A few that came to mind --
1) What are your biggest fears (for your daughter) as a result of her
diagnosis?
2) Do you have any concerns wrt. puberty effects on seizure control? or if
you can still become a Grandparent?
3) Are there any things you'd like to know that her Doctor might not have
told you about, or that you might not understand if they used 'medicaleze'
to explain what to do and what (if any) potential ongoing side effects might
be?
4) Would you or your Daughter be interested in a Local Support Group? (if
there's a Chapter of EFA near where they live that might offer Group
meetings or Presentations on that type of subject).
  The Toronto one I'm near has various 'drop in' type group times during
the week, plus evenings and Saturdays for people (like students or those who
work daytimes) to meet and discuss common issues they might have, in a
relaxing, sometimes moderated, setting.  (We have several Social Workers
with special training in Adult issues, Children's Peer Issues, and Teen
Issues.  And the Teen ones are often set up as 'teen only' so they can
discuss stuff they might not always be willing to discuss with a Doctor or a
Parent, but that might concern them just the same. )

5) Howdy Dave's website (if he's not nearby) might have information with
more detail wrt. the VNS device, although I don't remember seeing anything
wrt. a younger person and whether they'd (ever) need any kind of re-fitting
except for battery changes.  In other words whether the 'charge level' might
need adjusting later as she matures to compensate for increase body mass, or
if that's an issue in how it operates.
  There might be more detail on the Manufacturer's Website, that I think he
used to have within his Website.

Hope some of that helps.   G.   (Bat out of Dell now... )

1. How about social aspects with regards to girlfriends and later on
boyfriends?
2. How about sporting? Swimming for instance?
3. How about choosing jobs? If she wants to become a pilot / surgeon (or
something else that maybe risky for herself or someone else) and she is told
she can't while she had good points on maths or another class, how do you
deal with this telling her that she really can't do this?
4. How to deal with teenager that wants to go dancing in a disco with lots
flashing lights and where booze is being served?
5. If she is not completely controlled later on, how to deal with the
statement: "Sorry, though I do know and appreciate all your girlfriends get
their drivers license by now, you still have some seizures so you can't get
your drivers license"?
6. How about telling your daughter she cannot live on her own (if that is
applicable) their whole live?
7. How about telling your daughter she cannot have full privacy because
someone has to watch her always in case she passes out?
8. How to deal with teachers that might think she is not paying attention
enough because of minor blackouts / seizures?
9. How to deal with your teenager who is constantly dealing with side
effects of medications and because of that, who does not want to take their
medications anymore?

I am out of questions now :-)

Etc.

Howdy Julie!

Getting from hither to yon...
Setting up a transportation network for yourself if you don't live in a city
with public transit.

Setting priorities for living with epilepsy...

Thanks for the reponses.  I'm still putting together the interview
questions, so if anyone has more thoughts please feel free to give more
input.

Julie, Volunteer Webmaster
Epilepsy Foundation of Idaho
http://www.epilepsyidaho.org