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Medical Forum / Diseases and Disorders / Epilepsy / December 2004

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Dilantin and warfarin

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CyberCafe - 22 Dec 2004 03:49 GMT
Hi guys,

Remember when I told you all a couple of weeks ago that I had been
having return of seizures.  Well, I saw the neurologist today, and she
thinks the warfarin I take (a blood thinner, aka Coumadin) might have
interacted with the Dilantin.  The warfarin has been adjusted kind of
often depending on my blood level (how thin my blood is).  She said, it
works both ways; Dilantin can mess up the job the blood thinner does,
and the blood thinner can mess up the Dilantin level.  I'm supposed to
temporarily increase my Dilantin a little bit if I notice any symptoms
showing up.   So everything is okay, thank goodness.

Barb
Satch - 22 Dec 2004 04:49 GMT
> Remember when I told you all a couple of weeks ago that I had been
> having return of seizures.  Well, I saw the neurologist today, and she
[quoted text clipped - 5 lines]
> temporarily increase my Dilantin a little bit if I notice any symptoms
> showing up.   So everything is okay, thank goodness.

Good news just before the new year enters :-)

Signature

Thanks.

Marco
The Netherlands

Jodie Pedroza - 27 Dec 2004 21:24 GMT
Dear Group,
I am a 54 yr. old woman been diagnosed w/ gran mal, frontal lobe. I have
no job and/or ins.coverage so t/only type treatment I am allowed is
state coverage.  The specialists concur I should be on Dilantin and as
long as I take (100 mg) every 8 hrs. all seems well.
When I do have a seizure because I forgot medication (dose) I have an
aura, and a scream. It consists of  a conscience episode.
 i would like to know if anyone in this group has ever had the symptom
of their tongue coated black.
This is a first for me.As I said currently I am unemployed. But even
before I was laid off,  the company I worked for  offered zero insurance
coverage. So state assistance is best (only) medical coverage available.
When I go for treatment it is whoever is on call at county hospital and
not very clear. for any type consultation other than BASICS.
Could anyone shed any light on this at all?

Respectfully,
Jodie Pedroza
Bill X - 27 Dec 2004 23:00 GMT
> Dear Group,
> I am a 54 yr. old woman been diagnosed w/ gran mal, frontal lobe. I have
[quoted text clipped - 11 lines]
> not very clear. for any type consultation other than BASICS.
>  Could anyone shed any light on this at all?

Do you take your 300mg of Dilantin as one dose per day rather than 100mg
every 8 hours?  People I know on 300mg/day take it all at one time.

Regarding your tongue being coated are you taking any antibiotics or
penicillins currently?  I found this information that may be applicable to
your problem:

Black hairy tongue tends to be antibiotic induced. Tetracyclines and
penicillins are the primary culprits. Discontinuation of the antibiotic
often results in spontaneous resolution of the condition.
Jodie Pedroza - 27 Dec 2004 23:32 GMT
Hi,
Thank you so much for that insight.
I will speak to someone about  taking my dosage (300mg) at one time.
NOW, that would solve my problem as far as forgetting a dose.  I never
forget the first pill.
It is pretty traumatic as I have seen over the years nine specialists(
along w/eeg's and tests),
and I have yet to know what caused me to have epilepsy.
Could you offer me any advice nutrition wise.
All I have been told was some of the triggers plus what NOT to have and
do. But to actually help..as far as.. I really do not know about
antioxidents, minerals and such.
Again, thank you much.

Sincerely,
Jodie
G.Ross - 28 Dec 2004 03:53 GMT
> Hi,
> Thank you so much for that insight.
[quoted text clipped - 11 lines]
> Sincerely,
> Jodie

  Julie has a couple of posts still up on my reader.  If you have it on
your's she has the Idaho Ep. Website address at end of them -- you should
bookmark the entrance.  There are also 2 First Aid for Seizures Charts that
could be added to bookmarks --> a conventional one with info. for each of
the main szr. types, the second one is for First Aid in Water if you swim.
   The Ep. Foundation of America has a medications glossary within
http://efa.org   .  The General information is for reference, you probably
shouldn't tinker with dose rates etc. without talking with the Dr. who
prescribes the pills.   SOME of the pills have other things that can mess up
their working properly -- Alcohol,  Upset Stomach Remedies, and some Cold
Remedies (also contain alcohol or other chemicals).  I usual show any of
those to the Pharmacy who fills my prescription at least to make sure
there's nothing in the Scripts from the Pill Manufacturer to watch for.
  Also the Druggist might have a Daily Pill case like I use.  Keep a log
for AM, Afternoon and Evening dose, and write the Time you take each one.
Likely the first would be in Morning with Breakfast,  Second sometime in
afternoon? either late after lunch or ahead of dinner?  and the 3rd ahead of
bedtime with food, milk or juice.
   I don't know if there's any other stuff to watch wrt. Dilantin
(Phenytoin),  but I posted a few days ago about advisory I found for
Tegretol (My current pill) that said to avoid e.g. Grapefruit juice as well
as alcohol.     I was only able to use Dilantin for less than 6 months for
Complex Partial Seizures, then we had to move to Tegretol as it gave me
erratic seizures control -- working fine for 6 weeks then a bunch of
seizures, then fine again for 4-6 weeks, off again.    THAT became
disruptive as I couldn't trust that Anytime could be the time or day I'd
have a seizure while out and I'd wake up in Emerg. again since another
Shopping Centre didn't have a CPR centre or trained security staff.

  What did warfarin in the Subject have to do with Dilantin?   Isn't the
latter rat poison? G./
G.Ross - 28 Dec 2004 03:55 GMT
 I see now that Warfarin was from Barb's initial post and was a medication
she described on her first post as one she was using or had used.  Must have
mixed the name up with something else.  Ignore last sentence of post I just
put up.  G./

"Jodie Pedroza" <> wrote in message news:-...
> Hi,
> Thank you so much for that insight.
etc.
> Again, thank you much.
>
> Sincerely,
> Jodie

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