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Medical Forum / Diseases and Disorders / Epilepsy / April 2005

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Atonic Seizures

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Beck - 04 Apr 2005 07:04 GMT
Hiya all,

I just wanted to ask if anyone has/had these before?
I read a little bit about them on one of the websites G.Ross supplied in a
thread. Anyway, I have had a few falls since I started having what my doctor
thinks may be Petit Mal(s). I haven't been down longer than a couple of
seconds, but its not like tripping over, I just fall have a second or 2 of
confusion/blankness (not sure of a better word) and then I get up and
nothing happens. I didn't know if this was anything I should tell my
Neurologist. I have a psychiatrist too and he said its nothing, but has also
told me he doesn't know much about Epilepsy.
Anyway, just thought I'd ask.
Thanks,
Beck.
G.Ross - 04 Apr 2005 16:39 GMT
> Hiya all,
> I just wanted to ask if anyone has/had these before?
[quoted text clipped - 4 lines]
> second or 2 of confusion/blankness (not sure of a better word) and then I
> get up and nothing happens.
**G* I guess part of this depends on how you know you're just 'down' for 2
seconds.  Can you tell the amount of lost time, or do others witness these
to show they're 'just'  drop attacks?  Some of my stronger ones (before
control, when no one was around), I found I might be 'away'  from minutes to
up to an hour, while I was unconscious, with the *type I had.  //

I didn't know if this was anything I should tell my
> Neurologist. I have a psychiatrist too and he said its nothing, but has
> also told me he doesn't know much about Epilepsy.

**G* He sure doesn't (know much about seizures).   Tell him you'd like to
take him for a Drive on a Freeway, and have him watch for you, if you have
any Absences while you're Driving.    See how big a deal he'd thing *that
would be...  I doubt he'd get in the car.

   Depending on the types of things we do, and equipment we might use,
during a day -- Mixmaster, Power Saws, Motor Bikes, Driving Cars, Bath or
Sink water running, Caring for young children --  those absences can become
more of a safety issue.  Granted the ones you're having might only last a
few seconds *most times, but at what point do these become a safety concern?
 Some of us were not so concerned at  it 'only' lasting 2-3 seconds, versus
if it might become longer,  and why not find a treatment that will stop them
altogether?   That's why Dr. Bob? on this thread (I think) suggested an
Epilepsy Specialist should look at these since the Dr. you have isn't
trained to treat what you are experiencing (*my opinion).    I'd rather you
have 100% control if it's something that can be addressed with the correct
treatment, than just be told 'it's nothing, don't worry about it'... That
was my interpretation of what you were describing they said.
   And while it might not be as Strong as some of the seizure types we have
'around here', they're still enough of a bother, and potentially a safety
issue *for You** if you're having these at times where they could be trouble
(walking across a street in a Crosswalk),  that I was concerned they get you
an accurate assessment.
   (*I can't tell from our discussions alone if what you're experiencing
are 'Atonic seizures' (haven't had those-- are those the Drop Attacks listed
on some sites?),  Petit Mals or Absences, or what they are.   But I am
concerned when a **Dr. treats one of us less well than he'd treat his Car,
if it were misfiring. Sure it might only do it once or twice a week, but
it's something that can be treated.  And *I think it's what you deserve.
Control, if you can get it, is SO Neat... )

  (That efa site (U.S. Ep. Foundation) if it lists Atonic Seizures, might
list types of treatments that might work for them.   Even some of the Petit
Mal types? might need a prescription of some type, but with a medication
that's not as strong as some of us already have to use. )     /G.

> Anyway, just thought I'd ask.
> Thanks,
> Beck.
Beck - 05 Apr 2005 06:15 GMT
To be quite honest, I am not 100% sure they are 2 seconds. I know that I
don't feel the same amount of confusion as when I have had these Petit Mal
type things. The reason I think they are only a couple of seconds is more
that I feel kinda dizzy afterwards and was just putting it down to that. I
have noticed however, when I try to think what was happening in my head just
before I fell, I feel this confusion as if I had been daydreaming or
something, did that make much sense? Sorry I am not very good at explaining
things like this.

> **G* I guess part of this depends on how you know you're just 'down' for 2
> seconds. Can you tell the amount of lost time, or do others witness these
> to show they're 'just' drop attacks? Some of my stronger ones (before
> control, when no one was around), I found I might be 'away'  from minutes
> to up to an hour, while I was unconscious, with the *type I had. //

I am going to talk to the neurologist I see but that appointment isn't until
27th July this year. He'd probably want me to, he's one of the many people
in my life wanting me to drive (I don't have a licence and haven't even
tried to get it).
I have questioned the safety issue related to my blank outs (or Petit Mals)
and no one thinks it very bad because I have only had a couple of them. The
thing I keep saying is that I am on my own a lot, how do we know its only
been a couple of them? I haven't gotten a straight answer to that yet.
I want control, I get paranoid that I am going to do something silly in
front of everyone. The times I have blanked out I have not remembered
anything in that small period. I don't like that. I was at work when one of
these things happened. Its embarrassing.

> **G* He sure doesn't (know much about seizures).   Tell him you'd like to
> take him for a Drive on a Freeway, and have him watch for you, if you have
[quoted text clipped - 20 lines]
> trouble (walking across a street in a Crosswalk), that I was concerned
> they get you an accurate assessment.

Yep, that's what they said they're called too. My doctor doesn't say they
are definitely Petit Mals I am having, but he put me on Tegretol and since
then its been a LOT better.
I know what you mean though about how they treat their cars against how they
treat patients. I had a similar problem earlier in 2003 and all my doctors
told me to be positive, nothing was wrong, it was all just negative
thinking... blah blah. Anyway I have since been diagnosed (and treated) by 2
doctors with Schizophrenia. I have still been trying to stay positive, but
its not been helpful. I do worry that some doctors found their prescribing
doctors papers/licences in a box of cereal. (No offence Dr Bob, I don't mean
ALL doctors).
Anyway, thanks for your reply again, I have rambled on enough here.
Beck.

>    (*I can't tell from our discussions alone if what you're experiencing
> are 'Atonic seizures' (haven't had those-- are those the Drop Attacks
[quoted text clipped - 8 lines]
> Mal types? might need a prescription of some type, but with a medication
> that's not as strong as some of us already have to use.)     /G.
angeleyes1@ntlworld.com - 04 Apr 2005 22:08 GMT
>Hiya all,
>
[quoted text clipped - 10 lines]
>Thanks,
>Beck.

Yep, happened to me since I was a kid.  No doctor seemed to know what
I was talking about - called it stress.  Finally got a newbie neuro
who said it was myoclonus.  Gave me Rivotril and I have been fine ever
since.  Now I have years of falling down to get over psychologically -
not an easy thing.  I have phobias about stairs, etc.

Angeleyes
Beck - 05 Apr 2005 06:20 GMT
I am sorry you had bad experiences with doctors too, they can be really hard
to trust sometimes when you KNOW something is not right and they say its
just stress or something similar.
Can I ask how you knew about the falls, was it because you fell down stairs
and other things? I have not been that bad yet, I have always fallen on flat
ground and that's why I wonder still.
Thanks for your reply,
Beck.

> Yep, happened to me since I was a kid.  No doctor seemed to know what
> I was talking about - called it stress.  Finally got a newbie neuro
[quoted text clipped - 3 lines]
>
> Angeleyes
 
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