Hawaii. Hell, I don't even surf. But I do own a boogie board, and if I start to feel a little better, I'll try to find someone to go with me down to the lagoons. I can swim well, but with this bad hip, it is troublesome getting into and out of the water. One of my neighbors is fixing me up with a little pacololo,(the native word for crazy smoke), and I'm hoping that combined with a liberal daily dose of Stargate SG-1, will give me a little out of the head experience that I need. My stackable washing machine/dryer just went out to lunch on me this week, and I just now made arrangements for a replacement, I'm waiting for the delivery truck to show up any minute,(there goes this months s.s. check) While I'm waiting I think I'll just go out on the lanai and finish reading my latest Dan Brown novel. Dan Brown and Clive Cussler are my favorite action/adventure authors. Today is definitely looking a little brighter. I hope that there is direct relationship between the misery I feel after the injections, and the number of little virus buggies that are being killed. What a difference a day makes :) John
> Sounds about par for the course to me, John. You're supposed to feel > like crap on this medication, it was never billed as a walk in the park. [quoted text clipped - 11 lines] > > http://community.webtv.net/elmoemerson/DocElmosHepFile elmoemerson@webtv.net - 13 Aug 2004 02:40 GMT You sound alot better today, friend. Believe me, I meant no offense in anything I said in my last post. Seriously, you'll feel alot better when you're not thinking about how bad you feel by doing things for others. It's tough on treatment, but..... Take care, bro. Elmo
http://community.webtv.net/elmoemerson/DocElmosHepFile
Booger - 12 Aug 2004 15:18 GMT John,
I'm sorry to hear your not doing well. I'll be with you in a few weeks. I've heard a lot of talk about a little weed helping to reduce the side effects. Something to think about anyway. If the sides are as bad for me, I'll be giving it a whirl.
SG-1 is great isn't it? Just curious if you are an Enterprise fan.
I hope you feel better and my thoughts are with you.
Dan
> Maybe an overstatement. But good gracious, its not too far off. I barely > have the strength to type this. [quoted text clipped - 17 lines] > out there feels this bad. > John Gordo Mondragon - 12 Aug 2004 19:32 GMT > John, > > I'm sorry to hear your not doing well. I'll be with you in a few weeks. I've > heard a lot of talk about a little weed helping to reduce the side effects. > Something to think about anyway. If the sides are as bad for me, I'll be > giving it a whirl. I'd highly recommend baking it into some edible form (brownies, cookies). It's a completely different experience (if you don't already know that) and for me, much more effective for treating these symptoms.
Red Dwarf - 13 Aug 2004 01:48 GMT Booger, I truly love Stargate SG-1, and have been a fan even before it came to the Sci-Fi channel. It used to be on Showtime. I am having a hard time with the new Stargate Atlantis though.It's kind of sucky. I don't think it will last too long. Yes I do like Enterprise, but they have it on in a lousy time slot. I'm afraid that also may be destined for an early death, not for the quality of the show. It's good. The time slot sucks. By the way are you at all familiar with the English Sci-Fi program Red Dwarf. I don't think its on anymore, but it was ingenious. Very funny. When you say that you'll be with me in a few weeks, does that mean you will be starting treatment for HepC? If so, your being here and doing this kind of support and research is a good thing. I'm hoping the third shot won't be as bad as the first two, but whatever the case is I want to clear myself of this dreaded disease badly enough to put up with the side effects come what may. You know one funny thing is that my spell checker has no problem at all with your handle,(Booger). What the heck is that all about :)
John
> John, > > I'm sorry to hear your not doing well. I'll be with you in a few weeks. I've > heard a lot of talk about a little weed helping to reduce the side effects. > Something to think about anyway. If the sides are as bad for me, I'll be yadda,yadda, some stuff deleted...
Paul - 13 Aug 2004 06:58 GMT On Fri, 13 Aug 2004 00:48:36 GMT, "Red Dwarf" <sbordonej001@hawaii.rr.com>, in message ID <EdUSc.3067$aB1.1405@twister.socal.rr.com>, in the newsgroup alt.support.hepatitis-c wrote:
> By the way are you at >all familiar with the English Sci-Fi program Red Dwarf. I don't think its on >anymore, but it was ingenious. Very funny. I haven't seen it on TV recently (I live in the UK) but Red Dwarf is an all time classic IMO. I'm amazed it doesn't get more recgnition.
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Gordo Mondragon - 13 Aug 2004 08:57 GMT > On Fri, 13 Aug 2004 00:48:36 GMT, "Red Dwarf" > <sbordonej001@hawaii.rr.com>, in message ID [quoted text clipped - 7 lines] > I haven't seen it on TV recently (I live in the UK) but Red Dwarf is > an all time classic IMO. I'm amazed it doesn't get more recgnition. I lived in London in the late 90's and saw re-runs of Red Dwarf. I guess my expectations were too high but I just didn't get it.
I was introduced to Wallace & Gromit, though, which made up for a lot of other things.
Booger - 14 Aug 2004 00:12 GMT Hi John,
I haven't seen the Atlantis version yet. I watched SG-1 on Showtime as well. Much better, no commercials. I hope Enterprise is not as you say headed for an early death. It's one of my favorites. I'm am also a huge Simpson's fan. Anyone undergoing Tx should watch at least 2 episodes a day. I think I remember seeing episodes of Red Dwarf on the BBC channel. If you're looking for episodes of RD, I could do a search on my satellite. If it still runs, I can record it to an MPG file and post it on my ftp site for you to download.
When I said I'll be with you in a few weeks. Yes, I have to start Tx soon. My biopsy came back stage 3 bridging fibrosis. I'll be a 24 week'r.
I'm taking my Harley out to California to see the family before I start. It's been way too long. I probably won't be doing much riding after I start Tx.
My nick-name "Booger" was assigned to me by my wife whom I love more than anything in the world (My bike is a close second). She's been a real trooper through this and I don't know how I would make it through Tx without her.
Let me know on the Red Dwarf thing.
Get well!
Dan
> Booger, > I truly love Stargate SG-1, and have been a fan even before it came to the [quoted text clipped - 24 lines] > > yadda,yadda, some stuff deleted... Don - 12 Aug 2004 23:45 GMT > Sorry. This is >a very high price to pay for anything I may have done in the Past. All I can >do now is lay around like some inert lump of matter. This sucks big time. I >cannot sit here any longer, as I keep nodding off. I hope none of you folks >out there feels this bad. > John My BCLD warned me that the first few weeks or so might be tough but that it would get better. So hang in there.
Agua Girl - 13 Aug 2004 00:21 GMT > > Sorry. This is > >a very high price to pay for anything I may have done in the Past. All I can [quoted text clipped - 5 lines] > My BCLD warned me that the first few weeks or so might be tough but > that it would get better. So hang in there. Yeah, I read that fairy tale too ;-)
Don't be surprised if week 2 is worse than week one, and then week 4 isn't too bad at all and then week 7 is like week 2 and then by week 14 it's crappy again. I was expecting a gradual decline after week 1 but it doesn't work that way. The good news is it's temporary.
AG
buster - 13 Aug 2004 03:48 GMT The most intense part is over John, it slowly gets better. Some minor things will start bugging you but you will be able to handle it. Good luck! buster
> Maybe an overstatement. But good gracious, its not too far off. I barely > have the strength to type this. [quoted text clipped - 17 lines] > out there feels this bad. > John Jim - 13 Aug 2004 04:22 GMT
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