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Medical Forum / Diseases and Disorders / Hepatitis / June 2004

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deadly consequenses

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jaap bisschop - 25 Jun 2004 10:12 GMT
hi

Who is afraid of dying cause he or she has c.
Maybe it is very naieve, but i just think that my c is not lethal to me.
I had treatment (interferon) had to stop became too ill and even psychotic.
What i mean to say is the less your busy with c, the better it is.
Are there more poele like me being naieve, ignoring it and convinced that c
won't harm them.
the only thing i did is quit drinking, but that is always better.

ignorant c-carrier
Thip - 25 Jun 2004 10:31 GMT
> hi
>
[quoted text clipped - 7 lines]
>
> ignorant c-carrier

I'm not afraid of dying, I just don't want to--not yet, anyway.

HCV is lethal whether you want to face it or not.  I don't have my head
stuck in the sand on that issue.

No, I don't ignore it, but it also doesn't rule my life.
Susie Quill - 25 Jun 2004 10:56 GMT
After what I have seen working in hospitals, I'd sure pick a
lot of other things to die from than HCV.  I don't mind the idea of dying.
I just think HCV is a  rough way to go.  Most of us with HCV will die of
something else.

It happens though.  There are people dying with this, and some folkes don't
even know they have it until too late to do anything about it.  True, they
must have ignored a lot of symptoms for a bunch of years.  There are a lot
of people that just don't go to doctors no matter how bad they feel.
There are whole areas of the world where medical care just isn't a
possibility for the poor.  I believe that I read some time back that HCV
actually kills more people than AIDS.
Am I wrong?

Susie

> > hi
> >
[quoted text clipped - 16 lines]
>
> No, I don't ignore it, but it also doesn't rule my life.
Paul - 25 Jun 2004 11:31 GMT
On Fri, 25 Jun 2004 11:12:45 +0200, "jaap bisschop" <japon@xs4all.nl>,

>Who is afraid of dying cause he or she has c.
>Maybe it is very naieve, but i just think that my c is not lethal to me.

It is a potential killer.  I saw someone die from it a year ago.  Not
a pretty sight.

>I had treatment (interferon) had to stop became too ill and even psychotic.

Sorry to hear that it affected you so badly.  There will be other
treatments in the next few years.  Maybe, if you feel like it, you
will try again with a less toxic treatment.

>What i mean to say is the less your busy with c, the better it is.

Well it is good to try to get on with life so that the hep-c doesn't
become all consuming.  I think that's what you meant, isn't it?

>Are there more poele like me being naieve, ignoring it and convinced that c
>won't harm them.

There are plenty of people who have your approach. If you are not
treating it,  it's important  to have periodic biopsies to ensure that
the liver damage isn't accelerating.
IMO, totally ignoring hep-c will not stop it damaging your liver and,
maybe, killing you eventually or causing quality of life problems
anyway.

>the only thing i did is quit drinking, but that is always better.

Well that's a good idea anyway.

Please remember though, symptoms often don't appear with hep-c until
it has caused serious liver damage.
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Paul

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lucky - 25 Jun 2004 13:32 GMT
everybody dies, Lance

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lucky

> hi
>
[quoted text clipped - 7 lines]
>
> ignorant c-carrier
Thomas Wagner - 25 Jun 2004 15:58 GMT
>Who is afraid of dying cause he or she has c.
>Maybe it is very naieve, but i just think that my c is not lethal to me.

Well, that is a bit naive, but on the other hand, to a degree, justified
by the statistics. At least as far as is currently known, only a
minority of HCV carriers (estimates vary between 5 and 20%) dies from
the disease within the first 20 years. Less is known about the longer
term, it appears numbers rise a bit when you get closer to 30 years. So
you may well be right.

>I had treatment (interferon) had to stop became too ill and even psychotic.
>What i mean to say is the less your busy with c, the better it is.

I'm not sure what you're trying to say - if you mean the less you worry
about death, the better, you may again be right. Being stressed by
worries about your Hep might make matters worse. However...

>Are there more poele like me being naieve, ignoring it and convinced that c
>won't harm them.

If you're convinced that Hep C won't harm you, you're not just naive,
you're sticking your head in the sand. There are more negative effects
from HCV than just death. Cognitive damage, diabetes, fibromyalgia,
fatigue... the list of possible effects is long, and convincing yourself
that you're invincible doesn't make it so. It IS a very legitimate
strategy to "wait it out" under your doc's supervision if your liver is
doing OK, especially if you've already gone through treatment once and
it failed. But that's different from completely ignoring it.

>the only thing i did is quit drinking, but that is always better.

Indeed, and it may well be the most important change in your life.

>ignorant c-carrier

Not so ignorant if you've already changed your life because of it.

Thomas
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To reach me, complete my last name in the address.

AllenC - 25 Jun 2004 22:23 GMT
It is not the HepC that kills you, it is the cirrhosis that scars your
liver beyond repair. I probably got HepC in the 60's or 70's.
Ignorance was bliss during those days, some days I didn't feel so
great but attributed it to what I ate or mild case of cold/flu. I
thought I was in perfect health, vas a veggie, jogged or swam daily,
etc. (In '78 I had had a religious conversion and never touched any
illegal subastance again, and never dreank again). Then in '97 ended
up in the E.R. for a kidney stone (unrelated), and they did an
abdominal ultrasound and platelet count and found I had an enlarged
spleen and was anemic. I was referred to an Internal Med. Dr. who did
more tests. Found out I had HepC. In '97 the only famous person to
have it was Naomi Judd, and she seemed to be doing OK, so I wasn't
worried. Until I went to a Hepatologist, who did more testing, liver
biopsy, etc, and told me about the dreaded 'C' word cirrhosis which I
always thought and many people still do meant a gutter alcoholic, in a
stupor, panhandling spare change for some cheap wine. But she told me
that cirhossis just means severe liver scarring, caused by alcohol,
HepC, and other things. In any case I was scarred severely, not a
candidate or Interferon, and my only options were transplant or slow
agonizing death. Luckily I am set for transplant at UCSF on 7/9/04
with my bro-in-law as a living donor

Most of you guys are lucky, 60-70% of you will just carry the virus,
experince some occasional fatigue/nausea, but ende up living full
productive lives in which you end up dying of something else. But for
that to happen:
1. Stay on top of it.
2. Do the Interfernon thing.
3. NO drinking at ALL. Booze causes the virus to become more
aggresive.
$. Keep you health in top shape.
5. Take Milk Thistle regularly, all evidence of it helping is purely
anecdotal but I think it has slowed the progress of disease in my body
(You can eat a bunch of milk Thistle pills, then eat a deadly
Toadstool mushroom and it won't hurt your liver, that says something
about it)

This is from someone who has struggled with liver disease daily for 7
years, so I know what I am talking about. I know Interferon/Ribo is
tough, but liver disease is much tougher.

> >Who is afraid of dying cause he or she has c.
> >Maybe it is very naieve, but i just think that my c is not lethal to me.
[quoted text clipped - 34 lines]
>
> Thomas
Keith - 25 Jun 2004 22:44 GMT
Allen,

Your story is amazing.  I'm so glad you're heading toward that
transplant.  And you're right -- it does put mere treatment in
perspective.  Thanks for writing.

Keith

>It is not the HepC that kills you, it is the cirrhosis that scars your
>liver beyond repair. I probably got HepC in the 60's or 70's.
[quoted text clipped - 75 lines]
>>
>> Thomas
Shawn - 26 Jun 2004 00:27 GMT
Allen, I had a transplant a year ago. If you need to talk
you can write me at
shawn dot oxford at verizon dot net.

Signature

Regards,
      Shawn
.

> It is not the HepC that kills you, it is the cirrhosis that scars your
> liver beyond repair. I probably got HepC in the 60's or 70's.
[quoted text clipped - 75 lines]
> >
> > Thomas
heppiechik - 25 Jun 2004 23:37 GMT
I'm not afraid of dying of hep-c. By the time it finally does kill me I'll
probably be in my 70"s and time to go anyway.
hc

> hi
>
[quoted text clipped - 7 lines]
>
> ignorant c-carrier
HoofPrints - 25 Jun 2004 23:48 GMT
I thought you cleared the virus?
What happened??
hoof

> I'm not afraid of dying of hep-c. By the time it finally does kill me I'll
> probably be in my 70"s and time to go anyway.
[quoted text clipped - 13 lines]
> >
> > ignorant c-carrier

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Lady Chatterly - 28 Jun 2004 02:37 GMT
> I thought you cleared the virus?
> What happened??

Whatever rings your chimes.
Michael Arends - 26 Jun 2004 04:49 GMT
Smiling Wickedly,  heppiechik answered:
> I'm not afraid of dying of hep-c. By the time it finally does kill me I'll
> probably be in my 70"s and time to go anyway.
> hc

I hope I'm so lucky..

Michael
heppiechik - 26 Jun 2004 14:48 GMT
Me too, that's why I have my fingers crossed.
We'll all probably die of something else though.
hc

> Smiling Wickedly,  heppiechik answered:
> > I'm not afraid of dying of hep-c. By the time it finally does kill me I'll
[quoted text clipped - 4 lines]
>
> Michael
elmoemerson@webtv.net - 26 Jun 2004 15:01 GMT
Maybe so, maybe not.

http://community.webtv.net/elmoemerson/DocElmosHepFile
 
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