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Medical Forum / Diseases and Disorders / Glaucoma / February 2007

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age 40, newly diagnosed glaucoma, seeking any feedback

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Mark - 26 Jan 2007 22:10 GMT
Hi,

I went to the optometrist 3 weeks ago due to what felt like strained
eye muscles and he measured my iop at 19, which he said was at the high
end of the normal range.  I was at the time tapering off prednisone for
my Crohn's Disease.  More recently I went to an opthamologist who
measured my iop at 25 in my left eye and did the field test and was
told there may be some damage in my left eye as per field test results,
she says I am a suspect for early glaucoma (I think she listed it as
OAGUS, whatever that is).  She wants me to take Travatan drops.  During
the past 3 weeks I've been having headaches in my temples and eyes.
The doctor however says that it's a coincidence and has no bearing on
my iop.  I'm quite freaked out about this.  I have such a hard time
believing there is no relation between my eye pain which brought me to
the doctor, and this glaucoma diagnosis.  And why would I get glaucoma
at age 40?  I'm speculating that maybe it's due to a year ago I lifted
weights one day and it resulted in a 6 week headache, I must have been
breathing wrong.  Or maybe a few weeks ago my son poked me in the eye,
but I don't think it hurt too bad after a day.  I'm just wondering what
the heck is going on and if I'm likely to go blind or otherwise begin
on a road of problems with my eyes/health/vision, etc.  Having had
Crohn's Disease since age 14, with the medicines and surgeries that it
entails, I just don't know if I can cope with a whole new disease,
while trying to hold down my job and raise my kids.  I'm completely
ignorant about glaucoma, eyes, and so on, this is just brand new to me.
I'm contemplating whether to touch base with Jules Stein or one of the
other top rated vision centers.  Any feedback is appreciated.

Thanks,
Mark
Dennis R. - 27 Jan 2007 21:34 GMT
> Hi,
>
[quoted text clipped - 26 lines]
> Thanks,
> Mark

You've lived with Chrohn's disease, you can certainly handle glaucoma.
Many people get glaucoma at 40 with no other diseases, and you had a
doosy of one. By comparison to your problems, I only had dialysis and a
kidney transplant. I got a retinal tear and then glaucoma the year before
my kidney's failed, and that was almost 15 years ago. I am 50 now.
Glaucoma can usually be treated with drops. I also have Type 2 diabetes,
and after 15 years I still have no real degradation in peripheral vision,
no damage to my optic nerves, and my original retinal scar can barely be
seen on the new computer assisted photographs that they can take of the
inner eye.

I still take low doses of prednisone (7.5 mg daily) for my kidney
transplant, and it had nothing to do with my glaucoma. In most cases,
there is no particular cause for open angle glaucoma, the most common
kind. There isn't even a genetic angle that they know of.

Your ophthamalogist should be able to recommend any top of the line
hospitals specializing in diseases of the eye that he trained at or knows
of. They will likely have web pages with general information.

Here are some that I have tried. Stick to the big Hospitals, places like
WebMD.com, and non-profit orgs dedicated to glaucoma. Please avoid
alternative treatments like the plague. They only push their political
agenda, don't give a crap about your particular medical complications,
and here I am being very generous, at the most will only be able to
alleviate some side effects, not the disease itself.

http://www.mayoclinic.com/health/glaucoma/DS00283/DSECTION=7

http://www.allaboutglaucoma.org/glaucoma-treatments.html

http://www.glaucoma.org/treating/

http://www.glaucoma.org/news/

http://www.glaucomafoundation.org/newsletters.php

Again, don't panic. You may want to ask how Chrohn's might or might not
effect your glaucoma treatment, but it can be treated.

Dennis
Michael Daly - 28 Jan 2007 07:00 GMT
> And why would I get glaucoma
> at age 40?  

Glaucoma is not an old person's disease, though it is usually associated with
age.  Like arthritis, it can affect you at any age.

> I'm speculating that maybe it's due to a year ago I lifted
> weights one day and it resulted in a 6 week headache, I must have been
> breathing wrong.  Or maybe a few weeks ago my son poked me in the eye,
> but I don't think it hurt too bad after a day.  

OAG is not caused by a single event, though the things you've mentioned can
aggravate the IOP temporarily.

> I'm just wondering what
> the heck is going on and if I'm likely to go blind or otherwise begin
> on a road of problems with my eyes/health/vision, etc.

Most people on treatment can control glaucoma.  Some will find continued
degeneration of the retina.  You're more likely to be ok.

Has your ophthalmologist given you a cornea thickness test?  This is done by
touching your cornea with a small ultrasonic wand that measures the thickness
with sound waves.  This is important to determine the relevance of the pressure
test.  You might also want retinal tomography to track the shape of the optic
nerve exit point (the "cup").

I've been monitored since I was 17 years old (now 53) and have been on meds for
decades.  With Travatan and Cosopt, my IOP is 10 in each eye.  The meds can work
well.  Even with these pressures, I am having slow deterioration, though.

Mike
CTG - 10 Feb 2007 08:34 GMT
I was diagnosed at the age of 20.
I am 47 now....
drops change now and then and I have had a Trab operation on my affected eye
(Left)
Part of life.Get used to it mate .You can still see and have
most of your vision.
its better than going blind one day
at least now you know what your eye needs to be there for you for years...
Glaucoma drops...

> Hi,
>
[quoted text clipped - 26 lines]
> Thanks,
> Mark
 
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