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Medical Forum / Diseases and Disorders / Glaucoma / October 2007

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Pigmentary Glaucoma

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Donnie - 24 Sep 2007 03:02 GMT
I am 36 years old and was diagnosed with Pigmentary Glaucoma 3 years
ago...
Last year I had XLT surgery and my pressure was really low after that,
but has risen again, although not  as much as it was...

I was on Xalatan for a long time with no side effects, but it was not
getting my pressure low enough. Now they have me on Cosopt, which
makes my eyes hurt.

My doctor said it is really rare for someone my age to have this
desease and I have lost up to 30% of my vision...

I am scared of going blind, not so much being blind scares me, but how
will I live and do things if I am blind??
Fast Eddie - 24 Sep 2007 11:31 GMT
> I am 36 years old and was diagnosed with Pigmentary Glaucoma 3 years
> ago...
[quoted text clipped - 10 lines]
> I am scared of going blind, not so much being blind scares me, but how
> will I live and do things if I am blind??

Hi Donnie,

Cosopt has always been a bit of a problem for me too. I wouldn't describe it
as "painful" but I am certainly aware that it's a bit astringent when I
apply it. I have found that I have to carefully place the liquid in the
"pocket" formed when I pull my bottom eyelid down. If you get the medicine
in the little pocket and not directly onto your eye ball it certainly helps.
You have to gently hold the pad of your finger to the tear duct after
application, that seems to help too. If you knew all this, I apologise for
trying to teach  you to suck eggs. The other possibility is that you have an
adverse reaction to this particular medication. Maybe you should discuss
this with your specialist.

FE
Donnie - 25 Sep 2007 16:33 GMT
> > I am 36 years old and was diagnosed with Pigmentary Glaucoma 3 years
> > ago...
[quoted text clipped - 27 lines]
>
> - Show quoted text -

Thanks for the info, I will talk to my Dr.
mike.lloyd.md@gmail.com - 11 Oct 2007 22:16 GMT
> I am 36 years old and was diagnosed with Pigmentary Glaucoma 3 years
> ago...
[quoted text clipped - 10 lines]
> I am scared of going blind, not so much being blind scares me, but how
> will I live and do things if I am blind??

its not uncommon for young people to have pigmentary glaucoma.  It
usually responds pretty well to laser.  you may end up needing
glaucoma surgery, but if you're managed well, you should not go blind.

You will likely need to see your glaucoma doctor regularly for the
rest of your life.
 
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