Below is an older post Julie Walton did last December to someone with a baby
with new seizures.  I included it since it lists 3 weblinks you might find
useful.
 Bookmark the main Idaho website at the bottom (the purple one).  It has a
'First Aid for Seizures' link which describes what the main seizure types
'look like' from the outside, and also what to do with each type.  You might
be more comfortable bookmarking That site too, as it lists 'what we do'
during various seizure types, Plus what People watching us could do to help.
If he swims there is now also a First Aid in Water site, separate from that
one.

 *Most of the seizure types, we're not aware of what we are doing while
they're happening.   But with Simple Partial Types, we remain conscious, and
can often communicate while we have them.   They are sometimes included as
Auras on some Websites, and can just happen on their own (in your son's
Current case), or be the prelude to a stronger seizure for some of us.
  If he can tell you whether he remembers any sensations while it was
happening -- Sour lemon taste or aroma,  Acrid or eggy taste,  Feelings of
either Deja Vu or Jamais Vu  (where he feels like something has happened
before or his own room feels like he's in a stranger's house),  could
indicate if his type of seizure were starting in either the Right or Left
Temporal Lobe.  It's unlikely those above will necessarily be something he'd
feel as he's using different Pills than I used.
  Since I haven't used that medication, his seizure type might start
somewhere else -- someone using that might post later, if they know **where
their 'seizure focus' is- that is which areas of the brain might be active
during his type.

  Anyway, look at the seizure types described on the First Aid Chart (for
one) there, and other resources Julie has put together for us.   If you want
to look up the pills (if you didn't get a printout from the pharmacy),
there's a Glossary of medication types under the Ep. Foundation of
America -- http://efa.org   .   Key in the med. name in the search box, and
click Go? or Search at the top.  It produces a Printable page on each
anti-ep. type of pill in the glossary.
  *If he remembers doing anything unusual before the Aura happened (a new
cold medicine taken?, being over-tired or stressed? )  some of those might
give a clue to what might have triggered it.  *Stress was a major trigger
for my type.
  *Or sometimes even when we're fully Controlled, we can have the odd Aura
from time to time, but which might not recur.   *If he were to have some
more of those, it could be a sign the Medication dose is wearing off early
or he's become used to that dose level, and might need a slight adjustment
to it.
  Many of the medications can take 2-3 weeks to get to the Target dose and
become stable in our bodies.   Someone younger might vary in how quickly
their body purges the dose.   If the Auras become bothersome, the Dr. might
tell you whether the dose should be adjusted, by phone (if they do that
where you are --> where I am, as I got nearer full control my Neuro either
told me whether to add half a tablet and when, or whether to just watch and
see if they recurred -- often then didn't in my case).

   Here's the older post Julie Walton did.   Click onto the Purple Link
first and Bookmark that or mark it as Favorites.  That way you can go back
there without needing to remember the www links each time.

(I miss Houston when I used to fly there, from Canada,  in 1970s to do some
work with Exxon.  Want some Snow? )

(I *Left the original Poster below Julie's Reply since, as you can see, they
were just as upset and worried as you were.  Note though their child was
Younger than your's so what might be advice with repect to them, might not
apply the same as someone at or near Puberty, or with different seizure
types. ) G./   -->
-------------------------------
Welcome to our ng, Jame's mommy.  I know you are very frightened, but try to
realize that you and your family will get through this.  If your child does
have epilepsy, he and you will learn to cope with everyday life and he can
grow up to lead a very productive and happy life.

I volunteer to design and maintain a website for the Epilepsy Foundation of
Idaho.  I recently added information about what they call winning kids
(children who have epilepsy) and scholarship recipients (for college
education).  I think you may find the information about these bright young
people who happen to have epilepsy very encouraging.

http://www.epilepsyidaho.org/winkid.htm  "Winning Kids"
http://www.epilepsyidaho.org/scholar.htm  Scholarship Recipients

Keep in touch with the ng and we will be happy to share our experience and
encourage your participation.

Take care,
Julie Walton, Volunteer Webmaster
Epilepsy Foundation of Idaho
http://www.epilepsyidaho.org

my3sons845 wrote:

The 'Purple site' I referred to in earlier post, showed up as 'Blue' when
the post went up-> Good ole Dell .    The site I referred to there, you
should bookmark, was the one at http://www.epilepsyidaho.org  ,  but I
included the whole longer earlier post since I thought he might find the
other 2 links she included (about school, scholarships etc.) of interest.
G./

I haven't had the video monitoring, just a few regular EEGs.  The EEG
itself is pretty important as far as a diagnostic tool goes.  It can
show abnormal brain waves, what part of the brain are coming from, and
probably how/where they are spreading.  The EEG indirectly can affect
what type of medication is prescribed depending on the type of seizure
disorder they determine he has.  The EEG can also show seizure activity
the patient is not aware of (such as during sleep).  There are probably
other things the doctors look at, but they haven't told me what.

As far as hospitalization for an EEG, like I said, I haven't had video
monitoring but was hospitalized during one study, but I was able to
leave the building to go to the testing center. When a person is
hospitalized, they can do things they shouldn't do in other settings
such as taking away medications or doing tests that might provoke a seizure.

I think some of the other folks who have had video monitoring will pop
in here and tell us about that.

How long has your son been diagnosed with epilepsy, and is Trileptal his
first and only medication?

Barb

He started with a seizure in Oct and Kepprah but he continued to have
seizures (one every few weeks). Now on the Trileptal and going off the
Kepprah, no seisures so far.
He has add several "unremarkable" eegs
Kim