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Medical Forum / Diseases and Disorders / Epilepsy / March 2005Hi there
I sort of jumped in here without introducing my self. Not very good at this kinda stuff so I'll just do it best I can. I have ahd epilespy since I was 9 months old. I went through several bouts of Viral Meningitits and Viral Ensphilitis in a 3 month time period. Which, I was lucky, only developed epil. At the worst of the worst I was having 3-4 seizures a day, almost all of them cp, some going to full generlized seizures. At the height of meds I was on 800 mg of dilantin, 2800 of Tegratol, 3750 of Depakote, 3 gr of Phenobarb and .5 of ativan. I was able to get through college after 6 yrs, 4 and a ahlf still trying to figure out how to learn. the last 1 and a half was cake. :}}} In 1990 I was one of the "lab rats" for the VNS. I had it done at Temple. Would love to talk to any of the other "lab rats" if they are around. In 1998, my doc asked why I had not had brain surgery. I told him what my mom and I were told. That I was not a canidate unless they did a whole lobeotomy, which just wasn't going to happen. After the work up they got it down to the Right Hippocampus. so, since 1999 I have been "rewired". I went from a hight of 1200 seizures a yr to 1 every 12-18 months. Well that is aobut it. Chris > I sort of jumped in here without introducing my self. > Not very good at this kinda stuff so I'll just do it best I can. [quoted text clipped - 20 lines] > > Chris That's an amazing and interesting story. It's great to hear success stories! So what have you been doing since you graduated from college? Barb I was a Mental health Counselor for about 10 yrs and now work in the Data Management filed. BORING. Am trying to get back working the Developmently Disalbed folks. > I was a Mental health Counselor for about 10 yrs and now work in the > Data Management filed. BORING. Am trying to get back working the > Developmently Disalbed folks. That's so interesting. I worked for a county-run sheltered workshop for adults with DD for a number of years. Lots of those folks had epilepsy. Back then I didn't know I had epilepsy myself. Sometimes I'd have seizures right in front of the case managers and they never noticed. I'm glad you want to go in that field. You probably can be more helpful to the DD folks because you know what it feels like. I sure hope you are able to help train the staff because most of them need more training and information than they get when it comes to epilepsy. Barb Barb, Actually I do the orientation on epilepsy for all new employees. Back in 1963 when I was diagnosed with epil, the doctors told mom to place me in a hospital, like the one I work at now. As I would never be able to do anything but sweep, Like I do that now, ask my wife LOL, or pump gas but would not be able to function in the "normal" world. Guess they were wrong. LOL >> I sort of jumped in here without introducing my self. >> Not very good at this kinda stuff so I'll just do it best I can. <snip> >> Chris >> > That's an amazing and interesting story. Yes it is, please don't go away. There might be others who you can encourage. > It's great to hear success stories! Indeed it is. Although it could be said that most of us who post here are successes! Not all people who consider themselves without our perceived problems can manage to understand newsgroups :-) Mary ahhh Newsgroups are the best. I am on a lot of Genealogy NG's and just got called a troll for something I posted LOL. I did nothing different than anyother person would if they had the chance. Or I think so. Thanks for the welcome. See ya around Chris > ahhh Newsgroups are the best. > I am on a lot of Genealogy NG's and just got called a troll for [quoted text clipped - 6 lines] > See ya around > Chris > ahhh Newsgroups are the best. > I am on a lot of Genealogy NG's and just got called a troll for [quoted text clipped - 6 lines] > See ya around > Chris Sorry, I hit send too swiftly. I've been called a troll too (not here - yet <G>). I don't think I am and a lot of people who know me irl have defended me but it's nothing to worry about as long as your integrity is intact! Mary Howdy Mary! How could anybody call YOU a troll? You're a YORKIE!!! Only us folks of Norwegian extract can be trolls!  SignatureDave ???? http://www.howdydave.com > > > ahhh Newsgroups are the best. [quoted text clipped - 15 lines] > > Mary > Howdy Mary! > > How could anybody call YOU a troll? People who don't know about bridges and goats and trip-trapping ... > You're a YORKIE!!! No. I'm a TYKE!!! Get it right :-) > Only us folks of Norwegian extract can be trolls! I've spent a lot of time with real Norwegians lately and last night we went to an Ibsen play. Can't seem to get away from trolls ... <VBG> Mary >> > ahhh Newsgroups are the best. >> > I am on a lot of Genealogy NG's and just got called a troll for [quoted text clipped - 15 lines] >> >> Mary do messages get erased on a discussion group once i haveread itor how do i erase ... > do messages get erased on a discussion group once i haveread itor how do > i erase ... So far as you know, I don't think you can (erase them), unless Webtv service does that. If you want messages to sort by topic, under Tools? or View? you can alter message order to sort (ascending) by Topic, or it there's a miniature 'bar graph' icon, when you click on that under Sort by, then anyone's replies (like this) with the same Subject Line, will appear with the date and time (local to you), that the message came in. My Win.Xp has messages going back to about Sat. or Sunday. That's handy for me, since I might not remember what someone posted when they say, 'which website did you go to find that?' without including what they want from the original message. (You can shorten messages if you open one, and click on Reply to Group, by highlighting, with the mouse, then deleting (with the delete key) parts you don't need. Some people insert <snip> or <edit> but so long as the context of what was being discussed is left, we can figure out what you're talking about usually.) If you see some strange messages that look like they don't belong here, they don't. Yesterday? there were 2-3 posts from people who were sending Junk Mails to about 4-8 newsgroups at once. Under the groups listed, if there are others than alt.support.epilepsy, just leave them to expire. Replying to them will just send your address to the other groups you don't subscribe to, and leave your address open to junkmail from Trolls and Spammers. I've tried a few times to reply to someone who looks like they needed help with Epilepsy Websites or issues and if they put the other mass-mailed lists back on their reply, I don't reply further to them. G./ > My Win.Xp has messages going back to about Sat. or Sunday. Mine goes back to 2 February - but it's done by numbers of posts and can be lengthened or shortened. Mary >> My Win.Xp has messages going back to about Sat. or Sunday. > > Mine goes back to 2 February - but it's done by numbers of posts and can > be lengthened or shortened. > Mary I *think part of it might be determined by the Internet Provider (isp). That's why I looked up and mentioned WebTV, since I know there are others in the U.S.? using that as access and that's what they were using too. I though maybe someone using that might know what WebTV has as standard setting if there is one. If there's an option to set how long to keep messages, e.g. 5 days to 8, etc. on Windows XP I've never found it. Some of the people's posts drop off my reader within 2-3 days, others (usually trolls !) stayed up 5-8 days or longer when I was on Win.95. This one of mine (Win.XP2) I looked up what I had with the newsreader that XP assigned me to access this group. A UK astronomy group I read, some messages there are more than 10 days olde. *They have most of the trolls !! :-< G./ >>> My Win.Xp has messages going back to about Sat. or Sunday. >> [quoted text clipped - 15 lines] > some messages there are more than 10 days olde. *They have most of the > trolls !! :-< G./ My internet provider which is pbt.comm in SC saves the messages back to 11/22 as I am sitting here looking now... I have no option as to when to delete them. ~..~ owlvee >>>> My Win.Xp has messages going back to about Sat. or Sunday. >>>Mine goes back to 2 February - but it's done by numbers of posts and can be lengthened or shortened. >>>Mary >> I *think part of it might be determined by the Internet Provider (isp). That's why I looked up and mentioned WebTV, since I know >> there are others in the U.S.? using that as access and that's what they were using too. I though maybe someone using that might [quoted text clipped - 3 lines] >> This one of mine (Win.XP2) I looked up what I had with the newsreader that XP assigned me to access this group. A UK >> astronomy group I read, some messages there are more than 10 days olde. *They have most of the trolls !! :-< G./ > My internet provider which is pbt.comm in SC saves the messages back to 11/22 as I am sitting here looking now... > I have no option as to when to delete them. > ~..~ > > owlvee I think the ISP determines how far back messages are retained there (and you can shorten that in the browser, I think - or just select and delete everything before a selected time), BUT, unbeknownst (I knew I would find a place to use that word eventually...!;-) by most people, posts are retained for VERY long periods in 'net archives (I think mine from 1996 are still in Google...). Scary! ;-) (Be careful what you write...! ;-) Signature-- David Ruether rpn1@cornell.edu http://www.ferrario.com/ruether > unbeknownst (I knew I would find a place to use that word > eventually...!;-) by most people, posts are retained for VERY > long periods in 'net archives (I think mine from 1996 are still > in Google...). Scary! ;-) (Be careful what you write...! ;-) Yes, do. Unbeknownst TO! Mary >> My internet provider which is pbt.comm in SC saves the messages back to >> 11/22 as I am sitting here looking now... [quoted text clipped - 13 lines] > rpn1@cornell.edu > http://www.ferrario.com/ruether I had a couple of peope write me ~1997/98 who had done a Google on 'Deja Vu' in subject line-- my address came up (since it's a side effect of uncontrolled Right T.Lobe Aura, which we had been discussing here). They wanted me to pick Lottery Numbers for them.... I should have taken them up on the offer, but thought that 20% commission (for me) seemed kind of low, since *I could pay myself 100%, if Deja Vu really worked that way.... I didn't even reply "I Knew you were going to write... " G./ > I had a couple of peope write me ~1997/98 who had done a Google on 'Deja > Vu' in subject line-- my address came up (since it's a side effect of [quoted text clipped - 3 lines] > of low, since *I could pay myself 100%, if Deja Vu really worked that > way.... I didn't even reply "I Knew you were going to write... " G./ I hope I remember this post ... but perhaps I already did ... On second (first?) thoughts I'll print it so that I can read it freshly each day. Mary > do messages get erased on a discussion group once i haveread itor how do > i erase ... Don't know how web tv works, but with our ISP the messages will expire. So sometimes I can read the responses to messages but not the original message because that original message has expired. That doesn't mean the messages are gone forever because there are archives (like Google's newsgroup archives) that are saved for eternity. Barb > I sort of jumped in here without introducing my self. > Not very good at this kinda stuff so I'll just do it best I can. (snip) > Chris Hello Chris, welcome to the group! We are always glad to meet new people and hear their stories. :) Hilary i have a vns too...i got it when people did not know about it........me too was have a lot of seizures--------200 a day..r u still on medicine |
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