Home | Contact Us | FAQ | Search & Site Map | Link to Us
Sign In | Join | Other 45 Sites in Network
Home
Discussion Groups
General
GeneralCardiologyVisionDentistryPharmacyLaboratoryNutritionAlternative
Diseases and Disorders
AIDSAlzheimer'sArthritisAsthmaCancerBreast CancerDiabetesEpilepsyGlaucomaHepatitisHerpesLupusProstate BPHProstate CancerProstatitisSinusitisTinnitus

Medical Forum / Diseases and Disorders / Hepatitis / May 2004

Tip: Looking for answers? Try searching our database.

Weird Please Explain

Thread view: 
Enable EMail Alerts  Start New Thread
Thread rating: 
bobby watson - 27 May 2004 06:08 GMT
Hello, all,
Hope someone can help explain this weird stuff that's happening to me,
or say it happened to them in some form, or something ....
Going to give new blood tomorrow and must wait for my doc to get back
to me probably after Memorial Day...

OK. I just finished tx Fri 5/14. Had few symptoms during treatment --
groggy, itchy patches, coughing, funky hair. Was relatively not a
terrible ride. Ate right, slept right etc. Test immediately after tx
showed I'm clean of virus.

Whoopie!!

However.....

When I quit, all hell broke loose on my body.
I Quit Fri 5/14
On Sat 5/15 afternoon got nasty, pounding, eye-crossing headache.
Lasted ten days, though slowly subsided. It was the kind that hurts
when you cough, sneeze, shake head, or bend over, and stand back up.
Informed my care nurse.

Next day they call me to talk thyroid as cause of headaches. Said 5.5
is top of normal. Said mine was severely elevated and they didn't
really know why and my high count was a mystery to their seasoned
eyes.

OK, before tx I was at 6.3 and got Synthyroid (or whatever) but told
by doc not to take it a few days later because my number dropped back
to the 5s.

Anyhow, I said when they called, "What was the count? 6? 7? maybe 8?"

She said, "No. It was 84."

I almost crapped a load. "Eighty four!! My god, that's 17x normal!"

"I know," she said. "That's why we're concerned. Hope it's just a
freaky spike while leaving the Interferron. Go in Thur May 27 to give
more blood."

Without reading further, that's my question. What's going on with
that?
-----------------------
Anyhow, after eight days of headache, it stopped. I felt great Sun May
23. I had two days of glorious elation and super boundless energy. I
was on top the world. Making love to the missus. Cooking her
breakfast. Singing songs. Crying with joy. Eating like a horse. Dug
her a rose garden -- three truck loads of dirt I loaded and unloaded.
Superman.
Knew about the high thyroid count, but I was feeling much better.

And, another thing -- been getting by since tx stopped on 3-4 hours of
sleep. Not fitful wakefulness, just not sleepy. Asleep at 2 a.m. up at
5 a.m., working 10 hrs. No napping, then up til 2 a.m., again, again,
and again, and still to this day...

Today, Wed., I felt slightly crappy, then more so as today progressed,
then more so, then groggy, faint, agitated, frightened, but no
headache. Ate a sandwich, felt better, but not normal better.

So, end of story. That's where I am right now. Giving blood Thur May
27 and waiting.

So, anybody out there...
What the hell is going on with me?
Please offer any expl. if you've seen this reaction in some form in
your own experiences.

Thank you all.
Bobby Watson

(Long live everybody!!)
Russ - 27 May 2004 08:45 GMT
I can relate 100%.....

I'm on my last week of tx. But 1/3 of the way through this my TSH level
dropped to near zero. A low TSH (thyroid stimulating hormone) really means
too much thyroid, or a hyperthyroid. Three weeks later my thyroid stopped
and my TSH was at 49, later it peaked around 150. I've been on the synthroid
for about 6 months now and my TSH is about normal.

Everything you have described for sides is what I've been going through
since then. SEVERE mindbending headaces, SERVERE anxiety, near psychotic
episodes, very hard to sleep. In the last two weeks things have abated
somewhat. I still have headaches but they are off and on and ibuprofen is
barely keeping those down. Before I was chomping on pain pills and xanax for
a long time. It was f.cking nuts..

It will take quite a while for things to settel down. The best thing going
for you is your done with the peg/riba. Your lucky your thyroid held out as
long as it did. Thyroiditis about did me in on finishing. Lucky for me my
BCLD was open minded enough to keep me in Norco's(pain pills),
Ambiens(sleeping pills), Xanax (for anxiety) and Atenolol (beta blockers to
keep my heart from exploding!). My brother had the same reaction to the
treatment, but his doctor was a fuckstick that never bothered to check his
TSH till it was way out of control, he had to bail on the peg/riba at 7
months.

I can honestly say if I wasn't treated for the awful side affects caused by
the thyroiditis, I doubt I could have finished. The migrains were real bad,
they would go on for weeks. Sunlight was to bright fro me to be out side
some days. Just intensified my headache..

Even right now, though things have smoothed out somewhat, I'm still have
some brain fog and the jitters. Just not as intense and I don't feel the
need to medicate my self like I was.

Bobby, you have to sleep. If need sleep aids you could try Unisom (OTC),
better yet is Ambien. Talk to your doctor for those. There is no reason to
go through those red-hot poker in the eye migraines either. Make him give
you a jug of pain meds if your headache if its that bad. My migraines would
go on for weeks and week.
This thyroditis, stay on your course. Since your off the tx that should help
your thyroid to start working again.

Signature

Russ
Remove "NOSPAM" for replies.

> Hello, all,
> Hope someone can help explain this weird stuff that's happening to me,
[quoted text clipped - 69 lines]
>
> (Long live everybody!!)
bobby watson - 27 May 2004 14:53 GMT
Geez, Russ, thanks.
I'm relieved to know I'm not alone.
Your symptoms do match mine.
I feel that jittery feeling right now.
Went to bed at 1:30 a.m. woke at 3:50 and made breakfast.
Ready to go off to work.

I have some Xanax and Vicodin. Wasn't taking it because I thought may
that was causing part of the problem.

I'll give some blood today and know after holiday what's new.
I'll let you know and thanks again and my best to you and full
recovery and normalcy.

Bobby

(You know, I will admit. Last Sunday night I took a whole Xanax .05
mg. usually I bite off a small piece or take half). Slept like a babe
all night, had wild fantastic dreams, and Monday was one of my better
days.)

Thanks again.
Russ - 27 May 2004 15:07 GMT
> I have some Xanax and Vicodin. Wasn't taking it because I thought may
> that was causing part of the problem.

I have had the same thoughts with all the different chemicals in my system.
But I would go a few days without either one of those, all I got was more
pain and sleeplessness and irritability. It really got to the point of
taking the meds to maintain or quit the peg/riba. It was at times more then
I could bare.

Your sleeping like I am. Even though I'm tired in the evening, I have a hard
time going to sleep, and then I wake up early like this morning about
4:30am.

Make sure you take your synthroid on an empty stomach and don't eat for an
hour afterwards.

Good luck!
Signature

Russ
Remove "NOSPAM" for replies.

> Geez, Russ, thanks.
> I'm relieved to know I'm not alone.
[quoted text clipped - 18 lines]
>
> Thanks again.
elmoemerson@webtv.net - 28 May 2004 03:36 GMT
It's a wacky world we live in, and even wierder coming off tx.  
Elmo

http://community.webtv.net/elmoemerson/DocElmosHepFile
 
Sign In
Join
My Latest Posts
My Monitored Threads
My Blog
My Photo Gallery
My Profile
My Homepage

Start New Thread
Enable EMail Alerts
Rate this Thread



©2008 Advenet LLC   Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.