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Medical Forum / Diseases and Disorders / Glaucoma / June 2006

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Hypotony - Need help

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Beverly A - 10 Jun 2006 07:18 GMT
Hi everyone,

Background:  In December 2005, I wrote asking for suggestions on increasing
the IOP after trab  surgery because my pressure was so low (1).  Thank you
to those of you who replied.  I am now 6 months out of surgery and have had
revision surgery in April 06 that included not one but two patch grafts in
an effort to increase the IOP.  Bottom line is that my pressure is still
around 4 and doesn't want to come up.  The problem is that I have extremely
blurry vision and the macula is folded or wrinkled and I now have hypotony.
My vision went from 20/20 prior to surgery to 20/200 after surgery in that
eye.  In order to get rid of the folds in the macula and hopefully the
blurry vision, the eye needs to be repressurized to about 20.  We tried
using gel (post surgery) and my IOP zoomed up to 70 in about 5 hours and
would not go down to an acceptable level until almost all of the gel was
removed.

Question:  Does anyone else have this situation and use Ibopamine (Trazyl)
to increase the IOP?  This drug is not available in the US but is available
in Europe, particularly in Italy.  I was told it was available via the
Internet but cannot find a web site from which to order it.  After about 6
months my condition is considered permanent, so my window of opportunity is
closing.

I would greatly appreciate any information anyone may have.  Please respond
directly to me at anderson99@cox.net if you prefer. Thank you so much.

Beverly
Henrietta K Thomas - 13 Jun 2006 08:32 GMT
[sci.med.vision added to newsgroups line]

>Hi everyone,

Hi Beverly....

>Background:  In December 2005, I wrote asking for suggestions on increasing
>the IOP after trab  surgery because my pressure was so low (1).  Thank you
>to those of you who replied.  

I wasn't subscribed to this group at that time.

>I am now 6 months out of surgery and have had
>revision surgery in April 06 that included not one but two patch grafts in
>an effort to increase the IOP.  

That's a pretty delicate operation.

>Bottom line is that my pressure is still
>around 4 and doesn't want to come up.  

Yuk.

>The problem is that I have extremely
>blurry vision and the macula is folded or wrinkled and I now have hypotony.

I looked hypotomy up on the web, but didn't find anything that I thought
might be useful.  I've crossposted this reply to sci.med.vision in the
hope that someone there might be able to help.

>My vision went from 20/20 prior to surgery to 20/200 after surgery in that
>eye.  

Ouch!  That must be very frustrating for you.

>In order to get rid of the folds in the macula and hopefully the
>blurry vision, the eye needs to be repressurized to about 20.  We tried
>using gel (post surgery) and my IOP zoomed up to 70 in about 5 hours and
>would not go down to an acceptable level until almost all of the gel was
>removed.

So the gel works -- but all too well.  :(

>Question:  Does anyone else have this situation and use Ibopamine (Trazyl)
>to increase the IOP?  

Not me.  I use eye drops to try and /lower/ my eye pressure.

>This drug is not available in the US but is available
>in Europe, particularly in Italy.  I was told it was available via the
>Internet but cannot find a web site from which to order it.  

I would strongly advise against ordering any drugs over the Internet,
especially drugs not approved by the FDA.

>After about 6
>months my condition is considered permanent, so my window of opportunity is
>closing.

You need to talk to a real professional in your field.  If your current
ophthalmologist can't help you, look for a local hospital that has a
decent ophthalmology department.  That would be your best bet, IMO,  for
getting quality help.

It also occurs to me that you might find information on your condition
at Medline on the web.  Just do a search on "Medline + vision" and see
what turns up.

The US National Eye Institute might be another good source of
information.

Good luck,
Henrietta K. Thomas
Chicago, Illinois
hkt@xnet.com
http://www.vipbookreviews.us

>I would greatly appreciate any information anyone may have.  Please respond
>directly to me at anderson99@cox.net if you prefer. Thank you so much.
>
>Beverly
 
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