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Medical Forum / Diseases and Disorders / Epilepsy / April 2005body aromas and seizures
I am noticing that for some reason I stink :) It's like I haven't showered for a while. I am not smelling the aroma all the time, but just sometimes. I know it is not because I don't bathe or shower regular because I do. And I can detect the smell immediately after a bath sometimes. Does anyone think this is an "aura" or what you call a prelude to a seizure or an after effect of one maybe? I really don't know of any "auras" that I have, and the only knowledge of my seizures to me are tongue bites and blank spells after one. Anyone else have this indication that can tell me if it is "pre-seizure" or "after a seizure" for them maybe?? owlvee > I am noticing that for some reason I stink :) > It's like I haven't showered for a while. I am not smelling the aroma > all the time, but just sometimes. I know it is not because I don't bathe > or shower regular because I do. And I can detect the smell immediately > after a bath sometimes. Hello Owlvee, I just wanted to say that over active perspiration is a very common problem with myself, and others on this newsgroup as a side effect from our medication, and just wanted to suggest that this could be what is giving you this aroma too. Sofie Over perspiration is a huge problem for me. It could be 30 degree weather and I am dripping with sweat. YOu should see me in 80 degree weather. :}. As for the odor, I smell it after a seizure. It is exteremly strong, even with a shower it doesn't seem to help it. Chris > > I am noticing that for some reason I stink :) > > It's like I haven't showered for a while. I am not smelling the aroma [quoted text clipped - 8 lines] > > Sofie > Over perspiration is a huge problem for me. It could be 30 degree > weather and I am dripping with sweat. YOu should see me in 80 degree [quoted text clipped - 33 lines] >> >>Sofie The only thing about that is, the aroma goes away. It doesn't stay with me. It is like I have active perspiration smell like you say but it isn't permanent. An hour or so after smelling like I haven't had the bath like I say, I no longer have the perspiration smell? It's back to the out of the shower fresh aroma again??? thanks for the response!! >> Over perspiration is a huge problem for me. It could be 30 degree >> weather and I am dripping with sweat. YOu should see me in 80 degree [quoted text clipped - 39 lines] > bath like I say, I no longer have the perspiration smell? It's back to > the out of the shower fresh aroma again??? > I am noticing that for some reason I stink :) > It's like I haven't showered for a while. I am not smelling the aroma [quoted text clipped - 8 lines] > or "after a seizure" for them maybe?? > owlvee It sounds like the type of smell depends on which lobe is involved. The smell I used to get only lasted for a short while. I don't recall exactly how long but definitely less than a minute. When this first started happening, I checked the garbage cans and everywhere trying to figure out where it was coming from. After a lot of experience, I determined that it's an internal smell (but not coming from the mouth or anything like that) and not coming from the environment. I really didn't notice any really close association with the occurrence of full-blown seizures. It just seemed to come randomly, but I was having a lot of seizure symptoms back then as I was not being treated. That smell stopped after I started medication. Barb Howdy! Some epilepsy meds are excreted through the skin and can cause a person to stink. I was taking a med that worked that way. (Depakote maybe?) As for the "stinking and then the smell goes away"... maybe you still stink but you've just gotten used to it so you don't notice it anymore. (Just a possibility!!)  SignatureDave ???? http://www.howdydave.com > I am noticing that for some reason I stink :) > It's like I haven't showered for a while. I am not smelling the aroma [quoted text clipped - 8 lines] > or "after a seizure" for them maybe?? > owlvee I have been searching for answers and on a Canadian Epileptic info site I found the following quote which seems to partially answer my question. The quote makes it seem as if though as I am having a "partial seizure" WHEN having these aromas. And you're right Dave, I probably stink anyways :) "Simple partial seizures which arise in or near the temporal lobes often take the form of an odd experience. One may see or hear things that are not there. One feels emotions, often fear, but sometimes sadness, anger, or joy. There may be a bad smell or a bad taste, a funny feeling in the pit of the stomach or a choking sensation. These seizures are sometimes called simple partial seizures of temporal lobe origin or temporal lobe auras." So maybe it is a seizure of a form I am having at the time I smell the strange odor "seemingly" coming from me???? (Plus now with this below quote, I can blame my bad breath on a seizure!!) Again, thanks for the reply....... :) owlvee Dave ©¿©¬ wrote: > Howdy! > [quoted text clipped - 7 lines] > but you've just gotten used to it so you don't notice it anymore. (Just a > possibility!!) If you try under Auras under http://efa.org ?? With respect to the Temporal Lobe auras, a putrid, foul or eggy type aura is associated with the *left temporal lobe (if that's where your seizure focus is). The Left side can also have a Jamais Vu (never seen) feeling, where your own place might seem like a stranger's. The Right side T.lobe aura is usually a sour, lemon taste or aroma, and this one can have a Deja vu feeling. ( Those sensations might also be described under Julie's Idaho First Aid for seizures chart, referring to Complex Partial = Temporal lobe based seizures. I found the taste and aroma under multiple locations several years ago. Google might also pull in references under e.g partialseizures&aroma ? )G. / >I have been searching for answers and on a Canadian Epileptic info site I >found the following quote which seems to partially answer my question. The [quoted text clipped - 29 lines] >> but you've just gotten used to it so you don't notice it anymore. (Just a >> possibility!!) > I am noticing that for some reason I stink :) > It's like I haven't showered for a while. I am not smelling the aroma [quoted text clipped - 8 lines] > or "after a seizure" for them maybe?? > owlvee Hi there Owlvee -I too have these smells sometimes(always bad-bodily-odours)like puke, piss, sh.t, sweat...-You name it -But then I discovered that it only derived from my left nostril (I had a right-hemisphere hemmoraghe)and if I closed my left and breath only through my left nostril I could not smell these "unpleasantries" - and so I concluded it was just my "mind-playing-tricks-on-me" -it never had anything to do with my seizures, it was just an unpleasant side-effect of the hemmoraghe (Kind of a smell-hallucination) Hope you find the solution on your part -just a few tips... -- Kind regards sim1 > Hi there Owlvee -I too have these smells sometimes(always > bad-bodily-odours)like puke, piss, sh.t, sweat...-You name it -But then [quoted text clipped - 4 lines] > anything to do with my seizures, it was just an unpleasant side-effect > of the hemmoraghe (Kind of a smell-hallucination) I know this is a little off-topic, but I'd just like to say thanks to Sim1, for assuring me that I ain't the only person in the world who gets these "mind-playing-tricks-on-me" games/attacks. I'd just like to say, that in my experience of this warped, twisted feeling, as maybe with yours, and many other people out there who just haven't mentioned it yet, it comes in many more colours than one. This has meant that sometimes I've smelt it as an awful toilet odour just after a shower, other times I've heard loud blasting music in a silent hospital waiting room, I've seen ordinary gangs of men on the street and ran kissing them all, asking for their autographs and telling my hubby standing next to me that they were all famous actors, but in my case, the worst for me is always when my co-ordination completely goes for several days, which leaves me bursting into tears about how I'll never walk again. I suppose it's just a shame that there hasn't been much - if any education or medication to treat our more severe after effects though, and a lot of us are still treated as if we've lost our marbles just by mentioning them. Sofie
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