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Medical Forum / Diseases and Disorders / Epilepsy / November 2004

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Memory Loss

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owlvee - 01 Nov 2004 07:30 GMT
And while I'm here, my memory is getting worse and worse each day it
seems. Short term and long term! I am having small seizures often (a
coulpe times a week that I am aware of). I am taking Dilantin (400mg)and
topiramate (400mg) daily. I weigh 150 lbs. I am wondering if the
medication could be some of the causeor is it just the seizures. Has
anyone else had the problem and did they get some of their memory back
or am I just lucky enough to forget everything forever!...
:)
owlvee

Oh, and does any one know whose cruel idea was it for the word "lisp" to
have an "s" in it?
Mary Fisher - 01 Nov 2004 12:57 GMT
> And while I'm here, my memory is getting worse and worse each day it
> seems. Short term and long term! I am having small seizures often (a
[quoted text clipped - 8 lines]
> Oh, and does any one know whose cruel idea was it for the word "lisp" to
> have an "s" in it?

:-)

I think it was onomatopoeic.

Mary
Bob - 01 Nov 2004 15:07 GMT
>>And while I'm here, my memory is getting worse and worse each day it
>>seems. Short term and long term! I am having small seizures often (a
[quoted text clipped - 14 lines]
>
> Mary

I see you were lispening. :-)

Bob
Bob - 01 Nov 2004 15:01 GMT
> And while I'm here, my memory is getting worse and worse each day it
> seems. Short term and long term! I am having small seizures often (a
[quoted text clipped - 5 lines]
> :)
> owlvee

As I understand it, the same areas of the brain that are causing the
Simple Partials are also the ones responsible for some memory functions.
So that brain is failing in 2 ways: seizures & memory loss.

> Oh, and does any one know whose cruel idea was it for the word "lisp" to
> have an "s" in it?

Looks like it's been around a long long time. :-)

[From Middle English lispen, to lisp, from Old English -wlyspian(in
wlyspian, to lisp), from wlisp, lisping.]
[OE. lispen, lipsen, AS. wlisp stammering, lisping; akin to D. & OHG.
lispen to lisp, G. lispeln, Sw. l["a]spa, Dan. lespe.]

Bob
Dave ???? - 01 Nov 2004 21:38 GMT
> > And while I'm here, my memory is getting worse and worse each day it
> > seems. Short term and long term! I am having small seizures often (a
[quoted text clipped - 21 lines]
>
> Bob

Howdy Bob!

I don't know whether I'd call seizures "brain failure"...
if anything, a seizure is hyperactivity!

Signature

Dave ????

http://www.howdydave.com

Mary Fisher - 01 Nov 2004 21:51 GMT
>> As I understand it, the same areas of the brain that are causing the
>> Simple Partials are also the ones responsible for some memory functions.
>> So that brain is failing in 2 ways: seizures & memory loss.
>
> I don't know whether I'd call seizures "brain failure"...
> if anything, a seizure is hyperactivity!

Ah! I like that - I hope I remember it :-)

Mary
Bob - 01 Nov 2004 22:34 GMT
Dave ©¿©¬ wrote:

>>>And while I'm here, my memory is getting worse and worse each day it
>>>seems. Short term and long term! I am having small seizures often (a
[quoted text clipped - 26 lines]
> I don't know whether I'd call seizures "brain failure"...
> if anything, a seizure is hyperactivity!

Hi Dave!

Let's see if I've got this straight now. You're saying that there's no
such thing as a "failure" in the world if it's something that happens
speedily and with a lot of attendant activity?  So if you overrev a car
engine so that it blows up, you can't say that the engine "failed". It
was simply "hyperactive".<g>

And here I was thinking that a seizure was caused by the brain failing
to function normally.  Thanks for the lesson!  :-)

Bob
Chris Lesurf - 11 Nov 2004 00:55 GMT
I call fits short circuits. They seem to occur when my brain is too full.
This can ahppen when you're getting little stimulation but doing even less
so it gradually fills up and then overflows or charges up and then blows a
fuse or if you're getting stimulation too fast to use it all the same
thing happens.

WRT memory loss: mine's far more of a nuisance than my actual fits. And
please don't start saying you don't have fits but seizures because that
used to mean being seized by the devil so it's less of an innocent word
than fits because eveyone has fits of laughter (or temper).

The most annoying thing is when people say theirs is as bad or - like a
nurse who's supposed to be my support from the local psychiatric hospital
- not knowing definitions of short and long term memories (and probably
doesn't know the difference betwen freerecall and recognition either. I
shall take a delight in sending her the article that was in a past isue of
Epilepsy Action magazine. I'm also pleased that my CPN has reassured me
that to see another OT I don't need to go through her but he can put me in
touch with one.

CPN = Community Psychiatric Nurse  
OT = Occupational Therapist

There's hope for me yet. I do tend to remember things that have disturbed
me but I realise that's because I tell the stories to many people so I
learn them off by heart.

Cheers,
Chris L.
c> > Howdy Bob!

> > I don't know whether I'd call seizures "brain failure".> > if anything, a seizure is hyperactivity!

> Hi Dave!

> Let's see if I've got this straight now. You're saying that there's no
> such thing as a "failure" in the world if it's something that happens
> speedily and with a lot of attendant activity?  So if you overrev a car
> engine so that it blows up, you can't say that the engine "failed". It
> was simply "hyperactive".<g>

> And here I was thinking that a seizure was caused by the brain failing
> to function normally.  Thanks for the lesson!  :-)

> Bob
CyberCafe - 01 Nov 2004 15:39 GMT
> And while I'm here, my memory is getting worse and worse each day it
> seems. Short term and long term! I am having small seizures often (a
[quoted text clipped - 3 lines]
> anyone else had the problem and did they get some of their memory back
> or am I just lucky enough to forget everything forever!...

Yeah, a lot of my memory came back but it's still not like it used to be
when I was younger.  The three things that helped were going on seizure meds
(Dilantin right now), antidepressants, and taking a memory intensive
technical college course (my doctor says use it or lose it, referring to
memory/recall).  I went through memory testing as part of a university study
and they found (which I already knew) that my visual recall is better than
trying to recall verbal stuff for example. They suggested taking pictures of
events if I wanted to remember them later.  My daughter also helped me with
memorizing some family phone numbers (she has some training in that as part
of her occupation).  Those three things I mentioned above, the Dilantin,
antidepressant, and tech course, all seemed to improve different aspects of
memory/recall.  For example, with the anti-depressant I was able to pay
attention/focus much, much better especially to people when they talked
(that was very noticeable to me).  The Dilantin helped with the amnesia I
had the year prior to diagnosis, and so on.  Since there were big time spans
between each of those three things; it was more noticeable when things
improved and easier to figure out what was actually helping.

Of course seizures can cause memory problems, and in my experience with
simple and complex partial seizures, those memory problems can hang on for a
longggg time in-between seizures.   Are you having any minor symptoms
in-between your seizures at all?  How about seizures in your sleep; does
that happen to you?

Barb

> :)
> owlvee
>
> Oh, and does any one know whose cruel idea was it for the word "lisp" to
> have an "s" in it?
Mary Fisher - 01 Nov 2004 15:59 GMT
> And while I'm here, my memory is getting worse and worse each day it
> seems. Short term and long term! I am having small seizures often (a
[quoted text clipped - 5 lines]
> :)
> owlvee

I've been thinking about this post, seriously.

My first reaction is that memory loss isn't the end of the world, none of us
can recall everything, it's all a matter of degree.

My second is that your memory can't be all that bad if you can remember the
names and dosages of the drugs you take, it takes me some time to think of
the names of what I take, I certainly don't know the dosages.

The third is that you just might be lucky enough to forget all the bad
things. Some good things go with them but is it really important? You're
alive!

And kicking, it seems :-)

As for the cause, I suspect - but don't know - that seizures can damage
parts of our brains. My memory has certainly been worse since I had surgery
to remove the tumour, but I think my memory was affected by the tumour too -
it might have damaged the relevant part of my brain by pressure or
diminishing the blood supply - or of course it just might be aging :-)

Yesterday our baby (36) said how sad he was that he could remember so little
of his childhood ... but he's having so many new experiences every day (as
we all are) that it's not really important.

What things ARE important?

Appointments? I put them on the wall planner. Then forget to look at the
wall planner. The computer can be programmed to remind me.

Things to buy? I make shopping lists. Then forget where the list is.

Names? That's easy, you say that you're sorry, you can't remember someone's
name and when they say, "Mary" you say, "Oh I remember that of course, it's
your second name I forgot!"

That's not quite as simple when they're family names but the family is more
willing to be understanding of frailties than others, as a rule.
Grandchildren think it's quirky for Grandma and Grandpa to forget. I often
deliberately call them something odd even when I haven't forgotten their
name. Words like "Star" and "Tiger" are accepted, "Stupid Boy" is accepted
by ours because they know that it's not meant in a literal way but in a
loving one. They call me all sorts of things in return ... in the same way.

Birthdays? The pc helps again with this.

For some reason - have no idea why - we've kept a log of every car journey
we've made since the 1960s. We fill in the details before we get out of the
car, even if it's just a shopping trip. That growing pile of log books has
become a wonderful resource for reminding us of times we thought we'd
forgotten.

A Big Tip: when you take photographs either give them a proper title
(subject, place and date) on the computer or write the same on the back of
the print with a permanent pen.

The fact that you're forgetting shows that you're human. The fact that
you're concerned about it shows that it's not so bad :-)

Hugs,.

Mary
 
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