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Medical Forum / Diseases and Disorders / Epilepsy / February 2005

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hippocampus / amygdala

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turbinado - 18 Jan 2005 21:40 GMT
I'm contemplating right temporal lobe resection and learned yesterday that
they would also be removing the hippocampus and amygdala on that side. Has
anyone here had that done? What were the effects? I must admit it sounds
very scary!
Satch - 22 Jan 2005 12:10 GMT
> I'm contemplating right temporal lobe resection and learned yesterday that
> they would also be removing the hippocampus and amygdala on that side. Has
> anyone here had that done? What were the effects? I must admit it sounds
> very scary!

Anyone that wants to share his' or hers thoughs on this posting? If I knew
something that helps, I would have replied with an answer.

Signature

Thanks.

Marco
The Netherlands

4707 - 22 Jan 2005 17:14 GMT
> I'm contemplating right temporal lobe resection and learned yesterday that
> they would also be removing the hippocampus and amygdala on that side. Has
> anyone here had that done? What were the effects? I must admit it sounds
> very scary!

Been there. Done that. I take it you have that mesial sclerosis crap
too(spit). 11 months post-op. Everything's peachy. Since the stuff they
remove is already bad, you shouldn't notice any big changes; except in
the frequency/strength of your szs. I "lost" 1/2 to 2/3 the size of a
twinkie (the neurosurgeon's description) from my right TL. I know that
"googling" amygdala & hippocampus and reading about their functions can
be scary. Don't sweat it. There's a lot of reduncy up there.
Personality's the same. Memory's better. Sense of balance is better.
Rhythm is better. Cognition's the same. Then again, that's a function of
the cortex.
Yikes: I couldn't shake the memories of some childhood trauma
(Spit.Spit.Spit.) that only bothered me every five years or so since I
was a kid/teen-ager. It has to do with the function of the hippocampus
or amygdala. No, I didn't go over the edge. I finally had to resolve the
anger & inwardly directed rage. Don't sweat that "fight or flight"
function of one of them either. You will not be a raving maniac after
surgery; unless you were one before. <grin>
I have asked long-time friends if they thought my personality changed
post-op. They said no, but then added they thought I was more relaxed.
I was and still am an exercise fanatic/junkie. My record pre-op was 1000
calories/40 minutes. My record post-op is 1000 calories in 37 minutes.
No, I never got exercise-induced seizures. I always got mine shortly
_before_ starting. (Spit.)
Best of Luck. See you on the other side.

No "_" in email address.
turbinado - 23 Jan 2005 22:11 GMT
> > I'm contemplating right temporal lobe resection and learned yesterday that
> > they would also be removing the hippocampus and amygdala on that side. Has
[quoted text clipped - 27 lines]
>
> No "_" in email address.

Thanks for your thoughts - that's reassuring. Glad to hear that you're not
jumping out of moving cars...
What side of the brain was your surgery on? Is there any difference in your
social interaction? Also, has your art/music appreciation or creativity
changed?
4707 - 25 Jan 2005 15:15 GMT
> > <big snip>
> > _before_ starting. (Spit.)
> > Best of Luck. See you on the other s

> Thanks for your thoughts - that's reassuring. Glad to hear that you're not
> jumping out of moving cars...
> What side of the brain was your surgery on? Is there any difference in your
> social interaction? Also, has your art/music appreciation or creativity
> changed?

Good question. Mine was on the right. The neurologist warned me <spit>
that I may lose my appreciation of music, or at least my tastes/likes &
dislikes would/could change. That possibilty was a death knell for me. I
spend (geez, time & money) 5 to 6 nights a week in local clubs listening
to music, and working/playing/drinking(shh) with musicians, their
agents, or girl friends(shh). Yes, I do "those really good alkaloids"
too. The way excellent news is that there was absolutely no negative
effects (for me anyway) from the surgery. I even have a better time and
do my "job" better than ever. I do everything from klezmer, to punk, to
bluegrass, to surf, to lounge acts. Yes, I still roll down the windows
and crank it up. Yes, I'm in Wisconsin and it's January. Yes, I even do
it on the expressway. I am having a blast.

Yikes. Idiot boy (my neurologist, because of all his dire
prognostications) also said I could lose any religious-osity I might
have. Spit. I'm a superhybrid so I tried Lutheran, Catholic (I made a
novena and everything. How cool is that, considering I had no clue to
what I was doing or why I was even there?), a local community church,
and went to something here called Shalomfest to touch bases with my
cousin Jerry's family. Bottom line; I didn't lose anything post-op
because there wasn't anything there in the first place to lose.

Bottom bottom line; I'm seizure free. Med free. My music's louder. I'm
up later. Burn more at the gym. Have more sex. (Yes, my neurologist said
I could lose interest in that too. See "idiot boy" reference above. No,
not "spit" this time. <swallow> :^)). Yes, I was pretty wild before.
Still am.
Also did a lot of really neat meds(hmm). Still do. Let me put it this
way. When I went in for my video EEG I wore anklet socks in bed. Not to
keep my feet warm, but to hide the veins in them. Yes, I took zips in
hospital to hasten sleep deprivation & exercise induced seisures. As a
last resort, yes, I chose (idiot-boy = me) to chew (yes chew) 3 or 4
Wellbutrin SR's every half hour till "they" got their damned grand mal
and I could go home.
See you on the other side. (No underscores in e-mail)
turbinado - 25 Jan 2005 20:42 GMT
(snip)
> Also did a lot of really neat meds(hmm). Still do. Let me put it this
> way. When I went in for my video EEG I wore anklet socks in bed. Not to
[quoted text clipped - 4 lines]
> and I could go home.
> See you on the other side. (No underscores in e-mail)

Wow, and I thought I was wild! ;)

Thanks so much, you've made me feel alot better. My neuro said the only real
risk was losing my musical/artistic appreciation, which would be hell on
earth for me too.

Look forward to meeting you on the other side...

Hilary
Liz & Allan MacDonald - 26 Jan 2005 01:30 GMT
> Thanks so much, you've made me feel alot better. My neuro said the only real
> risk was losing my musical/artistic appreciation, which would be hell on
> earth for me too.

Hilary,
Before my temporal lobe surgery musical deficits were mentioned as a
possible side effect.  I'm a singer, and I jumped all over that
statement.  It turned out there was someone at Mass General studying
just that.  He was more specific, and said the effect might be that I'd
be unable to distinguish pitches within half a tone.
Anyway, my sense of pitch is still completely accurate.
Liz
K I - 24 Jan 2005 05:25 GMT
 
 All I know is that when I had my Left MTS removed in that area of my
brain, I went through a battery of tests and then was forwarned on
exactly what functions I was going to lose, how much of it and to fly
home and to think Looong and hard on it  before making my decision.  Did
your Dr.s not give you any info like this? If not I wouldnt be having it
done.

Good Luck in whatever road you choose!
 
kompressor - 26 Jan 2005 07:57 GMT
Had a right done in '99 and it significantly reduced seizures. Don't worry
too much about the music thing - I've learned to play piano since the
lobectomy - love it and have no difficulty with pitch/tone.

Best of luck to you!

Fran
4707 - 27 Jan 2005 19:31 GMT
In article <8958404227a359f4cd35eee299b633f6
@localhost.talkaboutsupport.com>, franryan@nospam.xtra.co.nz says...
> Had a right done in '99 and it significantly reduced seizures. Don't worry
> too much about the music thing - I've learned to play piano since the
[quoted text clipped - 3 lines]
>
> Fran

Same here. I even learned to juggle post-op; only up to 3 balls but how
cool is that? Rhythm & memory both better. Considering I had surgery on
the _right_ temporal lobe, I now write, turn pages, use table utensils,
shave... and everything else you do in the bathroom (hmmmm...) with my
_left_ hand. Can't figure it out. No, I wasn't ambidexterous before. But
it sure freaks out my wife. On the other hand (no pun ended), I think
it's like so cool. By the way, my attitude also freaks out my wife.
<sigh>
Chris - 22 Feb 2005 23:13 GMT
I had the Right Hippocampus removed in 1999. My seizures have gone from
1200 CP and 2nd Generlized a year. The seizures I have now scare the
crap out of my wife, a paramedic of 20+++ yrs, but am glad I had it all
done.
My neuro wants to stick me on another med, I'm on Tegratol XR 400MG BID
and lamictal 200 AM, 300 Bedtime, saying I know we get this under
control.
I tried to explain to him that it is ok. Quality of life over Quanity
of life.

If your docs feel good about and you feel good about it go for it.
I'll be glad to answer any questions you have, if you want.

Chris
G.Ross - 23 Feb 2005 01:13 GMT
>I had the Right Hippocampus removed in 1999. My seizures have gone from
> 1200 CP and 2nd Generlized a year. The seizures I have now scare the
[quoted text clipped - 9 lines]
> I'll be glad to answer any questions you have, if you want.
> Chris

 In case you didn't see an earlier note I did, or weren't told, don't use
Any Grapefruit Juice with the Tegretol.  One of the acids conflicts with it.
Any other juice, or milk or food is OK to help it digest without stomach
upset.
  I don't have any experience with Lamictal but there are a few others
around who have used it.  I don't remember much negative about it except
some people who have a reaction to it get a rash?  Otherwise if there's
nothing negative, it seemed to work for ones I saw posts from.
   If you can find one of Julie's Posts, click to the Idaho site and find
the First Aid for Seizures Chart and print it if you think it would help
your wife.    It's a good summary of what to do and Not do, to help us come
'back' and if they get us out safely, they likely will feel more comfortable
(eventually  :-<  )   G./
turbinado - 23 Feb 2005 01:26 GMT
Thanks Chris.  I have decided to have it done and it's scheduled for March
3rd.
Wish me luck!

> I had the Right Hippocampus removed in 1999. My seizures have gone from
> 1200 CP and 2nd Generlized a year. The seizures I have now scare the
[quoted text clipped - 10 lines]
>
> Chris
turbinado - 28 Jan 2005 01:57 GMT
Thanks everyone for all your input. I'm actually starting to look forward to
this, or at least to getting it over with!

> I'm contemplating right temporal lobe resection and learned yesterday that
> they would also be removing the hippocampus and amygdala on that side. Has
> anyone here had that done? What were the effects? I must admit it sounds
> very scary!
Satch - 28 Jan 2005 05:01 GMT
> Thanks everyone for all your input. I'm actually starting to look forward
> to
> this, or at least to getting it over with!

Let us all know how it went and hopefully you won't forget to come back to
us later on!

Signature

Thanks.

Marco
The Netherlands


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