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Medical Forum / Diseases and Disorders / Epilepsy / February 2005Complex Partial Seizures - Anxiety
My first reaction was to say yes such things do happen and most neurologists don't know enough about epilepsy to confirm it. My fits now consist of a short aura, a short time when I might be grunting and/or rubbing my thumb on the fingers of my right hand and then I go into what I call an automatic phase when I'm obviously aware (as I've never done anything dangerous like crossing a road with cars coming) but not recording. After the fit, I have no memory of what's happened since the aura, have usually tried to go to bed or go home if I'm out. Yesterday someone who I'm seeing in her professional capacity described what I'd done in the fit I'd had at my prvious appointment. Apparently I was determined to go out of the wrong door so she had to guide me to another one (after I'd been through my choice) to get me back in the public area. Then while she went off the car, the other person with us watched me go round the car park trying all the car doors. Then when she'd given me a lift home I asked how much it would be, as I often use taxis. Then my husband came home and, now it was no longer her responsibility, she realised how funny these events can be. These fits are becoming more of a nuisance than the obviously odd actions I used to make because the other day I went as far as buying things I didn't want. Fortunately, the shop was happy to refund on return but another day I came home with a jar of apricot and ginger chutney and no idea where I'd bought it ! Fortunately it's very nice so I didn't want to return it. However, what can I do ? - laugh ! (and educate professionals!) Chris L. Hi Chris Good neurologists know partial seizures very well because more people have partial seizures than any other seizure type. Have you thought of surgery at all? If you qualify for a lobectomy, these embarrassing incidents could become a thing of your past. I urge you to consider the possibility and speak with a professional about it. Take care Cheers Fran > Hi Chris > Good neurologists know partial seizures very well because more people have [quoted text clipped - 7 lines] > Cheers > Fran Hi. Compared to lots of us, Simple Partial type szrs. are fairly 'minor'.. As I got closer to full control for C.P. seizures where I'd lose all awareness of where I was or potential danger of Traffic or Wandering somewhere Dangerous, I'd have the odd Aura (or simple partial) seizure. While some of what the poster described might be disturbing or upsetting if they looked at them negatively *I certainly wouldn't let someone perform a Lobectomy on ME, just to control what are less severe seizures than I had in 1992-4. I might have misunderstood how severe their type of seizure was, but there are TONS of new medications that might control their type, that are far less invasive than a 'bone cracker' to cure or reduce an Aura. (My original diagnosis in 1993 told me to expect a **hoped-for 'target' of 2-3 Complex Partials per month. Tinkering with 2 of 3 medications during 1993-5, my last 2 szrs. were Dec. 1997 and June 98.) G./ Having tried every anticonvulsant on the market and still having seizures four to six times a day where I was raving a lot of rubbish to people then sleeping for hours afterwards was the motive. Even after a lobectomy there are breakthrough seizures because the sclerosis continues to grow. My intention was to encourage someone who very well may be seizure-free after a lobectomy. > My intention was to encourage someone who very well may be seizure-free > after a lobectomy. It seems a rather drastic step, to have part of your brains cut out, just to rid yourself of complex aura's. Take it from me Chris, I've learn't to live with mine, and so has hubby, and like you, we still have a good laugh at them. Sofie > Take it from me Chris, I've learn't to live with mine, and so has hubby, > and like you, we still have a good laugh at them. Yep, it is good to see how people can deal with this themselves. However I just reread the part of "stealing" in the first two or three postings. Then this can become more of a nuisance as was stated in the first posting. It must be difficult to live with, because shop owners usually don't like people stealing and I guess they do not care about our condition because they want to protect their stuff. How does the police react to this -you must be wearing some kind of medical alert however not all policemen throughout the world know enough about epilepsy?  SignatureThanks. Marco The Netherlands > How does the police react to this -you must be wearing some kind of medical > alert however not all policemen throughout the world know enough about > epilepsy? I've only done it in Sainsburys a couple of times before I was married, but nowadays, if I go into a supermarket, or into the town centre, my other half always comes with me and either put things back on the shelf, or help me run to another isle to get away from the puddle on the floor. It isn't such a problem in local shops, as all the shop keepers know who I am and what I suffer with, so I can go alone without being chaparoned, and if I take something off the shelf, they can always put it back for me, knowing that I wasn't trying to steal anything from them. Sofie I think you are confusing people. I have never mentioned the possibility of a lobectomy. All I said was that doing things within a fit that one would not have done outwith it was a nuisance and other people (including professionals) might not understand. Chris L. > > My intention was to encourage someone who very well may be seizure-free > > after a lobectomy. > It seems a rather drastic step, to have part of your brains cut out, just > to rid yourself of complex aura's. > Take it from me Chris, I've learn't to live with mine, and so has hubby, > and like you, we still have a good laugh at them. > Sofie > these > embarrassing incidents could become a thing of your past Sorry to tell you this Chris, but you're never going to completely get rid of them. As my complex aura's seem to come mixed with several different types of other seizures, I still find that the best way to stop these "embarrassing incidents", is to run! After all, you don't want to be caught in "Sainsbury's" stealing, or wondering how that "puddle" got underneath your feet...speaking from experience, I think that you probably just nicked that ginger chutney and didn't know about it. Sofie > These fits are becoming more of a nuisance than the obviously odd actions > I used to make because the other day I went as far as buying things I > didn't want. Fortunately, the shop was happy to refund on return but > another day I came home with a jar of apricot and ginger chutney and no > idea where I'd bought it ! Fortunately it's very nice so I didn't want to > return it. Hehehe :-) I would buy myself that Porsche, drive the hell out of it and then return it after a good night of sleep as you say. SignatureThanks. Marco The Netherlands |
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