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Medical Forum / Diseases and Disorders / Hepatitis / February 2004Looking for suggestions
Hello! I've been here off and on over the years, but it has been a while since I last peeked in. I have finally decided to go thru with interferon treatment. Looks like it is really a great list right now too. I have type 2b, stage 2 fibrosis, last viral load 126125. Alts are usually normal or a little above. The problem is that I have terrible fibromyalgia which I am sure is triggered by the HCV. Went to doc and asked for interferon and he gave me prescription for 48 weeks. I had thought it would be 24 weeks with 2b. Dunno I saw where someone said they were looking forward to getting started. That is how I feel. Ready to get started and knock this dragon out. Was waiting for something better to come along, but can't wait any longer. Know it won't be easy, but with the fibro., I don't have a life anyway. I'm always tired, always in pain, always sleeping my free time away. I can work, but have no other life.. At least this will give me some hope. I figure that since I'm already this miserable, maybe I won't notice any more extra fatigue and pain. ha! They are working on getting me pre-approval right now with the insurance company. When I checked on this about two years ago, was told they couldn't get peg here. I hope that has changed. I'm living on an island right now, north of Guam and I'm afraid shipping may still be a problem. I have to do this now. I have insurance now and some sick leave built up and I'm finally psychologically ready. Any suggestions from anyone on supplements or anything else. I know that NAC was one found to be helpful while on interferon. Thanks for listening. Susie Good luck to you, Suzie!! Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile On Fri, 27 Feb 2004 19:22:11 +1000, "Susie Quill" <susieq@vzpacifica.net>, in message ID <403f0c44_4@corp.newsgroups.com>, in the newsgroup alt.support.hepatitis-c wrote: >Hello! Hello >I've been here off and on over the years, but it has been a while since I >last peeked in. I have finally decided to go thru with interferon >treatment. Looks like it is really a great list right now too. It's OK so long as you use your killfile to filter out the nutters, agitators etc. You will soon figure out who is worth listening to and who isn't. >I have type 2b, stage 2 fibrosis, last viral load 126125. Alts are usually >normal or a little above. The problem is that I have terrible fibromyalgia >which I am sure is triggered by the HCV. Went to doc and asked for >interferon and he gave me prescription for 48 weeks. I had thought it >would be 24 weeks with 2b. Dunno It *should* normally be 24 weeks tx with genotype 2b. The only time I've heard of it being for 48 weeks is when tx failed and somebody was having a second attempt. I assume this is your first attempt with interferon? Also, they normally give out something called pegylated interferon now. It means that you only need once a week injection. You make no mention of ribavirin in your post. Here in the UK, the usual quantity for ribavirin is 800 mg a day with genotype 2b. It looks very important to take ribavirin alongside the interferon as it greatly increases the chance of a succesful outcome. (There is no point in taking ribavirin alone except for one week after the last injection). >I saw where someone said they were looking forward to getting started. That >is how I feel. Ready to get started and knock this dragon out. Yes, I'm itching to get started (will probably itch after I start too :-) ). I've got the drugs already. I will be starting on the first weekend after getting a test result back from the lab. At the moment, it looks like next weekend (March 5/6 ). >Any suggestions from anyone on supplements or anything else. I know that >NAC was one found to be helpful while on interferon. Well I don't really know about supplements. I've seen many suggestions. The best ones seem to be to drink lots of fresh water and to be prepared to take anti-depressants if it proves necessary. Some people prefer to take them anyway before starting tx as they can take a while to start working. >Thanks for listening. >Susie No problem. Stick around won't you? I am concerned about that prescription for 48 weeks though. I hope it is not an indication of incompetence from the doctor - especially as regular blood monitoring is needed while on peginterferon and riba. Best wishes, Paul  SignaturePaul Use the reply by email facility in your newsreader to send email > On Fri, 27 Feb 2004 19:22:11 +1000, "Susie Quill" > <susieq@vzpacifica.net>, in message ID [quoted text clipped - 12 lines] > agitators etc. You will soon figure out who is worth listening to and > who isn't. Is there a problem with your reading comprehension, or is it simply that English is your second language? Read where she says: > >I've been here off and on over the years, Guess what Monkey Boy, Susie-Q was here before you, before Thomas, and before Mom. Unfortunately she is known to be unduly under the influence of the sys- tek, so I doubt that she will be killfiling you feral cave dwellers in the manner in which she should. Now crawl back into the depths of the cave where you belong until your betters require your presence. Good luck Susie!!! Come back -- Peace, Mike > Hello! > [quoted text clipped - 33 lines] > http://www.newsfeeds.com - The #1 Newsgroup Service in the World! > -----== Over 100,000 Newsgroups - 19 Different Servers! =----- >I have type 2b, stage 2 fibrosis, last viral load 126125. Alts are usually >normal or a little above. The problem is that I have terrible fibromyalgia >which I am sure is triggered by the HCV. Went to doc and asked for >interferon and he gave me prescription for 48 weeks. I had thought it >would be 24 weeks with 2b. Dunno Yes, that IS strange - I'd go back and ask your doc why he thinks 48 weeks are necessary. Maybe he just put it in for insurance purposes, but doesn't really plan on letting you go through all of it. Did he prescribe ribavirin as well? >I figure that since I'm already this miserable, maybe I won't notice any more >extra fatigue and pain. ha! Hey, at least you have a positive outlook! ;-) >They are working on getting me pre-approval right now with the insurance >company. When I checked on this about two years ago, was told they couldn't >get peg here. I hope that has changed. You should insist on getting Peg. The success rates are clearly better. >I'm living on an island right now, >north of Guam and I'm afraid shipping may still be a problem. I have to >do this now. I have insurance now and some sick leave built up and I'm >finally psychologically ready. I know the standard Peg-Intron (Schering) doesn't require refrigeration (neither does Ribavirin), so that should ease shipping concerns somewhat. Pegasys (Roche) and the Peg-Intron Ready pen must be refrigerated. Talk to your doc and your pharmacy so you always have at least a two weeks supply in reserve in case anyone screws up. >Any suggestions from anyone on supplements or anything else. I know that >NAC was one found to be helpful while on interferon. I don't know why NAC would be helpful during treatment, it might actually interfere with the meds. Vitamin E might be helpful, vitamin C is less clear but probably doesn't hurt. Always talk to your doctor about any supplements you plan to take, including vitamins and minerals. He might be OK with NAC, but be sure to ask him. Thomas SignatureTo reach me, complete my last name in the address. "Susie Quill" <susieq@vzpacifica.net> <403f0c44_4@corp.newsgroups.com> : ((((((((suzie Q))))))))) ??? nice to see you posting again hugs anja Signaturemhm35x6 smeeter37 WSD40 http://geneticanja.deviantart.com/ join the "FREE Gigabyte" campaign please !!!!!! read about it on http://3wd.no-ip.org Oooh! I needed that hug too. Thanks. I won't leave again any time soon. It was just that the last time I looked in, there was an awful lot of arguing going on at that time. I don't see those posters now. I appreciate the warm welcome from those that responded. Susie > "Susie Quill" <susieq@vzpacifica.net> <403f0c44_4@corp.newsgroups.com> : > [quoted text clipped - 4 lines] > > anja > Oooh! I needed that hug too. Thanks. I won't leave again any time soon. > It was just that the last time I looked in, there was an awful lot of > arguing going on at that time. > I don't see those posters now. No. Thomas, Elmo, Paul and Mom are still here, and liable to argue like the trolls they are at any given moment. I urge you to killfile them now for your peace of mind Susie-Q. You go girl. There is no time like now. Stay in touch and welcome to the group hc > Hello! > [quoted text clipped - 33 lines] > http://www.newsfeeds.com - The #1 Newsgroup Service in the World! > -----== Over 100,000 Newsgroups - 19 Different Servers! =----- |
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