Medical Forum / Diseases and Disorders / Hepatitis / March 2004
Hep C Stats
|
|
Thread rating:  |
Don - 26 Mar 2004 17:21 GMT I'd like to say Hello to everybody. I've been lurking around for a while waiting to find out about my infection with HC which was confirmed a couple weeks ago. I'm hoping to mount the dragon's head on the wall real soon, though I suspect I will be in for quite a fight. TX sure sounds harsh. I'm 46 and have probably had this damned virus for decades.
Lab Results: ALT 64 AST 28 Virus Count 2,960,000 (Sounds like alot) Genotype 2 (they didn't tell me the subtype)
Next Wednesday I get an ultrasound and I should hear back soon about an appointment for a biopsy. They said sometimes they keep you over night but that doesn't sound to appealing to me.
I'm getting my treatment though the Veteran's Administration or is it called Veteran's Affairs now. They told me I should be able to start 24 weeks combo therapy after I get my biopsy but that my blood tests look pretty good. So hopefully my liver isn't too bad. After a lifetime of being a drinker I've been converted instantly to a teetotaler. Hopefully, one fine day, I'll be able to enjoy a beer again. I've been secretive about this infection. I don't think I'd like my employer to know but I don't really know what I'm in for with this. But I guess I'll know soon enough! sh.t.
heppiechik - 26 Mar 2004 17:29 GMT Welcome Don! hc
> I'd like to say Hello to everybody. I've been lurking around for a > while waiting to find out about my infection with HC which was [quoted text clipped - 22 lines] > like my employer to know but I don't really know what I'm in for with > this. But I guess I'll know soon enough! sh.t. Paul - 26 Mar 2004 17:52 GMT On Fri, 26 Mar 2004 10:21:15 -0600, Don <ikiru@nowhere.org>, in message ID <s9i8609bi49mu2p6ouriibfmkh5as7v2me@4ax.com>, in the newsgroup alt.support.hepatitis-c wrote:
>I'd like to say Hello to everybody. I've been lurking around for a >while waiting to find out about my infection with HC which was >confirmed a couple weeks ago. Now we have someone here called Heppiechik who we call HC. What *have* you two been up to then? :-)
> I'm hoping to mount the dragon's head >on the wall real soon, though I suspect I will be in for quite a >fight. I've got mine all ready for decapitation too. See http://www.scrim.co.uk/pictures/hcvnewstrain.jpg
> TX sure sounds harsh. I'm 46 and have probably had this >damned virus for decades. Me too. 46 and infected a minimum of 18 years - probably rather longer.
>Lab Results: >ALT 64 >AST 28 >Virus Count 2,960,000 (Sounds like alot) >Genotype 2 (they didn't tell me the subtype) Well that doesn't sound too terrible to me. The best bit is the genotype 2 - much better chance of clearing it up and with less tx too.
>Next Wednesday I get an ultrasound and I should hear back soon about >an appointment for a biopsy. They said sometimes they keep you over [quoted text clipped - 4 lines] >24 weeks combo therapy after I get my biopsy but that my blood tests >look pretty good. So hopefully my liver isn't too bad. Hopefully your liver is OK but the real test for that is the biopsy. My blood tests were all normal but the biopsy revealed "moderate" damage. Hey, stick close and get some support. I know we mess around and even argue at times but when it's needed, the support is always here. I'm only in week 2 of tx myself and, so far, it's manageable.
Best wishes
 Signature Paul
Use the reply by email facility in your newsreader to send email
heppiechik - 26 Mar 2004 20:25 GMT > On Fri, 26 Mar 2004 10:21:15 -0600, Don <ikiru@nowhere.org>, in > message ID <s9i8609bi49mu2p6ouriibfmkh5as7v2me@4ax.com>, in the [quoted text clipped - 6 lines] > Now we have someone here called Heppiechik who we call HC. What > *have* you two been up to then? :-) Damn brain fog. I can't remember a damn thing~ hc
Jabba LeHut - 28 Mar 2004 04:31 GMT >> I'm hoping to mount the dragon's head >>on the wall real soon, though I suspect I will be in for quite a >>fight. > >I've got mine all ready for decapitation too. >See http://www.scrim.co.uk/pictures/hcvnewstrain.jpg That dragon doesn't look to fearsome. Looks can be deceiving though.
>>I'm getting my treatment though the Veteran's Administration or is it >>called Veteran's Affairs now. They told me I should be able to start [quoted text clipped - 4 lines] >My blood tests were all normal but the biopsy revealed "moderate" >damage. Yeah, I heard you can have even cirrhosis and have normal blood tests. My primary care physician talked like since my blood results were good I shouldn't worry about things. I think moderate damage will heal over time. I wouldn't mind hearing only moderate damage. But I look forward to getting that biopsy over with so I know where I'm at. I want to start TX and hopefully get this over with ASAP as I'm sure everyone here does.
>Hey, stick close and get some support. I know we mess around and even >argue at times but when it's needed, the support is always here. I'm >only in week 2 of tx myself and, so far, it's manageable. Manageable? Glad to hear that.
Yeah I've observed that it can get a little hostile at times, even in this thread. Good look with your tx and hopefully I'll start soon. I hate this waiting. But I guess if my ultrasound wednesday looks good the liver probably isn't too bad and the biopsy won't have any surprises. They said I qualify for TX anyways because of the genotype and I passed the iron test. They said I didn't have to get the biopsy but I want to know so maybe I could have started TX quicker if I skipped it.
Paul - 28 Mar 2004 05:24 GMT On Sat, 27 Mar 2004 21:31:55 -0600, Jabba LeHut <deadman@helpme.com>,
>Yeah, I heard you can have even cirrhosis and have normal blood tests. >My primary care physician talked like since my blood results were good [quoted text clipped - 3 lines] >want to start TX and hopefully get this over with ASAP as I'm sure >everyone here does. That's quite right. The blood tests are only guidelines but not conclusive by a long way.
>Manageable? Glad to hear that. I'm glad that it's OK too. It may only be a *temporary* reprieve, but it's one for which I'm grateful.
>Yeah I've observed that it can get a little hostile at times, even in >this thread. Good look with your tx and hopefully I'll start soon. I >hate this waiting. The waiting was the worst part for me too. Having said that, I did hold things up myself as I had a holiday booked. Once I was aware that damage was moderate and a few weeks would not matter, I was happy to go away and enjoy myself. It gave my mind a much needed break before starting tx.
>But I guess if my ultrasound wednesday looks good >the liver probably isn't too bad and the biopsy won't have any >surprises. Not necessarily. My ultrasound came back as absolutely fine. It was the biopsy that revealed the damage.
> They said I qualify for TX anyways because of the genotype >and I passed the iron test. They said I didn't have to get the biopsy >but I want to know so maybe I could have started TX quicker if I >skipped it. It's a good idea to know the biopsy results. That way, if tx doesn't work (and here's hoping it does) you can get a better idea of how your liver is progressing. Good luck with everything. I hope it all goes well for you.
 Signature Paul
Use the reply by email facility in your newsreader to send email
BeatHepC - 26 Mar 2004 18:50 GMT Hello Don:
Welcome to the 'Club' - not that anyone really wants to be a part of the 'Hep C Gang'.
Most times a bx is an outpatient procedure. Quite often they give a CAT scan first to help guide them to the area they want to get the specimen from. Then afterwards you get to lie on your side for a couple of hours and they periodically monitor you to be sure they didn't cause anything such as internal bleeding. Any kind of complications are pretty rare with a bx.
The geno 2 diagnosis is definitely good news in terms of potential viral clearance. The latest study puts SVR for 2's + 3's in the 78% range (as opposed to 1's + 4's, who are in the 51% range) according to this: http://www.hivandhepatitis.com/hep_c/news/2004/030304_b.html
Best to you as you begin your journey into tx-ville.
BeatHepC
> I'd like to say Hello to everybody. I've been lurking around for a > while waiting to find out about my infection with HC which was [quoted text clipped - 22 lines] > like my employer to know but I don't really know what I'm in for with > this. But I guess I'll know soon enough! sh.t. Jabba LeHut - 28 Mar 2004 04:46 GMT >Hello Don: > >Welcome to the 'Club' - not that anyone really wants to be a part of the >'Hep C Gang'. Yeah, that's for sure. But there's worse clubs to join.
>Most times a bx is an outpatient procedure. Quite often they give a CAT scan >first to help guide them to the area they want to get the specimen from. >Then afterwards you get to lie on your side for a couple of hours and they >periodically monitor you to be sure they didn't cause anything such as >internal bleeding. Any kind of complications are pretty rare with a bx. Good to hear. I think they're going to do an ultrasound rather than a CAT scan. I hope whoever's wielding the needle is more proficient than the person who took my blood for the last test. Bruised up one of my arms and had to switch to the other.
>The geno 2 diagnosis is definitely good news in terms of potential viral >clearance. The latest study puts SVR for 2's + 3's in the 78% range (as >opposed to 1's + 4's, who are in the 51% range) according to this: >http://www.hivandhepatitis.com/hep_c/news/2004/030304_b.html Yeah, those odds sound better and the shorter TX duration made me feel somewhat better. I think maybe a smaller ribavarin dose too.
>Best to you as you begin your journey into tx-ville. Thanks.
>BeatHepC Thip - 27 Mar 2004 02:36 GMT | I've been secretive about this infection. I don't think I'd | like my employer to know but I don't really know what I'm in for with | this. But I guess I'll know soon enough! sh.t. Welcome to the club! You've joined a very elite group.
When I was first diagnosed a couple-three years ago, HCV was viewed as something drug users and convicts had, not something "nice" people had to deal with. I hid it for a while because I'm a "nice" person and I didn't want people thinking otherwise. Then all of a sudden I got good and mad, because it's not my fault I have this! I didn't wake up one fine morning and say, "Hey, I'm gonna go get myself a dose of Hep C today!" So, I started talking about it. And I've talked and talked and talked and talked to do my best to undo a lot of the misconceptions. Funny thing is, the more I talk, the more people I find who have a friend, relative, neighbor, or co-worker who has HCV. I told my boss and my boss's boss. And I have had huge outpourings of love and support from all those people I thought would shun me.
The moral of the story is: You've done nothing wrong. If you had cancer instead of HCV, what would you do?
Susie Quill - 27 Mar 2004 06:15 GMT Good point. I've told more people now then I have ever told. Finally told my Mom. Didn't want her to worry. Still haven't told my boss though. I found out about this about 9 years ago. I think I had just barely gotten it then too. Like you said, everyone thinks you had to be a drug user or I hear permiscuous a lot. I hear that a lot even in education training for hospital employees. Burns me up every time I hear it. Chance of that is less than 1%.
Welcome to the club. Very supportive fokes here.
Susie
> | I've been secretive about this infection. I don't think I'd > | like my employer to know but I don't really know what I'm in for with [quoted text clipped - 17 lines] > The moral of the story is: You've done nothing wrong. If you had cancer > instead of HCV, what would you do? Jabba LeHut - 28 Mar 2004 05:32 GMT Yeah, I'll probably eventually be more open about it. One thing is I don't know everything yet because I haven't had my biopsy. And I probably won't tell my mom until I've cleared it because I don't want her to worry. She's already lost one son and I'm all that's left. I think it's better to keep this to myself with regard to her. We'll laugh about it after I get SVR.
I doubt I'll tell my employer as Thip did though unless I have to due to difficulty with TX. If it doesn't effect my job it's none of their business. Though I agree in some situations and depending on the people involved it might be a good idea. And I wouldn't mention it to a prospective employer because I'd worry about "subtle" discrimination.
My friends I'll tell when I know more. They're wondering why I don't drink with them anymore. I'm not really concerned that anybody who knows me will think bad of me cause I've got Hep C. But I'm kind of hoping that this is no big deal. Actually, I don't like keeping this to myself much.
>Good point. I've told more people now then I have ever told. Finally told >my Mom. Didn't want her to worry. Still haven't told my boss though. I [quoted text clipped - 35 lines] >http://www.newsfeeds.com - The #1 Newsgroup Service in the World! >-----== Over 100,000 Newsgroups - 19 Different Servers! =----- Nomen Nescio - 27 Mar 2004 13:10 GMT > Welcome to the club! You've joined a very elite group. Which is known as *Feral Cave Dwellers* Incorporated.
> When I was first diagnosed a couple-three years ago, HCV was viewed as > something drug users and convicts had, not something "nice" people had to [quoted text clipped - 11 lines] > The moral of the story is: You've done nothing wrong. If you had cancer > instead of HCV, what would you do? And there's a river in Egypt called De Nile.
I have hep-C because I had a blood transfusion.
I needed a blood transfusion because I had an ulcer which bled.
I had an ulcer because I was angry and anger caused me to eat and drink all the wrong things giving me indigestion and then I would knock back the pain with painkillers and indigestion remedies.
*MY* *Fault*!
The very moment you got "good and mad" was the very moment you went into total denial, which you were in already because, after all, you already told us what a "good person" you are and like all "good persons" you can never accept responsibility for anything that happens to you.
Now you have entered the world of feral cave dwellers where you surround yourself with "loving" people with their phony outpourings of love and support which enable you to live on as you are, never ever questioning your perceptions of "good" or "not good".
Bah. You tell us how you got by in the MRI scanner "by reciting the Lord's Prayer and the 23rd Psalm."
You deceive yourself Thip. Who are you to judge yourself as "good"?
You are just a nobody Thip, the same as me, and the difference between us is that I know and admit I am a nobody with a disease that I deserve, while you play God by judging yourself as "good" and never having done anything to deserve what you have.
I would pity you Thip, for you are blind and cannot see, but you are proud and drag others into your world. Like all of us you will reap that which you sew.
"Yea though I walk through the valley of the shadow of death I shall fear no evil, for Thou art with me, Thy rod and Thy staff they comfort me".
Bah! So why are you so afraid of death then? Are you going to deny that? How can you? You posted:
> I'd give my right arm to be rid of this disease > The alternative is sitting > back and letting the hep do its thing on your liver til it finally kills > you. Sounds like a no-brainer to me. :-) You're scared of a virus killing you? Did you not actually read the words of the 23rd Psalm? I did Thip, when I buried my wife, just before your good friend Spokin told me I was feeling sorry for myself, and should go get help. Well sh.t, I thought that was what this newsgroup was all about, not for the likes of spokin to be using as a chat up room, and of course I am not the only one who has been told to stop feeling sorry for themselves by your friend Spokin when they have had a family member pass away. Obviously he didn't tell you that but maybe he owes you some money like he does so many others.
Now tell me again how rude I am. In the meantime you might like to understand this. I was not put on the earth to make you, Spokin, Elmo or anyone else feel comfortable. If you don't like what I say simply scroll down or delete, but you sure as hell are not going to take away my right to say it.
Thip - 27 Mar 2004 14:51 GMT Whatever.
| > Welcome to the club! You've joined a very elite group. | [quoted text clipped - 76 lines] | comfortable. If you don't like what I say simply scroll down or delete, but you | sure as hell are not going to take away my right to say it. Nomen Nescio - 28 Mar 2004 02:30 GMT > Whatever. Yea whatever. The world is full of you "good" people who are gonna pray for bad boys like me, while at the same time sending around friendly emails containing words like "psychopath" about others.
Next time you get in an MRI scanner try taking along the bit that tells you to look at the "beam" in your own eye before looking at the "mote" in the eyes of others.
Bah, Hell must be living in a place surrounded with people who tell you how "good" they are and how they are gonna pray for you umpteen times a day.
Just think, you'll be able to tell the shrink all about me next week. Wow aren't I the lucky one?
mom - 28 Mar 2004 02:49 GMT I had an ulcer because I was angry and anger caused me to eat and drink all the wrong things giving me indigestion and then I would knock back the pain with painkillers and indigestion remedies.
You are still very angry. I think we need an exorcism here.
Mom
> > Whatever. > [quoted text clipped - 11 lines] > Just think, you'll be able to tell the shrink all about me next week. Wow > aren't I the lucky one? HoofPrints - 28 Mar 2004 03:09 GMT > I had an ulcer because I was angry and anger caused me to eat and drink all > the [quoted text clipped - 4 lines] > > Mom http://skepdic.com/exorcism.html
[...] As a layman, I found the behavior of the exorcists at least as interesting as that of the subject. Believing in demons is one thing; believing you have the ability to call up a supernatural being with infinite power and perfection who will cause demons to move on at your behest, seems **certifiable***. The whole coven of exorcists and exorcized are deluded.
> > > Whatever. > > [quoted text clipped - 16 lines] > > Just think, you'll be able to tell the shrink all about me next week. Wow > > aren't I the lucky one? A.Melon - 28 Mar 2004 12:32 GMT > > You are still very angry. I think we need an exorcism here. > > [quoted text clipped - 9 lines] > behest, seems **certifiable***. The whole coven of exorcists and > exorcized are deluded. Hey, that is so true. I had never thought of that angle before. All I had seen was the complete arrogance of the attitude that makes anybody claim to be able to act as intermediary between a person and a divine being. In fact I thought they used to call it a Messiah complex. Anybody who thinks they have any power over supernatural beings definitely suffers from a God complex. Methinks they've been watching too many episodes of Buffy.
HoofPrints - 28 Mar 2004 15:39 GMT > > > You are still very angry. I think we need an exorcism here. > > > [quoted text clipped - 16 lines] > over supernatural beings definitely suffers from a God complex. Methinks > they've been watching too many episodes of Buffy. I don't see her laughing about getting Katie an exorcist? She only thinks it is funny if it is someone else and not 'her' or 'her' family, then by god it is no longer funny!! Hoof The electricity went off here last night during 'A Knights Tale'. He had just gone back to london and found his father, and his blind father had just recognized who he was. DRAT!!! I hope they show it again.
Dwight - 28 Mar 2004 20:32 GMT We pulled out the DVD and watched it. Good movie, I liked the way they got the Nike "swoosh" in it. The music was great.
Dwight
Dragon Slayers' Club: http://geocities.com/dwightmspage/
> Hoof > The electricity went off here last night during 'A Knights Tale'. He > had just gone back to london and found his father, and his blind father > had just recognized who he was. DRAT!!! I hope they show it again. HoofPrints - 28 Mar 2004 20:54 GMT I don't have a DVD player. I went online to see if I could find a VHS version of it. I guess I will have to go to tow to find one. Best Buy had a DVD version, but again I don't own one. I hate it when they force you to buy the new technology. I used to have a Beta Max but had to bend and buy a VHS, now it is DVD. Why can't they just stop it!!
Ok so since you have a DVD , and since they are now forcing me to buy the new technology, what is progressive scan? Hoof
> We pulled out the DVD and watched it. Good movie, I liked the way they > got the Nike "swoosh" in it. The music was great. [quoted text clipped - 7 lines] > > had just gone back to london and found his father, and his blind father > > had just recognized who he was. DRAT!!! I hope they show it again. HoofPrints - 28 Mar 2004 21:04 GMT > I don't have a DVD player. I went online to see if I could find a VHS > version of it. I guess I will have to go to tow to find one. Best Buy [quoted text clipped - 6 lines] > the new technology, what is progressive scan? > Hoof PS: I loved the music too. Great with the old renaissance themes. So did anyone ever state: Alas poor Ulrich, I knew him well? Was wondering last night if that one would come into the script.
> > We pulled out the DVD and watched it. Good movie, I liked the way they > > got the Nike "swoosh" in it. The music was great. [quoted text clipped - 7 lines] > > > had just gone back to london and found his father, and his blind father > > > had just recognized who he was. DRAT!!! I hope they show it again. A.Melon - 29 Mar 2004 11:11 GMT > > > > You are still very angry. I think we need an exorcism here. > > > > [quoted text clipped - 21 lines] > family, then by god it is no longer funny!! > Hoof It strikes me that Katie would be far better off to move a few thousand miles away from her control freak Momma.
> The electricity went off here last night during 'A Knights Tale'. He > had just gone back to london and found his father, and his blind father > had just recognized who he was. DRAT!!! I hope they show it again. I've never seen that. I got in and I watched the film "Dracula 2000" which was on. Of course I missed the opening credits so I hadn't got a clue what I was watching until it ended but watching it made me wonder if a wooden stake would do the trick for Mom?
HoofPrints - 29 Mar 2004 16:02 GMT > > > > > You are still very angry. I think we need an exorcism here. > > > > > [quoted text clipped - 33 lines] > watching until it ended but watching it made me wonder if a wooden stake would > do the trick for Mom? I do that all the time. Miss the opening with title, who is playing etc. so wait for the credits and then you see who played whom, and what songs etc. except that nowadays the credits roll so fast you have to be a speed reader to see them. I hate it. I recognized all the songs in A knights Tale of course and even started dancing to a few of them. Of course I am not good at the name of the bands nor the artist. I chalk that up to the new FM format where they play a string of songs and then announce the artists and titles, I forget which order the songs were played in and so i miss the name of the band. I dont' buy music any longer because I listen to the radio. Hoof
Anonymous - 28 Mar 2004 11:54 GMT > You are still very angry. I think we need an exorcism here. > > Mom Bwaaaaaa, you're like a pack of poodles all yapping away at a Wolfhound.
Hey Mom, why doncha *exorcise* your lips while you're down there on your knees praying for me.
Now swallow that down like a *good girl*.
Then follow it up with ten *Hail thems*.
-=- This message was posted via two or more anonymous remailing services.
Julie - 28 Mar 2004 04:23 GMT Hi Nomen. To tell you the truth I haven't prayed for you even one time, but I will if you want me to? As far as "psychopaths" go you wouldnt have managed to live to the age of seven in the neighborhoood I grew up in. I hope you find a way to deal with your life and that you can find a way to happiness. Life is a struggle so why struggle against it? Enjoy the ride, Julie
> > Whatever. > [quoted text clipped - 11 lines] > Just think, you'll be able to tell the shrink all about me next week. Wow > aren't I the lucky one? Nomen Nescio - 28 Mar 2004 11:40 GMT > Hi Nomen. > To tell you the truth I haven't prayed for you even one time, but I will if [quoted text clipped - 4 lines] > happiness. Life is a struggle so why struggle against it? Enjoy the ride, > Julie Oh Julie, it's you come to join the pack.
Tell me a bit more about that *idiot woman* on the phone.
Has it ever occured to you that maybe she isn't an *idiot*, but just some human being, with problems of her own, doing a job where she has to do what she is told when she is told, and that maybe you were the umpteenth arrogant sob she had had to speak to that day, that maybe your files were on a networked computer, which crawls along at the speed of the average snail, and that even maybe she considers you to be an *idiot* too?
I certainly think you are, but while you are down on your knees praying for me.....
Julie - 28 Mar 2004 21:05 GMT > > Hi Nomen. > > To tell you the truth I haven't prayed for you even one time, but I will if [quoted text clipped - 15 lines] > computer, which crawls along at the speed of the average snail, and that even > maybe she considers you to be an *idiot* too? You create such a picture for all to see, but it is a fantsy. I am always nice to the overworked (ive been there), but having someone process my meds (incorrectly by the way) using their own memory is beyond foolish. Julie
> I certainly think you are, but while you are down on your knees praying for > me..... Oh, did something get stuck in your throat?? Enjoy. lol Julie
Nomen Nescio - 29 Mar 2004 10:10 GMT > > > Hi Nomen. > > > To tell you the truth I haven't prayed for you even one time, but I [quoted text clipped - 28 lines] > (incorrectly by the way) using their own memory is beyond foolish. > Julie Me create the picture? *You* told us what an *idiot* she is, and now you try to tell us how *nice* you are to the overworked? So she processed your meds and she did it all incorrectly and it was all her fault? How do you know she wasn't merely following incorrect instructions from above and it is not really her fault at all? But no, she's an *idiot* isn't she? And you are just another arrogant, self-obsessed, self-centered, intolerant, and impatient patient, unless of course she told you it was all her fault and doubtlessly apologised, and yet even though she did that you still have to tell the whole world what an *idiot* she is.
You should get together with Thomas. He's told us all about those *idiot* doctors he has had to *suffer* in his lifetime. What's more the sys-tek used to tell me how *boring* she found other people what with her being a *genius* and all. I've never encountered so many *superior* *beings* in one place together before.
Dwight - 27 Mar 2004 06:55 GMT Hi Don, welcome to the club. If you have to have this virus type 2 is the one to have. There is a good success rate and it is only 24 weeks instead of 48. Good luck with the tx.
 Signature Dwight
Dragon Slayers' Club: http://geocities.com/dwightmspage/
> I'd like to say Hello to everybody. I've been lurking around for a > while waiting to find out about my infection with HC which was [quoted text clipped - 22 lines] > like my employer to know but I don't really know what I'm in for with > this. But I guess I'll know soon enough! sh.t.
|
|
|