My "right temporal lobe resection" is scheduled for Thursday... now I'm
starting to get nervous! I haven't been sleeping very well, and had 3
seizures last week as a result - just in case I was thinking of chickening
out, guess my brain decided to give me a reminder! ;)
Knowing that this group is here to give support is a big help. Thanks
everyone!
(Hope I'll remember its existence when I come out...)
> My "right temporal lobe resection" is scheduled for Thursday... now I'm
> starting to get nervous! I haven't been sleeping very well, and had 3
[quoted text clipped - 3 lines]
> everyone!
> (Hope I'll remember its existence when I come out...)
You'd better! We want to know how it went and what the result is.
There's not much point in saying it but I shall anyway. You're in the hands
of the experienced surgeon, you've elected to do that so don't be nervous.
The worry period is over!
We'll be thinking of you,
Hugs,
MAry
> My "right temporal lobe resection" is scheduled for Thursday... now I'm
***********************************************
> starting to get nervous! I haven't been sleeping very well, and had 3
> seizures last week as a result - just in case I was thinking of chickening
> out, guess my brain decided to give me a reminder! ;)
> Knowing that this group is here to give support is a big help. Thanks
> everyone!
> (Hope I'll remember its existence when I come out...)
You're on U.Time minus 7 hours Canada (Mountain Standard Time) for anyone in
UK etc. who might want to give you moral support, or chocolate or ??
Did they tell you how long the Post-Op. stuff lasts before you get home?
Now you're going to have Me awake wondering how things are going. I'd guess
they'd want you in for Pre-Op. tests etc. Tues. or Wed.? And with the
Thursday plan date, I'd be very surprised if they let you out before e.g. a
week the following Monday? or later the week after the procedure. You
probably want to take some books or magazines, as I expect there will be
wires and cables around, for at least the first day or two? Dave might
remember someone who was 'here' about 1998 or 99 who described how Boring it
was wandering around the ward with this 'X-box' strapped to their body that
was monitoring stuff 'live' and to nurses' station so they could track how
he? was doing... That was so long ago, I don't even remember if it was a he
or she, but they were in the U.S. as opposed to Canada.
I also don't remember anyone posting here (since 1998), about what's
involved in a resection, although I know a little (from some TV Videos) of
how they get at a Temporal Lobe... Did they tell you if they're 'just' :-<
(JUST !! ) snipping a piece of the nerves at the Right T.Lobe to prevent it
sending erratic signals to or from the Left Side (Temporal Lobe) ? causing
some of your seizure types? Hard as it might be to believe, but many of
these types of Operations (Surgeries) have Improved over last 6-8 years, and
are becoming more Routine, with millimetre accuracy and robotics or
photo-imaging helping a lot of the operations, depending what they're doing.
I think you had said you were having Complex Partial seizures? (like
mine before I was able to control mine with pills), so that a bunch of
erratic Electrical Waves can spread from one side to other parts of the
brain and cause 'generalizing' of the signal to interfere with Brain wave
operation in other parts?
So if they identified the Brain Part where the largest part (90%) of the
seizures are being launched from, if they remove that part (fractions of an
inch/cm. thick by ?? cm. long), the storms end too? That would mean they
might then be able to start reducing medications you use, and possibly (as
post-op continues) be able to stop all or a large part of the medications?
either within e.g. 6 weeks, or longer in some cases. Since I'm **not a Dr.,
those numbers and times might not be accurate.
I don't know how often you are speaking to your Doctor(s) as D(done)-Day
approaches, but if you're not sleeping well, you should tell them that.
There's nothing about that to be upset about, I have nights like that, and
*you might have a reason - wondering if the Night Nurses will abscond with
your Chocolates and Goodies while you sleep, etc. ....
*If you are still having sleepless nights, you could ask your Dr. *if
something like Ativan 1mg (Lorazepam) Sublingual would work for your type of
seizures or whether it would interfere with any Pre-op. stuff they have
planned. (I think they do some other MRIs and EEGs? before to compare with
After? but that might not be correct. That's why I was hoping someone else
who's had this will post for you. ) After the surgery they'd probably use
an IV or something rather than give Ativan in pill form.
The stuff above I got (ativan), as I got Close to full control w. Tegretol
CR /Frisium, of my particular type of Complex Partial seizures, became
needed less and less -- down from 1-2x a week, to a month, to a quarter.
etc. Last time I used any was 2-3 years ago. Since many of mine were
triggered by Stress or Emotions, the Ativan served as a relaxant the 3 or 4
times I had to use it over about a 4-6 week period, when I was getting
Auras.
I think it's also a Relaxant, as often I'd fall asleep within about 1-2
hours of letting one dissolve under my tongue (that's how it gets absorbed
into bloodstream). G./
turbinado - 28 Feb 2005 21:23 GMT
> > My "right temporal lobe resection" is scheduled for Thursday... now I'm
> ***********************************************
[quoted text clipped - 20 lines]
> he? was doing... That was so long ago, I don't even remember if it was a he
> or she, but they were in the U.S. as opposed to Canada.
They already did the pre-op tests last week. I go in Thursday morning and
they do the surgery that day. They told me I'd be in ICU for a day, then
moved to the neuro ward for 5 days or so. I should be able to "resume my
normal activities" after 6-8 weeks of recovery at home.
> I also don't remember anyone posting here (since 1998), about what's
> involved in a resection, although I know a little (from some TV Videos) of
[quoted text clipped - 6 lines]
> are becoming more Routine, with millimetre accuracy and robotics or
> photo-imaging helping a lot of the operations, depending what they're doing.
They are going to open up the skull, do an "invasive EEG" for a few minutes
and then remove a few cubic cm of tissue.
> I think you had said you were having Complex Partial seizures? (like
> mine before I was able to control mine with pills), so that a bunch of
[quoted text clipped - 9 lines]
> either within e.g. 6 weeks, or longer in some cases. Since I'm **not a Dr.,
> those numbers and times might not be accurate.
The idea is, I'll stay on meds for a year then they will try reducing it to
see whether I can get by without. That's what I'm hoping for !!!
> I don't know how often you are speaking to your Doctor(s) as D(done)-Day
> approaches, but if you're not sleeping well, you should tell them that.
[quoted text clipped - 20 lines]
> hours of letting one dissolve under my tongue (that's how it gets absorbed
> into bloodstream). G./
Mary Fisher - 28 Feb 2005 22:56 GMT
> They already did the pre-op tests last week. I go in Thursday morning and
> they do the surgery that day. They told me I'd be in ICU for a day, then
> moved to the neuro ward for 5 days or so. I should be able to "resume my
> normal activities" after 6-8 weeks of recovery at home.
You mean we have to wait as long as that? Or do we count as an abnormal
activity ?
> They are going to open up the skull, do an "invasive EEG" for a few
> minutes
> and then remove a few cubic cm of tissue.
Have pictures taken of your skull with the staples or stitches. I did and
it's always interesting to see others' reactions to them! Children love
them.
> The idea is, I'll stay on meds for a year then they will try reducing it
> to
> see whether I can get by without. That's what I'm hoping for !!!
Of course. I hope so too.
On sleeplessness, while in hospital the doctor advised going out into the
street for a walk to try and tire myself. It didn't work. A sleeping tablet
made me sleep but I vowed never to have one ever again in my life, the
hangover was awful. My solution didn't make me sleep much but it passed the
time. I had - and still have and use - a personal radio under my pillow and
listen to it via an earphone. When something interesting comes on I sleep
:-(
I hope you don't think I'm being flippant. I'm not. We all have different
ways of looking at every part of our lives.
We'll be thinking about you I'm sure and I really do look forward to seeing
you back, recovering well and telling us all about it. And somehow sending
the pictures! Perhaps we should start a MSN group or something to post
pictures. Anyone know how?
Mary
G.Ross - 28 Feb 2005 23:10 GMT
"Mary Fisher"
> I hope you don't think I'm being flippant. I'm not. We all have different
> ways of looking at every part of our lives.
[quoted text clipped - 5 lines]
>
> Mary
What Mary said too. We'll save you some goodies, for when you give us a
Book Report on how things went. G./
Liz & Allan MacDonald - 28 Feb 2005 23:27 GMT
> Have pictures taken of your skull with the staples or stitches. I did and
> it's always interesting to see others' reactions to them! Children love
> them.
My daughter was 3 at the time of my surgery. We told her when she came
home from Grandma's house Mommy would have a zipper in her head. She
thought it was pretty cool. She also loved poking at the bulge on my
temple where they'd cut the jaw muscle. I do have a picture, complete
with bruises.
Liz
turbinado - 28 Feb 2005 23:39 GMT
> > Have pictures taken of your skull with the staples or stitches. I did and
> > it's always interesting to see others' reactions to them! Children love
[quoted text clipped - 6 lines]
> with bruises.
> Liz
I'm sure my husband won't be able to keep away with the camera!
This will be one of the first "normal activities" that I try to resume.
So see you all in a couple of weeks! Save those chocolates! :)
cheers,
Hilary
Mary Fisher - 28 Feb 2005 23:45 GMT
>> > Have pictures taken of your skull with the staples or stitches. I did
> and
[quoted text clipped - 12 lines]
> So see you all in a couple of weeks! Save those chocolates! :)
> cheers,
Oh I'm sure you won't be allowed chocolates, sorry old thing, we'll have to
help you out with those ...
Oh alright then!
In truth, I don't get colds and bunions and ordinary boring things but I
don't mind. You don't get sympathy with those even though they're
unpleasant. I do like having dramatic experienceswhere people come to see
you and do the washing up and bring champagne and chocolates ... :-)
Mary
Mary Fisher - 28 Feb 2005 23:42 GMT
>> Have pictures taken of your skull with the staples or stitches. I did and
>> it's always interesting to see others' reactions to them! Children love
[quoted text clipped - 5 lines]
> temple where they'd cut the jaw muscle. I do have a picture, complete
> with bruises.
Yes, I called in my boss a professional photographer, to come and do it. He
didn't know I was in hospital, he'd been on holiday in Cyprus and it all
happened very quickly.
I'd be interested to see others'pictures.
The grandchildren came in and counted the staples and traced the drain which
came out of the back of my skull to the glass flask. The too felt the lumps
and hollows on my head. When I had a lumpectomy they came in and were
indignant because the surgery area was covered and they couldn't see
anything.
Some people were horrified, they thought the little darlings whould be
protected from such experiences. Phooey.
Mary
> My "right temporal lobe resection" is scheduled for Thursday... now I'm
> starting to get nervous! I haven't been sleeping very well, and had 3
[quoted text clipped - 3 lines]
> everyone!
> (Hope I'll remember its existence when I come out...)
Hey, good luck with your surgery! We'll be waiting to hear from you
when you recover.
Barb
Hi
Just in case you don't get my message.
Good luck and good health.
Kenny
> My "right temporal lobe resection" is scheduled for Thursday
Good luck tomorrow! I'm thinking of you.
Liz
I guess I could have pasted earlier note here.
This came in ~an hour ago.
*****************
Hi everyone:
Hilary asked me to let you all know that the surgery has been completed and
she is now recovering in ICU at Vancouver General Hospital. (The hospital
asks for no flowers or phone calls while she's in that ward.) They plan to
move her to the Neurology Ward tomorrow, when she can start receiving
visitors.
Thanks for your prayers and support!
Patrick (aka Dave )
> My "right temporal lobe resection" is scheduled for Thursday... now I'm
> starting to get nervous! I haven't been sleeping very well, and had 3
[quoted text clipped - 3 lines]
> everyone!
> (Hope I'll remember its existence when I come out...)
Mary Fisher - 03 Mar 2005 23:17 GMT
>I guess I could have pasted earlier note here.
> This came in ~an hour ago.
[quoted text clipped - 9 lines]
>
> Patrick (aka Dave )
HURRAH!
I'm off to Lincoln tomorrow but look forward to hearing more when I get back
after the weekend.
Thanks for letting us know.
Mary
Satch - 11 Mar 2005 14:11 GMT
> I guess I could have pasted earlier note here.
> This came in ~an hour ago.
[quoted text clipped - 9 lines]
>
> Patrick (aka Dave )
Woh! Hopefully, the surgery was worth it and helps to prevent the seizures
from occuring + reducting of medications is one of the options, etc. I am
impressed one is actually daring to do this. I can only bowe to these person
that take these kind of decissions.

Signature
Thanks.
Marco
The Netherlands