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Medical Forum / Diseases and Disorders / Epilepsy / February 2005

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exercise induced seizures

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ssssss - 22 Dec 2004 02:27 GMT
I know this has come up before, but has anybody had experience with
exercise induced seizures?  I've had grand mals for over 20 years.
However, the last 7 or 8 have been within 20 minutes of working out--or
while working out.  I usually run on a treadmill.  I have very
qualified epileptologists, but I have not gotten an explanation of how
exercise causes them.  My body is getting messed up--the last one gave
me some nasty scrapes on my face and a shattered shoulder that needs
surgery. (I'm on keppra, getting off dilantin and onto lamictal).
Thanks for listening.
Satch - 22 Dec 2004 04:57 GMT
> I know this has come up before, but has anybody had experience with
> exercise induced seizures?  I've had grand mals for over 20 years.
[quoted text clipped - 5 lines]
> surgery. (I'm on keppra, getting off dilantin and onto lamictal).
> Thanks for listening.

I am sure someone out there is having similar experiences and maybe he or
she can tell us more about this game.

Sometimes one can get a seizure just after the sporting exersice (I do not
really know what a treadmill is as English is not my native language) so I
assume it is the running machine in a fitness hall. You however should not
get any during the sporting excersise.

I do not have this experience with excersise induced seizures though I jog
5.5 KM per day.
Signature

Thanks.

Marco
The Netherlands

G.Ross - 22 Dec 2004 09:32 GMT
>> I know this has come up before, but has anybody had experience with
>> exercise induced seizures?  I've had grand mals for over 20 years.
[quoted text clipped - 13 lines]
> assume it is the running machine in a fitness hall. You however should not
> get any during the sporting excersise.
*** A treadmill is what you suggested above.  The slope speed of the moving
belt can be adjusted from a medium to fast walk, up to a faster walk or jog.
They are used in Gymnasia Indoors where there are colder winters or where
there are *other Exercise machines, in addition to just the Treadmill.
  Earlier, I said if they had that Walk or Run rate set too high for their
szr. type or Medicines, they might be exercising the dose level out of their
blood faster than the Doctor wanted.  Above they said they were Jogging so
exercising their Heart Rate and lungs higher than just a Fast Walk speed.
  That's why I suggested they ask the Doctor, Fitness Staff (if they'd
know) or Pharmacy if there's a www address other than efa.org about their
Pills, that might tell them if a pill might be 'washed out faster' using
those machines than just Walkers, like myself..  G./

> I do not have this experience with excersise induced seizures though I jog
> 5.5 KM per day.

** That's a pretty good Distance (3+ miles for people who use miles = 54
blocks), but you probably started at, example, Half a Kilometer? each day
for 5-7 days,  then after a week 1 Km? then 1.5? etc. up to where you're at.
  I couldn't tell from his earlier post if he was on an exercise program
that slowly adjusted distance or speed for him as he increased *pills, or if
he started at a Longer Distance or Faster Speed before he was first
diagnosed.  In that case he might be 'burning off' some of the medicine
faster than olde slow guys like me?   (In summer I can walk between 6 and 10
miles a day -- 10km to 16+km, but when the snow gets deeper outdoors, I
adjust that down to correct for the extra 'work' of walking through 10 cm
powder snow.   That's another advantage, for him, of using the treadmill
Indoors. Once he reached his Target distance, he can follow that amount each
day and it accurately tells him Distance and speed he's doing. )  G./
Satch - 22 Dec 2004 17:33 GMT
> *** A treadmill is what you suggested above.  The slope speed of the
> moving
> belt can be adjusted from a medium to fast walk, up to a faster walk or
> jog.
> They are used in Gymnasia Indoors where there are colder winters or where
> there are *other Exercise machines, in addition to just the Treadmill.

Hehe...okidoki. I just learned another English word then :-)

> ** That's a pretty good Distance (3+ miles for people who use miles = 54
> blocks), but you probably started at, example, Half a Kilometer? each day
> for 5-7 days,  then after a week 1 Km? then 1.5? etc. up to where you're
> at.

Hehe...no no, jogging may not be the best word of choosing. I run on the
treadmill in the fitness hall. Within 30 minutes I finish 5.5 KM (or 3+
miles). Today I did not run, but did some "cross training" which is like
cross-country skiing (skiing with sticks that move along with your upper
body). I have been training now for about one month only and yes, I am
living on the edge regarding this fitness game as I usually get bored of not
seeing results regarding condition improvements and so on. First I started
wth 3KM in 10 or 15 minutes, then I ran 20 minutes (can't recall the results
in KM anymore), then I started to hit the 30 minutes limit which resulted in
5.2KM and later on 5.5KM. Hopefully I can get more out of it but maybe this
is well enough. As I do this during lunch break at the fitness hall near my
work, I cannot really run more then 30 or 40 minutes as I need to get a
shower before I start working again!

So, it is not really "jogging" what I am doing and one cannot really make
the following calculation: 5.5KM in 30 minutes = 11KM in 60 minutes. When
the 30 minutes enters, I need to press the stop alarm to get the damn thing
to stop as soon as possible otherwise I am "flying through the air" off the
treadmill so to speak! :-)

Signature

Thanks.

Marco
The Netherlands

G.Ross - 22 Dec 2004 05:49 GMT
>I know this has come up before, but has anybody had experience with
> exercise induced seizures?  I've had grand mals for over 20 years.
[quoted text clipped - 5 lines]
> surgery. (I'm on keppra, getting off dilantin and onto lamictal).
> Thanks for listening.

Have you tried searching under http://efa.org (the Ep. Foundation of
America) or even with Google to see if there might be any stuff related to
Heart rate decreasing (at end of your workout) or Blood Pressure changes
affecting the stability of any of the seizure meds. you listed?
  I don't have any experience with that, but when I was first on Dilantin
for example, I seemed to get auras (related to Complex Partial szrs) when it
was really hot or muggy outdoors or if I was in an overheated room or had
been exerting myself more than normal.   I wondered as your heart rate is
decreasing following the workout, if something like your blood pressure or
heart rate dropping back to 'rest mode' was causing an interruption in the
control levels the meds. had given you in 'rest mode'.
  Is there a fitness centre near you, or even a Local Chapter of an Ep.
Association?  They might have someone on staff who has experience wrt.
whether a slower 'ending period' where you finish your workout, but more
gradually might give you the exercise you want, but allow you to stabilize
more gradually?
   That efa site also has a medications glossary, but if there might not be
anything there under the current and newer pills you are using, I found my
Pharmacist an excellent (free) source of information about the sorts of
things you asked above, but specifically if any of the symptoms might be
aggravated by a conflict between any of the Pills plus the exercise phases
you are going through.
  If you find anything on that, and don't hear from others on the group,
post any comments back here, as there are likely others who could benefit by
knowing any 'workarounds' that would save them having to go through the same
sort of thing.   G./
Bill X - 22 Dec 2004 17:12 GMT
> I know this has come up before, but has anybody had experience with
> exercise induced seizures?  I've had grand mals for over 20 years.
[quoted text clipped - 5 lines]
> surgery. (I'm on keppra, getting off dilantin and onto lamictal).
> Thanks for listening.

I also have problems with running triggering seizures afterwards only mine
are Simple Partial.  I've been taking a combination of dilantin and keppra
and my neurologist theorizes that my running is pulling blood away from
brain to the point where abnormal areas are greatly affected.

I've found running ladders (slow to fast cycles rather than single pace) and
cutting back on total miles helps me.  Let me know if you find anything
effective and good luck!

-Bill
malcolm@need.to.remain.anon.ok - 22 Dec 2004 22:06 GMT
>I know this has come up before, but has anybody had experience with
>exercise induced seizures?  I've had grand mals for over 20 years.
>However, the last 7 or 8 have been within 20 minutes of working out--or
>while working out.  

Hi,

Malcolm here, poking back just to wish Mary, Marco and everyone on ASE a
Happy Christmas.

WRT your post I had exercise-induced seizures, which started for no
apparent reason after several years of marathon running. Usually after
about 15 minutes but it depended how demanding the terrain was. Similar
to you, they sometimes also came on after about 15 minutes of finishing,
so I used to sit on the bike and just wait until I was sure all my
systems were back to normal before I drove home.

A 7 day heart trace showed no abnormalities, and blood pressure, glucose
levels, oxygen etc were all investigated when they put me on a treadmill
and ran me into a seizure (wow, did I feel like a laboratory rat!). Low
blood pressure was the only physiological abnormality which showed up.

I never found out what caused them. I carried on for another two years,
training every night, racing every w/e and stubbornly swearing that I
wasn't going to let it beat me before I finally admitted that giving
myself seizures every day wasn't achieving anything.

However, other physical exertion never seemed to trigger it and I
happily indulge in cycling at the hundred mile a day mark, or open water
swimming for hours at a time with no problems. Try swapping to a less
demanding but more stamina based workout and you may find you get the
same overall exercise without the attendant seizures? On a rowing
machine I can take my heart-rate up to 180 with no problems (I'm 47 so
that's above the max limit for my age). You could consider getting
yourself a Polar radio heart monitor which links up to most treadmills
just to monitor that side of things.

Looking back, I think the only thing I didn't change in an attempt to
beat it was a blood serum level of caffeine strong enough to wake the
dead. Maybe that's something for my New Year's Resolution list? :)

Signature

Malcolm

Satch - 25 Dec 2004 07:38 GMT
> Malcolm here, poking back just to wish Mary, Marco and everyone on ASE a
> Happy Christmas.

You too Malcolm..I am a bit late though!

Signature

Thanks.

Marco
The Netherlands

ssssss - 28 Dec 2004 22:15 GMT
Hi All,

Thanks for the responses--I am back from several morphine at the
hospital after yet another seizure.  Tomorrow is shoulder surgery, then
back to the epilepsy question.

I will follow up on the theories that the medicine is being "washed
out" by the exercise. and that the blood is being pulled away from the
sensitive part of the brain.

Since my last seizure I have given up a caffeine habit that was very
bad--how about excessive caffeine plus exercise?   Hmmmmm.
ssssss - 28 Dec 2004 22:36 GMT
Ok, I just spoke with my pharmacisct, she did not think exercisee would
"wash out" the medicine.  But now for my new post--Caffeine and
epilepsy---would caffeine--I mean like 100 ounces of coffee per
day--raise one's metabolism to the point where the body just does not
absorb the meds?

Thanks (I've given up jogging for the stationary bike)
G.Ross - 29 Dec 2004 00:19 GMT
> Ok, I just spoke with my pharmacisct, she did not think exercise would
> "wash out" the medicine.  But now for my new post--Caffeine and
> epilepsy---would caffeine--I mean like 100 ounces of coffee per
> day--raise one's metabolism to the point where the body just does not
> absorb the meds?
> Thanks (I've given up jogging for the stationary bike)

Hi.  I don't have the olde posts. Can you repeat which meds. you are using?
Some might be more sensitive or easily diluted (or flushed away) by higher
heart rate -- therefore metabolism?   That was what I think one of my older
posts was getting at when you mentioned exercise followed by later szr.
onset.  The higher heart rate, I would have thought would speed up the
kidneys? or wherever the Fluids (so chemicals) were being purged from your
system?  I think that's what I wondered about when you mentioned the
exercise, then the cool down, then the onset.
  If the Dr. or Pharmacist don't think that would be a trigger, I'm willing
to give them the benefit of the doubt.  But as we adjust to new medications,
or dosing levels, *we are the ones who are around our bodies 24/7 so we
might be first to notice any things that relate to what we were doing ahead
of a seizure and which things seem to make us more prone to an aura or szr.
and which things don't seem to be related.
   (*I found out about the Grapefruit acid that conflicts with Tegretol
(for one)  completely by accident.  I didn't often use G.fruit, since I
dislike it, but people  always said 'well it's healthy so it's good for
you...'.   The few szrs. I had after using it came more than 12 hours after
I had taken some with the Tegretol dose.  I had stopped using that, for
example, Long before I found an article about its conflict with Tegretol.)
**
  Which medications are you using?   Some of them might be more sensitive
to e.g. exercise or caffeine than others.  If you don't need coffee anyway,
you could try switching to fruit drinks or *herbal teas etc. -- ones which
*don't contain caffeine to see if there's any noticable improvement. (Some
'regular teas' contain caffeine but are usually marked these days if they
do, and 'Cola' contains Caffeine too.)

  With respect to the caffeine, it increases heart rate (so metabolism?) in
some people and many hate or avoid it.   I have a 'drip thermos' I use if
I'm at home all day that's about 6 x 6oz.cups per time.   If I get snowed in
(like last week), I've had 3 or 4 of those a day.  So I'm at about the level
you use per day, although our medications, sensitivities, weight and
metabolisms, by definition would likely be different.
   If we *both quit together, the economy of Columbia might collapse! :-<
I use DeCaff later in the day, and Swiss Water Process has less chemicals
wrt the decaffeination than olde style methods. Some people are more
sensitive to *additives than e.g. above type decaf. method.   G.

Did you look through the http://efa.org and Julie's Idaho website I've
posted about a few times over last 4-5 days?   There might be something
under tips and tricks or info. specific to **your medications under the efa.
medications glossary that might have something that you or the pharmacist
hadn't thought about during your travels?   /
ssssss - 29 Dec 2004 07:08 GMT
Wow,
Thanks for your help.    I was taking dilantin, and the seizures were
preceded by an aura during exercise or right after.  Once, walking
after jogging, I sat down for 3-4 minutes before it hit.  I had a few
episodes where I got off the tread mill aand went up to strangers,
"Dude I'm about to have a seizure. . . "  Then I started taking Keppra.
I love it. Yeah, I was tired at first, but with all my caffeine
intake, I didn't mind. Anyway, things were looking good, I went to the
gym, exercised (a good workout for me is about 40 minutes at about
160/pulse) and was ok for about 5 times.  Then, one day, I came back
home from the gym, feelin' good, laying on then bed--boom!  Next thing
I knew was I was in the hospital with a dislocated shoulder.

I started on Lamictyl, and started weaning off dilantin.  The LAmictal
was at about 300mr/day, dilantin was the same (down from 800)--Keppra
3000 mg/day.  I did ok at the gym about 5 times.  Then I found myself
in the hospital--I'd fallen on the treadmill (the thing you run on at
the gym) and dislocated AND fractured my shoulder (to be repaired in 8
hours--wish me luck!).

I've decided to eliminate coffee--it can't be helping.
And yes, I will start cycling! :)
Bill X - 29 Dec 2004 19:30 GMT
I gave up all caffeine except for an occasional chocalate cheat and it has
helped reduced my episodes.  I was drinking diet coke by the case so unsure
if it was the caffiene, aspertame, or combination as there is contraversy
over both.  Another thing I found helpful was staying well hydrated during
and after exercise.

> Wow,
> Thanks for your help.    I was taking dilantin, and the seizures were
[quoted text clipped - 18 lines]
> I've decided to eliminate coffee--it can't be helping.
> And yes, I will start cycling! :)
Malcolm Thomas - 29 Dec 2004 20:49 GMT
>    If we *both quit together, the economy of Columbia might collapse! :-<

Am I correct in believing that caffeine is the second largest economy in
the world anyway, with over 80% of all humans consuming it in some form
every day?

Gives you yukky headaches if you try to give it up though :(

Signature

Bubbleghost     þ

Satch - 30 Dec 2004 05:41 GMT
> Am I correct in believing that caffeine is the second largest economy in
> the world anyway, with over 80% of all humans consuming it in some form
> every day?
>
> Gives you yukky headaches if you try to give it up though :(

Verry correct! I am responsible for approximately 79.9999999% of that 80%
caffeine concuming economy / society...go figure! Having to stop with
drinking coffee would probably make me ill as no one can imagine.

Signature

Thanks.

Marco
The Netherlands

G.Ross - 17 Jan 2005 02:06 GMT
>>    If we *both quit together, the economy of Columbia might collapse! :-<
>
[quoted text clipped - 3 lines]
>
> Gives you yukky headaches if you try to give it up though :(

 But Economy Engine number one Tastes yucky (I assume).   I once worked at
a Refinery (as a Student) but never had a desire to taste the Crude (dude).
  Or did you mean Chocolate was no. 1 ??   Now **That might make sense...
G./
Julie - 23 Dec 2004 20:42 GMT
Just a thought, if you are using a treadmill in a fitness place, is it a
really noisy environment?  I tried a gym membership and I had to leave more
often than I stayed to exercise.  The noise of all the people running on
the treadmills and the noise of the music was so bad.  I complained but
they just didn't get it.  Even people who didn't have epilepsy issues
weren't too thrilled with the loud music.

Take care,
Julie

> I know this has come up before, but has anybody had experience with
> exercise induced seizures?  I've had grand mals for over 20 years.
[quoted text clipped - 5 lines]
> surgery. (I'm on keppra, getting off dilantin and onto lamictal).
> Thanks for listening.
Satch - 25 Dec 2004 07:35 GMT
> Just a thought, if you are using a treadmill in a fitness place, is it a
> really noisy environment?  I tried a gym membership and I had to leave
[quoted text clipped - 3 lines]
> they just didn't get it.  Even people who didn't have epilepsy issues
> weren't too thrilled with the loud music.

Try another fitness place or wear a sound device with our without the sound
enabled. That may help. Most times I run in the fitness centre I have to
concentrate a bit because I don't hear the music at all!

Signature

Thanks.

Marco
The Netherlands

ssssss - 31 Dec 2004 17:21 GMT
Sound has never really bothered me, although I did start covering the
blinking numbers on the treadmill with a towel.  That didn't work.  :(
Satch - 01 Jan 2005 13:10 GMT
> Sound has never really bothered me, although I did start covering the
> blinking numbers on the treadmill with a towel.  That didn't work.  :(

Try to eat a bit before and after and remember that the most important meal
of the day is "having breakfast". At that point, your systems are starting
up properly so to speak.

Signature

Thanks.

Marco
The Netherlands

ssssss - 02 Jan 2005 08:39 GMT
ok, the new plan is to cut off the caffeine and to eat breakfast!  I've
had about a dozen harsh grand mals in the last three years--hopefully
you'll see a post dated 1/1/06 that shows this has worked!
Satch - 02 Jan 2005 10:00 GMT
> hopefully
> you'll see a post dated 1/1/06 that shows this has worked!

Cool!

I will sent you my private account details by then :-)
Signature

Thanks.

Marco
The Netherlands

tossie - 24 Dec 2004 03:04 GMT
I have had experience with exercize-induced seizures.  My doctor and I
believe it was because my blood sugar went too low.  This happens when I
over-exert myself like I did running a mile in a school gym class when I
hadn't been working out or trained for it.  For me, when my blood sugar is
low, I'm more likely to have a seizure.

Now I run on the treadmill at my gym for 30 min at 4.5m/hr.  Once I get off
the treadmill, my legs feel tired and I am not breathing very heavily.  I
don't feel extremely worn out.  I build up slowly without over-exerting
myself or losing too much blood sugar.

>I know this has come up before, but has anybody had experience with
> exercise induced seizures?  I've had grand mals for over 20 years.
[quoted text clipped - 5 lines]
> surgery. (I'm on keppra, getting off dilantin and onto lamictal).
> Thanks for listening.
ssssss - 31 Dec 2004 18:04 GMT
Ahhhh,
get this, my usual habit is to not eat all day, drink a ton of coffee,
and take exedrine in the morning.  Would these factors lower blood
sugar?  Would exercise (8/min mile) aggravate that?

It sort of pisses me off.  My doctors are very nice and smart, but
rather than say, "since exercise seems to cause them, lets look at
those factors. . . ." the two I have seen in the last two years, have
not wanted to hear anything about the exercise, etc., It's "we have new
meds now and if that doesn't work, we can see about surgery."  I was
leaning towards surgery ( an MRI shows a lesion in left-temporal lobe)
but after my shoulder surgery, I am very reluctant to have another
surgery.  (If shoulder surgery is this bad, I can only imagine what
brain surgery must be like).  The Lance Armstrong book has advice--take
control and seek a doctor that feels right.

BTW, I would really like to thank this group for all it's help and
support--internet tis good!
Satch - 01 Jan 2005 13:08 GMT
> get this, my usual habit is to not eat all day, drink a ton of coffee,
> and take exedrine in the morning.  Would these factors lower blood
> sugar?  Would exercise (8/min mile) aggravate that?

Oei, if you do not eat you will definately get health troubles with or
without Exedrine. When I start running, I usually eat a small sandwich
before the excersice and right after the excersise, I take a another
sandwich or two. During the exsercie I have a small plastic bottle of water
with me.

>  I was
> leaning towards surgery ( an MRI shows a lesion in left-temporal lobe)
> but after my shoulder surgery, I am very reluctant to have another
> surgery.  (If shoulder surgery is this bad, I can only imagine what
> brain surgery must be like).  The Lance Armstrong book has advice--take
> control and seek a doctor that feels right.

I never had a brain surgery but broke my collarbone while I was showering
and yes I had to be operated as well (it was a small operation as I did not
had much pain afterwards and I am now having a small steal thing in my
shoulder which you cannot really see from the outside). I assume, as you are
also already doing, that this is not really the same as a brain surgery? I
read somewhere on the net (Dutch language only) that someone who had to
undergo brain surgery described that if you had ever thought you knew what a
nasty migraine was, then you are wrong. So, I guess you will get a nasty
headache afterwards and I guess you need some help of family member
regarding daily grocery shopping, etc. (weeks? months?).

There are some others out there in this newsgroup that can help you much
better then I can.

Signature

Thanks.

Marco
The Netherlands

G.Ross - 17 Jan 2005 02:23 GMT
> Ahhhh,
> get this, my usual habit is to not eat all day, drink a ton of coffee,
[quoted text clipped - 14 lines]
> BTW, I would really like to thank this group for all it's help and
> support--internet tis good!

G.   So you don't take any Anti Ep medication in the Morning? Just excedrin?
(or even mix exced. with a medication?).  Either of those could mess up
seizure control.

Just because you're asleep, your body still metabolizes the night dose? of
medication although more slowly than during daytime. Then you leave in AM
for the Gym without anything to start getting your Bloodsugar etc. ready for
the day??
  To be fair (maybe) wrt. the Doctors, if they don't know you're doing that
AM exercise and not taking any or little food, but (*I Assumed) taking some
kind of AM pill to control seizures, the Tablet is likely leaving your Liver
or Kidneys before you're done the workout.   Then you have all day without
whatever Target med. dose was set for you.
  Above was assuming you take some pills.   Even if you take none, the
Nul-breakfast startup with a Workout should be a Prime way to trigger a
seizure if you were prone to one -- that's almost as good as some people
'here' who take the 'Sleep Deprived' type of EEG where they get Wired (to a
portable monitor), then are kept awake for 2-3 days to Force a Seizure....
Heck, You could likely finish one of those tests by Noon the first day !!
:-<   G./
G.Ross - 17 Jan 2005 02:38 GMT
By the way, I'm sorry some (mine) replies seem to take longer than 'normal'
here.  I've been through 'Cyber Hell' (sorry Barb)   since just before New
Year's.   I'm thinking of opening an "Investment Training Course".    How to
spend 20 hours Connecting and unconnecting computers 5x 4 each  while 2
stores drain the Banks to Null-Fix my Olde xp1 computer, before finally
giving up and ordering a Pre Loaded DELL.  (Like Bob /sps suggested late
Dec. after I had already spent more than $400...  )

    This one just arrived Friday --LCD Screen as thick as a Magazine and
same size, although Diagonal size is Identical to the Microwave-sized CRT it
replaces--  'strange printer' (Prints 5 pages Backwards (top page on bottom-
may be a way to change that).  The HP printer on xp1, knew how to configure
a 5 page printout so the pages dropped page 5 bottom to page 1 top.

   If it wasn't for Coffee and Chocolate Chip cookies, this Year-End would
have been &**^%$.    There are some things I might give up for seizure
control -- but those 2 are not currently on my lists.

  And with other International Events at the time, as whoever said on that
song "We're /I'm  still standing"  so things could be worse.   Still,  if I
was a Lumberjack..  G./

> Ahhhh,
> get this, my usual habit is to not eat all day, drink a ton of coffee,
[quoted text clipped - 14 lines]
> BTW, I would really like to thank this group for all it's help and
> support--internet tis good!
Sofia - 17 Feb 2005 01:35 GMT
> Ahhhh,
> get this, my usual habit is to not eat all day, drink a ton of coffee,
> and take exedrine in the morning.  Would these factors lower blood
> sugar?  Would exercise (8/min mile) aggravate that?

Hi guys, I just wanted  to say how strange it seemed to be, that alot of you
were getting seizures and dizzy spells from excercising quite alot,and also
having a low blood sugar. You see,the reason for this, is that I happen to
be exactly the opposite - Although I get all different types of epileptic
seizures, I'm a complete and utter couch-potato, and I was diagnosed to
have a very low sodium count, which was put down to my tegretol absorbing
it all from my blood.

To try and improve my condition, I was then asked to lower my water content,
and add more salt to my food. I was just wondering if to improve the
condition of some of you lot, you could benefit by doing the complete
opposite to me - up your water content, and add an extra spoon of sugar in
your coffee perhaps?

Sofie
G.Ross - 18 Feb 2005 05:10 GMT
>> Ahhhh,
>> get this, my usual habit is to not eat all day, drink a ton of coffee,
>> and take exedrine in the morning. Would these factors lower blood
>> sugar? Would exercise (8/min mile) aggravate that?
*1* Reply to older post above, I might have done long ago -->
I don't know how the exedrine would interact with any anti-ep medications.
Your Pharmacist could tell you that, unless you have a website for whichever
AED you take, or find anything on Med. Directory at Ep. Foundation of
America glossary -http://efa.org .

> Hi guys, I just wanted  to say how strange it seemed to be, that alot of
> you
[quoted text clipped - 5 lines]
> have a very low sodium count, which was put down to my tegretol absorbing
> it all from my blood.
**2** Some of the earlier posts who were having seizures after heavier
exercise were likely getting those since the raised metabolism would burn
off whatever medication levels they had in their bloodstream.  If the
exercise rate was new compared to when they reached a therapeutic Med.
level, it would change the balance they had achieved before they started the
extra physical activity?
   I hadn't heard anything about Tegretol affecting *Sodium levels.  My
script told me to tell all Doctors and Dentists I was using it.  My Dentist
said it was because some people can have the Tegretol attack *Calcium levels
in their blood and bones, and that would show up First, often, in our teeth.
My checkup rate was changed from each 6 months to each 4 months in 1995, and
I have had some amount of extra Dental effects although my dose level hasn't
changed since before 1997. /

> To try and improve my condition, I was then asked to lower my water
> content,
[quoted text clipped - 3 lines]
> your coffee perhaps?
> Sofie
*3* I don't know what above would do wrt. Tegretol, which is used for
Complex Partial seizures mostly? or even other Anti Ep Drugs.  The Tegretol
is supposed to be taken with Milk, Food or Juice (not *grapefruit, as that
conflicts with Tegretol).
 If I'm home all day I drink the equivalent of 2 or 3   4-cup doses of
coffee (that's the Volume of the Thermos I use to prepare it), and I rarely
use any salt on *anything I eat unless it's already there on prepared foods.
  Except for above Grapefruit mentioned (before I found out about conflict
with Tegretol retention or absorption),  I haven't found anything else that
conflicts with my Tegretol.   Since I avoid known irritants -- alcohol,
upset stomach remedies and over the counter medicines that might interact--  
I haven't had more then 3-4 auras since about 1999.   (That only matters
since at first diagnosis in 1993, they suggested I might *expect 2-3
seizures per month, with type of Right Temporal Lobe damage I had, as found
on the MRIs. )   G./
kb - 30 Dec 2004 13:13 GMT
I just had this problem the other day. I started a gym this week. The
first day I just did the treadmill and I pushed a little fast since
everyone around me was running. I brought my heart rate up and then I
just stopped to get off. I almost passed out. I was so dizzy that I
couldn't walk or talk. A few hours later I had a seizure. Now I'm
afraid to excercise.
I'm on Tegretol and have simple partial seizures.
Kris
G.Ross - 17 Jan 2005 02:51 GMT
>I just had this problem the other day. I started a gym this week. The
> first day I just did the treadmill and I pushed a little fast since
[quoted text clipped - 4 lines]
> I'm on Tegretol and have simple partial seizures.
> Kris

 Do they have Instructors or Medics? around the Centre?  I wondered since
the one I belonged to in 1980s had a Doctor or Nurse test me during
different parts of exercise then configure my workout and time (on an open
track in my case, plus other equipment), related to my Blood Pressure/Age.
(I wasn't having seizures at the time)

  I thought if they were aware of your info. and medications (preferably
even talking to your Dr. as they configured your workout plan),  they'd set
up a series of exercises where they set a Start Point for you but increase?
e.g.  Length of time, or Tension and Equipment over 4, 6, 8 weeks to Target,
they'd expect, as if you weren't having seizures...
  Also if you were happy with the exercise etc. and increasing your level
of exercise, you might need to Increase your Tegretol (CR?) somewhat during
above, since your increased heart rate, metabolism etc. would purge the
Medications faster, than if we just sat under a Tree eating these
Muffins....  That's why I thought your Dr. might want input to them, so they
both can coordinate things or work with you so you could.  G./

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