I started TX yesterday! Last night I was so sick and weak I was wailing and
crying.
This morning I feel a little better, but not much. I cannot seem to think
properly.
My head is banging to beat the band. It's times like this I feel so alone.
What I wouldn't do for a jamba juice and a joint. I'm going to spend the day
in bed I think.
Thank god it is raining today here on Oahu.
Next Tuesday I go back in for blood tests again. I thought I was prepared,
but this is more than I bargained for.
Yesterday and all night it felt as if every joint in my body was on fire. I
fell down a couple of times before I got into bed.
I take many pills every day anyway just to stay alive as it is. If I can
keep these all straight it will be a miracle.
God I hurt so much. Sorry for sounding like a wimp. Well it is my fault for
making foolish decisions in my youth.
If I survive this..I'll survive anything. God bless you folks who are far
along in your TX and those who have completed it.
What do they say in those 12 step groups, take one day at a time, or one
hour , or even a minute.
Because of my size I must use .83 cc of medicine and even when I had my wits
about me, it was a hassle to
mix and inject the stuff. God I hope I feel better soon. Last night I
thought if I lived any closer to the ocean, (I'm
a 1/2 mile away now) what I thought of was striping myself nude, tying some
steaks on a belt around my waist, and
going swimming where I know there is some hungry predators. But I will not,
I will not give those little virus buggies
the satisfaction. Well, it is too difficult to sit here at my desk now and
type. I will sleep now....
Before it was only an intellectual curiosity, now it is so very real..
If there any of you out there on Oahu. If so, I would love hear from you.
Thanx,
John A. Sbordone (It rhymes with macaroni)
p.s. thank goodness for spell checkers :)
yadda,yada, some stuff deleted to save electrons.
Keith - 04 Aug 2004 20:57 GMT
> I thought I was prepared,
>but this is more than I bargained for.
John,
Hey, you're in! Listen, I almost wrote the same post the day after my
first shot (only I wasn't so funny; tying steaks to yourself and going
for a dip really cracked me up). Congratulations on taking the
plunge.
It's definitely not going to be as bad when you do the shot next week.
And the weeks after, the effect will diminish even more. I think I
wrote after the first shot, "I thought I was going to die last night"
or something. Well, the last two shots I did (#7 and 8) were nothing.
Really nothing. I was just a little out of it the next day and that's
it. The night of the shot I felt no effect.
Get a holder to organize your Riba pills, because soon you'll be
saying, "Did I take them already tonight or not?" Until I got a
holder to keep each dose separate and labeled by day, I found I had to
dump out all the pills and count them to learn if I'd taken my dose.
You'll work it out. Like you say, take it a day at a time from here
on in. And post if you need help.
Keith
Gordo Mondragon - 04 Aug 2004 22:21 GMT
> I started TX yesterday! Last night I was so sick and weak I was wailing and
> crying.
John -
I'm new to this group and in my sixth week of treatment with the PEG
interferon once a week, and 5 ribavirin/day.
I don't know if I was as sick as you, but I was OVERWHELMED with how bad
I felt. I didn't think it was possible to feel that bad. I didn't know
how I was going to make it. I had a good supply of medicinal brownies
and I spent a lot of time laying in bed, flipping channels, and sobbing
uncontrollably.
It's much better now. I am going to work every day and being pretty
productive. I don't cry but once every day or two. I am thankful for
each day because I don't know if it's going to turn for the worse, or
slowly grind me down, or stay the same, or get better. But if you read
people's stories here you'll see that a horrible start is pretty common
and it getting to the point of being OK is also not uncommon.
So have hope.
Gordo
Keith - 07 Aug 2004 17:14 GMT
>I am thankful for
>each day because I don't know if it's going to turn for the worse, or
>slowly grind me down, or stay the same, or get better.
Ain't that the truth. On tx, you have to grab the good moments and
ride them for all they're worth. Later in the day could be a
completely different story.
Keith
Gordo Mondragon - 07 Aug 2004 17:39 GMT
> >I am thankful for
> >each day because I don't know if it's going to turn for the worse, or
[quoted text clipped - 3 lines]
> ride them for all they're worth. Later in the day could be a
> completely different story.
Makes it difficult to plan anything. I feel like CRAP today, for the
first time in a week and a half. I'm supposed to go to a friend's b-day
part which is at a bowling alley in NYC. I was really looking forward
to it - as you can imagine, there's great people-watching to be had.
Not sure I can do it, though.
Keith - 07 Aug 2004 18:57 GMT
>> >I am thankful for
>> >each day because I don't know if it's going to turn for the worse, or
[quoted text clipped - 9 lines]
>to it - as you can imagine, there's great people-watching to be had.
>Not sure I can do it, though.
I know what you mean. I feel like sh.t too and I just went and
visited some people. I thought I was okay, but then the lights seemed
to get so bright and everyone was talking at once, and it all seemed
WAY too active for me. I made my apologies and retreated home.
Keith