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Medical Forum / Diseases and Disorders / Glaucoma / February 2005ice syndrome (chandlers)
Hello, I was wondering if there was a newsgroup for people that have ice syndrome, I just aquired that messed up disease Try sci.med.vision it's available on Google Groups. Checkout Ice syndrome is quite rare, so I would be surprised if there is a newsgroup specific to sufferers of this disease. At least I'm not aware of any. As the treatment is similar to other forms of glaucoma, you might as well hang out here with us. Most of us are pretty nice people...what do you say, gang? --Rick Cohn, MD I say join in. David Ice syndrome is quite rare, so I would be surprised if there is a newsgroup specific to sufferers of this disease. At least I'm not aware of any. As the treatment is similar to other forms of glaucoma, you might as well hang out here with us. Most of us are pretty nice people...what do you say, gang? --Rick Cohn, MD Ok, thanks I will be hanging with the cool people, so nobody here has this fun disease? > Ice syndrome is quite rare, so I would be surprised if there is a > newsgroup specific to sufferers of this disease. At least I'm not > aware of any. As the treatment is similar to other forms of glaucoma, > you might as well hang out here with us. Most of us are pretty nice > people...what do you say, gang? > --Rick Cohn, MD I have the ICE Syndrome. I have had it for 7 years. Got it when I was 26 years old. I have had a very hard long hall with this disease. I had a Corneal Transplant due to the ICE Syndrome attacking my cornea! Its been a long road and still have one ahead of me, but hang in! Tory Thanks for writng, I have had it since august of 2004, can you see out of your affected eye? how much was the transplant? is there a cure? take care, Gary >I have the ICE Syndrome. I have had it for 7 years. Got it when I was 26 > years old. I have had a very hard long hall with this disease. I had a > Corneal Transplant due to the ICE Syndrome attacking my cornea! Its been > a long road and still have one ahead of me, but hang in! > > Tory >Thanks for writng, >I have had it since august of 2004, can you see out of your affected eye? [quoted text clipped - 7 lines] >> >> Tory FWIW see discussion at: http://www.wills-glaucoma.org/supportgroup/20030723.php |
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