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Paul - 30 May 2004 09:29 GMT

Well, I'm half way there just about. Did number 12 yesterday. I'll
be away a few days next week so will be having my VL check at start of
week 13. I anticipate that the virus will be undetectable by now
(geno 2 pre-tx VL 91,000) but you can never be totally sure with this
stuff.

The weird bit is that they are struggling to pin down my genotype with
certainty - 15 weeks after the sample was taken. I know it's not
1,4,5 or 6 so it shouldn't be a problem but they say it is probably a
geno 2 hybrid - most likely somewhere between a 2a and a 2b but they
won't stick their necks out. It sounds weird to me as well. I'm not
too bothered what they label it so long as I'm receiving the correct
dosage and duration of tx.

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Paul

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Susie Quill - 30 May 2004 13:39 GMT

> Well, I'm half way there just about. Did number 12 yesterday. I'll
> be away a few days next week so will be having my VL check at start of
[quoted text clipped - 9 lines]
> too bothered what they label it so long as I'm receiving the correct
> dosage and duration of tx.

Paul,
Halfway thru. That is quite a feat. I have my eye on making it that far.
Three more shots. Did you get your VL checked earlier? I had mine done
after four weeks, and it still isn't back! Interesting that they are so
stumped by your genotype. As long as it isn't one......
Anxious to hear how it goes for you, since our genotype is similar, and your
are a little less than 100,000 lower than me on VL. I think mine was
something like 170,000 total
Susie

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Paul - 30 May 2004 17:35 GMT

On Sun, 30 May 2004 22:39:36 +1000, "Susie Quill"
<susieq@vzpacifica.net>, in message ID
<40b9d66d_5@corp.newsgroups.com>, in the newsgroup
alt.support.hepatitis-c wrote:

>Paul,
>Halfway thru. That is quite a feat. I have my eye on making it that far.
>Three more shots. Did you get your VL checked earlier?

The only VL check I've had Susie was before tx started. I could have
got an extra one done privately at about $300 US but there seemed
little point. I know I went private for the additional genotyping
test but there was a very good reason for that as there was a risk
that I could be under-treated.
Anyway, <913 is the magic number I will be after.
I'm not sure that 12 weeks tx is quite a feat really Susie. After
all, I was short on choices. The mental strain of living with hep-c
for years to come seemed infinitely worse than possibly 24 weeks of
feeling crap. I know some people live with this disease without too
much trouble but my emotional make-up isn't like that.

> I had mine done
>after four weeks, and it still isn't back!

That sounds great. Early clearance is a very good sign though not a
guarantee.

> Interesting that they are so
>stumped by your genotype. As long as it isn't one......

It isn't a 1. My only slight concern is that, although they have
eliminated the 48 week genotypes from the main six in my test, there
are, apparently, some rarer ones (7-11) that are around Vietnam and
Malaysia. I don't know how they are treated regarding tx. I'm just
hoping that I haven't somehow got one of these (especially if they are
48 week tx periods). I've only ever seen genotypes 7 - 11 mentioned on
one website so I do wonder if the info is reliable.

>Anxious to hear how it goes for you, since our genotype is similar, and your
>are a little less than 100,000 lower than me on VL. I think mine was
>something like 170,000 total

Susie. I reckon we've both got a great chance of sorting this first
time around. I've been on full dosage all the way (so far) and my
bloodwork, although it has dropped somewhat, is holding it's own. My
main difficulties have been fatigue and a degree of mental/emotional
disturbance. Even these have been easier than I expected. If I
didn't need to do some work, tx would be relatively easy for me (so
far). I just hope that it's not easy on the virus.
The attitude I adopted before tx was that, if it gave my liver a break
for a while and didn't kill me or give me a permanent illness, then tx
would be worth doing.

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elmoemerson@webtv.net - 31 May 2004 03:29 GMT

Yipppppeeeeeeeee!!!!! You da man today, too!!!
Elmo

http://community.webtv.net/elmoemerson/DocElmosHepFile

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