I'm posting this for a friend. He's a very talented artist, and has
been told that he may well soon go blind from advanced glaucoma. He's
now 55 years old. He was first diagnosed with glaucoma in his mid-20's
but did nothing about it until his mid-40's, when he first began to
notice vision loss. He's seen an ophthalmologist since 1999, who, upon
her initial examination, proclaimed that he had severe optic nerve
damage, and advanced glaucoma. The pressure at that time, in each eye,
was over 30. Through the continued use of alphagan p, cosopt and
xalatan, the pressure has dropped substantially and now ordinarily
hovers between 10 and 15.
His doctor mentioned the possibility of surgery (a trabeculectomy), but
this was prior to the stabilization of the pressure, with which she
seemed relatively pleased. She suggested that although surgery could
bring the pressure down even further and could last several years
before another surgery would be necessary, it would definitely cause
even further vision loss. He recently saw another MD, who looked over
his records, did a pressure check, surveyed the optic nerves, and told
him that his glaucoma was now in the end stage. On the other hand, he
can still see well enough (at least in one eye) to paint.
He's only seen two doctors for his condition, and I don't believe
either were at world class medical centers. (He's in the LA basin
area.) Any recommendations as to possible new treatments, clinical
trials, evaluations he should have, etc.? Any suggestions would be
greatly appreciated!
P.S. In addition to waiting far too long to seek treatment (partly
driven by financial considerations and no health insurance), he also
engages in a number of likely lifestyle no-nos for glaucoma patients.
He smokes a pack of cigarettes a day, and drinks 2-3 cups of coffee a
day. Also, about three times a month, he parties, and drinks a six
pack of beer at a setting.
Sherry - 12 Aug 2005 01:33 GMT
> I'm posting this for a friend. He's a very talented artist, and has
> been told that he may well soon go blind from advanced glaucoma.
[quoted text clipped - 21 lines]
> of coffee a day. Also, about three times a month, he parties, and
> drinks a six pack of beer at a setting.
Oh dear....well, he's certainly a poster boy for what not to do if you
are diagnosed with glaucoma! Chances are had he paid attention to his
doc in the beginning, he'd still be seeing fairly well. He's lucky to
be in the LA area. There are two excellent medical schools with great
eye clinics - He could go to UC Irvine Doheny Eye Clinic or UCLA Jules
Stein Eye Clinic - I'm sure they have accomodations for charity care.
A list of glaucoma specialists at those two universities and others
(Dr. Weinreb at Shiley Eye Center in La Jolla would also be an
excellent choice) can be found at
http://www.glaucomaweb.org/patients/find.htm?state=CA
Any reason he's not on MediCal?
Also, for meds, a lot of patients will get samples from their glauc
docs and never have to buy drops. Drug companies are offering free
meds - try http://www.needymeds.com for more info on that.
A trab can cause a small amount of loss of visual acuity, which would
be better than going blind from *not* having a trab. It's usually
just a line or so on the Snellen Chart - if he's seeing 20/20, he
might drop to 20/25 or 20/30. No big deal. I see 20/40 after my
trabs and my pressures are holding at 10 without drops.
There are a lot of visual artists who are blind, so it's not hopeless
that he'll not be able to continue his art. Do a google search on
"blind visual artists" for a lot of interesting articles.
Good luck!
Sherry
RVer Don - 12 Aug 2005 06:42 GMT
> A trab can cause a small amount of loss of visual acuity, which would
> be better than going blind from *not* having a trab. It's usually
> just a line or so on the Snellen Chart - if he's seeing 20/20, he
> might drop to 20/25 or 20/30. No big deal. I see 20/40 after my
> trabs and my pressures are holding at 10 without drops.
My experience was the exact opposite. After having cataract and trab
surgery I now see 20/25 in both eyes. With glasses or contacts I never
corrected better than 20/30 in one eye and 20/40 in the other eye. My
pressures have been running about 12 and 15 without drops.
Don
eyeguyrc@aol.com - 13 Aug 2005 03:36 GMT
Great Post, Sherry! All I would add is that if your friend has had a
50% drop in eye pressure with these meds and currently hovers in the
low to mid teens, that is likely to be sufficient to prevent any
significant futher loss of vision. If he can get the drops, as Sherry
said, as samples from the doc or from the drug companies (all of them
have programs to provide free or reduced cost meds to the poor) and
actually uses them, hopefully he won't show progressive loss on his
visual field tests. I would only recommend a trab if definitive
progression is present on the fields. As for the "world class medical
centers," they are often not worth half the hype they get. The
patients are often worked-up (and sometimes worked over) by residents
and fellows...then the big name attending physician spends five minutes
with you. Many of these, known for publishing a ton of papers and
teaching at medical meetings, have absolutely no bedside manner. When
you go to them for surgery, it is done by the fellow with the attending
sitting right by his/her side (and the patient can't tell the
difference). I might get an opinion from a university-based
specialist, but I wouldn't want to hang out there for good.
--Rick Cohn, MD
Glaucoma Specialist
Winter Park, FL
John - 13 Aug 2005 07:37 GMT
>As for the "world class medical
>centers," they are often not worth half the hype they get. The
[quoted text clipped - 9 lines]
>Glaucoma Specialist
>Winter Park, FL
That certainly is "telling it like it is," Dr. Cohn --- Thanks!
But we must remember that the supply of private-practice surgeons
is dependent on University teaching "medical centers." All
experienced surgeons were once "residents," and they won't live
forever. :-)
On the issue of "frequently publishing physicians" (Having
participated in that game in a different field, I recognize the
implications :-) ): One of my eyes was badly damaged in
uncomplicated cataract surgery by a [non-University]
surprisingly-young FACS with a slew of publications. I got the
impression that he sometimes used self-invented new techniques.
One of them backfired on me.
John