I'm new here. Hey! I'm 20 from Indiana and last year I was roundaboutly
diagnosed with Pars Plantis in only my left eye. I say roundaboutly
because it started in March 04 , I took all the blood tests and x-rays
and nothing was found, but I still never had anyone actually tell me
what it was that was wrong with me until I saw a specialist in CT in
December 04. They put me on Pred-Forte to chill my retina out (which
thankfully helped). Anyway, in July 04 the people here in IN gave me a
Kenalog injection and it's now August 05 and the deposit of meds is
still in my eye. My Pars Plantis went away, but now I'm stuck with
open-angle glaucoma and a cataract. I've been on Alphagan since last
October (I think), Cosopt since May, and Travatan for about a month. My
pressure is still 40 and won't budge at all. In about two weeks I'm
going to see a specialist in New York because my parents don't trust
the jerks here in IN.
Erm, I guess what I'm going for here is just people to talk to. I've
been told I will have to have surgery on my eye for the glaucoma if it
doesn't lose the pressure. Damage has already been done to my retina.
Alphagan 3X, Cosopt 2X and Travatan 1X a day and I'm still getting eye
pain and headaches sometimes at night like I'm not taking anything at
all.
Has anyone else had the steroid-induced stuff happen to them? Are your
doctors more worried? My doctors seem to be dragging their feet like
they don't care... hence my going to NY. Anyone else have a similar
situation??
Laura - 27 Aug 2005 03:13 GMT
Seems I've read in the Saturday Evening Post that there's a renowned
eye clinic at the University of Indiana in Indianapolis. You might
check that out.
I don't know anything about your particular condition. But I do know
steroid eye drops like Pred Forte can raise pressure. Nevertheless,
even glaucoma specialists will require its use for several weeks after
eye surgery. It's necessary to prevent inflammation and scarring,
which could negate the results of the surgery.
Laura
>I'm new here. Hey! I'm 20 from Indiana and last year I was roundaboutly
>diagnosed with Pars Plantis in only my left eye. I say roundaboutly
[quoted text clipped - 22 lines]
>they don't care... hence my going to NY. Anyone else have a similar
>situation??
HeiferCow@gmail.com - 27 Aug 2005 19:02 GMT
I haven't heard anything about the University of Indiana clinic, which
is strange.
I also didn't know that after surgery it's used. That's a good and
interesting thing to know. It makes sense though.
David Beeson - 27 Aug 2005 20:49 GMT
> I haven't heard anything about the University of Indiana clinic, which
> is strange.
>
> I also didn't know that after surgery it's used. That's a good and
> interesting thing to know. It makes sense though.
I can highly recommend The Midwest Eye
Institute,
http://www.midwesteye.com/home.htm.
Dr. Valerie Purvin diagnosed and cured
my Giant Cell Arteritis with zero vision
loss.
Dave in Northern Indiana
Steve - 01 Sep 2005 15:47 GMT
> I'm new here. Hey! I'm 20 from Indiana and last year I was roundaboutly
> diagnosed with Pars Plantis in only my left eye. I say roundaboutly
[quoted text clipped - 22 lines]
> they don't care... hence my going to NY. Anyone else have a similar
> situation??
This is familiar. I started with Uveitis in my teens and had glaucoma
and cataracts.
Uveitis is imflammation of the Uveal tract which can affect the
Trabecular Mesh (the eyes drainage network) and in turn lead to Glaucoma.
Steroidal anti imflammatories are normally used to treat the Uveitis but
they can also cause raised IOP and can also promote the growth of a
cataract. (There are also non-steroidal anti imflammatories but these
have their problems too and are not as effective).
So the Uveitis and the treatment for Uveitis can cause glaucoma
therefore they need to treat that as a secondary condition. I was given
tablets to reduce the pressure (Diamox sustained release) which was
effective but led to potassium depletion (eat a banana). The secondary
Glaucoma is serious, it can cause permanent optic nerve damage and
affect your visual fields - sufficient damage will mean no driving.
Once the Uveitis is under control and you are off steroids they can
continue to treat any remaining glaucoma which will hopefully be lesser
and respond OK for you.
Once you have had uveitis there is always a risk of post operative
implammation flaring it up again so they will be more careful with you
if you ever have surgery.
ianad.
HeiferCow@gmail.com - 11 Sep 2005 01:09 GMT
Yeah, that's the IT of it.
My parents had me seen by the Glaucoma Associates of New York and they
knew exactly what to do with me, so that's where I'll be having my
surgery. The Indiana docs put me on Diamox a couple weeks ago because I
was having black outs and SEVERE behind-the-eye pain. The Diamox is
helping, but my pressure is still way too high. The doctors in NY said
that the Uveitis messed up the meshwork on a cellular level so they're
going to have to look at it more closely when I get out there (I
think).
Steve - 18 Sep 2005 17:16 GMT
> Yeah, that's the IT of it.
>
[quoted text clipped - 6 lines]
> going to have to look at it more closely when I get out there (I
> think).
I'm glad you are seeing a doctor you are happier with. I presume they
have some Uveitis specialists too.
The Uveitis will trash the Trabecular Meswork - that's why sorting the
Uveitis has to be job no 1.
What treatment are you on for the Uveitis and the Glaucoma?
Did they discuss any dietary or lifestyle changes as well?
Good Luck!
HeiferCow@gmail.com - 03 Oct 2005 00:23 GMT
I just had a trabulectomy last Tuesday. The pressure was up to 46.
Currently, they have me on Pred-Forte and oral steroids to block any
and all inflamation possible while my eye heals. Yeah, these guys in
NYC are fantastic. Dr. Samson, the Uveitis guy, is just amazing. He put
everything together for me and my parents.
As for dietary or lifestyle changes, no. No one has spoken to me about
that. I'd like to think that I'm a fairly healthy person... lol. And
right after they let me, I'll go back to exercising properly.