Medical Forum / Diseases and Disorders / Hepatitis / April 2004
1 Full Yr.
|
|
Thread rating:  |
Rob - 25 Apr 2004 14:14 GMT I want to thank all my freinds and especially my Higher Power whom I choose to call God for helping me thru this year of tx....I have 2 shots left to complete my full year of Peg/pills to fight "the dragon"...Which as of my last lab test....I have KILLED!! (God-willing-Just For Today)...IT CAN BE DONE!! It's been pure hell but I made it....My viral-load went down from 10,800.00 to less than <10........And i've taken breaks throughout the yr. recomended by my doctor (at times the side got so bad I had to take a rest)...Yes and I am Genotype A...... For the people just starting,give time-time,it can be arrested and recovery is then possible..........Love u guys Rob in Ft.Lauderdale
heppiechik - 25 Apr 2004 14:37 GMT You da man today Rob! I pray you will get that SVR. I'm right behind you. Take care and good luck! hc
> I want to thank all my freinds and especially my Higher Power whom I > choose to call God for helping me thru this year of tx....I have 2 shots [quoted text clipped - 6 lines] > For the people just starting,give time-time,it can be arrested and > recovery is then possible..........Love u guys Rob in Ft.Lauderdale elmoemerson@webtv.net - 25 Apr 2004 14:50 GMT That IS great news, Rob! Hope you get your SVR after having had such a hard time on the meds. KILL THE DRAGON! Elmo
http://community.webtv.net/elmoemerson/DocElmosHepFile
BeatHepC - 25 Apr 2004 15:21 GMT That's GREAT that you've been able to make it this far - and still undetectable, too! CONGRATULATIONS!
BeatHepC
> I want to thank all my freinds and especially my Higher Power whom I > choose to call God for helping me thru this year of tx....I have 2 shots [quoted text clipped - 6 lines] > For the people just starting,give time-time,it can be arrested and > recovery is then possible..........Love u guys Rob in Ft.Lauderdale Paul - 25 Apr 2004 16:35 GMT On Sun, 25 Apr 2004 13:14:58 GMT, Rob <robertjrand@comcast.net>, in message ID <mROic.30692$aQ6.1627616@attbi_s51>, in the newsgroup alt.support.hepatitis-c wrote:
>I want to thank all my freinds and especially my Higher Power whom I >choose to call God for helping me thru this year of tx....I have 2 shots [quoted text clipped - 6 lines] >For the people just starting,give time-time,it can be arrested and >recovery is then possible..........Love u guys Rob in Ft.Lauderdale I am genuinely pleased that you seem to have cleared the virus Rob. I hope to as well. I'm not trying to be inflammatory but I wonder where my friend's higher power (who he also called God) was when he needed that higher power most (my friend died from hep c). Still, ashes to ashes .....................
I've no wish to get into a negative debate about such stuff, but I could not believe in a God that seems to give life or death on the roll of a dice. I am happier believing in the random nature of such things. Please note that I am not disrespecting anyones right to believe as they wish.
 Signature Paul
Use the reply by email facility in your newsreader to send email
elmoemerson@webtv.net - 25 Apr 2004 17:28 GMT Re: 1 Full Yr. Group: alt.support.hepatitis-c Date: Sun, Apr 25, 2004, 4:35pm (EDT+5) From: dontspamme@westgreen.freeserve.co.uk (Paul) On Sun, 25 Apr 2004 13:14:58 GMT, Rob <robertjrand@comcast.net>, in message ID <mROic.30692$aQ6.1627616@attbi_s51>, in the newsgroup alt.support.hepatitis-c wrote: I want to thank all my freinds and especially my Higher Power whom I choose to call God for helping me thru this year of tx....I have 2 shots left to complete my full year of Peg/pills to fight "the dragon"...Which as of my last lab test....I have KILLED!! (God-willing-Just For Today)...IT CAN BE DONE!! It's been pure hell but I made it....My viral-load went down from 10,800.00 to less than <10........And i've taken breaks throughout the yr. recomended by my doctor (at times the side got so bad I had to take a rest)...Yes and I am Genotype A...... For the people just starting,give time-time,it can be arrested and recovery is then possible..........Love u guys Rob in Ft.Lauderdale I am genuinely pleased that you seem to have cleared the virus Rob. I hope to as well. I'm not trying to be inflammatory but I wonder where my friend's higher power (who he also called God) was when he needed that higher power most (my friend died from hep c). Still, ashes to ashes .................... I've no wish to get into a negative debate about such stuff, but I could not believe in a God that seems to give life or death on the roll of a dice. I am happier believing in the random nature of such things. Please note that I am not disrespecting anyones right to believe as they wish.
 Signature Paul //////////////////
:-) Elmo
http://community.webtv.net/elmoemerson/DocElmosHepFile
Paul - 25 Apr 2004 19:13 GMT On Sun, 25 Apr 2004 12:28:23 -0400, elmoemerson@webtv.net, in message ID <22483-408BE727-8@storefull-3257.bay.webtv.net>, in the newsgroup alt.support.hepatitis-c wrote:
>I've no wish to get into a negative debate about such stuff, but I could >not believe in a God that seems to give life or death on the roll of a [quoted text clipped - 3 lines] >:-) >Elmo Elmo. Thank you for taking it in the spirit with which I intended it.
 Signature Paul
Use the reply by email facility in your newsreader to send email
elmoemerson@webtv.net - 26 Apr 2004 03:00 GMT Re: 1 Full Yr. Group: alt.support.hepatitis-c Date: Sun, Apr 25, 2004, 7:13pm (EDT+5) From: dontspamme@westgreen.freeserve.co.uk (Paul) On Sun, 25 Apr 2004 12:28:23 -0400, elmoemerson@webtv.net, in message ID <22483-408BE727-8@storefull-3257.bay.webtv.net>, in the newsgroup alt.support.hepatitis-c wrote: I've no wish to get into a negative debate about such stuff, but I could not believe in a God that seems to give life or death on the roll of a dice. I am happier believing in the random nature of such things. Please note that I am not disrespecting anyones right to believe as they wish.
 Signature Paul //////////////////
:-) Elmo Elmo. Thank you for taking it in the spirit with which I intended it.
 Signature Paul ////////// No thanks are necessary, Paul. I respect your right to see the world the way you want to, as well. Besides, we're all on the same side anyway. Our enemy is The Dragon. Elmo
http://community.webtv.net/elmoemerson/DocElmosHepFile
Don - 26 Apr 2004 13:58 GMT >I am genuinely pleased that you seem to have cleared the virus Rob. I >hope to as well. I'm not trying to be inflammatory but I wonder where >my friend's higher power (who he also called God) was when he needed >that higher power most (my friend died from hep c). Paul, sorry to hear about your friend. I was just wondering though, when you say he died from hep c, was it some complication of cirrhosis, like a blood vessel connecting to the liver bleeding, or how did hep c kill him? If you don't mind me asking...
Paul - 26 Apr 2004 18:03 GMT On Mon, 26 Apr 2004 07:58:16 -0500, Don <ikiru@nowhere.org>, in message ID <kf1q80l48gcl674udvfumrf2vffequ8h3f@4ax.com>, in the newsgroup alt.support.hepatitis-c wrote:
>Paul, sorry to hear about your friend. I was just wondering though, >when you say he died from hep c, was it some complication of >cirrhosis, like a blood vessel connecting to the liver bleeding, or >how did hep c kill him? If you don't mind me asking... Yes Don. It is OK to ask. The doctors never reached a definite conclusion about this. My own mind has changed several times as his widow has let a bit more information trickle out (I haven't pushed the pace over this for obvious reasons). The bare, basic details are that his virus was undetectable at 6 months (he had a geno 1 so 48 weeks tx). He had pretty bad sides all the way through but, around 7 months into tx, he became extremely breathless while climbing some steps. He went back to the doctor who ran tests on him. I presume that these tests consisted of checking his blood cell count and platelets in view of the breathlessness. Anyway, the tests revealed nothing wrong. Two or three weeks later he was unable to hold down his food and he was taken to hospital by ambulance. I hadn't seen him for several weeks at that time. When I visited in hospital, his skin and eye whites had yellowed - probably indicating that hepatitis had become active. With my limited knowledge of such things, I assumed that the hepatitis was auto-immune hep due to his earlier negative PCR test. At that time, I wasn't aware that hep-c could return while on tx. He got worse over the next week or so until they took him into the intensive care unit, knocked him out, and put him on a respirator. The last two or three days, he was only alive on a technicality. While on life support his liver stopped working and then his kidneys. It was only recently that his widow mentioned that hep-c virus was in his blood again before he died. By then, I was aware that the virus can occasionally return while on tx. I have heard that it can mutate and overcome the interferon. When this happens, the virus *can* bounce back with a vengeance. It is also possible that his diabetes exacerbated the situation. For a while, I even wondered if the inteferon had caused the renal failure as it is documented (though not well publicised) that this can rarely happen. It has been painful to write this but it's OK Don. Grief, for me, is a process that comes and goes and has no smooth path. It's OK to feel as it means I'm alive. Also, the tx I'm on tends to amplify feelings a lot. Thank you for asking Don.
 Signature Paul
Use the reply by email facility in your newsreader to send email
Russ - 26 Apr 2004 19:03 GMT Paul, that story reinforces my last summers decision to treat this virus. Though my BCLD said I "didn't" have to do treatment, outside of enduring the shitty side affects, I couldn't see a reason not to treat it. I had a biopsy last June, mild inflammation, stage one fibrosis.
I'll be 49 here in a couple of weeks, and I really would like to enjoy my retirement as healthy as I can be. I figured it was better to kill the dragon now then wait till I had other possible health problems on top of having HCV.
Thanks for sharing that story.
 Signature Russ Remove "NOSPAM" for replies.
> On Mon, 26 Apr 2004 07:58:16 -0500, Don <ikiru@nowhere.org>, in > message ID <kf1q80l48gcl674udvfumrf2vffequ8h3f@4ax.com>, in the [quoted text clipped - 41 lines] > a lot. > Thank you for asking Don. Paul - 26 Apr 2004 22:06 GMT On Mon, 26 Apr 2004 10:03:38 -0800, "Russ" <NOSPAMsourdo55@yahoo.com>,
>Paul, that story reinforces my last summers decision to treat this virus. >Though my BCLD said I "didn't" have to do treatment, outside of enduring the [quoted text clipped - 7 lines] > >Thanks for sharing that story. That's OK Russ. I believe that it is right for people to be aware of all the possible outcomes - even the unlikely ones. I took pretty much the same view as you about treating the disease while still in otherwise good health. My decision was made easier by discovering that I had geno 2 and because my liver had sustained more damage than yours - though still a good few years away from cirrhosis apparently. I am in week 7/24 of tx. Im OK with it but it does bite a bit more over the past week. I'm still doing a lot better than many I've known to do this tx.
 Signature Paul
Use the reply by email facility in your newsreader to send email
Anonymous - 26 Apr 2004 23:30 GMT > It was only recently that his widow mentioned that hep-c virus was in > his blood again before he died. By then, I was aware that the virus > can occasionally return while on tx. I have heard that it can mutate > and overcome the interferon. When this happens, the virus *can* bounce > back with a vengeance. Didn't Thomas and his *pretty red shirt* warn you about that one?
|
|
|