Are you sure you've spelt it right?

Like many others on this site, I've been under practically every gadget
that Harry will go through, but I've never heard of an ssep.

I then thought that they could be the letters to the beginning of the
"Chalfont Centre for Epilepsy", but you really started getting me confused
when you added "in 1kaymans terms". Maybe if you gave me, and others on
the site a good solid word in our countless numbers of books on Epilepsy,
then maybe together we could find what we're looking for.

I'm afraid all I can tell you about Harry's condition is that "myo" means
muscle, and "clonic", means jerk. My "encyclopaedia of epilepsy" says
it's as though somebody is having an "electric shock" and therefore
called, the "flying saucer syndrome", the name taken from the actions of
a patient whilst having a seizure, and holding a cup of tea.

What I can do though, as a patient myself, is tell you that when I was in
primary school, I was told that my seizures could have begun by anything
from a trauma, an infection, or even a bang on the head by falling over
in the playground.

Anyway, good luck, and let us all know how Harry gets on.

Sofie    

I found this reasonably clear description.
"Somatosensory Evoked Potentials (SSEP/SEPM)

SSEPs apply a small electrical current to the skin overlaying nerves on
the arms or legs. The test is used to evaluate pathways from nerves in
the arms and legs through the spinal cord to the brainstem, or cerebral
cortex. The test, which is not painful, will cause a tingling sensation
in the area stimulated by electricity. "

Thanks.  I'm not a 'like minded parent', but wanted to comment anyway.  The
trouble with an EEG is some types of seizure activity has to be triggered
during a test (even if it's not visible from 'outside') to locate if there's
a place where the seizures are starting.   The Sleep Depriv. one you
mentioned that's planned, is a second attempt to lower the body's
'resistance' enough so, if any electric activity related to myoclonus is
there, they might be able to see it and locate where it's coming from.
   I was guessing that even though the meds. they're trying looks like it's
not helping, if he's sleeping through the night, it might be suppressing any
Nocturnal Seizure activity?  If that is the case, at least he wouldn't be
over-tired, so more prone to some of the seizure types, if there's something
going on there.  Those might return during the Sleep Deprived test, and
hopefully they will get some 'waveforms'  that will help them tell if it's
really seizures, or not.
  If the Doctors don't know about him being able to control some of them by
tensing as you list below, you might want to mention that to them, as it
might give a clue to which type it could be or if it's something else they
can help him with during his therapy.   They might also have some ideas
whether this type is something that might be 'outgrown' as he matures.
    I wish you luck with this.  G./