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Medical Forum / Diseases and Disorders / Hepatitis / March 2004

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Elmo and Suzie give us an update

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Julie - 30 Mar 2004 03:47 GMT
Hey you two, how are you doing?
Much concern,
Julie
Susie Quill - 30 Mar 2004 09:44 GMT
> Hey you two, how are you doing?
> Much concern,
> Julie

Hey Girl!!
I'm fine.  Actually, I'm surprised that I feel this well.  Had a headache
since Friday.  It is Tuesday evening here now.  Had slight headache this
a.m. and it faded.  So, am feeling rather chipper.  Sunday I felt well
enough to go out to a movie.  That is my big thing to do once in a while.
Had thought I wouldn't be going to any movies for six months, so that was a
pleasant surprise.  Had to get out of the house.    Slept until 2 a.m.
Saturday, felt fair Sunday, except for slight headache that didn't go away
until today.  Saw the doc in the hallway today and he gave me a couple
prescriptions....one for headaches, tylenol #?.  I think that has codene in
it though and I'm allergic to codene.  Will have to check.  Any suggestions
for something else?  This ibuprofen just didn't touch that headache.
Are you taking your first shot tomorrow Julie?  Be sure and put ice bucket
next to the bed and a couple containers of water.  I drank all my water and
was too out of it to be able to go get more with a temp of 105 (I thought it
was 103, but friend told me later I was wrong).  If he hadn't come over, I
wouldn't have gotten any more water or ice for a while I don't think.  I
should have written down the times that I took medicine and how much.   I
couldn't remember how much or when, so he wouldn't give me any more
ibuprofen.  Was afraid I'd over-dose.   Actually, I think frying my brain
should have been more of a concern.  I woke up later and helped myself
actually.   I can do this.  I am definitely going to do this.  It may get
worse, but I am determined I'm getting thru this.  I worked Monday....didn't
wanna but I did.  Not real energetic, but I'm their and stay busy....sort
of.
Never been a clock watcher before, but I am now.
Thanks for asking.  I sometimes have trouble getting in to the newsgroups
and sometimes computer lines are down and submarines have to go fix
them.....so never know for sure.  If I'm not around for a while, don't worry
about me.Thanks, Susie
P.S.  Make sure that you don't have anything blocking your way to the
bathroom....shoes, etc.  Too easy to run in to things or trip.
Paul - 30 Mar 2004 11:19 GMT
On Tue, 30 Mar 2004 18:44:41 +1000, "Susie Quill"
<susieq@vzpacifica.net>, in message ID
<4069337b_7@corp.newsgroups.com>, in the newsgroup
alt.support.hepatitis-c wrote:

> It is Tuesday evening here now.  Had slight headache this
>a.m. and it faded.  So, am feeling rather chipper.  Sunday I felt well
>enough to go out to a movie.  That is my big thing to do once in a while.
>Had thought I wouldn't be going to any movies for six months, so that was a
>pleasant surprise.

I'm pleased that things seem to be going reasonably well for you
Susie.  I also made contingency plans for not being able to do much
for 6 months.  Although I'm well warned that things may change (I'm
only in third week), I've actually been doing a lot more on tx than
before - without needing to push myself.  The first two shots zapped
me out a bit for 24 - 36 hours but the third one hasn't touched me.  I
am probably speaking far too soon but I'm starting to hope that I may
be one of the lucky 10% who has minimal side effects.  I would like it
to be like that for everybody.
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Paul

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elmoemerson@webtv.net - 30 Mar 2004 12:44 GMT

Re: Elmo and Suzie give us an update  

Group: alt.support.hepatitis-c Date: Tue, Mar 30, 2004, 11:19am (EST+6)
From: dontspamme@westgreen.freeserve.co.uk (Paul)
On Tue, 30 Mar 2004 18:44:41 +1000, "Susie Quill"
<susieq@vzpacifica.net>, in message ID
<4069337b_7@corp.newsgroups.com>, in the newsgroup
alt.support.hepatitis-c wrote:
  It is Tuesday evening here now. Had slight headache this a.m. and
it faded. So, am feeling rather chipper. Sunday I felt well enough to go
out to a movie. That is my big thing to do once in a while. Had thought
I wouldn't be going to any movies for six months, so that was a pleasant
surprise.
I'm pleased that things seem to be going reasonably well for you Susie.
I also made contingency plans for not being able to do much for 6
months. Although I'm well warned that things may change (I'm only in
third week), I've actually been doing a lot more on tx than before -
without needing to push myself. The first two shots zapped me out a bit
for 24 - 36 hours but the third one hasn't touched me. I am probably
speaking far too soon but I'm starting to hope that I may be one of the
lucky 10% who has minimal side effects. I would like it to be like that
for everybody.
Signature

Paul
////////////////
"The Lucky 10!"  I forgot to tell you about one of the sides, Paul.  In
the fourth week, fleas will begin to infest your armpits and crotch.
You'll get an earwig that will crawl into your ear and eat it's way into
your brain.  That's what really causes all the confusion and brain fog,
not the drugs.  :-)
Go get em, mate!
Elmo
   

http://community.webtv.net/elmoemerson/DocElmosHepFile

Paul - 30 Mar 2004 13:08 GMT
On Tue, 30 Mar 2004 06:44:18 -0500 (EST), elmoemerson@webtv.net, in
message ID <9616-40695D92-411@storefull-3252.bay.webtv.net>, in the
newsgroup alt.support.hepatitis-c wrote:

>"The Lucky 10!"  I forgot to tell you about one of the sides, Paul.  In
>the fourth week, fleas will begin to infest your armpits and crotch.

Damn.  And I thought all that itching was down to the drugs.  I'm off
to the pet shop to get some flea powder.

>You'll get an earwig that will crawl into your ear and eat it's way into
>your brain.  That's what really causes all the confusion and brain fog,
>not the drugs.  :-)

That already happened years ago.  Maybe my sides are minimal because
my life has already been one giant side effect and it's hard to spot
the difference.

>Go get em, mate!

Zap !! Pow!!

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elmoemerson@webtv.net - 30 Mar 2004 13:30 GMT

Re: Elmo and Suzie give us an update  

Group: alt.support.hepatitis-c Date: Tue, Mar 30, 2004, 1:08pm (EST+6)
From: dontspamme@westgreen.freeserve.co.uk (Paul)
On Tue, 30 Mar 2004 06:44:18 -0500 (EST), elmoemerson@webtv.net, in
message ID <9616-40695D92-411@storefull-3252.bay.webtv.net>, in the
newsgroup alt.support.hepatitis-c wrote:
"The Lucky 10!" I forgot to tell you about one of the sides, Paul. In
the fourth week, fleas will begin to infest your armpits and crotch.
Damn. And I thought all that itching was down to the drugs. I'm off to
the pet shop to get some flea powder.
You'll get an earwig that will crawl into your ear and eat it's way into
your brain. That's what really causes all the confusion and brain fog,
not the drugs. :-)
That already happened years ago. Maybe my sides are minimal because my
life has already been one giant side effect and it's hard to spot the
difference.
Go get em, mate!
Zap !! Pow!!
Signature

Paul
//////////////////
Glad you haven't lost your sense of humor, Paul.  That's half the
battle!
I like to joke alot about sides, it's kept me insane thru 3 treatments.
You're going to breeze right on thru only 6 months of tx.  
Elmo

http://community.webtv.net/elmoemerson/DocElmosHepFile

Paul - 30 Mar 2004 15:36 GMT
On Tue, 30 Mar 2004 07:30:31 -0500 (EST), elmoemerson@webtv.net, in
message ID <9616-40696867-413@storefull-3252.bay.webtv.net>, in the
newsgroup alt.support.hepatitis-c wrote:

>Glad you haven't lost your sense of humor, Paul.  That's half the
>battle!
>I like to joke alot about sides, it's kept me insane thru 3 treatments.
>You're going to breeze right on thru only 6 months of tx.

Well Elmo, my sense of humour is my first line of defence against
these drugs.  It does occasionally get breached but, largely because
of being pre-warned on this newsgroup, I know what to look out for.
Mainly because of what I've read on here, I have been able to see
riba-rage very quickly and diffuse it with humour.  In fact, because I
need to be more vigilant than usual, I have found that my anger
management has actually improved (so far).  Mind you, they still
haven't found that traffic warden who stuck a ticket on my car.  Hope
they don't decide to rod the drains.
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Russ - 30 Mar 2004 18:52 GMT
Paul, my third shot was like that, nothing happened. haha, thought I had it
made in the shade!!!! WRONG!!!!

hang in there

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Russ
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> On Tue, 30 Mar 2004 18:44:41 +1000, "Susie Quill"
> <susieq@vzpacifica.net>, in message ID
[quoted text clipped - 16 lines]
> be one of the lucky 10% who has minimal side effects.  I would like it
> to be like that for everybody.
Paul - 30 Mar 2004 20:21 GMT
On Tue, 30 Mar 2004 08:52:44 -0900, "Russ" <NOSPAMsourdo55@yahoo.com>,

>Paul, my third shot was like that, nothing happened. haha, thought I had it
>made in the shade!!!! WRONG!!!!

I have seen a number of emails and forum messages where people have
said that the peg didn't kick in for a few weeks so I am not going to
get complacent about this Russ.  Rather, I just assume that I will
probably feel worse sides at some point but I am going to enjoy myself
as much as possible until it happens.  Without the internet, I would
have had no warning whatsoever about this.  They do seem to be a bit
sparing on giving out information at the hospital.
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Don - 31 Mar 2004 04:58 GMT
>I'm pleased that things seem to be going reasonably well for you
>Susie.  I also made contingency plans for not being able to do much
[quoted text clipped - 5 lines]
>be one of the lucky 10% who has minimal side effects.  I would like it
>to be like that for everybody.

Lucky 10%?  Yikes, I don't like those odds.  The PA told me people who
stay active do better and gave me the standard "It get's better after
the first few shots" bs.  I probably won't be starting TX until May so
maybe the exercise program I started will help.  I would savor all the
good weeks in case they are scarce.
Russ - 30 Mar 2004 18:50 GMT
I never did like codeine, always made my stomach hurt. Hydrocodone w/Tylenol
works fine for me. No upset stomach, just no headache!! No constipation, or
any other problems. The dose my doc gives me is Hydrocodone 10mg/
acetaphinamin 325 mg. They work, that's my story and I'm sticking to it. For
minor headaches I can get by on two tylenol and two ibuprofen.

And lots of water!!!

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Russ
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>
> > Hey you two, how are you doing?
[quoted text clipped - 37 lines]
> http://www.newsfeeds.com - The #1 Newsgroup Service in the World!
> -----==  Over 100,000 Newsgroups - 19 Different Servers! =-----
Don - 31 Mar 2004 05:02 GMT
>I never did like codeine, always made my stomach hurt. Hydrocodone w/Tylenol
>works fine for me. No upset stomach, just no headache!! No constipation, or
[quoted text clipped - 3 lines]
>
>And lots of water!!!

That hydrocodone must be good stuff.  Ozzie Osbourne likes them and
that man knows his drugs.
elmoemerson@webtv.net - 30 Mar 2004 11:49 GMT
Thanks for asking, Julie.  I'm doing ok except for some minor tenderness
on the fingertips of my left hand.  :-)  My fingers used to feel like
hot dogs when I was on tx, now I'm getting back some of my dexterity.
Matter of fact, some of my brain fog is clearing as well.  That's a
wonderful combination to have gotten back.  I'm in heaven!!!

By the way, my doc asked me why there was a little inflammation in one
of my nostrils last week.  I didn't know why and told her that I like to
pick my nose.  
ahahahahahahahha  Maybe that's why my fingertips are sore.  

Keep the faith, baby!

Elmo

http://community.webtv.net/elmoemerson/DocElmosHepFile
 
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